/ Doc? NO PANCREAS?PAIN?

June 2, 2004

In a message dated 6/2/2004 7:45:02 PM Eastern Standard Time,

I wonder why they use the word " Some relief " !!! Where is the

pain coming from if you have no pancreas ???

If ever anyone finds this answer out please by all means let me know. My son

Brandan had a TP/ICT in 2002 although his quality of life has greatly

improved he does live with what some call " Residual pain " or even has been

called

" Phanthom pain " we continue as we have to take things " ONEDAY " at a time in

hopes of finding this and other answers to a disease that seems pretty unknown

as

far as I am concerned and from what I have learned.

I am always willing to learn more for he will always live with the effects of

this disease. By all means if there are any specialist in the Boston area

that are of help please let me know. At times I feel as frustrating and unknown

as PAINcreatitis was, it can be just as frustrating and unknown territory

following the PAINcreatectomy. But if you ask us again if we would of done the

surgery, we would of but alot sooner had we been allowed too. I was told that

of all who have the TP 50% have no pain 40% have residual pain and 10% have

no change in pain. BUT it all depends on the person and how many surgerys and

procedures where done previously.

But as I said Brandans quality of life has greatly improved and he is not

diabetic. I just wanted you to know what I knew in regards to the no pancreas no

pain question. And again if you find out anything please by all means let me

know.. : )

As always keeping you and yours in our thoughts and prayers...Keep smiling

(cuz sometimes its all one can do!) TTFN.. : )

Peg Bates

Brwnbare9@...

Massachusetts State Chapter Rep.

Pancreatitis Association Intl.

" It truly is amazing how one person can make a difference. "

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