Re: Digest Number 2647/ & Mayo

[Guest guest]

In a message dated 08/01/2002 4:31:06 PM Central Daylight Time, Rpolychondritis writes:

Well, at 2 p.m. I got a page! When I returned to the area, the

receptionist surprisingly exclaimed, "they paged you?" YES, persistance

does pay!

So, Sunshine, don't take NO for an answer! So much traffic occurs at

Mayo, and appointments get rescheduled all the time! You don't want to

stay at Mayo any longer than necessary (hotel bills do add up). If anyone

gives you the run around, just see a patient representative.

Hi ,

We found that out by mistake and every apt. I had we went early or the day before, sometimes we got in and others we didn't. lol I wish I could go back with all my apts. intact and know for sure everything they are going to do.

Did you feel like the Mayo Clinic helped you? When you feel like it please let me know. Thanks!

Love,

Lu

[Guest guest]

LU, did you also see Dr Michet? How did you feel about your trip

there?

Tommorrow, I promise, i am joining the foundation...check will be in

the mail...this group is soooo valuable! Next on my list is the

Medic alert(codieine allergy)(if not RP)... daughter has worn one for

about 22 of her 24 years. She also has too much to engrave on the

bracelet...that is part of what is so nice about the on-line

info....room for everything and any changes.

KAREN (aloha), i am gathering/organizing my records for the Mayo trip.

your input has been so helpful! Hope yo have recovered from jet-lag.

I have relatives in Hawaii, but have never been there, myself. My

husband was there in the Navy about '68.

SQUEEK, yep, i'm very independant also, very hard to accept any

help, let alone ask for it! i'm learning, though...hey i AM a

recovering worrier! Pretty much i do o.k. So far, thank GOD, i have

been able to continue my very active life-style. i do my best not to

let things slow me down...doesen't mean i don't pay for it,

though...many times i " cowboy-up " all too much!

We live on 5 acres in a 100year-old farm house in the middle of Iowa

corn & bean fields. Our daughter has 6 horses(2 are babies) I have a

pony. My husband and i love yard-work and gardening...flowers and

perenials, not veggies (the kitchen being my least favorite place

except when it comes time to eat!) Anyway, we are very busy!

My daughter was unemployed was during my most tired (RP?)period...she

lives at home and was a BIG help! MICHELLE, that is one way it

worked out for the best that she was unemployed! I was able to rest

more on the weekends and evenings after work.

Happy Birthday, SHARON!

BLUWHITE, i used to be PAINfully shy...went to 18 different schools

growing up, it was difficult! Now i'm not shy anymore and i'm having

SO much fun with THAT!

EVERYONE, my co-worker and friend has just told me that we are on her

prayer list at church...she is quite the gal! Love, Sunshine

---

In Rpolychondritis@y..., Lu1953@a... wrote:

> In a message dated 08/01/2002 4:31:06 PM Central Daylight Time,

> Rpolychondritis@y... writes:

>

>

> > Well, at 2 p.m. I got a page! When I returned to the area, the

> > receptionist surprisingly exclaimed, " they paged you? " YES,

persistance

> > does pay!

> > So, Sunshine, don't take NO for an answer! So much traffic

occurs at

> > Mayo, and appointments get rescheduled all the time! You don't

want to

> > stay at Mayo any longer than necessary (hotel bills do add up).

If anyone

> > gives you the run around, just see a patient representative.

> >

> >

>

> Hi ,

> We found that out by mistake and every apt. I had we went early or

the day

> before, sometimes we got in and others we didn't. lol I wish I

could go back

> with all my apts. intact and know for sure everything they are

going to do.

> Did you feel like the Mayo Clinic helped you? When you feel like it

please

> let me know. Thanks!

> Love,

> Lu