Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Hi , I am so sorry you are experiencing this. Do you know your Complete Blood Counts specifically your Hematocrit? Did they do a complete Iron panel including Ferritin numbers? My numbers were abysmal for years.. it got worse in the begining of the SCD and once I started feeling better the numbers steadily climbed which had never happened.. I was anemic since I was little. Anyway, I cannot tolerate Iron whatsoever.. Are you bleeding out in any way? Have to ask.. Try cooking on cast iron and eat liver.. Shpritz some fresh squeezed lemon on meat and liver- The vitamin C helps the Iron get absorbed. I have had to get transfused.. I also had to be under a Hematologists eye for quite some time. Anyway, hang in there! Jodi > > Hi All, > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > hemoglobin level of 8. > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > I was pregnant. > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > Please write if you've had a similar experience or have any advice to share. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 I've had lots of experience with iron and anemia. Generally 8 is transfusion level. Depending on the situation, they can give you iron transfusions or blood transfusions or both. I think it depends on if it's only hemoglobin and ferritin that's low then you can get iron transfusions or if everything is low they will give you blood or red blood cells. At least that's the way I understand it now. I was told to have vitamin C with every meal and/or iron (supplement or food) so it absorbs better. No calcium because it binds iron. I drink lots of white welche's because I tolerate it better than orange juice. There is a list on one of the .gov sites of high iron foods. Cherries, shrimp, oysters, bison, ostrich meat (Marilyn can maybe help you with cooking some of this because I've never tried ostrich or bison), In other words, there's lots of high iron foods. Azuki beans are small, red with barely a husk and 20% iron per 1/4 c. or something crazy. Bulk bin at WF. I can't eat very much and take the iron pills I have (generic Repliva beause it is two irons and a few other vitamins in it) and they are illegal on the diet. You can get a bowel infection with iron supps. Iron transfusions are not too bad imho compared to the alternatives except your doctor has to set it all up and agree to it. The bad thing about transfusions is buildin antibodies to certain types of blood which narrows your chances of getting blood down the line. Not good if it's a serious emergency. Good luck. Just over a week ago, I had to get three pints of blood and two iron transfusions so you need to kind of get a handle on it if possible. Personally, going back to 2003, I would have refused a transfusion at 8 since now I have antibodies. I was def ready at 3.5 hemoglobin for whatever they wanted but don't wait that long--if you don't feel good, do what you have to do. It's dangerous to get too anemic. Hi All,Apparently, I'm severely anemic. My PCP just called and was very alarmed at my hemoglobin level of 8. What can I do diet wise other than eating beef, eggs, dates spinach (which I already have tons of)? I have had HORRIBLE reactions to iron supplements in the past whileI was pregnant.The doctor wants me to see my GI specialist. Will I need a transfusion?Please write if you've had a similar experience or have any advice to share. Thanks, -- 41 cd scd 12/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Hi, : Happy to offer what I've learned, especially to those who are left high-and-dry by doctors who ought to know (much) better. An abundance of phytate and polyphenols are contra-indicated in iron deficient anemia: these plant chemicals are well-known to medical researchers to inhibit iron absorption, but unfortunately the information is not being conveyed to the public. I had to learn this in the medical library, but now we've the internet with which you can do the same, while concurrently speedily verifying this my advice. Dates and spinach to excess would not be recommended if you are anemic, for the very reason specified above. Apparently the worst offenders are berries, tea (including naturally caffeine-free products), coffee, grapes, wines, nuts, whole grains (esp. if unfermented). There seems to be some debate whether heme iron (as found in red meat) is affected by the polyphenols. Traditionally the view was that heme iron absorption is NOT inhibited by dietary polyphenols, but recent (as in year 2010) research is suggesting otherwise. See: http://jn.nutrition.org/cgi/content/abstract/140/6/1117. Free full text, incidentally. That humans can do very well without polyphenols thank you very much is proved by infants, little carnivores which greedily ingest 150 - 200 mL milk/kg BW/day (think 9943 mL = 9.9L/day for a 125 pound adult person), this while on an exclusive milk diet and while growing at a very rapid rate. One would think if polyphenols were so important we'd have been designed so that the dietary polyphenols of the mother are transfered to breast milk for the benfit of the growing and utterly dependent infant, but they are not... What are your symptoms? Are you under-/over-weight? Fatigued? Pale? Sensitive to sunlight (susceptible to easy burning)? Psoriatic (itchy skin)? > > Hi All, > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > hemoglobin level of 8. > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > I was pregnant. > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > Please write if you've had a similar experience or have any advice to share. