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Nina

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Welcome Nina!

I am sorry that you have been alone with your diagnosis for so long,

but I'm glad you found us.

I am newly diagnosed (12/01), although I've had RP for at least 3

years, if not longer.

I am 38 and do not have any pulmonary involvement, or involvement of

my trach / bronchial areas. I am on methotrexate (20mg. once a

week), 30 mg. of Prednisone daily (although I'm slowly decreasing

this, by 2.5 mg. every two weeks, and Colchicine and Indomethacine.

I have not gotten much energy back since being hit with the intial

extreme flare in December, but the symptoms have lessened in

intensity quite a bit.

This group is good, because it's there when I need it, but I am

signed up to read the posts on the web site only, so I don't get

overwhelmed with email and can take it at my own pace.

I have learned a lot about others' experiences, which has been

helpful and interesting. No one's experiences are exactly like mine,

but chances are, anything I am experiencing, someone has seen and can

share notes with me.

Well, enough rambling. Welcome!

M

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