Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 My son Tyler 8 had been on tobi for the full 28 dys, then they added another 2 wks, the last 3wks of that schedule they added cipro.I posted previously that he did not get much better.His pfts improved, but he still has a crackle so now he gets admitted on Thurs.The dr told me he would be on zithromax, cf coordinator dumbfounded, says will be on something else(Iknow I didnt pull that out of the air, I've never even heard of zithro before, but whatever).But now Im wondering why the tobi and cipro didnt clear the crackle.He use to do his vest once daily, but it was upped to twice a day, which might I add was a living nightmare for me to deal w/my ornery defiant son who hates the world because of this cf stuff anyway!I did everything I could just the way I was suppose to I now I feel a little like a failure (The fact that my husband and family insinuate that its my fault hes sick to begin with doesnt help.)The stress this cf puts on my household is, well I cant even find a word for it.But I am aware that my marriage cant sustain much more, its been a shaky 6 yrs anyway.(quite frankly I've outgrown him and we'd all be alot better w/out him but Ted was right when he posted how hard it is to make it as a single caretaker of a cfer, ESPECIALLY when you have other children). Patty, mom to Ty,8,w/cf and 2 wo/cf Quote Link to comment Share on other sites More sharing options...
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