Re: Connection between Plagio and Autism

[Guest guest]

I have never heard of a connection between the two. My daughter had brachy (flat

in back with little asymmetry) and is now 3.5 yrs old and very smart, social,

and no signs of autism. I'm not sure what you are seeing is signs of autism. To

me babies go through awkward stages and it is just part of their developement.

However concerns such as yours should definitely be raised with your doctor, and

if your not satisfied, find someone specializing in autism.

I know many families through this group with children 3 years and older who

banded their kids and don't see any signs of autism. I'm one of the moderators,

and have been in this group for more than 3 years. Now and then someone post

about plagio and another problem their child has to see if they are related, but

it seems to me it is speculation based only on their own child. The conditions I

know related to plagio are things like jaw issues, not any serious disorders.

As for TV, I've never been a fan of letting babies watch it. I do suggest you do

some research on Babywise - I've read very negative things on that, including

that it can be associated with failure to thrive if follow the feeding advice.

There were a few posts about that her a few months back, but the information is

easy to find online.

-christine

sydney, 3.5 yrs, starband grad

>

> Hello,

>

> I am wondering if anyone out there has statistics on the amount of children

with Plagio that end up getting diagnosed with Autism. My daughter is 6 months,

and we are doing the preliminary visits with Cranial Technologies to get her a

helmet. She was born with tort causing her to turn her head to the right when

she slept. I am a new mom and do not have any friends who are parents so I

didn't think it was an issue. That is until she had a noticeable flat head on

the right side at 4 months. As soon as the doctor brought this to our

attention, we started sleeping her on her side using a positioner. He head has

improved very well in the last 2 months, but it is still a bit flat and her ears

are not even so we are still planning to get the helmet. Since her 4 month well

appointment, she has shown several signs of autism. Her smiling has regressed,

she rarely makes eye contact, she doesn't respond very often when someone calls

her name, she twirls her wrists and feet constantly, her head size has rapidly

grown over the last 2 months, she has no desire to sit up (she can though so she

is still meeting milestones), she is obsessed with lights ceiling fans and

televisions, she does not seem very interested in other babies or animals, she

does not like when I try to hold her hands to teach her to wave or clap. She

also had major reflux problems at 3 months which helped lead to the plagio since

she refused tummy time and would push back even when we tried to sit her up on

our laps. She has received no treatment other than our initial appt with CT. I

did not even know that we should be doing exercises for the tort or take her to

therapy for it. I feel like her autism signs have just suddenly appeared.

Conveniently since the Plagio started. I followed the babywise schedule which

had her sleeping through the night at 6 weeks. She has been a very good sleeper

since 6 weeks which also contributed to the Plagio. She still sleeps between 14

and 18 hours a day at 6 months. She doesn't seem to have sensory issues other

than that she like to hold soft materials when she sleeps, but I think that is

pretty normal. Because we were trying to keep her off of her back at 4 months,

we bought her a jumperoo and an exersaucer. She would refuse to sit in them

unless the tv was on. I would try everything to get her to play without the tv

and she would just scream. Tummy time was impossible because she would just

roll right over to her back. She would almost suffocate herself on a boppy

pillow during tummy time. So the jumperoo and exersaucer just seemed to make

sense. After I started noticing signs of autism, I did research on the causes.

It seems like A LOT of babies with plagio and tort have signs of autism. I also

researched that some studies show that too much exposure to the tv may

contribute to the increase in autism over the past decade. It just seems weird

that autism started to be more common when pediatricians suggested sleeping

babies on their backs. Since doing all of this research, I have no longer

offered the television, and my husband and I do not even have it on at all until

she goes to bed for the night. Since she is 6 months now, she is too big for

her sleep positioner but she does still sleep on her side or stomach (on her

own) so she is still pretty much off of the back of her head 24 hours a day. I

keep her sitting up or I hold her all day to keep her from laying back. We do

sometimes have long car rides though. Friends and family think it is not an

issue since she does smile. The problem is that I know my baby and she does not

smile nearly as much as she once did. I really feel that her plagio and tort

are connected to these early signs of autism. I would like to know if there are

any parents out there of children 3 or older who had plagio issues and do not

show signs of autism. Also, are there any parents who decided not to get the

helmet? I have read that it can bruise the brain. Maybe the helmets contribut

to something? If there are parents of older children who opted not to do the

helmet, how does your child's head look now? Did it correct itself? Do they

have any semmetry problems like their ears not lining up? I am needing to make

a decision on the corrective helmet ASAP since my daughter is 6 1/2 months and I

know that it will take a while to get it as well. Time is running out if we

want to have the best results from the helmet since she is getting to be older

and her head will not be as easy to transform. Please help me understand what

is happening to my baby.

>

> Thank you,

>

>

> first time mom and new to the group

>

[Guest guest]

Hi,

My 5 year old son has very mild plagio. He was never banded and he

shows no signs of autism. He's an extremely bright child. What he

does have is mild sensory integration disorder. Indirectly, this may

have contributed to the plagio in both my boys. My older son was an

absolutely horrible sleeper, and my husband swaddled him extremely

late. He has troubles self-regulating, so that falling asleep has

always been tough for him.

My second son falls asleep much easier, but still he wakes up

frequently in the night. Since my husband was into swaddling after our

first, he swaddled the baby too even past 12 months. He has a slight

preference to turn his head toward the right and we believe the

swaddling may have restricted his head movement. Our second boy's

plagio was worse than his older brother's. So far he shows no signs of

autism, SID, or anything unusual. His development is on track; our

older boy's development was advanced. Our youngest has been in the

helmet almost 4 months.

Best,

Kathy, mom to , almost 16 months, Starband almost 4 months, plagio

christineashok wrote:

I have never heard of a connection between the two. My daughter

had brachy (flat in back with little asymmetry) and is now 3.5 yrs old

and very smart, social, and no signs of autism. I'm not sure what you

are seeing is signs of autism. To me babies go through awkward stages

and it is just part of their developement. However concerns such as

yours should definitely be raised with your doctor, and if your not

satisfied, find someone specializing in autism.

I know many families through this group with children 3 years and older

who banded their kids and don't see any signs of autism. I'm one of the

moderators, and have been in this group for more than 3 years. Now and

then someone post about plagio and another problem their child has to

see if they are related, but it seems to me it is speculation based

only on their own child. The conditions I know related to plagio are

things like jaw issues, not any serious disorders.

As for TV, I've never been a fan of letting babies watch it. I do

suggest you do some research on Babywise - I've read very negative

things on that, including that it can be associated with failure to

thrive if follow the feeding advice. There were a few posts about that

her a few months back, but the information is easy to find online.

-christine

sydney, 3.5 yrs, starband grad

>

> Hello,

>

> I am wondering if anyone out there has statistics on the amount of

children with Plagio that end up getting diagnosed with Autism. My

daughter is 6 months, and we are doing the preliminary visits with

Cranial Technologies to get her a helmet. She was born with tort

causing her to turn her head to the right when she slept. I am a new

mom and do not have any friends who are parents so I didn't think it

was an issue. That is until she had a noticeable flat head on the right

side at 4 months. As soon as the doctor brought this to our attention,

we started sleeping her on her side using a positioner. He head has

improved very well in the last 2 months, but it is still a bit flat and

her ears are not even so we are still planning to get the helmet. Since

her 4 month well appointment, she has shown several signs of autism.

