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ADMISSION FIASCO

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We left home just after 6am for her admission at 7am. First thing to

worry over was the bed situation. Apparently there are no other cf kids

in the ward, except those ones in the side rooms. Eilish would then be

'okay' to go into a 4 bed bay with non infectious kids. Apparently if

any other cfers with PA etc. come in they will put her in a side room.

This is totally against what we have always done. and I fought

all morning with the registrar, cf co-coordinator etc. Then at 12.30

p.m. we were still waiting for her PICC line to be put in. About 12.45

the god awful registrar came in to tell me the radiography machine used

for it had broken down. They were sending her home and to come back

Thursday. That was the straw that broke the camels back. I stormed out

of there and cried all the way home. It was everything on top of each

other. Do they think we have nothing better to do than sit there for 5

hours for nothing. So is asking his work if he can have Thursday

off to take her as I just don't want to take her again. The cf

registrar phoned me a short time ago to tell me that they will not put

Eilish at risk and as soon as anyone with any PA etc. come in she will

be moved. The thing is she will love it as for the first time she will

have people to play with, but how on earth will we get any sleep let

alone privacy. Then when poor stays it will probably be with

other mothers in the room, so they will all feel uncomfortable.

I just hate this crap. So now I am waiting to enrol to up date my CPR

certificate before I can do home IV's. You have to have a current

certificate to be able to do that here. Mine has expired. I feel so

totally drained all I want to do is sleep. is taking us out to

dinner tonight.

Sorry to moan but it has been a very awful day.

(Australia)

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