re: thinking of going off the diet

[Guest guest]

Re-posting this message for Suzanne......

----- Original Message -----

Hi everyone,

thank you for all your responses. It is not that she has not

progressed--she has a little bit. The fact is, behaviorally, she was

doing well before the diet. Her language was pretty good, she was and

is generally happy, and she was making progress (albeit slow) in

school. We are not seeing any regression--that is not why I am

considering introducing whole grains. My main reason for going on the

diet was to improve her bowels and heal any remaining damage in her

gut. So far, so good. We did see the bloating in her stomach reduce

and her stools went from being yellow-brown soft to usually light brown

and firm.

Now, because of the problems we are having with protein toxicity and

the newly-discovered reasons why this is happening (genetic mutation in

one of the CBS enzymes), I have to be realistic about what makes a good

diet for my child. We would not bring back potatoes or any simple

starches. Only whole grains and only brown rice to start with in small

amounts. For most people, whole grains are a very important part of a

healthy diet. I am just wondering if she can handle and benefit from

small amounts, especially if it means I can reduce some of her protein

intake as a result.

I can tell you what she typically eats now and get some input from you

all on that. We have been very strict on this diet and have not

wavered. For me, it is critical that we follow any diet of hers to the

letter. Here is a typical day for her:

Breakfast:

Midas gold pancakes (either blueberry, plain, or banana) with pear

juice syrup (pear juice reduced to a syrup consistency) OR Mixed Nut

flatbread toast with ghee

Knudsen Organic Pear Juice (heavily diluted with water)

On the weekends she may have 2 scrambled eggs with bacon or apple/egg

" pancakes "

Mid morning snack:

Fluffy Muffin (plain almond, blueberry, banana, apple, or pear muffin)

Lunch:

3 ozs. of meat (beef, buffalo, chicken, or pork)

large serving of vegetables from previous night's dinner (asparagus,

yellow or spaghetti squash, green beans, peas, or carrots)

fruit (pear, asian pear, kiwi, melon, pineapple, fuji apple, grapes,

blueberries)

diluted pear juice

Mid afternoon snack:

Inca plantain chips (salty, no sugars added) or a low-sugar fruit or

homemade cookies (almond flour based)

Dinner:

3 ozs of meat (same options as lunch)

2 vegetables--big servings

more diluted pear juice

Dessert:

homemade cookies or ice cream or cupcakes (less often on the cupcakes)

All meats, fruits, vegetables, drinks are organic. All water is either

Aquafina or filtered through reverse-osmosis system at home.

I welcome all input regarding this decision and my daughter's current

diet. I may not respond to messages right away as I receive all

messages in digest form. Thanks again for your help.

Sincerely,

Suzanne Reyes

Woodland Hills, CA

suzanne_reyes@...