Re: and Barney newbies to SCD trying hard with the Diet

[Guest guest]

Hi . I am sorry to hear that Barney is not feeling well. What Marilyn (the

moderator) is asking is for is for you to be more specific. There are many

people with UC on this site, but it is very hard to help you without any

information.

Please let us know exactly:

1. What is he eating?

2. What medications or supplements is he taking?

3. What are his symptoms?

-Joanna

SCD 9/2009, Crohn's 1992, 22.5mg Prednisone

>

> HI, everyone, My name is Gilbreath and my husband is Barney , we have

been married 36yrs. 3 months ago he was told he has Ulcerative Colitis. Last

visit, to dr. they said we have a cure for this its surgery. The steroids and

other meds did not help so thats " their " answer , surgery. I saw this SCD site

and got the book and yogurt maker he has been on intro and some good improvment.

but still going to bathroom . esp, trying to move into phase 1 now and all is

not well. help us please. Anyone with Ulcerative Colitis?

>

[Guest guest]

At 09:05 PM 8/2/2010, you wrote:

HI, everyone, My name is

Gilbreath and my husband is Barney , we have been married 36yrs. 3 months

ago he was told he has Ulcerative Colitis. Last visit, to dr. they said

we have a cure for this its surgery. The steroids and other meds did not

help so thats " their " answer , surgery. I saw this SCD site and

got the book and yogurt maker he has been on intro and some good

improvment. but still going to bathroom . esp, trying to move into phase

1 now and all is not well. help us please. Anyone with Ulcerative

Colitis?

Hi, ,

Welcome to the list -- we're glad you found us, though sorry you needed

to.

How long have you been doing SCD?

Are you keeping a food diary? That is, are you writing down what he

eats, how it was prepared, and when he ate it? And are you (or is he?)

keeping track of his movements -- when they are and, er, what they're

like?

Keep in mind that healing isn't going to happen overnight. The fact,

though, that he's already seen some improvement is a big plus.

If you can tell us what he's eating, some of us should be able to offer

some suggestions.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Good morning, Thank-you for your reply last night, my computer is acting up some so I just went to bed after I wrote the email last night. Yes , my husband Barney has U.C. severe case.  3 months ago 1st hospital trip sig,done, and I V steroids and anti biotics and all the other meds they give. second trip to hosp. same thing was dehydrated and bleeding and going very loose bms many to many to count. third trip to hosp. 8 days, same thing that was may and june. So he had this 3 months now.. So, we go to Parkland County Hosp. no insurance. Two and half wks ago, Clinic appt. with Dr.s , Thats when they said Ok. Lets fix this we will do Surg.       Now, we came home from that clinic appt. looking on internet and found SCD and he did intro last wk. 5 days . He ON 40 MG STEROID PREDNISONE, , 0.125 MG DIGOXIN AND 25MG METOPROLOL THE TWO HEART MEDS ARE BECAUSE TRIP TO HOSPITAL HE WENT INTO AFIB. FROM DEHYDRATION. THE MEDS CONTROL THAT HIS HEART IS FINE. HE HAS BEEN ON 40 MG STEROID 3 MONTHS NOW. IN HOSPITAL IT WAS 60 MG .  WE HAVE MANAGE TO STAY OUT OF HOSPITAL BY KEEPING HYDRATED THIS TIME 6 WKS AND COUNTING.

MY HUSBAND IS 63 I AM 53.MARRIED 36 YRS.   LAST WK ON INTRO. HE DID " GREAT " 2  OR 3 VERY MILD BMS, MAYBE 1 TO 3 AT NITE. LAST WK DURING INTRO NO YOGURT ATE BECAUSE I HAD TO ORDER THE MACHINE AND STARTER. SO, FRIDAY NITE I MADE YOGURT AND HE AT FIRST YOGURT SUNDAY AND MONDAY, HE ATE 1 FULL CUP WITH HONEY TO FLAVOR SUNDAY, HALF CUP MORN. AND OTHER THAT NITE. AND YESTERDAY  IS WHEN WE STARTED HAVING " BIG " PROBLEMS " NOT " UNTIL 3PM YESTERDAY I DECIDED TO MAKE HIM A YOGURT SMOOTHIE WITH QUARTER OF A RIPE BANANA IN IT . ONE HR LATE LOOSE BMS STARTED. I PUSHED ON . AND GAVE VERY SM PORK CHOP AND FROZEN SPINACH FOR SUPPER , THEN HE STATED GOING TO BATHROOM BIG TIME . I GOT UP LAST NITE AT 2:00 TO CHECK ON HIM AND HE STATED HE HAD GONE  6 OR TIMES. NOW , THAT HAS NOT HAPPENED IN A WHILE. I AM VERY WORRIED , IN PAST 3 MONTHS SINCE THIS STARTED HE HAS LOST 42 LBS. AND I NEED FOOD IN THE MAN > AND WITH LAST NITE GOING ON PLEASE EMAIL ME.

[Guest guest]

Hi ,

SCD is a long term process and there can be a lot of up and down in the

beginning. Some people tolerate the yogurt well, and others have to build up to

it, starting with a little bit at a time. Keeping a food diary is helpful

because we all tolerate different foods. It also helps because weeks/months

later we can look back and say " wow " this is so much better now and I hope

you will too.

I know you want him to gain, but in the beginning, many people lose some weight

on SCD, but gain it back later on as the gut gets better and more food is

tolerated. As sick as your husband is, I would focus on foods that will settle

the gut.

The best one that I know of is a broth soup using the bones. The gelatin from

the soup bones is good for the gut, so if he can eat a good amount of this, the

better. Use the chicken soup recipe in BTVC and simmer the soup for a long time-

different times for the different meats you use:

" Vegetable stocks take 1-2 hours, fish stocks 45 minutes (any longer and it gets

cloudy), and veal & chicken stock cooks overnight. (Note: Sally Fallon says, " 2

hours simmering is enough to extract flavors and gelatin from fish broth. Larger

animals take longer – all day for broth made from chicken, turkey or duck and

overnight for beef broth. " "

Add some vinegar to the broth to get as much of the nutrients out of the bones.

