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Re: 10 reasons why we'd be lost without Sarcoid

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Oh man, Mitch! I'll have to think about this awhile. No wait, I've got one!

If there were no sarcoid I wouldn't have an entire large drawer just for sox to keep my tootsies warm! (I know, it's not as good as yours, but I bow to the master.)

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mjcv29a@...Date: Fri, 27 Aug 2010 21:32:29 -0400Subject: 10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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These are great! Sadly, some are very true.........like the Doctors.... I do think we are

slowly getting more attention though. It seems like I hear "Sarcoidosis" a lot more than I used to. Before I was diagnosed, I had never heard of it. Hopefully they will find a cure or at least a medicine that will work without all the side effects.

thanks for sending.

Hugs,DarleneNS Co-Owner/Moderator

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If there was no sarcoid I would never know how afraid of the unknown disease my friends and family can be.

JM

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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If there were no sarcoid I would never know the real meaning of Caregiver.If there wer no sarcoid I would never know how deep the love I have for my goes. MattSubject: 10 reasons why we'd be lost without SarcoidTo: Neurosarcoidosis Date: Friday, August 27, 2010, 9:32 PM

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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how sweet!Life may not always be the party we hoped for, but while we're here we might as well dance!

Subject: 10 reasons why we'd be lost without SarcoidTo: Neurosarcoidosis Date: Friday, August 27, 2010, 9:32 PM

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Oh gee, Matt. That's lovely. What a blessing you are are to each other.

Ramblin' RoseModerator

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: dmatt1960@...Date: Sun, 29 Aug 2010 20:23:15 -0700Subject: Re: 10 reasons why we'd be lost without Sarcoid

If there were no sarcoid I would never know the real meaning of Caregiver.If there wer no sarcoid I would never know how deep the love I have for my goes. Matt

Subject: 10 reasons why we'd be lost without SarcoidTo: Neurosarcoidosis Date: Friday, August 27, 2010, 9:32 PM

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Thanks. Today I don't think she felt so great about me as I had the Home care people start. She still thinks she can be by herself all day. Any suggestions would be appreciated.Matt

Subject: 10 reasons why we'd be lost without SarcoidTo: Neurosarcoidosis Date: Friday, August 27, 2010, 9:32 PM

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Matt,

I wish I could give you some advice. I'm afraid the day will come when my husband will have to get help. I hope I will understand . When you have took care of yourself all your life it is just hard each time you have to give something up it takes away a little bit of your Independence . I used to work s an activity director at a nursing home, and all the meeting I ever attended, we were told to let the person do something that would give them some of their independence back, even if you had to make up something for them to do. I hope this helps.

To: Neurosarcoidosis Sent: Mon, August 30, 2010 10:53:02 PMSubject: RE: 10 reasons why we'd be lost without Sarcoid

Thanks. Today I don't think she felt so great about me as I had the Home care people start. She still thinks she can be by herself all day. Any suggestions would be appreciated.Matt

Subject: 10 reasons why we'd be lost without SarcoidTo: Neurosarcoidosis Date: Friday, August 27, 2010, 9:32 PM

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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You are right, Jackie. Sad but true for so many.

Ramblin' RoseModerator

To: Neurosarcoidosis From: shadowme810@...Date: Sun, 29 Aug 2010 18:24:05 -0500Subject: Re: 10 reasons why we'd be lost without Sarcoid

If there was no sarcoid I would never know how afraid of the unknown disease my friends and family can be.

JM

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Unfortunately, it's something that is difficult to handle for those who do

the caring, especially when they rememeber how things were. My

mother-in-law is 97, immobile and still thinks she can go back home and

live as she did twenty or more years ago! It is tough for her to accept

that there are things that she can no longer do, especially as her memory

is not as good as it was.

God bless,

>

> Thanks. Today I don't think she felt so

> great about me as I had the Home care people start. She still thinks

> she can be by herself all day. Any suggestions would be appreciated.

>

> Matt

>

>

>

> From: mjcv29a@...

> Subject: 10 reasons why we'd be lost without

> Sarcoid To: Neurosarcoidosis

> Date: Friday, August 27, 2010, 9:32 PM

>

> TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

>

>

>

>

>

> 10- If there were no Sarcoid then my wife would have valid reasons to

> yell at me for not having the energy to take out the garbage!

>

> 9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

>

>

> 8- If there were no Sarcoid I wouldn't have had the time to watch

> every video ever made!

