's finally home

[Guest guest]

Hi all, Well..both Matty and mommy have survived the first hospital

admission. He cultured PA and had the 10 days of IV antibiotics. We

got home a day early, which was great. He must have had about 8-9 IVs

done on him while in the hospital. He lost another one on Friday

morning so the doctors said go home. We were pleased. was able

to trick or treat with his brothers. It's just so nice to sleep in my

own bed. He is on inhaled Tobi, which is added to his ventilin and

polmicort. I haven't heard him cough in a while now, it's nice. We go

back to clinic on the 14th, they said they would do another culture

then, fingers crossed its clear.

I met so many wonderful people and children at the hospital. I took

trick or treating at the hospital before we left for home. It

was an opportunity to see all the children who are in the hospital, it

was nice to see them all out enjoying themselves, if that's even

possible in the hospital. It was also sad though, a lot of them did not

look so good. It makes me think sometimes that I am lucky that Matty

has CF and not something else. Don't get me wrong though, CF sucks.

It's just so scary to see these young kids with tubes and wires and meds

everywhere. It's a sad thing to see.

Enough depressing talk, hope everyone is doing well. I am hoping for a

good finish to this year. Trying to get thru each day, being thankful

for the things I have and appreciating everything and everyone in my

life.

Cheryl, mom to 3 boys, Zac 7 yrs wocf, Jake 3 yrs. wocf, Matty 21 mos.

wcf