SV: Sandostatin, Sonja, weakness, musclepain

[Guest guest]

Dear Deanna, please read the very informativ message from Lynn

Chandler!!!!!!!

Hello Deanna, I have been using Sandostatin for about 3 weeks and in the

beginning felt as it was helping me out. But as it is so unpredictable

my attacks and pain it all hit me again last week for 3 days and my

despair just went 100 degrees. No real side-effects in this short time,

but I dont know anything this is just a wild guess and trial. It seems

this is a quite new treatment, has been used after pancreas surgery

before and carcionomas and so on.....Who else knows? I am also curious

if any more information about this treatment would be available. Noticed

that muscle pain and weakness was discussed. I am totally wiped out when

having an attack, the whole body hearths, muscles, cant hardly walk,

dizzy spells. Well, I hope for a new doctor next week, possibly couple

of days in hospital, will ask more there. Sandostatin has been given to

me by a med.doc friend. Many kind regards Sonja