Her smiling has regressed, she rarely makes eye contact, she doesn't

respond very often when someone calls her name, she twirls her wrists

and feet constantly, her head size has rapidly grown over the last 2

months, she has no desire to sit up (she can though so she is still

meeting milestones), she is obsessed with lights ceiling fans and

televisions, she does not seem very interested in other babies or

animals, she does not like when I try to hold her hands to teach her to

wave or clap. She also had major reflux problems at 3 months which

helped lead to the plagio since she refused tummy time and would push

back even when we tried to sit her up on our laps. She has received no

treatment other than our initial appt with CT. I did not even know that

we should be doing exercises for the tort or take her to therapy for

it. I feel like her autism signs have just suddenly appeared.

Conveniently since the Plagio started. I followed the babywise schedule

which had her sleeping through the night at 6 weeks. She has been a

very good sleeper since 6 weeks which also contributed to the Plagio.

She still sleeps between 14 and 18 hours a day at 6 months. She doesn't

seem to have sensory issues other than that she like to hold soft

materials when she sleeps, but I think that is pretty normal. Because

we were trying to keep her off of her back at 4 months, we bought her a

jumperoo and an exersaucer. She would refuse to sit in them unless the

tv was on. I would try everything to get her to play without the tv and

she would just scream. Tummy time was impossible because she would just

roll right over to her back. She would almost suffocate herself on a

boppy pillow during tummy time. So the jumperoo and exersaucer just

seemed to make sense. After I started noticing signs of autism, I did

research on the causes. It seems like A LOT of babies with plagio and

tort have signs of autism. I also researched that some studies show

that too much exposure to the tv may contribute to the increase in

autism over the past decade. It just seems weird that autism started to

be more common when pediatricians suggested sleeping babies on their

backs. Since doing all of this research, I have no longer offered the

television, and my husband and I do not even have it on at all until

she goes to bed for the night. Since she is 6 months now, she is too

big for her sleep positioner but she does still sleep on her side or

stomach (on her own) so she is still pretty much off of the back of her

head 24 hours a day. I keep her sitting up or I hold her all day to

keep her from laying back. We do sometimes have long car rides though.

Friends and family think it is not an issue since she does smile. The

problem is that I know my baby and she does not smile nearly as much as

she once did. I really feel that her plagio and tort are connected to

these early signs of autism. I would like to know if there are any

parents out there of children 3 or older who had plagio issues and do

not show signs of autism. Also, are there any parents who decided not

to get the helmet? I have read that it can bruise the brain. Maybe the

helmets contribut to something? If there are parents of older children

who opted not to do the helmet, how does your child's head look now?

Did it correct itself? Do they have any semmetry problems like their

ears not lining up? I am needing to make a decision on the corrective

helmet ASAP since my daughter is 6 1/2 months and I know that it will

take a while to get it as well. Time is running out if we want to have

the best results from the helmet since she is getting to be older and

her head will not be as easy to transform. Please help me understand

what is happening to my baby.

>

> Thank you,

>

>

> first time mom and new to the group

>

[Guest guest]

I have not heard of a connection between the two. My now 7 1/2 year old was banded from age 9 to 12 months. She had high modearate to severe plagio/bracy. My now 2 1/2 year old had mild brachy that we successfully repoed her. She also shows no signs of autism.

I would definitely tell your concerns to her doctor. Please keep us posted on how things are going.

Angie and jenna(STAR grad 2003) and Kylie repo grad 2007

Re: Connection between Plagio and Autism

I have never heard of a connection between the two. My daughter had brachy (flat in back with little asymmetry) and is now 3.5 yrs old and very smart, social, and no signs of autism. I'm not sure what you are seeing is signs of autism. To me babies go through awkward stages and it is just part of their developement. However concerns such as yours should definitely be raised with your doctor, and if your not satisfied, find someone specializing in autism. I know many families through this group with children 3 years and older who banded their kids and don't see any signs of autism. I'm one of the moderators, and have been in this group for more than 3 years. Now and then someone post about plagio and another problem their child has to see if they are related, but it seems to me it is speculation based only on their own child. The conditions I know related to plagio are things like jaw issues, not any serious disorders.As for TV, I've never been a fan of letting babies watch it. I do suggest you do some research on Babywise - I've read very negative things on that, including that it can be associated with failure to thrive if follow the feeding advice. There were a few posts about that her a few months back, but the information is easy to find online. -christinesydney, 3.5 yrs, starband grad>> Hello,> > I am wondering if anyone out there has statistics on the amount of children with Plagio that end up getting diagnosed with Autism. My daughter is 6 months, and we are doing the preliminary visits with Cranial Technologies to get her a helmet. She was born with tort causing her to turn her head to the right when she slept. I am a new mom and do not have any friends who are parents so I didn't think it was an issue. That is until she had a noticeable flat head on the right side at 4 months. As soon as the doctor brought this to our attention, we started sleeping her on her side using a positioner. He head has improved very well in the last 2 months, but it is still a bit flat and her ears are not even so we are still planning to get the helmet. Since her 4 month well appointment, she has shown several signs of autism. Her smiling has regressed, she rarely makes eye contact, she doesn't respond very often when someone calls her name, she twirls her wrists and feet constantly, her head size has rapidly grown over the last 2 months, she has no desire to sit up (she can though so she is still meeting milestones), she is obsessed with lights ceiling fans and televisions, she does not seem very interested in other babies or animals, she does not like when I try to hold her hands to teach her to wave or clap. She also had major reflux problems at 3 months which helped lead to the plagio since she refused tummy time and would push back even when we tried to sit her up on our laps. She has received no treatment other than our initial appt with CT. I did not even know that we should be doing exercises for the tort or take her to therapy for it. I feel like her autism signs have just suddenly appeared. Conveniently since the Plagio started. I followed the babywise schedule which had her sleeping through the night at 6 weeks. She has been a very good sleeper since 6 weeks which also contributed to the Plagio. She still sleeps between 14 and 18 hours a day at 6 months. She doesn't seem to have sensory issues other than that she like to hold soft materials when she sleeps, but I think that is pretty normal. Because we were trying to keep her off of her back at 4 months, we bought her a jumperoo and an exersaucer. She would refuse to sit in them unless the tv was on. I would try everything to get her to play without the tv and she would just scream. Tummy time was impossible because she would just roll right over to her back. She would almost suffocate herself on a boppy pillow during tummy time. So the jumperoo and exersaucer just seemed to make sense. After I started noticing signs of autism, I did research on the causes. It seems like A LOT of babies with plagio and tort have signs of autism. I also researched that some studies show that too much exposure to the tv may contribute to the increase in autism over the past decade. It just seems weird that autism started to be more common when pediatricians suggested sleeping babies on their backs. Since doing all of this research, I have no longer offered the television, and my husband and I do not even have it on at all until she goes to bed for the night. Since she is 6 months now, she is too big for her sleep positioner but she does still sleep on her side or stomach (on her own) so she is still pretty much off of the back of her head 24 hours a day. I keep her sitting up or I hold her all day to keep her from laying back. We do sometimes have long car rides though. Friends and family think it is not an issue since she does smile. The problem is that I know my baby and she does not smile nearly as much as she once did. I really feel that her plagio and tort are connected to these early signs of autism. I would like to know if there are any parents out there of children 3 or older who had plagio issues and do not show signs of autism. Also, are there any parents who decided not to get the helmet? I have read that it can bruise the brain. Maybe the helmets contribut to something? If there are parents of older children who opted not to do the helmet, how does your child's head look now? Did it correct itself? Do they have any semmetry problems like their ears not lining up? I am needing to make a decision on the corrective helmet ASAP since my daughter is 6 1/2 months and I know that it will take a while to get it as well. Time is running out if we want to have the best results from the helmet since she is getting to be older and her head will not be as easy to transform. Please help me understand what is happening to my baby.> > Thank you,> > > first time mom and new to the group>

[Guest guest]

,

I asked a similar question when we got our consult for a helemt at the Seattle

Children's Hospital. I was told that kids with plago often have multiple issues

going on. She said it wasn't the plago causing it, but rather systematic of the

other things. She told me that plago kids are at higher risk of having

developmental delays and speech delays. Now this is just word of mouth by one

person, so I don't have any literature to back it.

