Re: Advice on following up with CT

[Guest guest]

I don't think CT is intentionally not treating your son. If you look at the

research, it shows that optimum results are before 12 months. I think that CT

doesn't want you to waste money and get your hopes up for results in treatment,

and have it be a waste of your time. If you feel like it needs to be treated,

you should see your ortho or ped and ask them what the next steps are since the

Star band treatment didn't work and your son is 16 mo. Good Luck.

> > >

> > > Hi,

> > >

> > > As everyone has probably read, we tried to reband with CT in

> > southern CA

> > > and they said they couldn't make a band. I'm extremely upset,

> > > especially since at first they said they would. After they said they

> > > would band, I was thinking there was at least some hope, and now it

> > > feels like there is none. CT confirmed 's mild plagio, said his

> > > head is pushed forward, and noted facial asymmetry. Then they did

> > > nothing to help. ly, after following this board, I am skeptical

> > > that they cannot make an effective band, even if the improvement is

> > very

> > > small. The people who decided they couldn't band went by his pictures

> > > and measurements, which were slightly lower than the Starband

> > > scanner's. (According to the scanner 's asymmetry is around 6mm,

> > > and they measured 5mm.) It seems they would at least need the imaging

> > > or to look at to make this final decision. We would be happy to

> > > bring back in.

> > >

> > > Honestly, to me this seems like poor business practice to say they

> > would

> > > band and then not. Further, if they were going to refuse to band, I did

> > > not need to hear about 's asymmetries and they could have kept the

> > > report. After all this, I feel that it is the moral thing for CT to

> > > make an extra effort to help us with a band.

> > >

> > > Does anyone have any advice on following up with CT? Who would you

> > > contact? Is there any branch of CT that is more open to banding a

> > > mild, older baby? What I would like is for one of their more technical

> > > clinicians to meet with us, reexamine , and honestly work with

> > us to

> > > try and fit him. If they still cannot, then I understand.

> > >

> > >

> > > Thanks in advance,

> > > Kathy, mom to , 16 months, 4 months in Starband

> > >

> >

> >

>