preventative antibiotic use

[Guest guest]

Preventative antibiotic use....does it work or does it create more

problems? My daughter is 27months, diagnosed at 3months and has not

been hospitalized nor prescribed any antibiotics thus far(I would

like to keep it this way). Anyway the clinic we deal with is

concerned she may be harbouring a bug because her weight gain has

been slow, she hasn't lost any weight but her curve is under the

fifth percentile(personally I think these growth charts that we

compare our children to do not take into account exclusively

breastfed babies, they are all based on formula fed babies) I say

this because my daughter was exclusively breastfed until 18 months,

and when I compare her to other children the same age who were

exclusively breastfed she does not differ hardly at all.

However, because the clinic feels she isn't growing normally? they

want to put her on a round of Tobi and other antibiotics just in case

she has a bug. I have denied a bronchoscopy because of the risk of

getting PA after it, and as well I don't agree with exploratory

procedures. Suffice to say, the clinic does not agree with my

decisions and feels that the therapy we are conducting isn't enough.

Eventhough blood tests come back indicating good overall health and

her x-rays show no congestion in her lungs.

It infuriates me that these doctors can't see past their studies and

do not take into account individual characteristics. CF has upwards

to a thousand different mutations then also consider modifier genes

that can also affect the severity of the disease, how can these

doctors feel so confident that these drugs are good for our children

when they(drugs) haven't even been around long enough to properly

understand the effects of long time and rountine use.

I use a very natural and wholistic approach to my daughters treatment

from chinese herbs, vitmain/mineral supplementation, to a very strict

non-proceesed, raw diet. We don't have any acid reflux, sickness

(viral), lung problems, developmental delays nothing, she is a very

vibrant, smart and happy-go-lucky two year old who has CF. However,

the clinic rolls their eyes when I explain she doesn't drink milk

because there is too much phospherous in it which leachs calcium from

her bones, so I make her almond milk instead which has a higher

content and more absorable source of calcium and protein. " We're

sorry but there isn't any conclusive evidence that proves this " , well

then I must be getting my info from some sci-fi novel!

Is there anybody else out there who is confronted with these same

battles? Where you feel these traditional procedures and therapies

are creating more problems than they are solving? Where having an

educated, researched opinion of your own doesn't matter because you

are not the doctor? I tell you sometimes I feel I am in a room full

of car salesmen.

I am very interested in hearing from anybody who has any opinion on

antibiotic use, good and bad. We have to remember most doctors

graduated with an average score.