It is important that he stays on his medication. Have him eat small amounts

during the day instead of larger meals. Avoid fried foods- I don't know how you

cooked the pork chop- . Have him sip on the soup throughout the day to stay

hydrated, and foods like baked chicken, well cooked pureed apples (home made

applesauce), broiled ground beef patties, dry curd cottage cheese or dripped SCD

yogurt are better tolerated. In the beginning I only tolerated yogurt dripped

(look for a recipe for yogurt cheese- basically strained yogurt). Some people do

not tolerate eggs in the beginning, and carrots as well. My favorite treat was

very ripe bananas. I froze them and it felt like I was eating ice cream. Make

some legal SCD gelatin with legal grape juice.

Keep it bland a simple at first. I hope he feels better soon.

PJ

>

> Good morning, Thank-you for your reply last night, my computer is acting up

> some so I just went to bed after I wrote the email last night. Yes , my

> husband Barney has U.C. severe case. 3 months ago 1st hospital trip

> sig,done, and I V steroids and anti biotics and all the other meds they

> give. second trip to hosp. same thing was dehydrated and bleeding and going

> very loose bms many to many to count. third trip to hosp. 8 days, same thing

> that was may and june. So he had this 3 months now.. So, we go to Parkland

> County Hosp. no insurance. Two and half wks ago, Clinic appt. with Dr.s ,

> Thats when they said Ok. Lets fix this we will do Surg. Now, we came

> home from that clinic appt. looking on internet and found SCD and he did

> intro last wk. 5 days . He ON 40 MG STEROID PREDNISONE, , 0.125 MG DIGOXIN

> AND 25MG METOPROLOL THE TWO HEART MEDS ARE BECAUSE TRIP TO HOSPITAL HE WENT

> INTO AFIB. FROM DEHYDRATION. THE MEDS CONTROL THAT HIS HEART IS FINE. HE HAS

> BEEN ON 40 MG STEROID 3 MONTHS NOW. IN HOSPITAL IT WAS 60 MG . WE HAVE

> MANAGE TO STAY OUT OF HOSPITAL BY KEEPING HYDRATED THIS TIME 6 WKS AND

> COUNTING.

> MY HUSBAND IS 63 I AM 53.MARRIED 36 YRS.

> LAST WK ON INTRO. HE DID " GREAT " 2 OR 3 VERY MILD BMS, MAYBE 1 TO 3 AT

> NITE. LAST WK DURING INTRO NO YOGURT ATE BECAUSE I HAD TO ORDER THE MACHINE

> AND STARTER. SO, FRIDAY NITE I MADE YOGURT AND HE AT FIRST YOGURT SUNDAY AND

> MONDAY, HE ATE 1 FULL CUP WITH HONEY TO FLAVOR SUNDAY, HALF CUP MORN. AND

> OTHER THAT NITE. AND YESTERDAY IS WHEN WE STARTED HAVING " BIG " PROBLEMS

> " NOT " UNTIL 3PM YESTERDAY I DECIDED TO MAKE HIM A YOGURT SMOOTHIE WITH

> QUARTER OF A RIPE BANANA IN IT . ONE HR LATE LOOSE BMS STARTED. I PUSHED ON

> . AND GAVE VERY SM PORK CHOP AND FROZEN SPINACH FOR SUPPER , THEN HE STATED

> GOING TO BATHROOM BIG TIME . I GOT UP LAST NITE AT 2:00 TO CHECK ON HIM AND

> HE STATED HE HAD GONE 6 OR TIMES. NOW , THAT HAS NOT HAPPENED IN A WHILE. I

> AM VERY WORRIED , IN PAST 3 MONTHS SINCE THIS STARTED HE HAS LOST 42 LBS.

> AND I NEED FOOD IN THE MAN > AND WITH LAST NITE GOING ON PLEASE EMAIL ME.

>

[Guest guest]

>

>

> Good morning, Thank-you for your reply last night, my computer is acting up

some so I just went to bed after I wrote the email last night. Yes , my husband

Barney has U.C. severe case. 3 months ago 1st hospital trip sig,done, and I V

steroids and anti biotics and all the other meds they give. second trip to hosp.

same thing was dehydrated and bleeding and going very loose bms many to many to

count. third trip to hosp. 8 days, same thing that was may and june. So he had

this 3 months now.. So, we go to Parkland County Hosp. no insurance. Two and

half wks ago, Clinic appt. with Dr.s , Thats when they said Ok. Lets fix this we

will do Surg. Now, we came home from that clinic appt. looking on internet

and found SCD and he did intro last wk. 5 days . He ON 40 MG STEROID PREDNISONE,

, 0.125 MG DIGOXIN AND 25MG METOPROLOL THE TWO HEART MEDS ARE BECAUSE TRIP TO

HOSPITAL HE WENT INTO AFIB. FROM DEHYDRATION. THE MEDS CONTROL THAT HIS HEART IS

FINE. HE HAS BEEN ON 40 MG STEROID 3 MONTHS NOW. IN HOSPITAL IT WAS 60 MG . WE

HAVE MANAGE TO STAY OUT OF HOSPITAL BY KEEPING HYDRATED THIS TIME 6 WKS AND

COUNTING.

> MY HUSBAND IS 63 I AM 53.MARRIED 36 YRS.

> LAST WK ON INTRO. HE DID " GREAT " 2 OR 3 VERY MILD BMS, MAYBE 1 TO 3 AT

NITE. LAST WK DURING INTRO NO YOGURT ATE BECAUSE I HAD TO ORDER THE MACHINE AND

STARTER. SO, FRIDAY NITE I MADE YOGURT AND HE AT FIRST YOGURT SUNDAY AND MONDAY,

HE ATE 1 FULL CUP WITH HONEY TO FLAVOR SUNDAY, HALF CUP MORN. AND OTHER THAT

NITE. AND YESTERDAY IS WHEN WE STARTED HAVING " BIG " PROBLEMS " NOT " UNTIL 3PM

YESTERDAY I DECIDED TO MAKE HIM A YOGURT SMOOTHIE WITH QUARTER OF A RIPE BANANA

IN IT . ONE HR LATE LOOSE BMS STARTED. I PUSHED ON . AND GAVE VERY SM PORK CHOP

AND FROZEN SPINACH FOR SUPPER , THEN HE STATED GOING TO BATHROOM BIG TIME . I

GOT UP LAST NITE AT 2:00 TO CHECK ON HIM AND HE STATED HE HAD GONE 6 OR TIMES.

