Re: /virtues pf cfparents list

[Guest guest]

This group is the very best. It is a psyche-saver at the

least, and a life-saver at its best, and always informative

and comforting--good passengers and great captains!

Love to all at cfparents; we all do what we can to help

one another all the time, even if it appears trivial! Well,

back to the neighbor's cat whom I am caring for for a bit,

n Rojaswcf, mom of 3 adults, youngest wcf, too

Re: Banter

> Amen e, I could'nt have said it any better. I feel that Cf

> can't control us, we have to control it.

>

> Margo

>

>

> > Please allow me to step up on my soap box and contribute my two

> > cents worth to the " improvements " that have been discussed.

> Before

> > I found this group I felt very alone. There was nobody I could

> talk

> > to about my fears, my frustrations or share the small milestones

> > with. Trying to explain to someone that gained a pound, or

> her

> > culture came back positive with PA, or her pft's were up

> oftentimes

> > would solicit a look of " why are you speaking a differnt

> > language " .and I would have to begin with the history of CF and it

> > just got to be such a hassle. Here, I can say " woohoo our pfts

> were

> > up " and everyone will respond and say " hooray! " and I know that

> this

> > is a truly heartfelt response from all of the people here. In

> > addition, nobody can relate to my daily routine without thinking "

> > boy, that stinks! " Whereas here, people say " keep up the good

> work,

> > you are a good mommy " . That to me is what this board is all about.

> I

> > get so much more out of the " banter " than I do the medical info. I

> > can always search the net for the medical info. I am not oppossed

> to

> > creating a file/forum for tech/med info, however, alot of that

> > information comes with personal feelings and experiences.

> > I also have a problem with the " off topic " issue. My life does not

> > revolve around CF and often times we all need a break from ALWAYS

> > discussing the disease. When people share non related CF stuff it

> > makes us feel like we are still human, and that this disease does

> > not control our lives.

> > Yes, putting the research and medical info into a file that is

> > easier to access is a great idea, but please do not take away the

> > banter!

> >

> > e

> > Mom to , 10 wcf, Ian 13 nocf ,and loving wife to a very

> > understanding and patient husband Damon.

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

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>

>

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