It sounds like you are doing a great job advocating for your child. I hope it

doesn't end up being autism, but if it does I am sure you will get her the

resources she needs. Good luck.

>

> Hello,

>

> I am wondering if anyone out there has statistics on the amount of children

with Plagio that end up getting diagnosed with Autism. My daughter is 6 months,

and we are doing the preliminary visits with Cranial Technologies to get her a

helmet. She was born with tort causing her to turn her head to the right when

she slept. I am a new mom and do not have any friends who are parents so I

didn't think it was an issue. That is until she had a noticeable flat head on

the right side at 4 months. As soon as the doctor brought this to our

attention, we started sleeping her on her side using a positioner. He head has

improved very well in the last 2 months, but it is still a bit flat and her ears

are not even so we are still planning to get the helmet. Since her 4 month well

appointment, she has shown several signs of autism. Her smiling has regressed,

she rarely makes eye contact, she doesn't respond very often when someone calls

her name, she twirls her wrists and feet constantly, her head size has rapidly

grown over the last 2 months, she has no desire to sit up (she can though so she

is still meeting milestones), she is obsessed with lights ceiling fans and

televisions, she does not seem very interested in other babies or animals, she

does not like when I try to hold her hands to teach her to wave or clap. She

also had major reflux problems at 3 months which helped lead to the plagio since

she refused tummy time and would push back even when we tried to sit her up on

our laps. She has received no treatment other than our initial appt with CT. I

did not even know that we should be doing exercises for the tort or take her to

therapy for it. I feel like her autism signs have just suddenly appeared.

Conveniently since the Plagio started. I followed the babywise schedule which

had her sleeping through the night at 6 weeks. She has been a very good sleeper

since 6 weeks which also contributed to the Plagio. She still sleeps between 14

and 18 hours a day at 6 months. She doesn't seem to have sensory issues other

than that she like to hold soft materials when she sleeps, but I think that is

pretty normal. Because we were trying to keep her off of her back at 4 months,

we bought her a jumperoo and an exersaucer. She would refuse to sit in them

unless the tv was on. I would try everything to get her to play without the tv

and she would just scream. Tummy time was impossible because she would just

roll right over to her back. She would almost suffocate herself on a boppy

pillow during tummy time. So the jumperoo and exersaucer just seemed to make

sense. After I started noticing signs of autism, I did research on the causes.

It seems like A LOT of babies with plagio and tort have signs of autism. I also

researched that some studies show that too much exposure to the tv may

contribute to the increase in autism over the past decade. It just seems weird

that autism started to be more common when pediatricians suggested sleeping

babies on their backs. Since doing all of this research, I have no longer

offered the television, and my husband and I do not even have it on at all until

she goes to bed for the night. Since she is 6 months now, she is too big for

her sleep positioner but she does still sleep on her side or stomach (on her

own) so she is still pretty much off of the back of her head 24 hours a day. I

keep her sitting up or I hold her all day to keep her from laying back. We do

sometimes have long car rides though. Friends and family think it is not an

issue since she does smile. The problem is that I know my baby and she does not

smile nearly as much as she once did. I really feel that her plagio and tort

are connected to these early signs of autism. I would like to know if there are

any parents out there of children 3 or older who had plagio issues and do not

show signs of autism. Also, are there any parents who decided not to get the

helmet? I have read that it can bruise the brain. Maybe the helmets contribut

to something? If there are parents of older children who opted not to do the

helmet, how does your child's head look now? Did it correct itself? Do they

have any semmetry problems like their ears not lining up? I am needing to make

a decision on the corrective helmet ASAP since my daughter is 6 1/2 months and I

know that it will take a while to get it as well. Time is running out if we

want to have the best results from the helmet since she is getting to be older

and her head will not be as easy to transform. Please help me understand what

is happening to my baby.

>

> Thank you,

>

>

> first time mom and new to the group

>

[Guest guest]

Hi ....when I read your post I would have sworn that it was written about

my son , who turned eight months old today. I dont mean to scare you but

have you had your daughter's hearing checked since the newborn screening in the

hospital? AS it turns out, my son is about 90% deaf in his right ear and has a

mild to moderate loss in the left. We also found out recently through an MRI,

that he has cerebral palsy. That doesnt mean that your baby has CP or hearing

loss, but I would strongly reccomend a nuerological work up if she is

developementaly behind. isnt real far behind but he is delayed and we are

hoping that the CP is on the mild side.

Everything you descibe about your baby from the tummy time issues to the

liking to feel soft things, is so much like my son. And when he gets staring at

something up high, especially lights, I would swear he was in a different world,

you cant break his gaze. If you would like to talk more, please feel free to

email me at audie29@...

Jessie

mom to - 8 months

plagio, tort

reflux

hearing loss

crebral palsy

> >

> > Hello,

> >

> > I am wondering if anyone out there has statistics on the amount of children

with Plagio that end up getting diagnosed with Autism. My daughter is 6 months,

and we are doing the preliminary visits with Cranial Technologies to get her a

helmet. She was born with tort causing her to turn her head to the right when

she slept. I am a new mom and do not have any friends who are parents so I

didn't think it was an issue. That is until she had a noticeable flat head on

the right side at 4 months. As soon as the doctor brought this to our

attention, we started sleeping her on her side using a positioner. He head has

improved very well in the last 2 months, but it is still a bit flat and her ears

are not even so we are still planning to get the helmet. Since her 4 month well

appointment, she has shown several signs of autism. Her smiling has regressed,

she rarely makes eye contact, she doesn't respond very often when someone calls

her name, she twirls her wrists and feet constantly, her head size has rapidly

grown over the last 2 months, she has no desire to sit up (she can though so she

is still meeting milestones), she is obsessed with lights ceiling fans and

televisions, she does not seem very interested in other babies or animals, she

does not like when I try to hold her hands to teach her to wave or clap. She

also had major reflux problems at 3 months which helped lead to the plagio since

she refused tummy time and would push back even when we tried to sit her up on

our laps. She has received no treatment other than our initial appt with CT. I

did not even know that we should be doing exercises for the tort or take her to

therapy for it. I feel like her autism signs have just suddenly appeared.

Conveniently since the Plagio started. I followed the babywise schedule which

had her sleeping through the night at 6 weeks. She has been a very good sleeper

since 6 weeks which also contributed to the Plagio. She still sleeps between 14

and 18 hours a day at 6 months. She doesn't seem to have sensory issues other

than that she like to hold soft materials when she sleeps, but I think that is

pretty normal. Because we were trying to keep her off of her back at 4 months,

we bought her a jumperoo and an exersaucer. She would refuse to sit in them

unless the tv was on. I would try everything to get her to play without the tv

and she would just scream. Tummy time was impossible because she would just

roll right over to her back. She would almost suffocate herself on a boppy

pillow during tummy time. So the jumperoo and exersaucer just seemed to make

sense. After I started noticing signs of autism, I did research on the causes.

