Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 Are there any visible signs, red spots, irritation, etc., that tell you that the band needs an adjustment? Also, what has your break in schedule been like? And finally, how old is your daughter that she can remove the helmet herself. Answers to these questions might help you get better responses from the parents here. The only suggestion I have for tonight is to check her to see if she is too hot. We keep the heat pretty low here at night. It takes most babies a few days for their bodies to adjust to the helmet. Also, if she is still screaming, the helmet is probably all sweaty, so I would remove it and let it dry out. Is it possible to rock her to sleep and then put the helmet back on? Keep us posted on the rest of your night and hopefully more parents will chime in with advice. Good Luck ____________________________________________________________ Click here for free information on nursing degrees, up to $150/hour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 carinaandrews@... wrote: > My daughter just got her helmet yesterday. She is not sleeping very > well and waking up all night long. (lurker newbie here) My twins got their helmets (starband) on christmas eve (happy holidays for me, insurance didn't cover a single dime of it) and last night was the first night they were supposed to have them on overnight. What sort of schedule did they give you, if any? I'm surprised they'd have you go straight to full-time wear. -Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 I am sorry to hear that! My Son got his a week ago today- and he does not even mond it one bit- he had a few red spots which they shaved off a bit of the band and now it is no issue- he has been in it for 23 hours a day for about 5 days now and I am already seeing a huge change! I would bring her back in and see if they can adjust and also dress her a bit lighter- my son was hot and getting a bit of a heat rash but overall is doing great. Keep us posted. From: "carinaandrews@..." <carinaandrews@...>Plagiocephaly Sent: Saturday, December 27, 2008 8:37:43 PMSubject: Daughter hates helmet My daughter just got her helmet yesterday. She is not sleeping very well and waking up all night long. Right now she is in bed screaming. She seems ok during the day, just problems at night. She also has figured out how to get the helmet off. I do not know what to do. My husband seems to think using duck tape is a good idea to keep the thing on:( Needless to say, I am wondering if keeping it off until I can see orthotist is the best idea? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Im having the same problem with my son too. He has been in the helmet since Dec 1st! He used to sleep 12 hours straight through the night but now he is up crying about 3 times or more through the night. Some nights it seems he is up every hour! I sometimes wonder if maybe the helmet gives them headaches. Is that possible? I know that I get a headache if I wear a hat too long or even if I wear certain sunglasses. Even though he is up a lot it doesnt take much to get him back to sleep but needless to say none of us are feeling very rested. So I am really looking forward to this being over! Other than the sleeping thing he doesnt mind the helmet at all and I actually thought it would be much harder to deal with. - Cole is 7 months and been in DOCband since 12/1From: Suzanne Palmer <cicada@...>Plagiocephaly Sent: Sunday, December 28, 2008 10:41:54 PMSubject: Re: Daughter hates helmet carinaandrews@ ymail.com wrote: > My daughter just got her helmet yesterday. She is not sleeping very > well and waking up all night long. (lurker newbie here) My twins got their helmets (starband) on christmas eve (happy holidays for me, insurance didn't cover a single dime of it) and last night was the first night they were supposed to have them on overnight. What sort of schedule did they give you, if any? I'm surprised they'd have you go straight to full-time wear. -Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Stella is almost 8 months old. She has a red mark on her forhead and on the right cheek. The one on her cheek goes away within the hour she has the helmet off but not the red mark on her forhead. I had been told this is normal? Her helmet has the velcro, that she loves to pull off. I have woken up to her waving the helmet around gleefully the past two nights. Innitially, her head was extremely sweaty, but today it hasn't been an issue. Also the orthotist who made the helmet went on vacation for a week starting Sunday!! Things do seem a little better today. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 One child in a helmet is enough. I can't imagine twins! Good luck to you. Stella wears her helmet 23 hours a day. (Well ok 22- I give her a bath at 1pm and then let her sleep on my chest on her stomach for an hour)I know about the insurance, we weren't covered either. Thanks for responding and good luck with your twins!!! Carina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Now I am nervous. Is the red spot on her forhead something to worry about? The orthotist won't be back in town til next week! Any ideas? Carina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 This sounds exactly like our situation. Stella is 8 months and started 12-26. Carina > > My daughter just got her helmet yesterday. She is not sleeping very > > well and waking up all night long. > > (lurker newbie here) > > My twins got their