questions

[Guest guest]

It's so hard not being geographically close to my niece. I hate asking my sister

too many questions because she is still so overwhelmed by all of this as

was only diagnosed in September and since she had her 1st tune-up in October,

they have only had to do the treatments on their own for a few weeks. It's a

daunting task, as you all know. Plus, getting all the meds and the huge expense,

finding the time to do it all and the list goes on and on.

Anyway, I just found out yesterday that my niece has pseudomonas. I didn't know

she had cultured for it. Hence, the TOBI treatments are starting. I do have a

question, however. My sister is thinking of getting my niece up an extra 1/2 hr

earlier to get the TOBI and vest treatments in. She said they need to be done

around the same time tho they can't be done together. Does anyone know if this

is correct? If she could just do the vest in the morning and do TOBI after

school and at night it would be so much better. I hate to see her get up so

early on a school day. It will make for a very long and extraordinarily tiring

day. Also, does anyone know how far apart the treatments need to be? Actually, I

don't even know when she does her pulmozyme. It surely is a juggling act.

However, I know they'll all do fine once they get it all figured out.

Sorry for the rambling.

With caring,

Jill

[Guest guest]

Pulmoyzme was recommended to be done in the morning - as it is a musous

thinner and will bring up secretions throughout the day. We DO IT at night.

Its

impossible for us to do in the morning. The concern about at night is that the

child will be coughing all night and won't benefit from pulmoyme as much.

Forgive my spelling. I am taking lessons from MARION - just kidding.........

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Yeah, I am famous for my faultless typing!

Love,

n

Re: Re: questions

> Pulmoyzme was recommended to be done in the morning - as it is a musous

> thinner and will bring up secretions throughout the day. We DO IT at

night. Its

> impossible for us to do in the morning. The concern about at night is

that the

> child will be coughing all night and won't benefit from pulmoyme as much.

>

> Forgive my spelling. I am taking lessons from MARION - just

kidding.........

>

>

> Rosemary in NY with 3 children (13, 11 and 7)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

>

>

[Guest guest]

My doctor said that if i didnot get enought protein that my hair would

start to fall out. They told me to drink desiner whey protein drink

that you get at gnc.

> I had surgery April 2, 2004 and so far I have lost 53 pounds. Am I

> right on schedule or should i have lost more? I started at 271 and

> now i am 218. I cant seem to lose any weight the past 3 weeks. I

> went through a period of gettin sick when i ate the past 3 weeks and

> had a upper GI study and the doc said everything is ok. when am i

> going to lose again?! also my hair has been falling out so much the

> past 3 days. any suggestions?! why is it falling out?! is there

> anything i can do?! IM ONLY 18 I DONT WANT TO LOSE MY HAIR!!! please

> help

>

> Jenipooh85@h...

>

>

[Guest guest]

Hi!

Congratulations on your weight loss!

You've hit your first plateau and that's very normal. I found I'd hit plateaus

almost once a month, with a quick drop of a few pounds immediately following.

It's frustrating, but you need to realize that your body needs time to adjust to

all this.

Also, you should recognize that everyone loses weight at a different rate, even

with gastric bypass surgery. If you are eating properly and exercising you are

doing fine. Don't let all the weight loss ghosts that have haunted you in the

past get you down again.

Finally, your hair! It's pretty common to experience hair loss, usually at 4-9

months out of surgery. Make sure you're getting the proper amount of protein

daily. I also starting taking Hair, Skin and Nails Supplement from GNC. It

didn't really help with the hair loss, but my hairdresser thinks my hair grew

back quicker than most she's seen. I also hoped this suppplement would help my

skin respond better to the weight loss (ie: firmer, less sagging).

Hope this helps.

-------------- Original message --------------

I had surgery April 2, 2004 and so far I have lost 53 pounds. Am I

right on schedule or should i have lost more? I started at 271 and

now i am 218. I cant seem to lose any weight the past 3 weeks. I

went through a period of gettin sick when i ate the past 3 weeks and

had a upper GI study and the doc said everything is ok. when am i

going to lose again?! also my hair has been falling out so much the

past 3 days. any suggestions?! why is it falling out?! is there

anything i can do?! IM ONLY 18 I DONT WANT TO LOSE MY HAIR!!! please

help

Jenipooh85@...

[Guest guest]

I had my surgery 5/27/04 and I have lost 32 lbs. It seems that you

are right on track. I was 261 the day of surgery. I had problems

eating this week and have already hit a plateau at about 4 weeks out

and it lasted almost 3 weeks. Don't worry, concentrate on inches and

staying on track! My hair has also been coming out and I worry

because I am only 22. Eat lots of protein, drink lots of water, and

try Nioxin shampoo or hair supplements.Hope this helps some!

Bethany

5/27/04

281/261/229

> I had surgery April 2, 2004 and so far I have lost 53 pounds. Am I

> right on schedule or should i have lost more? I started at 271 and

> now i am 218. I cant seem to lose any weight the past 3 weeks. I

> went through a period of gettin sick when i ate the past 3 weeks

and

> had a upper GI study and the doc said everything is ok. when am i

> going to lose again?! also my hair has been falling out so much

the

> past 3 days. any suggestions?! why is it falling out?! is there

> anything i can do?! IM ONLY 18 I DONT WANT TO LOSE MY HAIR!!!

please

> help

>

> Jenipooh85@h...

>

>