It seems like A LOT of babies with plagio and tort have signs of autism. I also

researched that some studies show that too much exposure to the tv may

contribute to the increase in autism over the past decade. It just seems weird

that autism started to be more common when pediatricians suggested sleeping

babies on their backs. Since doing all of this research, I have no longer

offered the television, and my husband and I do not even have it on at all until

she goes to bed for the night. Since she is 6 months now, she is too big for

her sleep positioner but she does still sleep on her side or stomach (on her

own) so she is still pretty much off of the back of her head 24 hours a day. I

keep her sitting up or I hold her all day to keep her from laying back. We do

sometimes have long car rides though. Friends and family think it is not an

issue since she does smile. The problem is that I know my baby and she does not

smile nearly as much as she once did. I really feel that her plagio and tort

are connected to these early signs of autism. I would like to know if there are

any parents out there of children 3 or older who had plagio issues and do not

show signs of autism. Also, are there any parents who decided not to get the

helmet? I have read that it can bruise the brain. Maybe the helmets contribut

to something? If there are parents of older children who opted not to do the

helmet, how does your child's head look now? Did it correct itself? Do they

have any semmetry problems like their ears not lining up? I am needing to make

a decision on the corrective helmet ASAP since my daughter is 6 1/2 months and I

know that it will take a while to get it as well. Time is running out if we

want to have the best results from the helmet since she is getting to be older

and her head will not be as easy to transform. Please help me understand what

is happening to my baby.

> >

> > Thank you,

> >

> >

> > first time mom and new to the group

> >

>

[Guest guest]

Jessie -

You make some excellent points. To some extent, staring at the celing fan is normal in little ones. Both of my kids did that when they were young babies although I'm not sure if they were still doing it at 6 months. And, there could always be other causes for the other concerns. Although I do believe that Autism is a real concern for many kids, I've seen what I would call an Autism scare in our society currently due to the large amount of press that we are seeing on it. Everyone demonstrates a few Autistic characteristics, so distinguishing what's a normal amount of them from an actual disorder is best left up to those that see this every day. Plus, there are other psychological disorders, disabilities, and physical causes to some of these symptoms. Those need to be either ruled out or in so that treatment can be appropriate.

, I agree with Jessie that you really ought to get him to the pediatrician and then to a bunch of other experts. Starting with hearing is probably a good safe bet. Don't forget to contact your local eary intervention. Federal law requires that these services be available everywhere. In some places, it's through the schools and in others, it's through the health department. They can evaluate for free. You also need to keep the pediatirican in the loop so that he/she can rule out any physical causes (such as the CP that mentions).

I have to warn you that I doubt that anyone would put on Autism label on a baby this young, but that's not what really matters anyway. What you want is treatment so that maybe you can avoid the label. The early intervention experts will have dealt with other infants and toddlers showing signs of Autism and can be a really good resource to you. Most of the time, the services are provided in the home or day care setting.

When I take for her 24-month testing session (in the study that we are in), I will ask the testers whether they know of any connection between Autism and Plagio and report back to the group.

Also, , you can contact me as well if you'd like to talk more about this: melanie.watson@....

, mom to , 25 months

STARband grad May 2009

Chiro and CST

land

Re: Connection between Plagio and Autism

Hi ....when I read your post I would have sworn that it was written about my son , who turned eight months old today. I dont mean to scare you but have you had your daughter's hearing checked since the newborn screening in the hospital? AS it turns out, my son is about 90% deaf in his right ear and has a mild to moderate loss in the left. We also found out recently through an MRI, that he has cerebral palsy. That doesnt mean that your baby has CP or hearing loss, but I would strongly reccomend a nuerological work up if she is developementaly behind. isnt real far behind but he is delayed and we are hoping that the CP is on the mild side.Everything you descibe about your baby from the tummy time issues to the liking to feel soft things, is so much like my son. And when he gets staring at something up high, especially lights, I would swear he was in a different world, you cant break his gaze. If you would like to talk more, please feel free to email me at audie29@...Jessiemom to - 8 monthsplagio, tortrefluxhearing losscrebral palsy> >> > Hello,> > > > I am wondering if anyone out there has statistics on the amount of children with Plagio that end up getting diagnosed with Autism. My daughter is 6 months, and we are doing the preliminary visits with Cranial Technologies to get her a helmet. She was born with tort causing her to turn her head to the right when she slept. I am a new mom and do not have any friends who are parents so I didn't think it was an issue. That is until she had a noticeable flat head on the right side at 4 months. As soon as the doctor brought this to our attention, we started sleeping her on her side using a positioner. He head has improved very well in the last 2 months, but it is still a bit flat and her ears are not even so we are still planning to get the helmet. Since her 4 month well appointment, she has shown several signs of autism. Her smiling has regressed, she rarely makes eye contact, she doesn't respond very often when someone calls her name, she twirls her wrists and feet constantly, her head size has rapidly grown over the last 2 months, she has no desire to sit up (she can though so she is still meeting milestones), she is obsessed with lights ceiling fans and televisions, she does not seem very interested in other babies or animals, she does not like when I try to hold her hands to teach her to wave or clap. She also had major reflux problems at 3 months which helped lead to the plagio since she refused tummy time and would push back even when we tried to sit her up on our laps. She has received no treatment other than our initial appt with CT. I did not even know that we should be doing exercises for the tort or take her to therapy for it. I feel like her autism signs have just suddenly appeared. Conveniently since the Plagio started. I followed the babywise schedule which had her sleeping through the night at 6 weeks. She has been a very good sleeper since 6 weeks which also contributed to the Plagio. She still sleeps between 14 and 18 hours a day at 6 months. She doesn't seem to have sensory issues other than that she like to hold soft materials when she sleeps, but I think that is pretty normal. Because we were trying to keep her off of her back at 4 months, we bought her a jumperoo and an exersaucer. She would refuse to sit in them unless the tv was on. I would try everything to get her to play without the tv and she would just scream. Tummy time was impossible because she would just roll right over to her back. She would almost suffocate herself on a boppy pillow during tummy time. So the jumperoo and exersaucer just seemed to make sense. After I started noticing signs of autism, I did research on the causes. It seems like A LOT of babies with plagio and tort have signs of autism. I also researched that some studies show that too much exposure to the tv may contribute to the increase in autism over the past decade. It just seems weird that autism started to be more common when pediatricians suggested sleeping babies on their backs. Since doing all of this research, I have no longer offered the television, and my husband and I do not even have it on at all until she goes to bed for the night. Since she is 6 months now, she is too big for her sleep positioner but she does still sleep on her side or stomach (on her own) so she is still pretty much off of the back of her head 24 hours a day. I keep her sitting up or I hold her all day to keep her from laying back. We do sometimes have long car rides though. Friends and family think it is not an issue since she does smile. The problem is that I know my baby and she does not smile nearly as much as she once did. I really feel that her plagio and tort are connected to these early signs of autism. I would like to know if there are any parents out there of children 3 or older who had plagio issues and do not show signs of autism. Also, are there any parents who decided not to get the helmet? I have read that it can bruise the brain. Maybe the helmets contribut to something? If there are parents of older children who opted not to do the helmet, how does your child's head look now? Did it correct itself? Do they have any semmetry problems like their ears not lining up? I am needing to make a decision on the corrective helmet ASAP since my daughter is 6 1/2 months and I know that it will take a while to get it as well. Time is running out if we want to have the best results from the helmet since she is getting to be older and her head will not be as easy to transform. Please help me understand what is happening to my baby.> > > > Thank you,> > > > > > first time mom and new to the group> >>

[Guest guest]

Sorry, I forgot to mention in my post that evaluated by Early

Intervention at 3 months old and they are terrific. He has a wonderful physical

therapist who comes to our home twice a week, and also a speech/language

pathologist who comes to our home once a week. He was fitted with hearing aids

at 3 months old and we also are learning baby sign.

So far, everone I have asked about having possible autism, has told me

that they cant tell until they are about 18 months or more.

Yes, Early Intervention is a great way to get the ball rolling.

> > >

> > > Hello,

> > >

> > > I am wondering if anyone out there has statistics on the amount of

children with Plagio that end up getting diagnosed with Autism. My daughter is 6

months, and we are doing the preliminary visits with Cranial Technologies to get

her a helmet. She was born with tort causing her to turn her head to the right

when she slept. I am a new mom and do not have any friends who are parents so I

didn't think it was an issue. That is until she had a noticeable flat head on

the right side at 4 months. As soon as the doctor brought this to our attention,

we started sleeping her on her side using a positioner. He head has improved

very well in the last 2 months, but it is still a bit flat and her ears are not

even so we are still planning to get the helmet. Since her 4 month well

appointment, she has shown several signs of autism. Her smiling has regressed,

she rarely makes eye contact, she doesn't respond very often when someone calls

her name, she twirls her wrists and feet constantly, her head size has rapidly

grown over the last 2 months, she has no desire to sit up (she can though so she

is still meeting milestones), she is obsessed with lights ceiling fans and

televisions, she does not seem very interested in other babies or animals, she

does not like when I try to hold her hands to teach her to wave or clap. She

also had major reflux problems at 3 months which helped lead to the plagio since

she refused tummy time and would push back even when we tried to sit her up on

our laps. She has received no treatment other than our initial appt with CT. I

did not even know that we should be doing exercises for the tort or take her to

therapy for it. I feel like her autism signs have just suddenly appeared.

Conveniently since the Plagio started. I followed the babywise schedule which

had her sleeping through the night at 6 weeks. She has been a very good sleeper

since 6 weeks which also contributed to the Plagio. She still sleeps between 14

and 18 hours a day at 6 months. She doesn't seem to have sensory issues other

than that she like to hold soft materials when she sleeps, but I think that is

pretty normal. Because we were trying to keep her off of her back at 4 months,

we bought her a jumperoo and an exersaucer. She would refuse to sit in them

unless the tv was on. I would try everything to get her to play without the tv

and she would just scream. Tummy time was impossible because she would just roll

right over to her back. She would almost suffocate herself on a boppy pillow

during tummy time. So the jumperoo and exersaucer just seemed to make sense.

After I started noticing signs of autism, I did research on the causes. It seems

like A LOT of babies with plagio and tort have signs of autism. I also

researched that some studies show that too much exposure to the tv may

contribute to the increase in autism over the past decade. It just seems weird

that autism started to be more common when pediatricians suggested sleeping

babies on their backs. Since doing all of this research, I have no longer

offered the television, and my husband and I do not even have it on at all until

she goes to bed for the night. Since she is 6 months now, she is too big for her

sleep positioner but she does still sleep on her side or stomach (on her own) so

she is still pretty much off of the back of her head 24 hours a day. I keep her

sitting up or I hold her all day to keep her from laying back. We do sometimes

have long car rides though. Friends and family think it is not an issue since

she does smile. The problem is that I know my baby and she does not smile nearly

as much as she once did. I really feel that her plagio and tort are connected to

these early signs of autism. I would like to know if there are any parents out

there of children 3 or older who had plagio issues and do not show signs of

autism. Also, are there any parents who decided not to get the helmet? I have

read that it can bruise the brain. Maybe the helmets contribut to something? If

there are parents of older children who opted not to do the helmet, how does

your child's head look now? Did it correct itself? Do they have any semmetry

problems like their ears not lining up? I am needing to make a decision on the

corrective helmet ASAP since my daughter is 6 1/2 months and I know that it will

take a while to get it as well. Time is running out if we want to have the best

results from the helmet since she is getting to be older and her head will not

be as easy to transform. Please help me understand what is happening to my baby.

> > >

> > > Thank you,

> > >

> > >

> > > first time mom and new to the group

> > >

> >

>

[Guest guest]

Hi ,

I agree with about Early Intervention. My daughter is receiving speech, PT, OT, and nutrition therapies through EI (6 appointments every week), and we have been lucky to get some very good therapists who thankfully come to our home. They have been wonderful, and minus a small monthly family fee which is based on your household income, everything that is not covered by insurance is covered through your state for free. In Illinois (not sure if every state is the same), children age out at 3 and then the school system takes over. I would be happy to give you more information on our experience if you are interested or have any questions.

Joyce Caruthers

Plagiocephaly From: melanie.watson@...Date: Mon, 28 Sep 2009 11:29:55 +0000Subject: Re: Re: Connection between Plagio and Autism

Jessie -

You make some excellent points. To some extent, staring at the celing fan is normal in little ones. Both of my kids did that when they were young babies although I'm not sure if they were still doing it at 6 months. And, there could always be other causes for the other concerns. Although I do believe that Autism is a real concern for many kids, I've seen what I would call an Autism scare in our society currently due to the large amount of press that we are seeing on it. Everyone demonstrates a few Autistic characteristics, so distinguishing what's a normal amount of them from an actual disorder is best left up to those that see this every day. Plus, there are other psychological disorders, disabilities, and physical causes to some of these symptoms. Those need to be either ruled out or in so that treatment can be appropriate.

, I agree with Jessie that you really ought to get him to the pediatrician and then to a bunch of other experts. Starting with hearing is probably a good safe bet. Don't forget to contact your local eary intervention. Federal law requires that these services be available everywhere. In some places, it's through the schools and in others, it's through the health department. They can evaluate for free. You also need to keep the pediatirican in the loop so that he/she can rule out any physical causes (such as the CP that mentions).

I have to warn you that I doubt that anyone would put on Autism label on a baby this young, but that's not what really matters anyway. What you want is treatment so that maybe you can avoid the label. The early intervention experts will have dealt with other infants and toddlers showing signs of Autism and can be a really good resource to you. Most of the time, the services are provided in the home or day care setting.

When I take for her 24-month testing session (in the study that we are in), I will ask the testers whether they know of any connection between Autism and Plagio and report back to the group.

Also, , you can contact me as well if you'd like to talk more about this: melanie.watsoncomcast (DOT) net.