>

>

> 7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my

> closet- used to be (small) somewhere in the middle (Medium), 4 years of

> Prednisone (fat)

>

>

>

>

> 6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a

> " Painless disease " and calls himself a " Sarcoidologist " would actually

> have to get a job.;

>

>

> 5-If there were no Sarcoid I could have gone through my entire life

> as a man and never known what Menopause feels like. (Symptoms of high

> doses of Prednisone for years, wink wink)

>

>

> 4-If there were no Sarcoid we might actually one day have an Ocean's

> Fourteen!

>

>

> 3-If there were no Sarcoid I never would have known what it feels

> like to have your monthly meds cost more then your mortgage!

>

>

> 2-If there were no Sarcoid I would never have know what it's like to

> go 4 years without one full night of sleep

>

>

> and last but not least

>

>

> 1- If there were no Sarcoid then Dr. " House " MD would have

> nothing to guess at when his patient is in really bad shape and they

> have no other diseases to choose from. ( It's been a possibility of 3

> different patients with multi-organ problems this season alone) Have

> you noticed that it's been a possible diagnosis on almost every medical

> show in the last two years?

>

>

>

>

>

>

> But If there were no Sarcoid I never would have met you guys :)

> Guess that makes 11.

>

>

>

>

> Come on let's see what you guys can come up with,,,,,,,,,

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Share on other sites

I'm gonna give it a try, Why I'd be lost without Sarcoid? Well I wouldn't have a 30,000 electric wheelchair sitting in my brothers house.

# 2. If it wasn't for sarc: I'd still be living in my own house.

#3. I'd be working the job that I loved

#4. Iwouldn't be on disability due to frequent falls

#5. I'd be going out fishing

#6 or going out dancing on Friday night.

#7 I wouldn't be crying due to the pain in my legs/hips.

#8 I drive down to Chattanooga, to visit my son on weekends..

I could only think of 8..

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Share on other sites

I think this is a really good idea. we let go of some feelings left unsaid.

I am trying to compile all of them Please post yours again for me incase I missed them. Jackie

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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said: #5. I'd be going out fishing

So, if it weren't for sarc, the fish in Tennessee would all be gone!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: topdat1@...Date: Tue, 31 Aug 2010 02:00:21 -0500Subject: Re: 10 reasons why we'd be lost without Sarcoid

I'm gonna give it a try, Why I'd be lost without Sarcoid? Well I wouldn't have a 30,000 electric wheelchair sitting in my brothers house.

# 2. If it wasn't for sarc: I'd still be living in my own house.

#3. I'd be working the job that I loved

#4. Iwouldn't be on disability due to frequent falls

#5. I'd be going out fishing

#6 or going out dancing on Friday night.

#7 I wouldn't be crying due to the pain in my legs/hips.

#8 I drive down to Chattanooga, to visit my son on weekends..

I could only think of 8..

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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1-

If there were no Sarcoid then  Dr. " House " MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you

noticed that it's been a possible diagnosis on almost every medical show in the last two years?

OH my gosh this is my favorite show, I love it, Sat. was a house marathon, and I sat and watched it, I think I took a couple little naps too:)  I just wish there would be a really sick pt. that actually had Sarcoid, and they could talk about

how bad it really is, now that would be great.  If it wasn't for Sarc, I wouldn't  have met my wonderful now friend, my Remicade IV nurse. I just love her, and she is a new MK customer too. how's that.

Marla

 

Oh man, Mitch!  I'll have to think about this awhile.  No wait, I've got one!

 

If there were no sarcoid I wouldn't have an entire large drawer just for sox to keep my tootsies warm!  (I know, it's not as good as yours, but I bow to the master.)

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: Neurosarcoidosis From: mjcv29a@...Date: Fri, 27 Aug 2010 21:32:29 -0400

Subject: 10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS  By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a " Painless disease " and calls himself a " Sarcoidologist " would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then  Dr. " House " MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :)  Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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ThanksToday was a bit better. I am hoping with time she will accept their help more. Matt

>

> From: mjcv29a@...

> Subject: 10 reasons why we'd be lost without

> Sarcoid To: Neurosarcoidosis

> Date: Friday, August 27, 2010, 9:32 PM

>

> TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

>

>

>

>

>

> 10- If there were no Sarcoid then my wife would have valid reasons to

> yell at me for not having the energy to take out the garbage!

>

> 9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

>

>

> 8- If there were no Sarcoid I wouldn't have had the time to watch

> every video ever made!

