Re: Check in time--hey Connie!

[Guest guest]

Ok I am still here. You thought you could get rid of me HA WON'T HAPPEN. i HAVE TO KEEP CHARGE OF ALL THESE BIRTHDAYS. I THINK MY RHYME IS BREAKING LOL

all IS WELL HERE. been A LITTLE DIZZY BUT MY FAMILY SAY I AM LIKE THAT ALL THE TIME.

hope ALL ARE HAVING A WONDERFUL AND PAIN FREE VACATION. it IS SCHOOL TIME AGAIN

hOPPY HAPPY.

Jackie

Check in time--hey Connie!

Well, gang, it's September. We haven't gotten spectacular responses to the last two check in requests. With ~600 members, I'd like to see a blitz of messages. You don't have to write a lengthy post (we aren't all "ramblers"), just let us know you're still alive & kicking the sarc monster in the arse. Connie, did you get that lung problem cleared up? I've been worried about you. Remember the sarc retreat & patient info meeting coming up in Indianapolis in Oct. It's a real treat every year; maybe some of you that live within driving distance can carpool. I'll make you an offer you can't refuse, heh, heh. I'll have a special surprise for anyone in this group that shows up. If anyone needs info, let me know, or go to www.indysarcoid.org. This meeting is not specifically geared toward NS, but I thoroughly enjoy it each year. Last year I met a couple who knew my son from his weekend gig waiting tables at a pizza place. I took their pic with my cell phone & sent it to him. He immediately recognized them, knew their names & their favorites. They got a big kick out of it. Also, The 4th Annual Hike for Lung Health is coming up Oct. 4, I think. I didn't participate last year after doing it the first 2 years. The first 2 times I was really fired up, got articles in the paper, put flyers all over town, banners on my car, and not one person showed up to walk with me besides my family. I may do it this year, but without any fanfare, just to make myself walk a mile. The main event takes place in Chicago, but anyone can sign up as a virtual walker, even if you aren't able to walk a mile. For info, see www.stopsarcoidosis.org, the site for FSR (Foundation for Sarcoidosis Research) Okay, that's the news for tonight. "Good night, Chet." "Good night, ." You younger folk will be wondering what the heck that's about; ask one of the "crones" or "codgers" in your life to explain it. All right, let's get those fingers flying, or pecking, whatever works. We want to hear from you!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

[Guest guest]

Just to update you'all I am down 100 bls. I am in remission. I am going thru or

starting rehabilitation so I can go back to work as a Master Automotive Tech any

one have a vote for which car company?

Sent from my iPhone

[Guest guest]

Your family says dizzy is your natural state?!? Is that what you meant? When my first neurologist said that he thought I had NS, I said, "So, I'm not nuts?" He answered, "Well, you might be, but you've got this too." So maybe you're dizzy or ditzy, but you're sick too! As long as they realize that.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: shadowme810@...Date: Wed, 1 Sep 2010 20:31:21 -0500Subject: Re: Check in time--hey Connie!

Ok I am still here. You thought you could get rid of me HA WON'T HAPPEN. i HAVE TO KEEP CHARGE OF ALL THESE BIRTHDAYS. I THINK MY RHYME IS BREAKING LOL

all IS WELL HERE. been A LITTLE DIZZY BUT MY FAMILY SAY I AM LIKE THAT ALL THE TIME.

hope ALL ARE HAVING A WONDERFUL AND PAIN FREE VACATION. it IS SCHOOL TIME AGAIN

hOPPY HAPPY.

Jackie

Check in time--hey Connie!

Well, gang, it's September. We haven't gotten spectacular responses to the last two check in requests. With ~600 members, I'd like to see a blitz of messages. You don't have to write a lengthy post (we aren't all "ramblers"), just let us know you're still alive & kicking the sarc monster in the arse. Connie, did you get that lung problem cleared up? I've been worried about you. Remember the sarc retreat & patient info meeting coming up in Indianapolis in Oct. It's a real treat every year; maybe some of you that live within driving distance can carpool. I'll make you an offer you can't refuse, heh, heh. I'll have a special surprise for anyone in this group that shows up. If anyone needs info, let me know, or go to www.indysarcoid.org. This meeting is not specifically geared toward NS, but I thoroughly enjoy it each year. Last year I met a couple who knew my son from his weekend gig waiting tables at a pizza place. I took their pic with my cell phone & sent it to him. He immediately recognized them, knew their names & their favorites. They got a big kick out of it. Also, The 4th Annual Hike for Lung Health is coming up Oct. 4, I think. I didn't participate last year after doing it the first 2 years. The first 2 times I was really fired up, got articles in the paper, put flyers all over town, banners on my car, and not one person showed up to walk with me besides my family. I may do it this year, but without any fanfare, just to make myself walk a mile. The main event takes place in Chicago, but anyone can sign up as a virtual walker, even if you aren't able to walk a mile. For info, see www.stopsarcoidosis.org, the site for FSR (Foundation for Sarcoidosis Research) Okay, that's the news for tonight. "Good night, Chet." "Good night, ." You younger folk will be wondering what the heck that's about; ask one of the "crones" or "codgers" in your life to explain it. All right, let's get those fingers flying, or pecking, whatever works. We want to hear from you!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

[Guest guest]

lol I am not sure what they mean, the family that is. But as long as I can take it with a smile they give it with one. I do some unusual things sometimes. Silly and even obnoxious. AAAWWWW they love me.