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 I had another thought if you are trying to get the iron in your diet. I used to do this and forgot about it. Make mini-meatloaves (like mini cupcakes) and cook veggies until soft in homemade scd broth or stock, add a meatloaf muffin to a bowl of it so it's like soup but pre-made. You could use chicken or beef. A very tender pot roast or bone stock and cook all your veggies in the stock (add a cap of apple cider vinegar to the bone broth or pot roast to leach the minerals out). Stick with whatever your easily digestible veggies/fruits are since iron can be hard on your system. You could do the same with spinach but drink the broth or cook with it if you can't stand anymore (my old PCP's advice). This lady I know who was always anemic from crohn's was told to drink 1c. of raspberry/apple juice per day and it cured her anemia at least for a long time last time I talked to her. I did that for awhile but it gets tedious straining raspberries and apples. It's worth a shot though. I only have homemade solutions that may or may not be helpful. Too much fiber or scratchy food is definitely not good. Once I was able to eat salads then smoothies again, I way overdid it so you may want to peel, deseed and cook everything even if you are beyond that stage. At least until you are back to normal. Hi, Happy to offer what I've learned, especially to those who are left high-and-dry by doctors who ought to know (much) better.An abundance of phytate and polyphenols are contra-indicated in iron deficient anemia: these plant chemicals are well-known to medical researchers to inhibit iron absorption, but unfortunately the information is not being conveyed to the public. I had to learn this in the medical library, but now we've the internet with which you can do the same, while concurrently speedily verifying this my advice. Dates and spinach to excess would not be recommended if you are anemic, for the very reason specified above. Apparently the worst offenders are berries, tea (including naturally caffeine-free products), coffee, grapes, wines, nuts, whole grains (esp. if unfermented). There seems to be some debate whether heme iron (as found in red meat) is affected by the polyphenols. Traditionally the view was that heme iron absorption is NOT inhibited by dietary polyphenols, but recent (as in year 2010) research is suggesting otherwise. See: http://jn.nutrition.org/cgi/content/abstract/140/6/1117. Free full text, incidentally. That humans can do very well without polyphenols thank you very much is proved by infants, little carnivores which greedily ingest 150 - 200 mL milk/kg BW/day (think 9943 mL = 9.9L/day for a 125 pound adult person), this while on an exclusive milk diet and while growing at a very rapid rate. One would think if polyphenols were so important we'd have been designed so that the dietary polyphenols of the mother are transfered to breast milk for the benfit of the growing and utterly dependent infant, but they are not... What are your symptoms? Are you under-/over-weight? Fatigued? Pale? Sensitive to sunlight (susceptible to easy burning)? Psoriatic (itchy skin)? > > Hi All,> > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > hemoglobin level of 8. > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while> I was pregnant.> > The doctor wants me to see my GI specialist. Will I need a transfusion?> > Please write if you've had a similar experience or have any advice to share. > > Thanks,> > -- 41 cd scd 12/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 That humans can do very well without polyphenols thank you very much is proved by infants, little carnivores which greedily ingest 150 - 200 mL milk/kg BW/day (think 9943 mL = 9.9L/day for a 125 pound adult person), this while on an exclusive milk diet and while growing at a very rapid rate. One would think if polyphenols were so important we'd have been designed so that the dietary polyphenols of the mother are transfered to breast milk for the benfit of the growing and utterly dependent infant, but they are not...Just because polyphenols aren't needed by infants doesn't mean they aren't needed by adult or adolescent humans. Babies produce lactase in order to digest the lactose in breast milk, but over time they stop producing it because they no longer need it; that's why so many people are lactose intolerant. We aren't meant to nurse forever, whether that's drinking human milk or other animal milk. Now, I honestly know nothing about polyphenols, but my point is that infants have different needs than adults, so you can't use their diet of just milk as proof that we could do just fine without anything else. Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Prednisone 10 mg 1x per day (trying to wean!!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Apparently, I'm severely anemic. My PCP just called and was very alarmed at my hemoglobin level of 8. What can I do diet wise other than eating beef, eggs, dates spinach (which I alreadyhave tons of)?Hi ! So sorry to hear about your anemia; I've definitely been there, done that! Another thing you can eat is beets; I've read that the iron in beets is readily absorbed, though I'm not sure how true that is. Something to look into, though!I did have an iron infusion once when my hemaglobin was really low as well. I think it made my levels jump from 8 to 11 point something, which was great, but I had a horrible reaction with nausea, stomach pain, and vomiting after the infusion. This obviously doesn't happen to everyone, but I just wanted to share my experience =) Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Prednisone 10 mg 1x per day (trying to wean!!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Thanks for your advice, . It's much appreciated. I do suffer from fatique, weakness, shortness of breath and a little itchy patch on my chin that I don't have a diagnosis for. My skin has a yellowish tint to it. I am slightly underweight, but certainly do not look sick. in fact my doctor said that I looked the picture of health, before the test results came in and he saw my GI history. So, as far as phytates and polyphenols are concerned, I definitely have a tendency to binge on foods containing these. I have a weakness for dates, berries, walnuts and drink at least 4 cups of tea a day. I do have a lot of eggs, an beef around twice a week, occasional spinach. I think you have made me realize that my diet is not necessarily deficient in iron but that I am regularly consuming foods that interfere with the absorption of iron. It's clear that I have to modify my diet to include more iron rich foods and eliminate some of the foods that are not helping. Thanks again, > > > > Hi All, > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > > hemoglobin level of 8. > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > > I was pregnant. > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > Please write if you've had a similar experience or have any advice to share. > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Thanks, Alyssa. I'll definitely try the beets which I'm rather fond of but don't get to eat much of. After you've had the iron infusion, does the jump last? I'm sorry to hear that you had such severe side effects from the iron. I'll have to see what my doctor recommends next. Will keep you guys posted. At least there's a reason for not feeling good. I have been wondering why I sometimes feel so much older and less energetic than others my age. - > > > Apparently, I'm severely anemic. My PCP just called and was very > > alarmed at my > > hemoglobin level of 8. > > > > What can I do diet wise other than eating beef, eggs, dates spinach > > (which I already > > have tons of)? > > > Hi ! So sorry to hear about your anemia; I've definitely been > there, done that! Another thing you can eat is beets; I've read that > the iron in beets is readily absorbed, though I'm not sure how true > that is. Something to look into, though! > > I did have an iron infusion once when my hemaglobin was really low as > well. I think it made my levels jump from 8 to 11 point something, > which was great, but I had a horrible reaction with nausea, stomach > pain, and vomiting after the infusion. This obviously doesn't happen > to everyone, but I just wanted to share my experience =) > > Cheers! > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Prednisone 10 mg 1x per day (trying to wean!!!!) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Good advice, Jodi, regarding vitamin C with iron rich foods and cooking in cast iron. I'm sorry to hear that you've struggled with this too, but glad to learn that your levels are steadily increasing. I do have bleeding from time to time but nothing significant. I will get my CBC and Ferritin numbers in a few days. The doc is also checking B12, folic acid and vitamin D levels. Thanks for the moral support! - > > > > Hi All, > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > > hemoglobin level of 8. > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > > I was pregnant. > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > Please write if you've had a similar experience or have any advice to share. > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Thanks for all your great advice regarding meals. I will definitely give your ideas a try. I think I do need to stick to basic, soothing foods and eliminate all the scratchy, fibrous stuff as you've suggested. I had no idea about the possibility of producing antibodies to transfusion blood but it does make sense. Thanks for alerting me to this. I really do appreciate your input and will let you know what happens next. - > > > > > > > Hi All, > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at > > my > > hemoglobin level of 8. > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which > > I already > > have tons of)? I have had HORRIBLE reactions to iron supplements in the > > past while > > I was pregnant. > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > Please write if you've had a similar experience or have any advice to > > share. > > > > Thanks, > > > > > > > > > > > > -- > 41 cd > scd 12/05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Hey ! I hope this isn't information overload for you with YET another voice jumping in! But I think it will make you feel " at home " to know that so many of us struggle with this. I have been having a heck of a time keeping my hemoglobin up these past couple of years. It's not a mystery or anything- I know I am bleeding (here's to the hope that SCD will help, even though it is a slow process!!!). I have had 3 transfusions in the past year and a half. The positive thing is that you will feel better within the week- less fatigued and less light headed (assuming those are a few of your symptoms?). And my levels always jump from 8 to about 11.5. Debbie mentioned the downside- the development of antibodies. I was absolutely fine with my first 2, but after my 3rd I got severe back and joint pain the whole night afterward. Fortunately it went away, but now I am really motivated to try to keep levels up naturally to avoid another transfusion. I don't know if you like liver, but I am okay with it. I make chopped liver, freeze little portions of it (you don't need much) and then eat it 2x a week. I have no scientific proof if this is better than other suggestions, but it's something new I am trying! And I think it's one of the highest sources of heme iron you can get. Well, good luck making your decision as to the best way to boost those levels. Like the others have suggested- don't let it get so low that you are miserable. It's not worth it. And from my experience, my GI has been very supportive of ordering the transfusions and setting everything up. Best, Joanna SCD 9/2009, Crohn's 1992, 22.5mg Prednisone > > > Thanks, Alyssa. I'll definitely try the beets which I'm rather fond of but don't > get to eat much of. After you've had the iron infusion, does the jump last? > I'm sorry to hear that you had such severe side effects from the iron. > > I'll have to see what my doctor recommends next. Will keep you guys posted. > > At least there's a reason for not feeling good. I have been wondering why I > sometimes feel so much older and less energetic than others my age. > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Thanks, Alyssa. I'll definitely try the beets which I'm rather fond of but don't get to eat much of. After you've had the iron infusion, does the jump last?I think it has lasted pretty well. I've gotten my blood drawn tons of times since then, and there haven't been any more complaints about anemia. Either they haven't been testing for it, or I'm fine! I'm guessing the latter, since my energy's been pretty good too =) Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Prednisone 10 mg 1x per day (trying to wean!!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 I've always had anemia problems. Once I started getting iron (Venofer) infusions, it improved immensely. The last time I had a set of 4 infusions was 2 years ago (ferritin got to over 300!). I think I'm about due again. My hemoglobin is still fine at 13, but my ferritin is down to 22. I see my hematologist in mid-October, and hopefully I can get them over with then. Holly Crohn's SCD 12/01/08 > > > > Hi All, > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > > hemoglobin level of 8. > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > > I was pregnant. > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > Please write if you've had a similar experience or have any advice to share. > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Hi, Alyssa: Thanks for your interest. I will respond in turn. Lactase is commonly measured in adult human intestines by medical workers, and it has been repeatedly shown the enzyme is lowered only if one has diseased intestines (SCDers like you and I), or if one suffers from a very rare genetic condition. In some patients with intestinal disorders, the enzyme cannot even be shown to be reduced. The notion, therefore, that lactase vanishes from human subjects upon attainment of adulthood, must be tempered by this realization, that its presence is conditional upon the intestinal health of the individual. IMHO, lactase intolerance as a necessary result of the aging process is an enormous myth, and deprives millions from actively seeking out and relishing clean, delicious milk. One should agitate, parenthetically, the question whether the problem with milk is not the lactose, but the health of the animal(s) from which the milk has been taken. " In 1913, a Burlington, Iowa man, Mr. W.F. Kitzele, sent a letter to [MD Dr. Sanford] Porter. 