Re: Re: Natalia/Gale

[Guest guest]

Gale,

When it comes to Abby you both will learn to put your foot down and hold it

there until you get what you need. It is something you learn to do with this

illness.

Re: Natalia

Natalia,

If you ever feel like throwing a fit, you just go right ahead and

throw it! You've earned that right!!! I never speak up either and

then I beat my self up for a long time afterwards for not putting my

foot down. I don't know why it's so hard to speak up. I hope that

Toni (my daughter) and I both get better at this, for Abby sake.

Gale

Grandma to Abby (23.5 months with CF)

> Carolyn,

> Thanks for writing. I wish you all the luck in the world, and I

hope

> that the sweat test shows nothing. I hope that you are far from

CF.

> But it is good to be prepared. And know that there are many others

> that face what you are, and can cope, as can you. I don't want to

say

> any more, until you know for sure. I'm thinking of you and Liam

> tonight.

>

> the IV situation is a serious pain in the you know what. As if I

need

> more to worry and hassle with. I agree with you about the IV

team. I

> learned the hard way this weekend. And I like your 'confidently

> requested'...I think that's a nice way of putting it. I guess its

> better than throwing a fit. And sometimes I really want to do

that.

> And you are right, it is about making them take responsibility for

> their jobs. All of us have to do that, but especially when you are

> dealing with peoples health.

>

> Again, thinking about you.

>

> Natalia

> 24 w CF