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Re: Re: Rant n Rave/n/

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, my own mother was shorter than you, and yet both

my grandmothers were about my height; I am so tall that

when I get out of bed, finally, in the hospital, and get dressed to leave,

the guy with the wheelchair usually en

quires as to whether I should like to push HIM! I was born 2.5 months

premature with meconium ileus--and this

is the result; my eldest sister, who was born normally at

8.5 lbs. was really shorter than our mother and much, much smaller in

structure--I had one other sister, still living, who was 5' 8 " and my

brothers (3) are all huge

and still living; everyone is much older than i, but looks ter

rific! I have cousins with rather severe cf who look terrific and are in

their 70's; all the others with cf, cousins,

their children and or grandchildren are or were male; I am

the only one with cf who is a woman--no, I do not regret

that--very happy this way! Actually, I think that dear

Arnold is about an inch shorter than me, and Bush himself

about another inch shorter. We won't embarrass Putin of

Russia, and oddly the head of Japan is quite tall--there is

just no accounting for us--we are all mongrels, after all is

said and done, even us with cf!

Love to yours, to you, and let us hope that Levaquin really does the

job--one of my favorites!

n Rojas

Re: Rant n Rave/n

> n,

>

> Whaaaaaaaat? You are a tall woman, you could tap Arnie on the

> head, ;-) ! And please, don't ever shut up, it would be quiet boring

> around here, :-)

>

> Love to you and hugs, although, I don't think I could reach to kiss

> you, I am only 5'4.5 " .

>

>

>

>

>

>

>

>

>

>

>

>

> > Rant n' Rave--I think that was a very good rant and rave and I feel

> the same

> > way--not dead yet but having major complications, and I do mean

> major despite

> > my amasing height and astonishing weight and pink cheeks (facial),

> or appearan ce of being as we say in Spanish of being " rosada y

> gordita,; " I am just plain

> > rosa (as my surname, maiden one) implies, and definitly " gorda, "

> which means in

> > Spanish " chubby! Now I was not chubby until I had seven joint

> eplacement sur

> > geries and major osteoarthritis set in, but I am not the 120 lbs. I

> was before

> > then either; my previous all time high was 134 at 5' 10.5 inches

> tall! The joys of aging, which as Kathy , wcf, at 59, says

> rightly, are a privilege denied to many. I am 66 and try hard not to

> rant and rave too much,

> > even about my youngest who is 38--I think--wcf, and doing very

> well. I try to

> > be thankful, but it is hard and the s Hopkins classification of

> cystic fibrosis as being " classic, " " non-classic, " or " cf-related! "

> does not really

> > help. I have always assumed that the difference, regardless of

> mutations was

> > in gene penetration, but I had best shut up for now, anyway.

> > I love to you all,

> > n Rojas, who appreciated the previous Rant n Rave!

> > > I have seen references made a couple of times now stating that

> > > doctors have told parents that their child has a " mild "

> > > or " moderate " case of CF. How can this be possible? Thats almost

> > > like saying you are only kind of pregnant. I understand that CF

> > > effects everyone differently and to different extremes. However,

> I

> > > find it hard to beleive that there are different levels. How can

> you

> > > have cf " mildly " ? You may not have extreme symptoms, but would'nt

> > > you think that there is a difference between symptoms and the

> actual

> > > disease. This bugs me. I would hate to think the doctors are

> saying

> > > this to help ease the pain for the parents/child which I think is

> > > misleading. lived with this disease for 9 years with no

> > > complications, no severe or extreme symptoms, so does this mean

> that

> > > she went from a " mild case " to a more " moderate case " , whats

> next?

> > > Will she graduate to " well its not that bad yet " case which will

> > > eventually lead to " theres no stopping it now " case? I just feel

> > > like if a doctor tells someone that their case is mild, then he

> is

> > > telling them that #1, it won't get any worse and #2, there is a

> > > chance that it will get better. Its just crazy.

> > >

> > > I could go on for another 2 hours, but will spare you all. Must

> be

> > > pms. Hmmm, no wonder my husband went out of town to go fishing

> for

> > > the weekend. So now you all get to listen to me rant and rave :)

> > >

> > > Thanks!

> > > e

> > >

> > >

> > >

> > > -------------------------------------------

> > > The opinions and information exchanged on this list should IN NO

> WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> > >

> > > ------------------------------------

> > >

> > >

> > >

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