, mom to , 25 months

STARband grad May 2009

Chiro and CST

land

Re: Connection between Plagio and Autism

Hi ....when I read your post I would have sworn that it was written about my son , who turned eight months old today. I dont mean to scare you but have you had your daughter's hearing checked since the newborn screening in the hospital? AS it turns out, my son is about 90% deaf in his right ear and has a mild to moderate loss in the left. We also found out recently through an MRI, that he has cerebral palsy. That doesnt mean that your baby has CP or hearing loss, but I would strongly reccomend a nuerological work up if she is developementaly behind. isnt real far behind but he is delayed and we are hoping that the CP is on the mild side.Everything you descibe about your baby from the tummy time issues to the liking to feel soft things, is so much like my son. And when he gets staring at something up high, especially lights, I would swear he was in a different world, you cant break his gaze. If you would like to talk more, please feel free to email me at audie29aolJessiemom to - 8 monthsplagio, tortrefluxhearing losscrebral palsy> >> > Hello,> > > > I am wondering if anyone out there has statistics on the amount of children with Plagio that end up getting diagnosed with Autism. My daughter is 6 months, and we are doing the preliminary visits with Cranial Technologies to get her a helmet. She was born with tort causing her to turn her head to the right when she slept. I am a new mom and do not have any friends who are parents so I didn't think it was an issue. That is until she had a noticeable flat head on the right side at 4 months. As soon as the doctor brought this to our attention, we started sleeping her on her side using a positioner. He head has improved very well in the last 2 months, but it is still a bit flat and her ears are not even so we are still planning to get the helmet. Since her 4 month well appointment, she has shown several signs of autism. Her smiling has regressed, she rarely makes eye contact, she doesn't respond very often when someone calls her name, she twirls her wrists and feet constantly, her head size has rapidly grown over the last 2 months, she has no desire to sit up (she can though so she is still meeting milestones), she is obsessed with lights ceiling fans and televisions, she does not seem very interested in other babies or animals, she does not like when I try to hold her hands to teach her to wave or clap. She also had major reflux problems at 3 months which helped lead to the plagio since she refused tummy time and would push back even when we tried to sit her up on our laps. She has received no treatment other than our initial appt with CT. I did not even know that we should be doing exercises for the tort or take her to therapy for it. I feel like her autism signs have just suddenly appeared. Conveniently since the Plagio started. I followed the babywise schedule which had her sleeping through the night at 6 weeks. She has been a very good sleeper since 6 weeks which also contributed to the Plagio. She still sleeps between 14 and 18 hours a day at 6 months. She doesn't seem to have sensory issues other than that she like to hold soft materials when she sleeps, but I think that is pretty normal. Because we were trying to keep her off of her back at 4 months, we bought her a jumperoo and an exersaucer. She would refuse to sit in them unless the tv was on. I would try everything to get her to play without the tv and she would just scream. Tummy time was impossible because she would just roll right over to her back. She would almost suffocate herself on a boppy pillow during tummy time. So the jumperoo and exersaucer just seemed to make sense. After I started noticing signs of autism, I did research on the causes. It seems like A LOT of babies with plagio and tort have signs of autism. I also researched that some studies show that too much exposure to the tv may contribute to the increase in autism over the past decade. It just seems weird that autism started to be more common when pediatricians suggested sleeping babies on their backs. Since doing all of this research, I have no longer offered the television, and my husband and I do not even have it on at all until she goes to bed for the night. Since she is 6 months now, she is too big for her sleep positioner but she does still sleep on her side or stomach (on her own) so she is still pretty much off of the back of her head 24 hours a day. I keep her sitting up or I hold her all day to keep her from laying back. We do sometimes have long car rides though. Friends and family think it is not an issue since she does smile. The problem is that I know my baby and she does not smile nearly as much as she once did. I really feel that her plagio and tort are connected to these early signs of autism. I would like to know if there are any parents out there of children 3 or older who had plagio issues and do not show signs of autism. Also, are there any parents who decided not to get the helmet? I have read that it can bruise the brain. Maybe the helmets contribut to something? If there are parents of older children who opted not to do the helmet, how does your child's head look now? Did it correct itself? Do they have any semmetry problems like their ears not lining up? I am needing to make a decision on the corrective helmet ASAP since my daughter is 6 1/2 months and I know that it will take a while to get it as well. Time is running out if we want to have the best results from the helmet since she is getting to be older and her head will not be as easy to transform. Please help me understand what is happening to my baby.> > > > Thank you,> > > > > > first time mom and new to the group> >>

found her dream laptop. Find the PC that’s right for you.

[Guest guest]

FYI -

Each state has its own Early Intervention program. They provide services to

infants and toddlers, birth to three years of age, with disabilities or

delays, and their families. Call them and tell them that you're concerned

about your little one, and ask how to contact the early intervention system

in your neighbourhood so that you can have your child evaluated for a

disability. To get information on your state go here:

http://www.nichcy.org/states.htm

Molly

Novato, California

Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 6.5

, 9.5

Re: Connection between Plagio and Autism

Sorry, I forgot to mention in my post that evaluated by Early

Intervention at 3 months old and they are terrific. He has a wonderful

physical therapist who comes to our home twice a week, and also a

speech/language pathologist who comes to our home once a week. He was fitted

with hearing aids at 3 months old and we also are learning baby sign.

So far, everone I have asked about having possible autism, has

told me that they cant tell until they are about 18 months or more.

Yes, Early Intervention is a great way to get the ball rolling.

> > >

> > > Hello,

> > >

> > > I am wondering if anyone out there has statistics on the amount of

children with Plagio that end up getting diagnosed with Autism. My daughter

is 6 months, and we are doing the preliminary visits with Cranial

Technologies to get her a helmet. She was born with tort causing her to turn

her head to the right when she slept. I am a new mom and do not have any

friends who are parents so I didn't think it was an issue. That is until she

had a noticeable flat head on the right side at 4 months. As soon as the

doctor brought this to our attention, we started sleeping her on her side

using a positioner. He head has improved very well in the last 2 months, but

it is still a bit flat and her ears are not even so we are still planning to

get the helmet. Since her 4 month well appointment, she has shown several

signs of autism. Her smiling has regressed, she rarely makes eye contact,

she doesn't respond very often when someone calls her name, she twirls her

wrists and feet constantly, her head size has rapidly grown over the last 2

months, she has no desire to sit up (she can though so she is still meeting

milestones), she is obsessed with lights ceiling fans and televisions, she

does not seem very interested in other babies or animals, she does not like

when I try to hold her hands to teach her to wave or clap. She also had

major reflux problems at 3 months which helped lead to the plagio since she

refused tummy time and would push back even when we tried to sit her up on

our laps. She has received no treatment other than our initial appt with CT.

I did not even know that we should be doing exercises for the tort or take

her to therapy for it. I feel like her autism signs have just suddenly

appeared. Conveniently since the Plagio started. I followed the babywise

schedule which had her sleeping through the night at 6 weeks. She has been a

very good sleeper since 6 weeks which also contributed to the Plagio. She

still sleeps between 14 and 18 hours a day at 6 months. She doesn't seem to

have sensory issues other than that she like to hold soft materials when she

sleeps, but I think that is pretty normal. Because we were trying to keep

her off of her back at 4 months, we bought her a jumperoo and an exersaucer.

She would refuse to sit in them unless the tv was on. I would try everything

to get her to play without the tv and she would just scream. Tummy time was

impossible because she would just roll right over to her back. She would

almost suffocate herself on a boppy pillow during tummy time. So the

jumperoo and exersaucer just seemed to make sense. After I started noticing

signs of autism, I did research on the causes. It seems like A LOT of babies

with plagio and tort have signs of autism. I also researched that some

studies show that too much exposure to the tv may contribute to the increase

in autism over the past decade. It just seems weird that autism started to

be more common when pediatricians suggested sleeping babies on their backs.

Since doing all of this research, I have no longer offered the television,

and my husband and I do not even have it on at all until she goes to bed for

the night. Since she is 6 months now, she is too big for her sleep

positioner but she does still sleep on her side or stomach (on her own) so

she is still pretty much off of the back of her head 24 hours a day. I keep

her sitting up or I hold her all day to keep her from laying back. We do

sometimes have long car rides though. Friends and family think it is not an

issue since she does smile. The problem is that I know my baby and she does

not smile nearly as much as she once did. I really feel that her plagio and

tort are connected to these early signs of autism. I would like to know if

there are any parents out there of children 3 or older who had plagio issues

and do not show signs of autism. Also, are there any parents who decided not

to get the helmet? I have read that it can bruise the brain. Maybe the

helmets contribut to something? If there are parents of older children who

opted not to do the helmet, how does your child's head look now? Did it

correct itself? Do they have any semmetry problems like their ears not

lining up? I am needing to make a decision on the corrective helmet ASAP

since my daughter is 6 1/2 months and I know that it will take a while to

get it as well. Time is running out if we want to have the best results from

the helmet since she is getting to be older and her head will not be as easy

to transform. Please help me understand what is happening to my baby.

> > >

> > > Thank you,

> > >

> > >

> > > first time mom and new to the group

> > >

> >

>

------------------------------------

For more plagio info

[Guest guest]

there is a group for parents of older kids who didn't get helmets but had

plagio--I dont' know the link, but hopefully someone will send it to you.

Does your daughter have any facial assymetry and forehead issues? My son's flat

spot was on the side, behind his left ear, and it wasn't bad. We repositioned

and it didnt' bother me too much by the time we got the helmet at 6 months. But

what WAS an issue to us was the ear misalignment, the left side of his forehead

bumped out, his eyes being in different planes, and his jaw starting to show

misalignment. A flat head won't be as noticable when he has hair (although

someone posted that bike helmets didn't fit their daughter! I thought that was

interesting). But the facial things will always be front and center, and having

eyes and jaw misaligned can lead to vision and eating/speaking issues.