NOW , THAT HAS NOT HAPPENED IN A WHILE. I AM VERY WORRIED , IN PAST 3 MONTHS

SINCE THIS STARTED HE HAS LOST 42 LBS. AND I NEED FOOD IN THE MAN > AND WITH

LAST NITE GOING ON PLEASE EMAIL ME.

Okay - that is way too much yogurt for a newbie - because the yogurt has a

powerful

probiotic in it which, when too much is introduced too suddenly, can wreak havoc

in the gut.

So take him off yogurt for a few days - until things settle down.

What you should do right now today this morning, is make chicken broth. You can

take the meat off

the bones and keep on cooking the bones in the broth up to 24 hours - although

he can eat some

while it is cooking. This is a way to put gelatin into the soup stock, which is

very soothing for an

inflamed gut.

The reason that the yogurt is unsettling the gut is because introducing that

many probiotic bacteria

into the gut at the same time, before the patient is used to it, is going to

cause a lot of die off or conflict

with the pathogenic bacteria population that is already resident in his gut -

hence, the problems.

So for the next few days, I would have him stick to the chicken or meat bone

broth and pureed

carrots - if that is something he can tolerate and things like pureed zucchini.

He can also introduce

a soft boiled egg into the chicken broth and stir it around, which makes the

broth richer and more

satiating.

When you reintroduce the yogurt, when his gut is more stable again, start with

about a

tablespoon and work up from there each day slowly. Or if you want to be really

cautionary,

start with a teaspoon. Soon you can start to give him yogurt made from half

and half to

help with weight gain, or even better, full cream yogurt.

The spinach should initially be pureed as well. Because that is easier to

digest. The beginning

of the diet is a bit like eating foods with the texture of baby food. Pureeing

everything is very

helpful. You can add butter and coconut oil to the carrot/zucchini/spinach

purees for extra weight

gain. And if you can locate farmer cheese - DCCC = dry curd cottage cheese - in

order to make

the intro cheesecake, that helps a lot in getting through the beginners diet.

And is also good for

maintaining weight.

He's not going to gain weight on the first few weeks of SCD - so don't push food

at him to keep on

eating - first things first - and the most important thing at the moment is to

heal his gut so it doesn't

get any worse. When his gut is healed, which can take some time, the weight

will come. Sometimes

too much comes, depending on his body type.

Good luck - the beginning can be rocky - so ask away.

Mara

[Guest guest]

THANK-YOU MARA S. , FOR EMAILING BACK ABOUT MY HUSBAND BARNEY, HE WAS SO VERY HUNGRY SUNDAY AND I POURED SOME HONEY  ON IT . I MADE OUR VERY FIRST YOGURT WITH HALF AND HALF CAUSE I DID NOT KNOW ANY BETTER. OF COURSE HE WANTED TO EAT THE YOGURT . AFTER EATING INTRO 5 DAYS, IF I AM UNDERSTANDING YOU DO  CHICKEN SOUP ONLY , A DAY OR TWO. ONE SOFT BOILED EGG ONCE A DAY? IN SOUP.  PURRED VEGGIES TONIGHT OR WAIT ON THOSE TILL TOMORROW ?  NOOOOOOOOOO YOGURTTTTTT.

GOT IT. TILL LATER.THIS WK. I AM PANICKY I HAVE BASICLY GOT ONE MONTH OR MAYBE 6WKS. TILL THE SURG ERY APPT EARLY SEPT/ HIS REG DR. SET HIM UP WITH A SURG APPT TO SEE A SURG. DR. TO " TALK " ABOUT  SURGERY.TO TAKE HIS COLON OUT. 

   I WANT THIS DIET TO WORK SO HE DOES HAVE TO HAVE THAT HAPPEN. HENCE , SOME ANXIETY ENSUES.THAT WAS STUPID GIVING HIM THAT MUCH YOGURT. IN ONE DAY. EMAIL ME BACK ONE MORE TIME SO I KNOW YOU GOT THIS MY COMPUTER IS GIVING ME SO MUCH TROUBLE JUST TRYING TO WRITE THIS ONE EMAIL.

\THANK-FULL IN DALLAS, BRENDA

[Guest guest]

