Another invitation to be interviewed by the Genetics and Public Policy Center at Hopkins University

[Guest guest]

Dear Sir or Madam:

I would like to invite you to participate in a research project. The

Genetics and Public Policy Center at s Hopkins University is conducting

this project. We would like to interview people who have used or considered

but declined to use preimplantation genetic diagnosis (PGD) to have

children. This interview will help us learn more about peoples’ ideas about

having children and the use of this technology. The interview will be by

telephone. We will pay people who are interviewed $50 for 1½ hours of their

time. People can participate if they are over 18 years of age, speak

English, and have considered using PGD for childbearing.

We will use what we learn from this project to create educational materials

and policy suggestions related to genetic technologies. The Pew Charitable

Trusts paid for this project. More information about the Center can be

found at www.DNApolicy.org.

If you want to be interviewed, what you say will be tape-recorded. We will

then write out what you said. We will erase your last name and all personal

information that might be used to identify you from the written transcript.

We will combine your interview with the interviews of others and write a

report that will be public. We will interview 65 other people as a part of

this study, but only 15 people who have used or have considered using

advanced genetic technologies for childbearing will participate. A s

Hopkins Institutional Review Board (IRB) reviewed and approved this project.

If you would like more information about being interviewed, call toll-free

1- between the hours of 9 am and 5 pm EDT. We will take the

first callers who qualify, so please call soon. When you call, please

identify yourself as a health care consumer. A staff member from Abt

Associates, a contractor helping the Hopkins researchers, will talk with you

about the study. He will ask you some questions to see if you qualify and

will schedule the interview. Your participation in this study is voluntary.

Your health care providers will not know whether or not you participate. If

you agree to participate, you may choose to stop at any time, for any

reason. A disclosure statement about this study is located at

http://www.dnapolicy.org/disclosure/Interview_Disclosure_Statement_$_7-21-03

..doc

Thank you for giving this your consideration.

Sincerely,

Kathy Hudson, Ph.D.

Principal Investigator

Regards,

Soohoo

Program Services Manager

2672 Bayshore Parkway, Suite 520

Mountain View, CA 94043

Tel:

Fax:

Website: www.cfri.org

E-mail: progmgr@...