So that's what I would advise, along with talking to the doctor about it--take a

good look at facial issues too. We paid out of pocket, and are getting a small

amount reimbursed by insurance. We (obviously) did decide it was worth it, but,

like you, I researched it a lot and talked it out before deciding, because it is

a big committment of time and money--

Betsy

Does anyone know of children who did not receive a helmet. How did their heads

progress with age? My daughter is 6 months and really does not have a flat head

anymore since we have kept her off of it for 2 months.

[Guest guest]

Hi,

Have you checked with the helmet provider about the effectiveness of

the helmet on fixing the ear? CT pointed out 's ears are slightly

off from the plagio, but I had never noticed. Unfortunately, now I see

it and I'm bummed. After the CT appointment I visited my older son's

kindergarten class. Since I've become obsessed with heads, I looked at

the kids heads and ears. A lot of the 5 year olds had ears sticking

out and often one more than the other. I even saw this in children

whose heads looked perfectly round to me.

My 5 year old has very mild untreated plagio, since I didn't know

treatment was an option. I prefer he didn't, but so far I have no

regrets about not treating him. His ears may be slightly off, but it

may not even be from the plagio. I'm not going to studying his ears,

since at first glance his ears look within normal range to me. He is

very handsome and several people have commented so. The reason I have

no regrets is that I think the treatment process would have been

torture for him. He has minor SID and I think he would have hated the

helmet and visits. I have extreme regrets over not treating my 16

month old sooner, since his head got worse. My advice is to go on the

cautious side and treat if you have any doubt since you cannot go back

in time. First though, I would check with the ortho about whether the

helmet will help the ear. You may want to check out other children's

heads and ears to compare. Once I started looking at other toddler's

heads, it was obvious that 's head was abnormal and I felt stupid

for not realizing sooner how bad his head had gotten.

Good luck,

Kathy, mom to , 16 months, 4 months in Starband for plagio and

, 5 years, very mild untreated plagio

tough.keith wrote:

Does anyone know of children who did not receive a helmet. How did

their heads progress with age? My daughter is 6 months and really does

not have a flat head anymore since we have kept her off of it for 2

months. One of her ears does stick out a little more than the other

though. We just found out today that insurance will not cover a helmet

for her. I am just wondering if $3600 is worth it for her ears not

being exactly level with eathother. No one in my family even noticed it

until it was brought to our attention. Has anyone experienced this and

chosen against a helmet? Did the symmetry get better or worse over

time? No money is too much if it is really something that she needs,

but $3600 is a lot of money and would be good to put towards some of

the other health issues we may be dealing with since she has been

showing the early autism signs.

> > > >

> > > > Hello,

> > > >

> > > > I am wondering if anyone out there has statistics

on the amount of

> children with Plagio that end up getting diagnosed with Autism. My

daughter

> is 6 months, and we are doing the preliminary visits with Cranial

> Technologies to get her a helmet. She was born with tort causing

her to turn

> her head to the right when she slept. I am a new mom and do not

have any

> friends who are parents so I didn't think it was an issue. That is

until she

> had a noticeable flat head on the right side at 4 months. As soon

as the

> doctor brought this to our attention, we started sleeping her on

her side

> using a positioner. He head has improved very well in the last 2

months, but

> it is still a bit flat and her ears are not even so we are still

planning to

> get the helmet. Since her 4 month well appointment, she has shown

several

> signs of autism. Her smiling has regressed, she rarely makes eye

contact,

> she doesn't respond very often when someone calls her name, she

twirls her

> wrists and feet constantly, her head size has rapidly grown over

the last 2

> months, she has no desire to sit up (she can though so she is

still meeting

> milestones), she is obsessed with lights ceiling fans and

televisions, she

> does not seem very interested in other babies or animals, she does

not like

> when I try to hold her hands to teach her to wave or clap. She

also had

> major reflux problems at 3 months which helped lead to the plagio

since she

> refused tummy time and would push back even when we tried to sit

her up on

> our laps. She has received no treatment other than our initial

appt with CT.

> I did not even know that we should be doing exercises for the tort

or take

> her to therapy for it. I feel like her autism signs have just

suddenly

> appeared. Conveniently since the Plagio started. I followed the

babywise

> schedule which had her sleeping through the night at 6 weeks. She

has been a

> very good sleeper since 6 weeks which also contributed to the

Plagio. She

> still sleeps between 14 and 18 hours a day at 6 months. She

doesn't seem to

> have sensory issues other than that she like to hold soft

materials when she

> sleeps, but I think that is pretty normal. Because we were trying

to keep

> her off of her back at 4 months, we bought her a jumperoo and an

exersaucer.

> She would refuse to sit in them unless the tv was on. I would try

everything

> to get her to play without the tv and she would just scream. Tummy

time was

> impossible because she would just roll right over to her back. She

would

> almost suffocate herself on a boppy pillow during tummy time. So

the

> jumperoo and exersaucer just seemed to make sense. After I started

noticing

> signs of autism, I did research on the causes. It seems like A LOT

of babies

> with plagio and tort have signs of autism. I also researched that

some

> studies show that too much exposure to the tv may contribute to

the increase

> in autism over the past decade. It just seems weird that autism

started to

> be more common when pediatricians suggested sleeping babies on

their backs.

> Since doing all of this research, I have no longer offered the

television,

> and my husband and I do not even have it on at all until she goes

to bed for

> the night. Since she is 6 months now, she is too big for her sleep

> positioner but she does still sleep on her side or stomach (on her

own) so

> she is still pretty much off of the back of her head 24 hours a

day. I keep

> her sitting up or I hold her all day to keep her from laying back.

We do

> sometimes have long car rides though. Friends and family think it

is not an

> issue since she does smile. The problem is that I know my baby and

she does

> not smile nearly as much as she once did. I really feel that her

plagio and

> tort are connected to these early signs of autism. I would like to

know if

> there are any parents out there of children 3 or older who had

plagio issues

> and do not show signs of autism. Also, are there any parents who

decided not

> to get the helmet? I have read that it can bruise the brain. Maybe

the

> helmets contribut to something? If there are parents of older

children who

> opted not to do the helmet, how does your child's head look now?

Did it

> correct itself? Do they have any semmetry problems like their ears

not

> lining up? I am needing to make a decision on the corrective

helmet ASAP

> since my daughter is 6 1/2 months and I know that it will take a

while to

> get it as well. Time is running out if we want to have the best

results from

> the helmet since she is getting to be older and her head will not

be as easy

> to transform. Please help me understand what is happening to my

baby.

> > > >

> > > > Thank you,

> > > >

> > > >

> > > > first time mom and new to the group

> > > >

> > >

> >

>

>

> ------------------------------------

>

> For more plagio info

[Guest guest]

Jessie,

I am sorry to hear about your son. So an MRI is what caught the CP? We have a

neurologist appt on Monday. I am going to request an MRI. Were there any other

signs that seemed " off " to you? My daughter DOES smile and laugh. Just not as

much as most babies do.