THANK-YOU MARA S. , FOR EMAILING BACK ABOUT MY HUSBAND BARNEY, HE WAS SO VERY HUNGRY SUNDAY AND I POURED SOME HONEY ON IT . I MADE OUR VERY FIRST YOGURT WITH HALF AND HALF CAUSE I DID NOT KNOW ANY BETTER.that's okay - as long as it ferments for 24 hours. OF COURSE HE WANTED TO EAT THE YOGURT . AFTER EATING INTRO 5 DAYS, IF I AM UNDERSTANDING YOU DO CHICKEN SOUP ONLY , A DAY OR TWO. ONE SOFT BOILED EGG ONCE A DAY? IN SOUP. PURRED VEGGIES TONIGHT OR WAIT ON THOSE TILL TOMORROW ? NOOOOOOOOOO YOGURTTTTTT.Give him a lot of soup - several times a day. He can eat that with a soft boiled yolk - or without - every time. He can also eat the chicken from the soup (or meat - if you give him beef bone soup) several times a day.This soup - cooked a long time with the chicken or meat bones - is best because it is very healing becausethe gelatin helps soothe and cure the intestine.You can also give him some plain roasted meat - and you can also give him home made SCD mayonnaise -recipe in the SCD book - in the soup or with the meat. If he is tolerating carrots, give it to him pureed - first cooked into the soup until very soft - several hours andthen mashed or pureed. You can add butter or olive oil or coconut oil to this and salt and pepper. Every other day add in a soft vegetable like pureed zucchini or spinach - time it out to make sure he is dealing with it okay first. You can add in cheese also if he can handle that. Each time you add somethingin - beyond what is on the intro diet - give it a few days to make sure you are dealing with it okay first. That much yogurt - while delicious - is going to cause a lot of intestinal havoc and distressin the very beginning. BTW, I did exactly the same thing and also had a bad reaction to it; I'm sure that happens frequently. GOT IT. TILL LATER.THIS WK. I AM PANICKY I HAVE BASICLY GOT ONE MONTH OR MAYBE 6WKS. TILL THE SURG ERY APPT EARLY SEPT/ HIS REG DR. SET HIM UP WITH A SURG APPT TO SEE A SURG. DR. TO "TALK" ABOUT SURGERY.TO TAKE HIS COLON OUT. Best thing to do for yourself is de-stress. Try and be calm about the SCD, because at times it cantake a lot of patience. And stress is communicable and is also really bad at causing symptoms in people with autoimmune disease. Most of us - when we have a lot of stress - also have symptoms. If you can, take a yoga class or practice deep calming breaths. Or take a long nature walk. If your husband is up to doing gentle exercise - even long walks, etc., that is also very goodtherapy for him. People with auto-immune disease chronically are low on endorphins -so exercise (gentle or not at all), which creates endorphins, is excellent therapy for us. Before you consider surgery, please also look into doing SCD with LDN (low dose naltrexone) -It is an excellent combo therapy for many of us - works much better than most other drugs. http://health.groups.yahoo.com/group/lowdosenaltrexone/Lot of people here will jump into help you guys out before you are close to hitting surgery with advice and help. Just remember - even if you get impatient, the best approach on SCD is slow and patient. So don't rushadding new things in or in huge amounts, as that approach can backfire a lot. I WANT THIS DIET TO WORK SO HE DOES HAVE TO HAVE THAT HAPPEN. HENCE , SOME ANXIETY ENSUES.THAT WAS STUPID GIVING HIM THAT MUCH YOGURT. IN ONE DAY. EMAIL ME BACK ONE MORE TIME SO I KNOW YOU GOT THIS MY COMPUTER IS GIVING ME SO MUCH TROUBLE JUST TRYING TO WRITE THIS ONE EMAIL.\THANK-FULL IN DALLAS, BRENDA

[Guest guest]

Hi ,

I can sure sympathize with your anxiety and wanting quick results,

since your husband faces a surgery discussion with the doctor. I hope

you will be able to calm down, though, as it's hard to do all this

when one is feeling frantic. The diet is not instant help, more slow

but sure. I hope by the time the month is up you will have figured

out what foods do work for your husband and things will have calmed

down some, at least. What I'm wondering is, maybe when you have

that meeting with the doctor, perhaps you can do a bit of

negotiating. In other words, OK, things won't be all well, but maybe

they won't be any worse, either, and we will hope they will be a

little better, in which case try to negotiate for a few months to

see what happens. That's what I'd try for, I think, as long as the

situation isn't dangerous, though I don't have your husband's

problem. I know others who do have the same problem will give you

good advice here.

Good luck, hang in there!

[Guest guest]

Hello in Dallas -

This Is in Austin!!

I have UC and when I was very sick this past winter and spring I lost 25 pounds.

I am now 5 months into the diet on no drugs at all except for some supplements

and chinese herbs from my acupuncturist. I have gained most of the weight back

and have one to two BMs a day - normal ones!!

I was starving all the time the first month of the diet - maybe the first 6

weeks - and I just ate lots and lots of cooked squash, eggs, chicken soup, meat,

fish - pretty soon I could add more cooked veggies and cooked fruits then some

cheese and now I can even have almond flour.

Basically what I am saying is this will get better!!! It will take time though

- the first month is truly the most difficult and even month 2 and 3 I still had

bad days - as in a day where I would have to go many times, passed some blood,

had pain! But these days were rarely two in a row and as of month 4 I no longer

have those days!!

Try to get your husband to do some light excercise - slow walking, easy yoga,

breathing - it will help his mental and physical state lots of good - and if

your doctor makes you nervous get a new one!!!! They should be helping you -not

scaring you!!

Your husband's body is stronger than he thinks - and certainy stronger than most

GI doctors think. He can actually get better and heal his colon - many many

people have done this.

I hope things keep improving and try to remember this will take time.

Bets of luck!

>

> >

> >

> > THANK-YOU MARA S. , FOR EMAILING BACK ABOUT MY HUSBAND BARNEY, HE WAS SO

VERY HUNGRY SUNDAY AND I POURED SOME HONEY ON IT . I MADE OUR VERY FIRST YOGURT

WITH HALF AND HALF CAUSE I DID NOT KNOW ANY BETTER.

>

> that's okay - as long as it ferments for 24 hours.

>

>

> > OF COURSE HE WANTED TO EAT THE YOGURT . AFTER EATING INTRO 5 DAYS, IF I AM

UNDERSTANDING YOU DO CHICKEN SOUP ONLY , A DAY OR TWO. ONE SOFT BOILED EGG ONCE

A DAY? IN SOUP. PURRED VEGGIES TONIGHT OR WAIT ON THOSE TILL TOMORROW ?

NOOOOOOOOOO YOGURTTTTTT.

>

> Give him a lot of soup - several times a day. He can eat that with a soft

boiled yolk - or without - every time.

> He can also eat the chicken from the soup (or meat - if you give him beef bone

soup) several times a day.

> This soup - cooked a long time with the chicken or meat bones - is best

because it is very healing because

> the gelatin helps soothe and cure the intestine.

>

> You can also give him some plain roasted meat - and you can also give him home

made SCD mayonnaise -

> recipe in the SCD book - in the soup or with the meat.

>

> If he is tolerating carrots, give it to him pureed - first cooked into the

soup until very soft - several hours and

> then mashed or pureed. You can add butter or olive oil or coconut oil to this

and salt and pepper.

>

> Every other day add in a soft vegetable like pureed zucchini or spinach - time

it out to make sure he is

> dealing with it okay first. You can add in cheese also if he can handle that.

Each time you add something

> in - beyond what is on the intro diet - give it a few days to make sure you

are dealing with it okay first.

