New Member with questions

[Guest guest]

Hi,

I am a new member to the board. My father was diagnosed with chronic

pancreatitis 3 years ago after haveing an attack. After many tests

for what they thought may be pancreatic cancer they found that he had

pancreatic divisium and was sufering from chronic pancreatitis. He

was told to change his diet..no alcohol, low fat etc. He has had no

attacks in 3 years, is preparing for retirement and getting ready for

his executive physical in Aug. Meanwhile there have been several

family friends and neighbors that have been diagnosed with pancreatic

cancer. Our family is quite concerned, can anyone shed some light on

the connection between these conditions? and what we can expect in

the future with this desease. Will my fathers pancreatitis begin to

give him attacks? Does the fact that he still does eat some fatty

foods put him in danger?

I appreciate any answers we can get.

Matt

[Guest guest]

Well, we didn't get him fitted before the tenotomy so it looks like

our best bet, according to the orthotics office, is for them to get

permission to cut the cast off a few days before he is due to get

the tenotomy cast off, measure, order shoes (Markell's) if not in

stock, then put the casts back on (taped up), she had a name for

doing this to the cast but I can't remember what it was. You guys

know what I'm talking about though. Ugh, all this new terminology.

They do have a supply of those on hand but if not his size it take a

couple days for them to get them. I think it will work out doing it

that way since we're dealing with commuting all around the central

valley of California to do all this. I so appreciate everyone's

suggestions and input on this because then I knew what questions to

ask when I called.

Now, no one has answered my last question- Why did all the doctors

in this country ignore Dr. Ponseti for 40 years? It seems like many

children have suffered because the doctors weren't staying on top of

the latest treatment methods, especially something that was working.

>

> Generally the child is fitted for the shoes prior to the tenotomy.

This way they can go straight into the bar. It is the 's

that s/he is getting? If so, it takes about 2 weeks to get those!

They have to custom size them. If it's the Markell's it's possible

they may have a stock pile of different sizes. I would definatley

call and ask you Dr. who the Orthotist is, and then call them! If

they dont have them they may be able to do a quick change of the

Tenotomy cast and measure, take impressions of the feet for fitting

in the brace, then reapply a new Tenotomy cast? Also, if they dont

have the brace right away, you may want to insist on a 'holding

cast' until you get them! Their newly little corrected feet can

relapse in a days time! As far as the articulating bar, my daughter

has never had one. She adjusted to the 's in a day or 2.

There is some mixed opinions here about it, but I can say that it is

not necessary.

> Christee

> 3 boys

> Lilee A-Typical (11 months)

> P/M's 10hrs

>

>