> > >

> > > Hello,

> > >

> > > I am wondering if anyone out there has statistics on the amount of

children with Plagio that end up getting diagnosed with Autism. My daughter is

6 months, and we are doing the preliminary visits with Cranial Technologies to

get her a helmet. She was born with tort causing her to turn her head to the

right when she slept. I am a new mom and do not have any friends who are

parents so I didn't think it was an issue. That is until she had a noticeable

flat head on the right side at 4 months. As soon as the doctor brought this to

our attention, we started sleeping her on her side using a positioner. He head

has improved very well in the last 2 months, but it is still a bit flat and her

ears are not even so we are still planning to get the helmet. Since her 4 month

well appointment, she has shown several signs of autism. Her smiling has

regressed, she rarely makes eye contact, she doesn't respond very often when

someone calls her name, she twirls her wrists and feet constantly, her head size

has rapidly grown over the last 2 months, she has no desire to sit up (she can

though so she is still meeting milestones), she is obsessed with lights ceiling

fans and televisions, she does not seem very interested in other babies or

animals, she does not like when I try to hold her hands to teach her to wave or

clap. She also had major reflux problems at 3 months which helped lead to the

plagio since she refused tummy time and would push back even when we tried to

sit her up on our laps. She has received no treatment other than our initial

appt with CT. I did not even know that we should be doing exercises for the

tort or take her to therapy for it. I feel like her autism signs have just

suddenly appeared. Conveniently since the Plagio started. I followed the

babywise schedule which had her sleeping through the night at 6 weeks. She has

been a very good sleeper since 6 weeks which also contributed to the Plagio.

She still sleeps between 14 and 18 hours a day at 6 months. She doesn't seem to

have sensory issues other than that she like to hold soft materials when she

sleeps, but I think that is pretty normal. Because we were trying to keep her

off of her back at 4 months, we bought her a jumperoo and an exersaucer. She

would refuse to sit in them unless the tv was on. I would try everything to get

her to play without the tv and she would just scream. Tummy time was impossible

because she would just roll right over to her back. She would almost suffocate

herself on a boppy pillow during tummy time. So the jumperoo and exersaucer

just seemed to make sense. After I started noticing signs of autism, I did

research on the causes. It seems like A LOT of babies with plagio and tort have

signs of autism. I also researched that some studies show that too much

exposure to the tv may contribute to the increase in autism over the past

decade. It just seems weird that autism started to be more common when

pediatricians suggested sleeping babies on their backs. Since doing all of this

research, I have no longer offered the television, and my husband and I do not

even have it on at all until she goes to bed for the night. Since she is 6

months now, she is too big for her sleep positioner but she does still sleep on

her side or stomach (on her own) so she is still pretty much off of the back of

her head 24 hours a day. I keep her sitting up or I hold her all day to keep

her from laying back. We do sometimes have long car rides though. Friends and

family think it is not an issue since she does smile. The problem is that I

know my baby and she does not smile nearly as much as she once did. I really

feel that her plagio and tort are connected to these early signs of autism. I

would like to know if there are any parents out there of children 3 or older who

had plagio issues and do not show signs of autism. Also, are there any parents

who decided not to get the helmet? I have read that it can bruise the brain.

Maybe the helmets contribut to something? If there are parents of older

children who opted not to do the helmet, how does your child's head look now?

Did it correct itself? Do they have any semmetry problems like their ears not

lining up? I am needing to make a decision on the corrective helmet ASAP since

my daughter is 6 1/2 months and I know that it will take a while to get it as

well. Time is running out if we want to have the best results from the helmet

since she is getting to be older and her head will not be as easy to transform.

Please help me understand what is happening to my baby.

> > >

> > > Thank you,

> > >

> > >

> > > first time mom and new to the group

> > >

> >

>

[Guest guest]

does smile and laugh a lot, as a matter of fact, he is extremely social

and interactive. The only other thing I can think of off hand that stood out,

was that he seemed kind of stiff, a little rigid maybe with some arching of his

back, and it seemed like he was favoring one side over the other. When I took

him to the neurologist, I wasnt in the room with him for more than 5 minutes

when he said " he has cerebral palsy " . I was like " what??? " That was the first

time he had ever seen my son, and before the MRI confirmed it. This doctor is

very highly respected and all of our local docs send kids to him even thogh he

is almost two hours away.

WE also had bloodwork done yesterday to rule out any metabolic diseases,

although he doesnt think he has any.

I think thats a good idea to request the MRI, he will probably want to do one

anyway. Good luck and keep us posted......Jessie

> > > >

> > > > Hello,

> > > >

> > > > I am wondering if anyone out there has statistics on the amount of

children with Plagio that end up getting diagnosed with Autism. My daughter is

6 months, and we are doing the preliminary visits with Cranial Technologies to

get her a helmet. She was born with tort causing her to turn her head to the

right when she slept. I am a new mom and do not have any friends who are

parents so I didn't think it was an issue. That is until she had a noticeable

flat head on the right side at 4 months. As soon as the doctor brought this to

our attention, we started sleeping her on her side using a positioner. He head

has improved very well in the last 2 months, but it is still a bit flat and her

ears are not even so we are still planning to get the helmet. Since her 4 month

well appointment, she has shown several signs of autism. Her smiling has

regressed, she rarely makes eye contact, she doesn't respond very often when

someone calls her name, she twirls her wrists and feet constantly, her head size

has rapidly grown over the last 2 months, she has no desire to sit up (she can

though so she is still meeting milestones), she is obsessed with lights ceiling

fans and televisions, she does not seem very interested in other babies or

animals, she does not like when I try to hold her hands to teach her to wave or

clap. She also had major reflux problems at 3 months which helped lead to the

plagio since she refused tummy time and would push back even when we tried to

sit her up on our laps. She has received no treatment other than our initial

appt with CT. I did not even know that we should be doing exercises for the

tort or take her to therapy for it. I feel like her autism signs have just

suddenly appeared. Conveniently since the Plagio started. I followed the

babywise schedule which had her sleeping through the night at 6 weeks. She has

been a very good sleeper since 6 weeks which also contributed to the Plagio.

She still sleeps between 14 and 18 hours a day at 6 months. She doesn't seem to

have sensory issues other than that she like to hold soft materials when she

sleeps, but I think that is pretty normal. Because we were trying to keep her

off of her back at 4 months, we bought her a jumperoo and an exersaucer. She

would refuse to sit in them unless the tv was on. I would try everything to get

her to play without the tv and she would just scream. Tummy time was impossible

because she would just roll right over to her back. She would almost suffocate

herself on a boppy pillow during tummy time. So the jumperoo and exersaucer

just seemed to make sense. After I started noticing signs of autism, I did

research on the causes. It seems like A LOT of babies with plagio and tort have

signs of autism. I also researched that some studies show that too much

exposure to the tv may contribute to the increase in autism over the past

decade. It just seems weird that autism started to be more common when

pediatricians suggested sleeping babies on their backs. Since doing all of this

research, I have no longer offered the television, and my husband and I do not

even have it on at all until she goes to bed for the night. Since she is 6

months now, she is too big for her sleep positioner but she does still sleep on

her side or stomach (on her own) so she is still pretty much off of the back of

her head 24 hours a day. I keep her sitting up or I hold her all day to keep

her from laying back. We do sometimes have long car rides though. Friends and

family think it is not an issue since she does smile. The problem is that I

know my baby and she does not smile nearly as much as she once did. I really

feel that her plagio and tort are connected to these early signs of autism. I

would like to know if there are any parents out there of children 3 or older who

had plagio issues and do not show signs of autism. Also, are there any parents

who decided not to get the helmet? I have read that it can bruise the brain.

Maybe the helmets contribut to something? If there are parents of older

children who opted not to do the helmet, how does your child's head look now?

Did it correct itself? Do they have any semmetry problems like their ears not

lining up? I am needing to make a decision on the corrective helmet ASAP since

my daughter is 6 1/2 months and I know that it will take a while to get it as

well. Time is running out if we want to have the best results from the helmet

since she is getting to be older and her head will not be as easy to transform.

Please help me understand what is happening to my baby.

> > > >

> > > > Thank you,

> > > >

> > > >

> > > > first time mom and new to the group

> > > >

> > >

> >

>