>

> That much yogurt - while delicious - is going to cause a lot of intestinal

havoc and distress

> in the very beginning. BTW, I did exactly the same thing and also had a bad

reaction to it;

> I'm sure that happens frequently.

>

> > GOT IT. TILL LATER.THIS WK. I AM PANICKY I HAVE BASICLY GOT ONE MONTH OR

MAYBE 6WKS. TILL THE SURG ERY APPT EARLY SEPT/ HIS REG DR. SET HIM UP WITH A

SURG APPT TO SEE A SURG. DR. TO " TALK " ABOUT

> > SURGERY.TO TAKE HIS COLON OUT.

>

> Best thing to do for yourself is de-stress. Try and be calm about the SCD,

because at times it can

> take a lot of patience. And stress is communicable and is also really bad at

causing symptoms

> in people with autoimmune disease. Most of us - when we have a lot of stress

- also have symptoms.

>

> If you can, take a yoga class or practice deep calming breaths. Or take a

long nature walk.

> If your husband is up to doing gentle exercise - even long walks, etc., that

is also very good

> therapy for him. People with auto-immune disease chronically are low on

endorphins -

> so exercise (gentle or not at all), which creates endorphins, is excellent

therapy for us.

>

> Before you consider surgery, please also look into doing SCD with LDN (low

dose naltrexone) -

> It is an excellent combo therapy for many of us - works much better than most

other drugs.

>

> http://health.groups.yahoo.com/group/lowdosenaltrexone/

>

> Lot of people here will jump into help you guys out before you are close to

hitting surgery with advice and help.

>

> Just remember - even if you get impatient, the best approach on SCD is slow

and patient. So don't rush

> adding new things in or in huge amounts, as that approach can backfire a lot.

>

>

> > I WANT THIS DIET TO WORK SO HE DOES HAVE TO HAVE THAT HAPPEN. HENCE ,

SOME ANXIETY ENSUES.

> > THAT WAS STUPID GIVING HIM THAT MUCH YOGURT. IN ONE DAY. EMAIL ME BACK ONE

MORE TIME SO I KNOW YOU GOT THIS MY COMPUTER IS GIVING ME SO MUCH TROUBLE JUST

TRYING TO WRITE THIS ONE EMAIL.

> > \THANK-FULL IN DALLAS, BRENDA

>

[Guest guest]

To , Thank-you for your advice about surg discussion with upcoming Dr. visit with Barney my husband. That is coming up second wk of Sept  I think. You never know with dr.s how they will react . Our problem is, should he fire us, because say he objects to the idea of putting of surg. We have insurance with the " county " hospital parkland not like we can say oh well, well just search for a dr. down street at another hospital.  He is better already no trips to bathroom  just gas. since Monday when things fell apart. We did soup yesterday with soft boiled egg, scd cheese cake 1pc, today soup with egg in it, and roasted chicken with scd mayo on side. all is well.  oh, he also ate half cup of purred pears today.  I need to Talk With someone who had Ulcerative Colitis or has it. can some one email me?

[Guest guest]

Hello, in Austin!! You have U.C? oh, my I am so glad you cared enough

to email us. we are doing great. you gave me so much info in that email. HOPE

HOPE HOPE, that is what we Have. He is doing better Sunday and Monday he ate too

much yogurt someone told us. So, I did what was suggested and gave him rich soup

with egg, and today same , Breakfast was soup with sm amt of scd cheese, soup

and chicken with homemade mayo, all is well. no trip to b. rm. Please let me

know you got this email. I am not good on computer and its a challenge to even

email. and again, Thank-You .

> >

> > >

> > >

> > > THANK-YOU MARA S. , FOR EMAILING BACK ABOUT MY HUSBAND BARNEY, HE WAS SO

VERY HUNGRY SUNDAY AND I POURED SOME HONEY ON IT . I MADE OUR VERY FIRST YOGURT

WITH HALF AND HALF CAUSE I DID NOT KNOW ANY BETTER.

> >

> > that's okay - as long as it ferments for 24 hours.

> >

> >

> > > OF COURSE HE WANTED TO EAT THE YOGURT . AFTER EATING INTRO 5 DAYS, IF I AM

UNDERSTANDING YOU DO CHICKEN SOUP ONLY , A DAY OR TWO. ONE SOFT BOILED EGG ONCE

A DAY? IN SOUP. PURRED VEGGIES TONIGHT OR WAIT ON THOSE TILL TOMORROW ?

NOOOOOOOOOO YOGURTTTTTT.

> >

> > Give him a lot of soup - several times a day. He can eat that with a soft

boiled yolk - or without - every time.

> > He can also eat the chicken from the soup (or meat - if you give him beef

bone soup) several times a day.

> > This soup - cooked a long time with the chicken or meat bones - is best

because it is very healing because

> > the gelatin helps soothe and cure the intestine.

> >

> > You can also give him some plain roasted meat - and you can also give him

home made SCD mayonnaise -

> > recipe in the SCD book - in the soup or with the meat.

> >

> > If he is tolerating carrots, give it to him pureed - first cooked into the

soup until very soft - several hours and

> > then mashed or pureed. You can add butter or olive oil or coconut oil to

this and salt and pepper.

> >

> > Every other day add in a soft vegetable like pureed zucchini or spinach -

time it out to make sure he is

> > dealing with it okay first. You can add in cheese also if he can handle

that. Each time you add something

> > in - beyond what is on the intro diet - give it a few days to make sure you

are dealing with it okay first.

> >

> > That much yogurt - while delicious - is going to cause a lot of intestinal

havoc and distress

> > in the very beginning. BTW, I did exactly the same thing and also had a bad

reaction to it;

> > I'm sure that happens frequently.

> >

> > > GOT IT. TILL LATER.THIS WK. I AM PANICKY I HAVE BASICLY GOT ONE MONTH OR

MAYBE 6WKS. TILL THE SURG ERY APPT EARLY SEPT/ HIS REG DR. SET HIM UP WITH A

SURG APPT TO SEE A SURG. DR. TO " TALK " ABOUT

> > > SURGERY.TO TAKE HIS COLON OUT.

