Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 I also have a 4-month old (son) with torticollis and plagicephaly (with preference to look right). I noticed the flattening at 5 weeks, but didn't tell our pediatrician until our 2 month check-up. He referred us to a physical therapist for positioning therapy. He was hopeful that since we caught it early that all he would need is therapy. That helped round out the spot a bit, making it slightly less noticeable, but he still has a 15mm difference between sides (the diagonal measurements.) I definitely recommend trying physical therapy first. I learned so much from the session re: my child's growth and development, and the stretches and exercises really helped the torticollis and breaking him from favoring looking right. Some babies will benefit from being off their heads completely (as much as possible), but our little boy seems to need some extra pressure on with prominent areas (i.e., we need to make a decision about the helmet.)Unfortunately, we have United HealthCare which excludes "cosmetic and reconstructive" surgery from coverage. Our pediatrician, physical therapist, and orthotist all say that which lots of documentation we can fight it, but I'm not holding out hope. Our son was born a month early, making his adjusted age 3-months, so we have a little bit of time to decide. Our orthotist recommended not starting the helmet too early, lest once correction was achieved his head still be soft enough to resume flattening afterwards. But she also wants to get his helmet on him before 6 months. I think we are going to bite the bullet and get the helmet, even if we have to pay out of pocket. Besides the appearance of his head, I do worry that the assymetry will lead to problems down the road with his neck and jaw, especially if he inherits his mother's scoliosis as well.Good luck to you. Wardrombachb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 Thank you ! I actually took my daughter to a pediatrician in the clinic today who agreed she needed some physical therapy. Hopefully, I'll be able to start that soon, just waiting on the doctor's office to fax the orders now. Even though Cranial Tech is 7 hours away, I scheduled an evaluation with them today for next week, just to get a better idea of things. The ped. said her plagio is on the mild side. It is so hard to know what the right thing to do is! Thanks for your response, Sharyn > > I also have a 4-month old (son) with torticollis and plagicephaly (with preference to look right). I noticed the flattening at 5 weeks, but didn't tell our pediatrician until our 2 month check-up. He referred us to a physical therapist for positioning therapy. He was hopeful that since we caught it early that all he would need is therapy. That helped round out the spot a bit, making it slightly less noticeable, but he still has a 15mm difference between sides (the diagonal measurements.) I definitely recommend trying physical therapy first. I learned so much from the session re: my child's growth and development, and the stretches and exercises really helped the torticollis and breaking him from favoring looking right. Some babies will benefit from being off their heads completely (as much > as possible), but our little boy seems to need some extra pressure on > with prominent areas (i.e., we need to make a decision about the helmet.) > > Unfortunately, we have United HealthCare which excludes " cosmetic and reconstructive " surgery from coverage. Our pediatrician, physical therapist, and orthotist all say that which lots of documentation we can fight it, but I'm not holding out hope. Our son was born a month early, making his adjusted age 3-months, so we have a little bit of time to decide. Our orthotist recommended not starting the helmet too early, lest once correction was achieved his head still be soft enough to resume flattening afterwards. But she also wants to get his helmet on him before 6 months. I think we are going to bite the bullet and get the helmet, even if we have to pay out of pocket. Besides the appearance of his head, I do worry that the assymetry will lead to problems down the road with his neck and jaw, especially if he inherits his mother's scoliosis as well. > > Good luck to you. > > Ward > rombachb@... > Quote Link to comment Share on other sites More sharing options...
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