Re: Re: MRCP vs ERCP lucy

[Guest guest]

Hi boo,

I am a new member Lucy and I have had quite a time like you did with yourPC it

is very hard to have to live with this illness for the family and friends around

you. Of course they all are very supported. But it is very hard on them. I have

learned so much since I joined this group it has been a great help for me to

understand things much better. I can relate to so much of what you have been

thru. I have had a couple of ercps but a mrcp no don't knwo that one. and I

think blood work was always normal, isn't that where the lipase levels comes up?

No one has ever told me that I have a defect in the common bile duct. I think

the last doc I had at ucla did a ercp on me where he went in to block the nerves

around the pc but no sucess with it. Then I never heard back from him. I also

have a morphine pump from the pain doc. thats been about a year. I was in so

much pain in the beginning I didn't care anymore what they did to make it stop.

So my husband and I talked it over and said thats what will do nothing else

worked. So in the begining I gained over 40lbs but I use to be active and work

as a housekeeper I had my own business for 17yrs worked alone love it. so weight

probably has something to do with weight gain to. but then I became very

depressed, stayed in the house watched TV sleep I never was a kind of person to

sit sill and stay a home. Something I miss so much now I can't ever do that job

again and I don't know if I can ever work doing something. My pump after awhile

when the thing got up to 18 1/2 mg I had more side effects my shoulder became

frozen I tryed thearpy cortizone shots then my back and legs were stiff could

hardley get out of bed. My arms hurt so bad. So a doctor told me to try to turn

the pump down and see how you feel he was the one who would do the nerve block.

Well slowly I can down to 6mg. Well thats when I noticed all the stiffness was

gone just like that no more frozen shoulders it sure felt great. I felt pretty

good to wow maybe I don't need so much morphine. That lasted about 2mos people

say that sometimes the cp isn't bad all the time but how would I know when I was

on a high dose of morphine. Then once a coulpe of mos or so the pump was in and

working the tube from the pump to your spine fell out so I had to have surgery

again on my back the pump is in the front left side of my stomach so I had to

be cut 2 time s the first time. Well now I am having reoccuring attacks and well

i didn't even think the darn thing fell out again. but the doc was trying to

stop the cycle of pain by giving me a shot in my spine and left the tube in for

a few days so he could put more meds in for three days. The first day was ok

they put you somewhat out not totaly well i was watching the screan and doc says

well the pump line fell out again. Now I don't what to do. Thats why the attacks

were back my pump level now was 9mg not bad but I was taking lots of pain pills

and going to er uregent care often. So here I am again what will I do this time

well If the pump has to be turned up pretty high to keep me pain free I end up

with frozen shoulders the whole bit. I don't know but I found a gi doc in LA and

I will go speak with him see what he thinks he can do for me I haven't had a gi

doc for a long long time I was just passed to the pain guy. Boy this is getting

so long you are probably getting bored or stopped reading by now sorry. I get

going and can't stop It is so good to have all of you in this group. Thanks so

much for listening boo,sorry that I went on so long just thought we related.

Good luck to you hope it all turns out good and you are pain free for a long

time.

Thanks my friend. Lucy