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Re: Sunshine & Dr. Michet

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re:<<<<<with Dr. Michet...hope this

one is not a jerk>>>>>

Sunshine, Dr. Michet is my doctor at Mayo and he's wonderful. Ask

him to share with you how some of his other RP patients are doing,

coping, etc. It's a source of hope and inspiration. As a matter of

fact, one of our other RP members from Hawaii is seeing Dr. Michet as

we speak. I'm anxious to hear how her visit went upon her return.

This is only my opinion, but I'm living proof that with good doctors,

good medicine and lots of hard work exercising, healthy eating, etc.,

I have shown this darn old disease who's boss - ME. It took a little

over a year, but I've been able to control the RP. I'll never take

for granted that it's gone away, but I found ways to keep it " asleep "

and I intend to keep it that way for the rest of my long healthy and

happy life!

(KC)

> Boy, now i'm not so sure Mayo is going to be able to help!

> My ENT said i would be wasting my time and $...there is no test to

> conslusively diagnos RP and he maintains he is 100% sure i have it.

> But the Rhuemy here says i don't have RP based on a CTscan. I just

> want two opinions that agree...not so simple, i guess. Anyway, i

> haven't been able to get on the computer and keep up with y'all,

but

> my appointment at MAyo is the 22nd of Aug with Dr. Michet...hope

this

> one is not a jerk, as y'all know tooooo many of them are!

> My thoughts are with the group often. Prayers to all you all and

> extra ones for those of you in extra big need...hope surgeries go

> perfectly, jobs are found quickly, and all illness goes AWAY!

> Love, Sunshine

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