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Re : To Kris again

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Hi Kris,

I know what you mean about being worn down by the pain. By last

October, when those horrible upp-abdominal pancreatic pains were

really attacking me frequently and severely again, I walked out of

school and thought I would simply have to resign. I just couldn't

stand the frequency of the attacks. They weren't as severe as when I

was a child and adolescent but then they came only once or twice a

year for about a week at a time. I learnt to struggle through them

somehow, despite having no pain meds! I knew they would end and then

I would feel fine again. When the pains were coming every few days

or most weeks for a couple of days, I just felt that I couldn't go

on any more. I have been lucky in that the Creon/low-fat and no-

alcohol-at-all diet does seem to have helped me from all points of

view. When you get real relief for a time, you can face the pain

when it comes.

But take heart. You speak about having been " in a cycle " for a

couple of months. This disease does often seem to go through

different stages of development and different cycles. Hopefully

you'll soon move into a more bearable pattern and be able to manage

your symptoms better. You are fortunate in having an excellent doc.

I wish you relief and better health asap. Do you have the link for

the coeliac support group?

With very good wishes,

Fliss (UK)

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