Rosemary/ 's Son - Strength

[Guest guest]

Rosemary,

I love your courage. You are such a fighter. I admire your realism.

You ARE their lifeboat.

Love to you,

On Monday, November 17, 2003, at 02:37 PM, ROSEMARY3FOR3wCF@...

wrote:

> Very eloquently said and I agree to a certain extent but maybe my

> situation

> is different in that the time spent on treatments and money spent on

> co-pays

> have killed us.  With the kids sick at different times many plans are

> changed. 

> My kids are to the age of undertstanding and HATING IT!  My husband

> was my

> soulmate - whom I adored but CF has reaked havoc everywhere in my

> life.  His

> coping skills are escape and denial and I live in the real world.

>

> yes I hope hope for a cure, but for me I sometimes think of the

> Titanic ---

> with one child its easy to be hopeful with 3 you wonder " What are the

> odds of

> all three getting a lifeboat? "   I am really an optimist and a realist.

>

> , you sound like I did 7 years ago...when we thought only my 

> daughter

> had it.  2 diagnosis' later I am optimistic but a realist maybe even a

> cynic...........Hope is what keeps us going.  Without it why would any

> us get up and

> spend 3-4 hours a day doing treatments.    My life is my children. 

> Your wife

> is lucky you are so supportive..........STAY THAT WAY!!!!!!!!!!!  Its

> the day

> in day out living with CF that wears you down.

>

> What CF Center are you at?  

>

> Rosemary in NY with 3 children (13, 11 and 7)

> with CF.  I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

>

>