> >

> > Best thing to do for yourself is de-stress. Try and be calm about the SCD,

because at times it can

> > take a lot of patience. And stress is communicable and is also really bad

at causing symptoms

> > in people with autoimmune disease. Most of us - when we have a lot of

stress - also have symptoms.

> >

> > If you can, take a yoga class or practice deep calming breaths. Or take a

long nature walk.

> > If your husband is up to doing gentle exercise - even long walks, etc., that

is also very good

> > therapy for him. People with auto-immune disease chronically are low on

endorphins -

> > so exercise (gentle or not at all), which creates endorphins, is excellent

therapy for us.

> >

> > Before you consider surgery, please also look into doing SCD with LDN (low

dose naltrexone) -

> > It is an excellent combo therapy for many of us - works much better than

most other drugs.

> >

> > http://health.groups.yahoo.com/group/lowdosenaltrexone/

> >

> > Lot of people here will jump into help you guys out before you are close to

hitting surgery with advice and help.

> >

> > Just remember - even if you get impatient, the best approach on SCD is slow

and patient. So don't rush

> > adding new things in or in huge amounts, as that approach can backfire a

lot.

> >

> >

> > > I WANT THIS DIET TO WORK SO HE DOES HAVE TO HAVE THAT HAPPEN. HENCE ,

SOME ANXIETY ENSUES.

> > > THAT WAS STUPID GIVING HIM THAT MUCH YOGURT. IN ONE DAY. EMAIL ME BACK ONE

MORE TIME SO I KNOW YOU GOT THIS MY COMPUTER IS GIVING ME SO MUCH TROUBLE JUST

TRYING TO WRITE THIS ONE EMAIL.

> > > \THANK-FULL IN DALLAS, BRENDA

> >

>

[Guest guest]

Hello PJ. Thank-you for your email everyone has been so helpful he IS Feeling

Better, thank-you. We are doing soup and all the right things everyone has told

us.

> >

> > Good morning, Thank-you for your reply last night, my computer is acting up

> > some so I just went to bed after I wrote the email last night. Yes , my

> > husband Barney has U.C. severe case. 3 months ago 1st hospital trip

> > sig,done, and I V steroids and anti biotics and all the other meds they

> > give. second trip to hosp. same thing was dehydrated and bleeding and going

> > very loose bms many to many to count. third trip to hosp. 8 days, same thing

> > that was may and june. So he had this 3 months now.. So, we go to Parkland

> > County Hosp. no insurance. Two and half wks ago, Clinic appt. with Dr.s ,

> > Thats when they said Ok. Lets fix this we will do Surg. Now, we came

> > home from that clinic appt. looking on internet and found SCD and he did

> > intro last wk. 5 days . He ON 40 MG STEROID PREDNISONE, , 0.125 MG DIGOXIN

> > AND 25MG METOPROLOL THE TWO HEART MEDS ARE BECAUSE TRIP TO HOSPITAL HE WENT

> > INTO AFIB. FROM DEHYDRATION. THE MEDS CONTROL THAT HIS HEART IS FINE. HE HAS

> > BEEN ON 40 MG STEROID 3 MONTHS NOW. IN HOSPITAL IT WAS 60 MG . WE HAVE

> > MANAGE TO STAY OUT OF HOSPITAL BY KEEPING HYDRATED THIS TIME 6 WKS AND

> > COUNTING.

> > MY HUSBAND IS 63 I AM 53.MARRIED 36 YRS.

> > LAST WK ON INTRO. HE DID " GREAT " 2 OR 3 VERY MILD BMS, MAYBE 1 TO 3 AT

> > NITE. LAST WK DURING INTRO NO YOGURT ATE BECAUSE I HAD TO ORDER THE MACHINE

> > AND STARTER. SO, FRIDAY NITE I MADE YOGURT AND HE AT FIRST YOGURT SUNDAY AND

> > MONDAY, HE ATE 1 FULL CUP WITH HONEY TO FLAVOR SUNDAY, HALF CUP MORN. AND

> > OTHER THAT NITE. AND YESTERDAY IS WHEN WE STARTED HAVING " BIG " PROBLEMS

> > " NOT " UNTIL 3PM YESTERDAY I DECIDED TO MAKE HIM A YOGURT SMOOTHIE WITH

> > QUARTER OF A RIPE BANANA IN IT . ONE HR LATE LOOSE BMS STARTED. I PUSHED ON

> > . AND GAVE VERY SM PORK CHOP AND FROZEN SPINACH FOR SUPPER , THEN HE STATED

> > GOING TO BATHROOM BIG TIME . I GOT UP LAST NITE AT 2:00 TO CHECK ON HIM AND

> > HE STATED HE HAD GONE 6 OR TIMES. NOW , THAT HAS NOT HAPPENED IN A WHILE. I

> > AM VERY WORRIED , IN PAST 3 MONTHS SINCE THIS STARTED HE HAS LOST 42 LBS.

> > AND I NEED FOOD IN THE MAN > AND WITH LAST NITE GOING ON PLEASE EMAIL ME.

> >

>

[Guest guest]

Glad to hear he is improving

PJ

> > >

> > > Good morning, Thank-you for your reply last night, my computer is acting

up

> > > some so I just went to bed after I wrote the email last night. Yes , my

> > > husband Barney has U.C. severe case. 3 months ago 1st hospital trip

> > > sig,done, and I V steroids and anti biotics and all the other meds they

> > > give. second trip to hosp. same thing was dehydrated and bleeding and

going

> > > very loose bms many to many to count. third trip to hosp. 8 days, same

thing

> > > that was may and june. So he had this 3 months now.. So, we go to Parkland

> > > County Hosp. no insurance. Two and half wks ago, Clinic appt. with Dr.s ,

> > > Thats when they said Ok. Lets fix this we will do Surg. Now, we came

> > > home from that clinic appt. looking on internet and found SCD and he did

> > > intro last wk. 5 days . He ON 40 MG STEROID PREDNISONE, , 0.125 MG DIGOXIN

> > > AND 25MG METOPROLOL THE TWO HEART MEDS ARE BECAUSE TRIP TO HOSPITAL HE

WENT

> > > INTO AFIB. FROM DEHYDRATION. THE MEDS CONTROL THAT HIS HEART IS FINE. HE

HAS

> > > BEEN ON 40 MG STEROID 3 MONTHS NOW. IN HOSPITAL IT WAS 60 MG . WE HAVE

> > > MANAGE TO STAY OUT OF HOSPITAL BY KEEPING HYDRATED THIS TIME 6 WKS AND

> > > COUNTING.

