Sally

[Guest guest]

--- TheNavigator01@... wrote:

> Great to hear from you cann't wait to learn more

> about the family!! .

Sally, sorry to hear you have rp but welcome to the

group. My name is Liz, I am 58, English, single. I

work in Saudi Arabia but also spend time in

California. I have been diagnosed for 4 or 5 years

(isn't that awful, I can't remember!) but I am pretty

sure I have had rp since at least 1988 which is 14

years. I had a lot of breathing problems which were

supposed to be asthma. I do have asthma as well, but

doctors used to say it wasn't typical blah blah, it

wasn't until I had inflamed ears I was dx.with rp.

Since I have been on a combination of meds (for me,

prednisone in varying doses, methotrexate 17.5 mg per

week, plaquenil 200mg daily) I have been pretty well;

I get short of breath occasionally but I don't

reglarly end up in the ER any more! I have back and

joint problems, which in my case I think are a

combination of rp and degenerative disease. However I

am still able to work, although not as hard as I once

did!! I also have diabetes 2, Raynauds, asthma,

underactive thyroid, highcholesterol. So I take a

whole lot of other meds which I am very careful about.

I also take acidophulus to minimise yeast infections;

fish oils (heart and joints) multivitamins. I also

try and exercise regularly and eat healthily although

I am not always successful in this!! Lots of lotion

for the dry skin and occasional pain killers i.e.

celebrex.

The group has been an enormous help to me; you will

talk to some wonderful people. I have been able to

put it all in perspective and get on with my life; I

feel very thankful about this ; there are people who

listen AND understand, this is such a blessing. Take

care, look forward to reading your posts, love Liz

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