Jackie

Check in time--hey Connie!

Well, gang, it's September. We haven't gotten spectacular responses to the last two check in requests. With ~600 members, I'd like to see a blitz of messages. You don't have to write a lengthy post (we aren't all "ramblers"), just let us know you're still alive & kicking the sarc monster in the arse. Connie, did you get that lung problem cleared up? I've been worried about you. Remember the sarc retreat & patient info meeting coming up in Indianapolis in Oct. It's a real treat every year; maybe some of you that live within driving distance can carpool. I'll make you an offer you can't refuse, heh, heh. I'll have a special surprise for anyone in this group that shows up. If anyone needs info, let me know, or go to www.indysarcoid.org. This meeting is not specifically geared toward NS, but I thoroughly enjoy it each year. Last year I met a couple who knew my son from his weekend gig waiting tables at a pizza place. I took their pic with my cell phone & sent it to him. He immediately recognized them, knew their names & their favorites. They got a big kick out of it. Also, The 4th Annual Hike for Lung Health is coming up Oct. 4, I think. I didn't participate last year after doing it the first 2 years. The first 2 times I was really fired up, got articles in the paper, put flyers all over town, banners on my car, and not one person showed up to walk with me besides my family. I may do it this year, but without any fanfare, just to make myself walk a mile. The main event takes place in Chicago, but anyone can sign up as a virtual walker, even if you aren't able to walk a mile. For info, see www.stopsarcoidosis.org, the site for FSR (Foundation for Sarcoidosis Research) Okay, that's the news for tonight. "Good night, Chet." "Good night, ." You younger folk will be wondering what the heck that's about; ask one of the "crones" or "codgers" in your life to explain it. All right, let's get those fingers flying, or pecking, whatever works. We want to hear from you!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

[Guest guest]

YAY!!!! That's great news! Hope things just keep getting better for you!!!!!

To: "Neurosarcoidosis " <Neurosarcoidosis >Sent: Wed, September 1, 2010 9:38:02 PMSubject: Re: Check in time--hey Connie!

Just to update you'all I am down 100 bls. I am in remission. I am going thru or starting rehabilitation so I can go back to work as a Master Automotive Tech any one have a vote for which car company? Sent from my iPhone

[Guest guest]

AAAWWWW they love me. Hey, who wouldn't?!?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: shadowme810@...Date: Wed, 1 Sep 2010 21:47:20 -0500Subject: Re: Check in time--hey Connie!

lol I am not sure what they mean, the family that is. But as long as I can take it with a smile they give it with one. I do some unusual things sometimes. Silly and even obnoxious. AAAWWWW they love me.

Jackie

Check in time--hey Connie!

Well, gang, it's September. We haven't gotten spectacular responses to the last two check in requests. With ~600 members, I'd like to see a blitz of messages. You don't have to write a lengthy post (we aren't all "ramblers"), just let us know you're still alive & kicking the sarc monster in the arse. Connie, did you get that lung problem cleared up? I've been worried about you. Remember the sarc retreat & patient info meeting coming up in Indianapolis in Oct. It's a real treat every year; maybe some of you that live within driving distance can carpool. I'll make you an offer you can't refuse, heh, heh. I'll have a special surprise for anyone in this group that shows up. If anyone needs info, let me know, or go to www.indysarcoid.org. This meeting is not specifically geared toward NS, but I thoroughly enjoy it each year. Last year I met a couple who knew my son from his weekend gig waiting tables at a pizza place. I took their pic with my cell phone & sent it to him. He immediately recognized them, knew their names & their favorites. They got a big kick out of it. Also, The 4th Annual Hike for Lung Health is coming up Oct. 4, I think. I didn't participate last year after doing it the first 2 years. The first 2 times I was really fired up, got articles in the paper, put flyers all over town, banners on my car, and not one person showed up to walk with me besides my family. I may do it this year, but without any fanfare, just to make myself walk a mile. The main event takes place in Chicago, but anyone can sign up as a virtual walker, even if you aren't able to walk a mile. For info, see www.stopsarcoidosis.org, the site for FSR (Foundation for Sarcoidosis Research) Okay, that's the news for tonight. "Good night, Chet." "Good night, ." You younger folk will be wondering what the heck that's about; ask one of the "crones" or "codgers" in your life to explain it. All right, let's get those fingers flying, or pecking, whatever works. We want to hear from you!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

[Guest guest]

WOW Greg! Great news! How did you lose the 100 lbs?? So glad

to hear that you are in remission............hope you stay that way. You

take care and please stay with us so we can know how you are doing.

Good luck on getting the right job.

Hugs,

Darlene

NS Co-Owner/Moderator

----- Original Message -----

> Just to update you'all I am down 100 bls. I am in remission. I am going

> thru or starting rehabilitation so I can go back to work as a Master

> Automotive Tech any one have a vote for which car company?

[Guest guest]

Way to go Greg. Hope everything keeps moving along positively for you. Since we are Chevy people here I, d vote for Chevy. Take care & stay well.MattSubject: Re: Check in time--hey Connie!To: "Neurosarcoidosis " <Neurosarcoidosis >Date: Wednesday, September 1, 2010, 9:38 PM

Just to update you'all I am down 100 bls. I am in remission. I am going thru or starting rehabilitation so I can go back to work as a Master Automotive Tech any one have a vote for which car company?

Sent from my iPhone