> > > MY HUSBAND IS 63 I AM 53.MARRIED 36 YRS.

> > > LAST WK ON INTRO. HE DID " GREAT " 2 OR 3 VERY MILD BMS, MAYBE 1 TO 3 AT

> > > NITE. LAST WK DURING INTRO NO YOGURT ATE BECAUSE I HAD TO ORDER THE

MACHINE

> > > AND STARTER. SO, FRIDAY NITE I MADE YOGURT AND HE AT FIRST YOGURT SUNDAY

AND

> > > MONDAY, HE ATE 1 FULL CUP WITH HONEY TO FLAVOR SUNDAY, HALF CUP MORN. AND

> > > OTHER THAT NITE. AND YESTERDAY IS WHEN WE STARTED HAVING " BIG " PROBLEMS

> > > " NOT " UNTIL 3PM YESTERDAY I DECIDED TO MAKE HIM A YOGURT SMOOTHIE WITH

> > > QUARTER OF A RIPE BANANA IN IT . ONE HR LATE LOOSE BMS STARTED. I PUSHED

ON

> > > . AND GAVE VERY SM PORK CHOP AND FROZEN SPINACH FOR SUPPER , THEN HE

STATED

> > > GOING TO BATHROOM BIG TIME . I GOT UP LAST NITE AT 2:00 TO CHECK ON HIM

AND

> > > HE STATED HE HAD GONE 6 OR TIMES. NOW , THAT HAS NOT HAPPENED IN A WHILE.

I

> > > AM VERY WORRIED , IN PAST 3 MONTHS SINCE THIS STARTED HE HAS LOST 42 LBS.

> > > AND I NEED FOOD IN THE MAN > AND WITH LAST NITE GOING ON PLEASE EMAIL ME.

> > >

> >

>

[Guest guest]

-

Email me anytime you want jenniferorr@...

Also, if you want to chat by phone we can set that up too.

I know this diet is a big big change and I am glad to help/share any tips I can.

People on this board have tons of info/experience so def use this board for

support!!

Also, I know that there is a support group in Austin - I have attended a few

times. Maybe there is one in Dallas. The woman who leads the Austin group is

Kay Stence.

Here is her website with lots of tips and you might ask he about Dallas

connections. www.austinscdfriends.com/page/page/3690002.htm

Hope you keep seeing improvement.

> > >

> > > >

> > > >

> > > > THANK-YOU MARA S. , FOR EMAILING BACK ABOUT MY HUSBAND BARNEY, HE WAS SO

VERY HUNGRY SUNDAY AND I POURED SOME HONEY ON IT . I MADE OUR VERY FIRST YOGURT

WITH HALF AND HALF CAUSE I DID NOT KNOW ANY BETTER.

> > >

> > > that's okay - as long as it ferments for 24 hours.

> > >

> > >

> > > > OF COURSE HE WANTED TO EAT THE YOGURT . AFTER EATING INTRO 5 DAYS, IF I

AM UNDERSTANDING YOU DO CHICKEN SOUP ONLY , A DAY OR TWO. ONE SOFT BOILED EGG

ONCE A DAY? IN SOUP. PURRED VEGGIES TONIGHT OR WAIT ON THOSE TILL TOMORROW ?

NOOOOOOOOOO YOGURTTTTTT.

> > >

> > > Give him a lot of soup - several times a day. He can eat that with a soft

boiled yolk - or without - every time.

> > > He can also eat the chicken from the soup (or meat - if you give him beef

bone soup) several times a day.

> > > This soup - cooked a long time with the chicken or meat bones - is best

because it is very healing because

> > > the gelatin helps soothe and cure the intestine.

> > >

> > > You can also give him some plain roasted meat - and you can also give him

home made SCD mayonnaise -

> > > recipe in the SCD book - in the soup or with the meat.

> > >

> > > If he is tolerating carrots, give it to him pureed - first cooked into the

soup until very soft - several hours and

> > > then mashed or pureed. You can add butter or olive oil or coconut oil to

this and salt and pepper.

> > >

> > > Every other day add in a soft vegetable like pureed zucchini or spinach -

time it out to make sure he is

> > > dealing with it okay first. You can add in cheese also if he can handle

that. Each time you add something

> > > in - beyond what is on the intro diet - give it a few days to make sure

you are dealing with it okay first.

> > >

> > > That much yogurt - while delicious - is going to cause a lot of intestinal

havoc and distress

> > > in the very beginning. BTW, I did exactly the same thing and also had a

bad reaction to it;

> > > I'm sure that happens frequently.

> > >

> > > > GOT IT. TILL LATER.THIS WK. I AM PANICKY I HAVE BASICLY GOT ONE MONTH OR

MAYBE 6WKS. TILL THE SURG ERY APPT EARLY SEPT/ HIS REG DR. SET HIM UP WITH A

SURG APPT TO SEE A SURG. DR. TO " TALK " ABOUT

> > > > SURGERY.TO TAKE HIS COLON OUT.

> > >

> > > Best thing to do for yourself is de-stress. Try and be calm about the

SCD, because at times it can

> > > take a lot of patience. And stress is communicable and is also really bad

at causing symptoms

> > > in people with autoimmune disease. Most of us - when we have a lot of

stress - also have symptoms.

> > >

> > > If you can, take a yoga class or practice deep calming breaths. Or take a

long nature walk.

> > > If your husband is up to doing gentle exercise - even long walks, etc.,

that is also very good

> > > therapy for him. People with auto-immune disease chronically are low on

endorphins -

> > > so exercise (gentle or not at all), which creates endorphins, is excellent

therapy for us.

> > >

> > > Before you consider surgery, please also look into doing SCD with LDN (low

dose naltrexone) -

> > > It is an excellent combo therapy for many of us - works much better than

most other drugs.

