Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 That's what my doctor told me. It's due to the lack of labsorbtion of food and calcium. Plus the excessive use of Tobramycin. I have taken it since I was little. Over 18 years - too many for such a strong antibiotic. I started to have deteriorating bone density scans about 4 years ago. Especially around my hips, and knees. I can actually feel the difference. On Wednesday, December 3, 2003, at 11:25 PM, danieleverettharris wrote: > Natalia, > Can cf cause the Osteoperosis? > > Gale > > > > Gayle, > > You almost brought me to tears as I read your email. There were so > > many things that you said that made me feel better about today. I > have > > been going through the same things as your son. Suddenly after a > good > > run during my childhood and teenage-hood, I crashed during > university. > > I went through depression and took anti-depressants for a while. I > > went through times that I didn't want to do my treatments since I > > simply did not care, I was that depressed. School not only got it > the > > way, it confused me as to what was my priority in life. Only > during > > the past two years when my standard of living (as you said about > your > > son) went down a lot, and i was faced head on with what was ahead > for > > me. It blew me away that I was doing everything right in life > (with > > school, friends, family, i even volunteered, since I thought if I > was a > > super good person this disease could not get me) and still CF > crushed > > me. > > > > Tell your son to consider working out. I went to the gym last > night. > > I am lucky that I have a brother that does triathlons and knows > > cardiovascular fitness better than me, and he went with me. I know > > what it feels like to be so sick that the mere thought of working > out > > seems like absolute craziness. But tell him he has to go. He HAS > to. > > And if it means walking on the treadmill at a low speed for 30 > minutes, > > do that. Or walk stairs in the house. I am on IV right now and I > feel > > like hell. Weak and achy. My skin is all hollow from the > Ceftazidime > > and Tobi, and I just want to sleep. But I make myself go, put on > quite > > a show of coughing and wheezing on the treadmill and bike, look > like a > > total freak with the IV hanging out of my shirt. But you know what > it > > empowers you to do stuff like that. To show people that you are > > fighting for more than a slim figure, which is the analogy for the > gym. > > But people should be there for their health, and that's why I'm > there. > > Tell him to do it. And start super slow, and you will be surprised > how > > his body will react and help him along. And since school might be > put > > off, and other goals also temporarily, this will give him a goal > and a > > sense of triumph. Start with little goals and keep going. > > May we should set up a support work-out mailing list between me and > > your son, and then anyone who wants to join in. This is what I did > > last night: > > > > treadmill, 5min warmup (@2.6), 5x (1min@3..., 1min@2...), 5min > warmdown > > bike, 5-10 minutes level1, manual > > > > weights - squats - 2 sets of 10 > > - lunges - 2 sets of 10-20 (depending on how you feel) > > - leg press - 2 sets of 20 (light weight) > > > > bike 5-10 minutes level1, manual > > > > Does not seem like a lot, but it totally wore my into the ground. > I > > went home breathing easy, it felt great after, not so much fun > during. > > Tell him that he can do it. Even start at home with > stairs.....walks > > in the park. I believe that he can do it. It's crucial, and I > want to > > be there with him, even if just on line. I know I'm pushy, but > pushy > > will get you through the pain. > > > > Let me know what you think. > > Oh and about the arthritis, I have Osteoporosis, and brittle > bones. i > > feel it in my knees in the winter and my fingers. I load up on > pain > > killers when it keeps me from doing things. But it certainly does > not > > help anything does it. > > My heart is with you guys. > > > > Natalia > > <image.tiff> > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
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