Re: [RPSupportandAwarenessFoundation] Heart tests

[Guest guest]

, Glenda and whoever else I'm forgetting. LOL , I will ask Dr.

Reitz if he will write something for us about the condition of my valve vs a

normal valve problem. That is a good idea.

Yes, I was talking about a echocardiogram. As I said I had them regularly

and they really didn't show a whole lot of change. I thinkg the angiogram

they did showed it all. They did the one where they saw both the left and

right side of the heart and measured the pressures.

I'm not saying we should all run out and have an angiogram. LOL but I do

think that an echo for a baseline would be of benefit. It will show if there

is any problems with the valves. If you happen to catch one, then have it

watched and give your dr all the info you can on how RP affects the heart. I

will try to get as much info from my drs as I can and maybe we can spred the

word to the cardiologists.

We just have to remember to have all our annual basline tests done and keep

on top of things.

I'm trying to play catch up with the digests and am probably way behind.

sorry.

I'm going okay and hopefully making progress daily.

love you all