Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 I do that too. When in public I laugh and say I have "sometimers" disease. Hey it works. Jackie Re: UpdateTo: Neurosarcoidosis Date: Sunday, November 21, 2010, 3:55 PM It is that I believe that chemical exposures , un-approved shots and the infamous PB pill could have contributed or caused my Neurosarcoidosis. So I have applied to the VA as a possible Gulf War illness. All of my symptoms' I can apply to my Neurosarcoidosis lead all the way back to 1991. Extreme headaches, extreme sinus blockage, memory lost, depression, lost of balance , well I could go on but also one of my symptoms is the inability at times to speak, pronounce words. My doctors can not identify one thing or a group of things that have caused this. Heck since 1991 I have been misdiagnosed with Hep – B and or Meningitis at least during the initial test but when the actual test for those were done the were negative. So since the Gulf War I have had a lot of issues that I now know were symptoms of Neuro growing. When I found and identified it , it almost took my life (I had a stoke) and since Aug 2008 I have not been allowed to work. Was it the Golf War that caused it or accelerated my Neurosarcoidosis?? That I think is the real question. Not sure if I could prove either one, so lets see if the VA can disprove one or both.. Greg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 Hi Rose, This memory loss is starting to affect me also. I thought it was just something that was naturally progressing as I grew older, but it seems to be accelerating. I guess like most people, I try to hide it, especially at work. It does frighten me, though, as I am not sure what it is I am missing. I filled some expenses in recently and made a complete nonsense of them, so they got thrown back. Even knowing where the problem was, it was difficult to work out why - at least, I found I couldn't see my way through the errors straight away. On some occasions, things just don't " click " the way they used to. Best regards, On Mon, 22 Nov 2010 22:17:08 -0500, Rose wrote: > Mitch, I also have trouble thinking of common words. I'll say to > someone, " You know, that thing that goes around & gets you cool, " and > they'll say, " A fan? " My kids & grandkids think it's funny, and > sometimes it is, but it can also be very frustrating. Embarrassing > too, when it happens in the checkout line or somewhere. But I just try > to mellow out & accept it as another thing to live with. Like you, I > sometimes leave a blank spot in a message & try to fill it in later. > Sometimes I forget & send it with the gap, so the message doesn't > quite make sense! Might as well laugh about it; better than cussing or > crying. > > __ > > ------------------------- > To: Neurosarcoidosis > From: mjcv29a@... > Date: Sun, 21 Nov 2010 23:46:14 -0500 > Subject: Re: Update > > Count me in on this one. > I've had memory issue's that I just thought were age related but now > I'm not sure at all. After this last month's episode that almost > landed me in the Hospital for a week or two. I have been worse then > ever. In fact it took me 5 minutes to think of the word " episode " , I > had to write the whole thing around it until it came to me (and I'm > not even sure if that's the word I wanted but it fit so instead of > making myself crazy, I went with it),. Since that month's bout with > Sarc (the worst in over a year and a half, I can't think of easy words > that I use all the time in every day life. It's actually scaring me a > bit. > > Mitch > > Re: Update > To: > Date: Sunday, November 21, 2010, 3:55 PM > > It is that I believe that chemical exposures , un-approved shots and > the infamous PB pill could have contributed or caused my > Neurosarcoidosis. So I have applied to the VA as a possible Gulf War > illness. All of my symptoms' I can apply to my Neurosarcoidosis lead > all the way back to 1991. Extreme headaches, extreme sinus blockage, > memory lost, depression, lost of balance , well I could go on but also > one of my symptoms is the inability at times to speak, pronounce > words. My doctors can not identify one thing or a group of things that > have caused this. Heck since 1991 I have been misdiagnosed with Hep > – B and or Meningitis at least during the initial test but when the > actual test for those were done the were negative. So since the Gulf > War I have had a lot of issues that I now know were symptoms of Neuro > growing. When I found and identified it , it almost took my life (I > had a stoke) and since Aug 2008 I have not been allowed to work. Was > it the Golf War that caused it or accelerated my Neurosarcoidosis?? > That I think is the real question. Not sure if I could prove either > one, so lets see if the VA can disprove one or both.. > > Greg > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 I will keep you all in my prayers. As a caregiver I understand completely. I see how frustrated it makes and then there are times I cant understand what she needs because she cant get the words out and then the 2 of us are frustrated. In our case the best i can often do is ask her to show me if she can what she needs me to do. All be wellMatt Subject: Re: UpdateTo: Neurosarcoidosis Date: Sunday, November 21, 2010, 3:55 PM It is that I believe that chemical exposures , un-approved shots and the infamous PB pill could have contributed or caused my Neurosarcoidosis. So I have applied to the VA as a possible Gulf War illness. All of my symptoms' I can apply to my Neurosarcoidosis lead all the way back to 1991. Extreme headaches, extreme sinus blockage, memory lost, depression, lost of balance , well I could go on but also one of my symptoms is the inability at times to speak, pronounce words. My doctors can not identify one thing or a group of things that have caused this. Heck since 1991 I have been misdiagnosed with Hep – B and or Meningitis at least during the initial test but when the actual test for those were done the were negative. So since the Gulf War I have had a lot of issues that I now know were symptoms of Neuro growing. When I found and identified it , it almost took my life (I had a stoke) and since Aug 2008 I have not been allowed to work. Was it the Golf War that caused it or accelerated my Neurosarcoidosis?? That I think is the real question. Not sure if I could prove either one, so lets see if the VA can disprove one or both.. Greg Quote Link to comment Share on other sites More sharing options...
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