>

>

> 7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my

> closet- used to be (small) somewhere in the middle (Medium), 4 years of

> Prednisone (fat)

>

>

>

>

> 6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a

> "Painless disease" and calls himself a "Sarcoidologist" would actually

> have to get a job.;

>

>

> 5-If there were no Sarcoid I could have gone through my entire life

> as a man and never known what Menopause feels like. (Symptoms of high

> doses of Prednisone for years, wink wink)

>

>

> 4-If there were no Sarcoid we might actually one day have an Ocean's

> Fourteen!

>

>

> 3-If there were no Sarcoid I never would have known what it feels

> like to have your monthly meds cost more then your mortgage!

>

>

> 2-If there were no Sarcoid I would never have know what it's like to

> go 4 years without one full night of sleep

>

>

> and last but not least

>

>

> 1- If there were no Sarcoid then Dr. "House" MD would have

> nothing to guess at when his patient is in really bad shape and they

> have no other diseases to choose from. ( It's been a possibility of 3

> different patients with multi-organ problems this season alone) Have

> you noticed that it's been a possible diagnosis on almost every medical

> show in the last two years?

>

>

>

>

>

>

> But If there were no Sarcoid I never would have met you guys :)

> Guess that makes 11.

>

>

>

>

> Come on let's see what you guys can come up with,,,,,,,,,

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

Link to comment
Share on other sites

Thanks for the good words. She is able to still do some things but does require assistance with others. She is just so independent that is very hard for her to accept helpMatt

Subject: 10 reasons why we'd be lost without SarcoidTo: Neurosarcoidosis Date: Friday, August 27, 2010, 9:32 PM

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Share on other sites

Absolutely!! We'd be free from the fish in Tennessee, then I'd have to work on Indiana's fish.. HA!

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Have you also noticed Mitch (that's my baby brother's name by the way) that on the House episodes it never turns out to be Saroid because there is no cure.....at least that's the only reason I can figure out..

If it weren't for sarcoid, I don't think I would appreciate the sky everyday like I do.

And if it weren't for Sarcoid, Walgreens would probably be having financial difficulties

And if it weren't for sarcoid, I'd have vacation bills instead of pharmacy and specialist bills

To: Neurosarcoidosis Sent: Sun, August 29, 2010 4:24:05 PMSubject: Re: 10 reasons why we'd be lost without Sarcoid

If there was no sarcoid I would never know how afraid of the unknown disease my friends and family can be.

JM

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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I have to say I really love this "if it wasn't for sarcoid" lines

Jackie

10 reasons why we'd be lost without Sarcoid

TEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.

10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage!

9- If there were no Sarcoid, I'd never qualify for a Handicap plate!

8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!

7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)

6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;

5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)

4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!

3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!

2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleep

and last but not least

1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?

But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.

Come on let's see what you guys can come up with,,,,,,,,,

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Share on other sites

It does help change our perspective, doesn't it?Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: shadowme810@...Date: Sat, 4 Sep 2010 13:45:50 -0500Subject: Re: 10 reasons why we'd be lost without Sarcoid I have to say I really love this "if it wasn't for sarcoid" linesJackie 10 reasons why we'd be lost without SarcoidTEN REASONS WHY WE NEED SARCOIDOSIS By Mitch B.10- If there were no Sarcoid then my wife would have valid reasons to yell at me for not having the energy to take out the garbage! 9- If there were no Sarcoid, I'd never qualify for a Handicap plate!8- If there were no Sarcoid I wouldn't have had the time to watch every video ever made!7- If there were no Sarcoid I wouldn't have 3 sets of clothes in my closet- used to be (small) somewhere in the middle (Medium), 4 years of Prednisone (fat)6-If there were no Sarcoid my Pulmonologist who keeps claiming it's a "Painless disease" and calls himself a "Sarcoidologist" would actually have to get a job.;5-If there were no Sarcoid I could have gone through my entire life as a man and never known what Menopause feels like. (Symptoms of high doses of Prednisone for years, wink wink)4-If there were no Sarcoid we might actually one day have an Ocean's Fourteen!3-If there were no Sarcoid I never would have known what it feels like to have your monthly meds cost more then your mortgage!2-If there were no Sarcoid I would never have know what it's like to go 4 years without one full night of sleepand last but not least1- If there were no Sarcoid then Dr. "House" MD would have nothing to guess at when his patient is in really bad shape and they have no other diseases to choose from. ( It's been a possibility of 3 different patients with multi-organ problems this season alone) Have you noticed that it's been a possible diagnosis on almost every medical show in the last two years?But If there were no Sarcoid I never would have met you guys :) Guess that makes 11.Come on let's see what you guys can come up with,,,,,,,,,

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