Guest guest Posted October 5, 2003 Report Share Posted October 5, 2003 Hello Everyone. I just found this group tonight and wanted to introduce myself. I am the mother of an 11 month old boy with CF. He was pretty much diagnosed at birth when they performed emergency surgery for meconium ileus. He was less than 36 hours old and still 4 weeks early. But he made it through like a trooper. They started him on albuterol treatments after he came off the respirator (from surgery-not from being premie) and enzymes as soon as he was drinking milk. He's now doing great. Most people who meet him are shocked when we say he has CF. He is scheduled for his second set of PFT's this Friday. It should be interesting to see how he handles them. The biggest challenge the first time was keeping him awake on the drive in - of course we got stuck in rush hour traffic! Anyway, I am excited to share ideas, challenges and most of all accomplishments with all of you. Regards, KaronB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Welcome to the group! This site is a wealth of information. I hope you are able to give and receive some helpful tips. How old is your son now? I see you were treated in Columbus. We are from Indianapolis, but go to Cinncinnati for treatment. That is so great you have had success. Could you share your Dr.'s name, as I am sure others would like to know. I don't think any one is aware of Ponseti doctors having success in Columbus, and it might help other families. jennifer 11/19/04 bilateral clubfeet cullenandchloesmom wrote: I am new to this group and my son was treated successfully with Ponseti. His website is http://cullenjones.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Welcome to the group! Thanks for sharing your site. It's always wonderful to hear of yet another doctor who is using the Ponseti method correctly and acheiving these great results. Cullen, by the way, is one handsome little guy. He's almost exactly a month younger than my son. Is he still doing so well and tolerating the FAB/DBB at bedtime? Just so you can update the link on your site, Dr Ponseti's Virtual Hospital site is now at: http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clubfeet/inde\ x.html Another site--put together by a parent--that is full of all sorts of information is at: http://members.tripod.com/ponseti_links-ivil/ Naomi The Family Naomi Hannah(2/21/1) Jonah(6/20/3, corrected BCF, FAB 12-14/7) cullenandchloesmom wrote: I am new to this group and my son was treated successfully with Ponseti. His website is http://cullenjones.tripod.com Quote Link to comment Share on other sites More sharing options...
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