> > >

> > > http://health.groups.yahoo.com/group/lowdosenaltrexone/

> > >

> > > Lot of people here will jump into help you guys out before you are close

to hitting surgery with advice and help.

> > >

> > > Just remember - even if you get impatient, the best approach on SCD is

slow and patient. So don't rush

> > > adding new things in or in huge amounts, as that approach can backfire a

lot.

> > >

> > >

> > > > I WANT THIS DIET TO WORK SO HE DOES HAVE TO HAVE THAT HAPPEN. HENCE ,

SOME ANXIETY ENSUES.

> > > > THAT WAS STUPID GIVING HIM THAT MUCH YOGURT. IN ONE DAY. EMAIL ME BACK

ONE MORE TIME SO I KNOW YOU GOT THIS MY COMPUTER IS GIVING ME SO MUCH TROUBLE

JUST TRYING TO WRITE THIS ONE EMAIL.

> > > > \THANK-FULL IN DALLAS, BRENDA

> > >

> >

>

[Guest guest]

Hi and Barney,

 

I'm in Houston dx'd with crohn's disease.  Just wanted to say hi and feel free to email me if you have any questions or if I can help you find something--maybe.  We're in the same state but it's huge so I could probably only help with chain stores.

 

I hope you guys are feeling better.

 

Debbie 41 cd

scd 12/05 originally--many restarts

 

-Email me anytime you want jenniferorr@...Also, if you want to chat by phone we can set that up too.I know this diet is a big big change and I am glad to help/share any tips I can. People on this board have tons of info/experience so def use this board for support!!

Also, I know that there is a support group in Austin - I have attended a few times. Maybe there is one in Dallas. The woman who leads the Austin group is Kay Stence.Here is her website with lots of tips and you might ask he about Dallas connections. www.austinscdfriends.com/page/page/3690002.htm

Hope you keep seeing improvement.

> > > > > > > > > > > > > > > THANK-YOU MARA S. , FOR EMAILING BACK ABOUT MY HUSBAND BARNEY, HE WAS SO VERY HUNGRY SUNDAY AND I POURED SOME HONEY ON IT . I MADE OUR VERY FIRST YOGURT WITH HALF AND HALF CAUSE I DID NOT KNOW ANY BETTER.

> > > > > > that's okay - as long as it ferments for 24 hours. > > > > > > > > > > OF COURSE HE WANTED TO EAT THE YOGURT . AFTER EATING INTRO 5 DAYS, IF I AM UNDERSTANDING YOU DO CHICKEN SOUP ONLY , A DAY OR TWO. ONE SOFT BOILED EGG ONCE A DAY? IN SOUP. PURRED VEGGIES TONIGHT OR WAIT ON THOSE TILL TOMORROW ? NOOOOOOOOOO YOGURTTTTTT.

> > > > > > Give him a lot of soup - several times a day. He can eat that with a soft boiled yolk - or without - every time. > > > He can also eat the chicken from the soup (or meat - if you give him beef bone soup) several times a day.

> > > This soup - cooked a long time with the chicken or meat bones - is best because it is very healing because> > > the gelatin helps soothe and cure the intestine.> > > > > > You can also give him some plain roasted meat - and you can also give him home made SCD mayonnaise -

> > > recipe in the SCD book - in the soup or with the meat. > > > > > > If he is tolerating carrots, give it to him pureed - first cooked into the soup until very soft - several hours and

> > > then mashed or pureed. You can add butter or olive oil or coconut oil to this and salt and pepper. > > > > > > Every other day add in a soft vegetable like pureed zucchini or spinach - time it out to make sure he is

> > > dealing with it okay first. You can add in cheese also if he can handle that. Each time you add something> > > in - beyond what is on the intro diet - give it a few days to make sure you are dealing with it okay first.

> > > > > > That much yogurt - while delicious - is going to cause a lot of intestinal havoc and distress> > > in the very beginning. BTW, I did exactly the same thing and also had a bad reaction to it;

> > > I'm sure that happens frequently. > > > > > > > GOT IT. TILL LATER.THIS WK. I AM PANICKY I HAVE BASICLY GOT ONE MONTH OR MAYBE 6WKS. TILL THE SURG ERY APPT EARLY SEPT/ HIS REG DR. SET HIM UP WITH A SURG APPT TO SEE A SURG. DR. TO " TALK " ABOUT

> > > > SURGERY.TO TAKE HIS COLON OUT. > > > > > > Best thing to do for yourself is de-stress. Try and be calm about the SCD, because at times it can

> > > take a lot of patience. And stress is communicable and is also really bad at causing symptoms > > > in people with autoimmune disease. Most of us - when we have a lot of stress - also have symptoms.

> > > > > > If you can, take a yoga class or practice deep calming breaths. Or take a long nature walk. > > > If your husband is up to doing gentle exercise - even long walks, etc., that is also very good

> > > therapy for him. People with auto-immune disease chronically are low on endorphins -> > > so exercise (gentle or not at all), which creates endorphins, is excellent therapy for us. > > >

> > > Before you consider surgery, please also look into doing SCD with LDN (low dose naltrexone) -> > > It is an excellent combo therapy for many of us - works much better than most other drugs.

> > > > > > http://health.groups.yahoo.com/group/lowdosenaltrexone/> > > > > > Lot of people here will jump into help you guys out before you are close to hitting surgery with advice and help.

> > > > > > Just remember - even if you get impatient, the best approach on SCD is slow and patient. So don't rush> > > adding new things in or in huge amounts, as that approach can backfire a lot.

> > > > > > > > > > I WANT THIS DIET TO WORK SO HE DOES HAVE TO HAVE THAT HAPPEN. HENCE , SOME ANXIETY ENSUES.> > > > THAT WAS STUPID GIVING HIM THAT MUCH YOGURT. IN ONE DAY. EMAIL ME BACK ONE MORE TIME SO I KNOW YOU GOT THIS MY COMPUTER IS GIVING ME SO MUCH TROUBLE JUST TRYING TO WRITE THIS ONE EMAIL.

> > > > \THANK-FULL IN DALLAS, BRENDA> > >> >>

--

41 cd

scd 12/05