RE: Re: Check out Children's Medical Services Homepage

[Guest guest]

I was on - the word WAS being the operative word - until my husband worked OT

and we got kicked off the program. It was great! They paid for any and all

expenses related to CF. Drs. co pays, meds co-pays, lab work, xrays, pfts,

etc.! A real savings. I am trying to get back on the Program- its call

Physically Handicapped Childrens Program..........nice name....its so worth

getting

on.

Maybe you just got a awful coordinator who knows zip about the program!

Its worth looking into.

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

YES, I will get with you tomorrow . I work with allot of them. the gal in

charge here in this area(she has 3 of the counties. Was one of my speakers

at Ed day. She can tell us what & who to sit on. maybe even help us. I have

know her 20years & she has been the honcho up here for that long too.

Soooooooooooo, We'll get to bottom. No 2 states are the same. I think they

go out of their ways to be " different " to confuse us all . Our gals in AR

have to try & keep up , so we can even get paid. Sooooooo, we will see. in

Fl we are the pharmacy of choice for the CMS program. Anyway. All the post s

with the different advise is great . make syou think about all the different

stuff. like I wrote you in first post . You will need all the papers/med

records & as much " stuff " & items , treatments etc you can think of . BUT

they will make sure the are valid in FL . they check all of it as we have

so much transient folks in & out & it really eats the $$ up. There have

been some years where they actually ran out of money in November .....But I

will get with you & we can work out a PLAN -hehee..........

Generally , it covers what Medicaid doesn't , like you said....but

.....salary does play a big roll in that .like Rosemary says. -That is the

same in FL. Call me in morning when you get time.

i will be in after 9am.12/22/03

LOVE & HUGS, grandmoMBEV

Re: Check out Children's Medical Services Homepage

I have C.M.S. for Tyler down here in Fla.With each hospitalization i

contact them (thats what their initial paperwork tell you to do).So

far they have done NOTHING for me or Ty.I finally tried to find a

polite way to ask my worker what they are actually suppose to do for

me, i NEVER did get an answer, i STILL dont have a clue, and they

STILL haven't done anything.I thought they cover what medicaid

doesnt, so far, not true.My worker told mee she was going to handle

the school end for Ty's 1st hospitilization, not true, as aa matter

of fact she made things worse on us cuz I trusted she was going to

take care of it, didn't, then I had the school office wondering what

happened to Ty.I have been waiting for over a week for her to call me

back after sveral attempts to reach her, again, no answer.Their

homepage looks pretty, sounds great, but thats as far as it goes.

Bev, if you're reading this, maybe you could help clear up what their

suppose to do, i'm baffled.

I do, however, appreciate you bringing C.M.S. to my attention though,

if they did whatever they're suppose to, I'll bet they/'d be

great:):)

Thanks,

Patty, mom to Ty 8wcf and 2wocf

> Click here: Children's Medical Services Homepage

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