Re: Re: OT: Latest Test Results

[Guest guest]

At 12:53 AM 7/13/2010, you wrote:

Doing the honored Marilyn

Dance!

<wearing full Canadian Train Garb too>

Ehh, trying to picture myself right now.. LOL.

LOL! Indeed! <snicker> Here's an Image for you -- someone asked if

we ever had SCD get-togethers. Imagine a buinch of SCDers taking over a

Rocky Mountaineer and the chefs having to cope with all meals needing to

be SCD!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 05:52 AM 7/13/2010, you wrote:

Congrats! Here's to continued

great health!

Fingers crossed. (although it does make it hard to type!)

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 07:17 AM 7/13/2010, you wrote:

YAY on your negative lab results

Marilyn!!! Sounds like a wonderful dream vacation!!!

I've started saving for it now!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 08:28 AM 7/13/2010, you wrote:

Great news, Marilyn! May your

labs always continue to be negative! Your vacation plans sound

awesome.

I sure hope so! I love mountains and my husband loves trains. Clearly a

vacation designed for a celebration!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

On Tue, 13 Jul 2010 13:51:26 -0400, Wizop Marilyn L. Alm wrote:> At 12:53 AM 7/13/2010, you wrote:>> Doing the honored Marilyn Dance!>> <wearing full Canadian Train Garb too>>> Ehh, trying to picture myself right now.. LOL.>> LOL! Indeed! <snicker> Here's an Image for you --> someone asked if we ever had SCD get-togethers.> Imagine a buinch of SCDers taking over a Rocky> Mountaineer and the chefs having to cope with all meals needing to be > SCD!>>> — Marilyn> New Orleans, Louisiana, USA> Undiagnosed IBS since 1976, SCD since 2001> Darn Good SCD Cook> No Human Children> Shadow & Sunny Longhair Dachshund> Babette the Foundling Beagle>You know, that's not as crazy as it sounds -- though the diet thing COULD be challenging.I've been a member of an Internet literary dicussion group (re: the historical sea Aubrey-Maturin sea novelof O') for some years, and there are people on that list from all over the world. Many of us have met, and regularly get together, with other list members who live within an hour or two's drive -- and also with additional people who announce that they'll be in a particular country, or part of the U.S. (or Canada) while traveling/vacationing. A wonderful group of people and we've had many good times with these "subgroups" of the group. These gatherings usually arise in impromptu fashion, though there's a group that meets annually here (western NY/southern Ontario) when several larger group members come down near the end of every summer for a theatre week in Niagara-on-the-Lake, Ontario.Maybe we should seriously consider something like this. It's a lot of fun. But I think we'd have to promise to talk about things other than the diet (at least some of the time!) n______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

At 12:43 PM 7/14/2010, you wrote:

But I think we'd have to promise

to talk about things other than the diet (at least some of the

time!)

LOL! Yes, or we'd drive the chefs crazy, second-guessing them!

Up until 2000, I held an Anne McCaffrey New Year's party every year --

people literally came from all over the world for it. Grand fun.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 09:42 PM 7/15/2010, you wrote:

Excellent news! All the baby

steps make one big stride forward. So happy for you.

Yep! Every test down is one more step in the direction of being declared

cancer free -- and I really look forward to that!

This week has been kind of stressful -- we woke up Tuesday to the

headline " Avondale to Close! "

Since Avondale is where my husband works, and since he hadn't heard

anything about this from his company, this was a matter of

concern.

We determined later that (through a company meeting) that the engineering

department stays here, but the actual building of the ships will be

moving to Pascagoula, MS.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 05:09 PM 7/13/2010, you wrote:

way to go!!

And I know SCD helps!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 06:45 PM 7/13/2010, you wrote:

You are inspiration to us all!

You should celebrate with a NINTH glass of alcohol this year Congrats

Marilyn!

Well, I might be talked into some extra hard cider....

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 10:42 AM 7/16/2010, you wrote:

Great news ! gives hope to all.

Thanks for all you do for this list and your wonderful

personality.

Thank you -- we've built a fine community of people who dig in and help

each other help ourselves.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 04:00 PM 7/16/2010, you wrote:

Oh, dear! There's so much

of this these days, where you even learn about it the wrong way. I'm so

sorry to hear that Avondale is closing, even though glad your husband's

engineering department will live. But, Pascagoula? Will he

have to commute or will you have to move? I sincerely hope the engineers

can stay put!

We honestly don't know.

So much depends on health insurance -- and with both sleep apnea and the

cancer surgery, I'm effectively uninsurable. So Harry was considering

continuing to work until I reached Medicare age in seven years

(!!).

As Harry says, all we can do is take things one day at a time. No point

in coming unglued until we have more information.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

2 weeks after being diagnosed with uc I was denied by two different insurances. Disgusting. My husband was denied bc he had neck issues 5 years prior and didn't complain beyond his diagnosisMarilyn-my husband says the same thing to me. Many times. I didn't know this for a long time but i'm sure i chose him because he is the calmness to my storm.UC-C 12/09SCD 1/10Daily, CLO, Magnesium, bromelain, acidophilus Mom of 2 crazy monkeys :-)

So much depends on health insurance -- and with both sleep apnea and the

cancer surgery, I'm effectively uninsurable. So Harry was considering

continuing to work until I reached Medicare age in seven years

(!!).

As Harry says, all we can do is take things one day at a time. No point

in coming unglued until we have more information.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 03:19 PM 7/17/2010, you wrote:

Well, of course Harry is

right. You can't really solve a problem until you know what it

is. But I sincerely hope you won't have to move. I'm sure Katrina

was more than enough upheaval!

Trust me, it was. The city still has not recovered. Besides that,

our house is paid for.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle