CF/MISC W/GRANDMOMBEV

[Guest guest]

HOWDEEEEEEEEEEEEEEE YOU 'AL,

Another time has passed & I want to thank all you who wrote me &

acknowledged your prayer-good wishes-super vibes for those who were

having the extra problems last week. Some are doing much better & also ,

they fell the caring attitude from so many . Thanks you & bless you.I am

sure many did so & just didn't write about it -that is great. it is the

way it should be. on your own . I had just received some bad-sad news &

folks didn't want others to hear about it just then. Much is better .

GREAT -Super & all that good stuff.so off we go into the next

season...........

GRAG BOVE.. I do hope you have received many cards & are feeling much

better now

C. thanks for all your concerns 7 help in getting address to send

card. I do hope he is doing better now. Also , that you & yours are

well.

SANDRA A..it was great that you had the SSI info right there for Becky.

see, another great service for a poster . sharing is what the lists are

all about. So many with CF have problems with SSI & SSDI and what else

they can earn, etc. Thanks again..I hope Abbey is well........

BECKI, there are some org. that might help with something like a machine

.. Etc.Someone put this on line Friday & I saved it ,Go to

<http://www.r4stars.org..We> www.r4stars.org..We were told that they

will help & assistance on things. get the application on line. HURRY .

everyone will be doing it now :):)btw-what kind of machine- aneb

compressor??

KELLEY.. Sorry about that fainting , etc BUT it is great she is doing

better now.Loved the Rikers name , especially with her hubby being a

police officer & the prison . " Rikers Island .What a great sense of

humor!!

KALEN.. What wonderful information & I am so happy about your promotion.

I am sure you deserved it. day time work !! yeah for you (and the kids &

hubby too)

CLOYCE.. WOW-you got some great info for that doc to go over. Hopefully

that will really help the doc treat him so he wont have to go thru this

anymore. Your great to search for them.Who knows.maybe it is CVS.. that

sounds like the drug store (I don't want to mention-hehe). Let us know

the results. many folks here on these lists (listed above) have migraine

headaches. Super info. I also hope all is well in your home town,- all

the family , TARA & as well, Give them my love & hugs too:)

MISTI D,. WELCOME to the lists. you will find as all have told you .They

are such great support to each other here. We find it very hard each

time another angel flies away.But we all know that is possible even with

out CF. I think that is one of the drawing points to our list as we DO

understand & share that feeling & hurt as we loose friends or family.

Your letter to (your brother angel) was beautiful Bless you & thank

you so much for sharing with us all..I'll look for your posts again.

GINNY... Your name choosing was -is great .I do hope a great name is

selected soon. What was the name your in-laws thought was a great

giggle,- as you said? BTW, I sure hope your daughter continues to do

well. let us have updates:):

DON P.. WOW, your idea about contacting all those folks was great You

also lucked in that the Managing Editor was an RT , so really was aware

of CF . maybe others took your lead & did contact their local papers as

well. thanks for your doing such a great job at CF AWARENESS.I also

hope your crew are all doing well.

ERIC, Hey guy !! WELCOME back . it is great your starting to do better

& can be on line with us all. You do add so much to the list too.The

info on SSI ,SSDI,- etc is near & dear to many & is always welcome. Some

might already know , some first timers here ,haven't heard before , so

AGAIN.thanks .I am thrilled that you got yours back too!! Yeah..........

LENORA. You have done such a great job with all the AWARENESS " stuff "

we all owe you :)lots of gratitude for all your hard work & your

talents.

I have sent all the lovely brochures out in all cf baskets for last 2

weeks & will continue until they are gone , if they aren't already. I

wanted them out so folks could plan something during that week. It is

soon...............VERY soon!! your post was very eye opening .I do

sincerely hope that folks DO care & WILL help get the CF Awareness out

all over..........!!

BRIAN L. thanks for your information on the site www.r4stars.org and all

they will /can do to help the person with CF or their family. I have

referred several folks here on different lists to the site to get the

application . Many just need a machine(insurance wont cover 0 or some

items they must pay cash for. or their utility bill was very high with

AC & asthma attract time, & the list goes on. What a wonderful org. this

is: REACH FOR THE STARS FDN.

Bless you all

TAMMY.. I do hope that is doing well as I write. IV'S are no fun

, especially to a 9 year old (anyone for that matter). I cant believe

you " STUPID insurance company . They do get all messed up easy. They

just don't realize how that is to the ill person, they just have paper

problems.