'I have lived on a strictly milk diet for the past forty-two years, not as a matter of choice, but from the fact that I am unable to take solid food of any kind, even a crumb of bread. At the age of two years I took a dose of concentrated lye, which caused a stricture of the food pipe and since then have lived on a milk diet. I believe I have gotten along better than the man who eats. I am five feet, six inches tall, weigh one hundred and forty pounds, and am married and have four strong, healthy children. I take one quart at each mealtime and none between meals. My health is good, in fact I have never been ill in bed in forty-two years.' ...In 1929, J.E. Crewe, MD, one of the founders of the Mayo Foundation...published an article entitled 'Raw Milk Cures Many Diseases.' Here are excerpts from Dr Crewe's account of his experience with raw milk: 'For fifteen years the writer has employed the certified milk treatmentin various diseases and during THE PAST TEN HE HAD A SMALL SANITARIUM DEVOTED PRINICPALLY TO THIS TREATMENT. THE RESULTS OBTAINED IN VARIOUS TYPES OF DISEASE HAVE BEEN SO UNIFORMLY EXCELLENT THAT ONE'S CONCEPTION OF DISEASE AND ITS ALLEVIATION IS NECESSARILY CHANGED [think lactose intolerance]. ...The fact that many diseases are treated and successful results claimed, leads almost to disrespect. ...The patients are put at rest in bed and are GIVEN AT HALF-HOUR INTERVALS FROM FIVE TO TEN QUARTS OF MILK A DAY. MOST PATIENTS ARE STARTED ON THREE OR FOUR QUARTS OF MILK A DAY AND THIS IS USUALLY INCREASED A PINT A DAY. ...THE TREATMENT OF VARIOUS DISEASES OVER A PERIOD OF EIGHTEEN YEARS WITH A PRACTICALLY EXCULSIVE MILK DIET HAS CONVINCED ME PERSONALLY THAT THE MOST IMPORTANT SINGLE FACTOR IN THE CAUSE OF DISEASE AND IN THE RESISTANCE TO DISEASE IS FOOD. I HAVE SEEN SO MANY INSTANCES OF THE RAPID AND MARKED RESPONSE TO THIS FORM OF TREATMENT THAT NOTHING COULD MAKE ME BELIEVE THIS IS NOT SO' " (pages 74-80 of Ron Schmid's THE UNTOLD STORY OF MILK, first published by NewTrends in 2003). Since Crewe worked prinicpally with adults, including many hypertensives and others with compromised cardiac health, I conclude lactase intolerance is not prinicipally a consequence of aging, but of disease. I doubt that anyone with lactose intolerance could recover from a serious medical condition while on a strict milk diet, since the by-products of carbohydrate maldigestion would simply aggravate the condition for which the patient was being treated (e.g., excess blood carbon dioxide secondary to polysaccharide fermentation gas production). Besides, North American Plains Indians, prior to their introduction to the diet of white man, were famous for their remarkable health; and not a few of these tribes were on diets bereft of a trace of plant matter, from conception till death in their 60s, 70s, 80s, and 90s. A good university library will substantiate all these claims. Ergo adult humans do not need dietary polyphenols to be in good health. Note that I am not stating that polyphenols are harmful to man, which I never once suggested. I am saying that if polyphenols are needed, their importance is greatly exaggerated, assuming at the very least that the animal products the subject is eating are derived from animals which were in an excellent state of health upon slaughtering. Since the animal industry today is very commercialized, I would be reluctant to put anyone on a carnivore diet, whether milk or meat: this would be the proverbial recipe for disaster (and a malpractice suit, too). Thanks, . - In BTVC-SCD , Alyssa Luck wrote: > > > That humans can do very well without polyphenols thank you very much > > is proved by infants, little carnivores which greedily ingest 150 - > > 200 mL milk/kg BW/day (think 9943 mL = 9.9L/day for a 125 pound > > adult person), this while on an exclusive milk diet and while > > growing at a very rapid rate. One would think if polyphenols were so > > important we'd have been designed so that the dietary polyphenols of > > the mother are transfered to breast milk for the benfit of the > > growing and utterly dependent infant, but they are not... > > > Just because polyphenols aren't needed by infants doesn't mean they > aren't needed by adult or adolescent humans. Babies produce lactase in > order to digest the lactose in breast milk, but over time they stop > producing it because they no longer need it; that's why so many people > are lactose intolerant. We aren't meant to nurse forever, whether > that's drinking human milk or other animal milk. Now, I honestly know > nothing about polyphenols, but my point is that infants have different > needs than adults, so you can't use their diet of just milk as proof > that we could do just fine without anything else. > > Cheers! > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Prednisone 10 mg 1x per day (trying to wean!!!!) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 HI, : A yellow skin suggests either jaundice (high blood bilirubin) and/or high blood carotene. Both, but esp the latter, are common in hypo-thyroids, since a healthy thyroid is essential for conversion of carotene into vitamin A. You may want to ask your MD for a requisition/script for: bilriubin, carotene, prolactin and TSH. A denial of this request would be a very mild but definite species of mal-practice. Both my TB and (beta-)carotene are chonically elevated, and though my thyrotopin and T4/3 are normal, and I've no anti-thyroid anti-bodies, my high prolctin suggests deceptive hypo-thyroidism (known as the " hypoerprolactinemia of hypothyroidism " ). Incidentally, a hypo-thyroid would have a vastly compromised digestion (lowered polysaccharide enzyme activity), hence the popularity of the SCD does not surprise me... Hope this helps, and please kindly post your results should you undergo the recommended tests. . > > > > > > Hi All, > > > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > > > hemoglobin level of 8. > > > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > > > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > > > I was pregnant. > > > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > > > Please write if you've had a similar experience or have any advice to share. > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Hi , Have they checked your Pituitary function? Have you had any images taken? Jodi > > > > > > > > Hi All, > > > > > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > > > > hemoglobin level of 8. > > > > > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > > > > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > > > > I was pregnant. > > > > > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > > > > > Please write if you've had a similar experience or have any advice to share. > > > > > > > > Thanks, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Ergo adult humans do not need dietary polyphenols to be in good health. Note that I am not stating that polyphenols are harmful to man, which I never once suggested. I am saying that if polyphenols are needed, their importance is greatly exaggerated, assuming at the very least that the animal products the subject is eating are derived from animals which were in an excellent state of health upon slaughtering. I'm convinced now =) And I totally agree that the health of the animal has everything to do with the quality of their meat and milk. And also that pasteurized milk is no comparison to raw milk. Thanks for all the info , you taught me some new stuff! Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Prednisone 10 mg 1x per day (trying to wean!!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 I have chronic hyper-prolactinemia (see previous posts) and chronic high bilirubin. Pituitary MRI with contrast of late June/10 showed some sort of growth which the pituitary 'expert' described as a cyst (no biopsy taken, however). There was also an issue with the piuitary stalk, but I was so upset during this portion of the appt. that this more-or-less slipped me by. If you don't fit the ordinary picture, the 'experts' dismiss you, and label you as psycho-somatic/stressed/irrelevant; and if you make inquiries and references to medical literature, if you give any hint you've been poking around, they can't show you the door fast enough. Everyone is afraid of litigation. The system is corrupt. No scalpel, no drug, ever cured a human of a disease. . > > > > > > > > > > Hi All, > > > > > > > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > > > > > hemoglobin level of 8. > > > > > > > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > > > > > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > > > > > I was pregnant. > > > > > > > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > > > > > > > Please write if you've had a similar experience or have any advice to share. > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi , I agree word for word about the medical establishment. At the same time my life was saved a couple of times so I kind of hold space that this is what they know. Still, I can't help but feel let down. My GI last year (pretty old doc been around for quite a few decades) told me that my gastro docs pretty much let me down. I am so sorry you have gone through this. It just makes me so sad to encounter the number of people that have been let down by this system. It really is a full time job. What is done for your pituitary cyst? They just leave it alone? I'm Hypothyroid and I am on meds but my TSH is just not very good that I am supposed to get a head MRI. All Pituitary function in bloods are normal. Anyway, I am dealing with Cobra insurance right now and am gonna be enrolled in new insurance so I decided to put this on the back-burner. Jodi > > > > > > > > > > > > Hi All, > > > > > > > > > > > > Apparently, I'm severely anemic. My PCP just called and was very alarmed at my > > > > > > hemoglobin level of 8. > > > > > > > > > > > > What can I do diet wise other than eating beef, eggs, dates spinach (which I already > > > > > > have tons of)? I have had HORRIBLE reactions to iron supplements in the past while > > > > > > I was pregnant. > > > > > > > > > > > > The doctor wants me to see my GI specialist. Will I need a transfusion? > > > > > > > > > > > > Please write if you've had a similar experience or have any advice to share. > > > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.