helmets (starband) on christmas eve (happy holidays > for me, insurance didn't cover a single dime of it) and last night was > the first night they were supposed to have them on overnight. What sort > of schedule did they give you, if any? I'm surprised they'd have you go > straight to full-time wear. > > -Suzanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 carinaandrews@... wrote: > Stella is almost 8 months old. She has a red mark on her forhead and on > the right cheek. The one on her cheek goes away within the hour she has > the helmet off but not the red mark on her forhead. I had been told > this is normal? My little guy (also 8 mos) has almost the exact same thing, a red mark on the top of the bridge of his nose and one cheek. We go in for our first followup (they've been in the helmets for a week now) and I'm going to ask about that, so if you'd like I can post what they tell me. I'm assuming they'll do some minor adjustment to the helmets to stop it rubbing if they can. -Suzanne western Massachusetts twins in Starband since 12/24 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 Probably. It was described like this to us. There are two types of red marks that will appear. One is from good pressure. These are generally the size of a quarter or larger, are red, and will disappear within an hour. The other come from bad pressure. They are generally smaller than the size of a quarter, angry red, and take longer than an hour to go away, generally much longer. These are bad and need to be addressed by your ortho asap. They can lead to skin break down, and all kinds of other bad things (blisters, infections). It generally means the helmet is too tight in that spot for one reason or another and needs an adjustment. We've gotten them from time to time and have been told to leave the helmet off until the next adjustment, which is scheduled within a week. The helmet will shift a bit when they lay on it and the shift could be causing the binding (bad pressure spot) and the reason she isn't sleeping well. If it looks really bad I'd leave the helmet off until you see the ortho again. You'll have to use your judgement on how bad bad is. I also find it odd you were instructed to start wearing the helmet over night from the beginning. Different orthos, bands, and so on have different break in schedules, but I haven't heard any that go full time the first day. For us we worked up to full time over the course of a week (well two because of issues, but originally were instructed to follow a one week schedule). Generally they don't wear it over night until they've been doing well in it for a few days. Elaine had a hard time getting used to her helmet. Took a few weeks for her to adjust, but it does get better. Hang in there. Elaine (twin A) plagio & tort, helmet On Wed, Dec 31, 2008 at 2:23 AM, carinaandrews@... <carinaandrews@...> wrote: Now I am nervous. Is the red spot on her forhead something to worry about? The orthotist won't be back in town til next week! Any ideas?Carina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 I was also instructed to let him sleep in his helmet the first night we had it. We had to do the on/off schedule during the day for the first two days however. That first night was definitely rough! - Cole has been in his DOCband since 12/1/08From: Lina Gabriev <lina.gabriev@...>Plagiocephaly Sent: Saturday, January 3, 2009 7:23:40 PMSubject: Re: Daughter hates helmet Probably. It was described like this to us. There are two types of red marks that will appear. One is from good pressure. These are generally the size of a quarter or larger, are red, and will disappear within an hour. The other come from bad pressure. They are generally smaller than the size of a quarter, angry red, and take longer than an hour to go away, generally much longer. These are bad and need to be addressed by your ortho asap. They can lead to skin break down, and all kinds of other bad things (blisters, infections). It generally means the helmet is too tight in that spot for one reason or another and needs an adjustment. We've gotten them from time to time and have been told to leave the helmet off until the next adjustment, which is scheduled within a week. The helmet will shift a bit when they lay on it and the shift could be causing the binding (bad pressure spot) and the reason she isn't sleeping well. If it looks really bad I'd leave the helmet off until you see the ortho again. You'll have to use your judgement on how bad bad is. I also find it odd you were instructed to start wearing the helmet over night from the beginning. Different orthos, bands, and so on have different break in schedules, but I haven't heard any that go full time the first day. For us we worked up to full time over the course of a week (well two because of issues, but originally were instructed to follow a one week schedule). Generally they don't wear it over night until they've been doing well in it for a few days. Elaine had a hard time getting used to her helmet. Took a few weeks for her to adjust, but it does get better. Hang in there. Elaine (twin A) plagio & tort, helmet On Wed, Dec 31, 2008 at 2:23 AM, carinaandrews@ ymail.com <carinaandrews@ ymail.com> wrote: Now I am nervous. Is the red spot on her forhead something to worry about? The orthotist won't be back in town til next week! Any ideas?Carina Quote Link to comment Share on other sites More sharing options...
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