I hope you got the info on APRIL I posted . She wants calls &

letters/notes . She doesn't have computer , nor internet right now .$$

are very tight .

ALL-APRIL H.. SHE IS HOME. She is having chronic rejection & they have

the only med that she can have & they are thinking of others for her.

Possibly another TX. Also having bone(knee) problems that is due some

surgery BUT they don't want to do that because of the TX condition. keep

her in your prayers. If she gets on line , she will write. ..

HI APRIL.INCASE YOU HAVE GOTTEN ON LINE. it was great talking to you .

call me again soon with your update. I will post to list whatever you

say to.

SHANA.. yes we do have the ABDEk . they seem great . Having the B in

them , just adds their value to each one. I do hope your doing o.k.

today. Love to Kurt as well.

KATHRYN, I am glad you did get some of the vitamins. You all should know

that the ABDEK are even better.we have tons:):hehe

Also , some folks have taken the ADEK capsules & put a pin point hole

in the capsule & poured into the wee ones mouth, the liquid in vitamin

soft capsule.

We send many overseas & that's is what they do also. We can even put a

very small eye drop syringes with order for use if wanted (no charge) .

We do that with our Emulsa E ,that we make in flavors too:) Much less

expensive than 'Aquasol E " & others. -just some tips as the drops

are back ordered again. ABDEK is

plentiful......................

AGNES.. I am happy to hear all is getting so much better for each of you

.. dropping Spanish & getting on well with his life .doing

exceptionally well in his art / history, etc. Bob feeling a wee bit

better & the blood starting to flow thru the " boss's " veins -almost

human like now. YOU -lady need to take abreak,a book & hide in acorner

& take care of you . Holidays are going to get really busy for you at

work ..........take care , stat early in anything you can. Prayers for

you all ----------light is still on for you .

BRENDA M . I was so very happy to hear all was well in your neck of the

woods. it is such a delight when our kids are doing nicely . I want you

to be sure your doing well also. I hope all is well with your VITAMINS

too! :)

DAWN M.. well gal , another day, another dollar As usual you have all

under control in your home. I am so pleased each time you post.Such

helpful list members

DORI O. The GSH has been being used by some folks for years now. I hope

that after the big CF conference in 2 weeks , many docs will be more

open to it's use by those with CF . I hope you got the needed info you

wanted.

NANCY. I loved your version of the HIPPO (A) I think that is great how

you described its way of making medical facilities go stark raving

mad!! thanks

SUSAN (wsj2936).Absolutely the funniest .We all here at the pharmacy had

side aches from laughing so hard & so much. That was a riot!!! thank you

.. !

JEN. I do hope you all are doing well . I know is a big part for

each of you too. prayerfully the IV's & all the trauma is slowed down

for Josh & Mal.

Give them all a hugs from me. Ron TOO!!!

ERIN. hi & how are ya doing ?/ I haven't seen you on line much . I guess

your just laying around resting -right ??hahahehe take care.

SUSAN (mom to many) this post is caring many prayers for you & all your

brood , especially . take care of you too.

KING RICHARD. you know we all sent you & yours prayers for a special day

.. They all continue to flow. know we love ya king guy!! Also your

precious family.things will smooth out soon too.

JILL I am sure your going to have a blast when ROY gets here .I am

excited for you too. That new job sounds like it is working out . I hope

so . I do like the days & time schedule. Is that working into all your

other schedules?? hope so .Give the big kids a hug from me. Wish you

were able to go to the conf. maybe next year you & Roy can come!!

LISA. How is Milan . You have been so busy, we haven't heard . OR maybe

your computer was being mean like so many that just had bugs, virus, etc

in them. I hope its well now. How is the Milan FDN > coming along. I

have been very busy getting my ed day set up for NOv1.I will be out of

town next week so have to get all ready before.

OOoooooooops,I have to get going.

I hate to close, but I have another football game tonight .another

grandson, this time it is TJ (Tommy Jack. he is really one of the

" GREATS " They keep saying , ANOTHER sack by Gallagher !! We scream our

heads off too. Most of all family attend . each others games too so we

have our own little cheerleading group . Jakes basketball was last

night .another winner:)

his game (football ) Tuesday was called due to rain (had lighting so

they don't let them play..ANYWAY.My evenings are games & shows. hahehe

oh, Carly is in the show fantasia at Disney . She plays Poppins in

that . Regular other times , she is Cinderella on the parade floats & in

the park at Character spots with the guests.daytime she goes to UCF.--

anyway. we stay busy................ love ya all!!

LOVE & HUGS<

GrandmomBEV

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