update on help...

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I left it off last night. Tried to get her to sleep on her tummy and she either

rolled to her back herself or screamed her head off till we picked her up. I

tried getting her to be on her side and she kept rolling too, even with

something proped behind her. I hate the thought that she was on her flat spot

all night but there was nothing I could of done. Today I think we are going to

get some foam to cut a square out to have on hand so if this happens again, or

we might need it tonight we have it. So far the redness is still there. And no

it does not feel warm to the touch, but it is super red and has been getting

redder the last couple of days with the the helmet on. Tonight I will be

putting her helmet back on for a few hours because we are having a babysitter

(have really expensive non refundable tickets to a musical) and I dont want the

babysitter to have to stress about not putting her on her back.

On another notes, I need some suport from people who know how this feels. I was

so stressed about getting a helmet but thought once she got it I would be

calmer, but I am not. I am stressed that maybe we didnt get the right helmet

(we have the newer danmar that is custom made for her) and I worry about what if

it doesnt work and we might be waisting presious time. I worry about the

sores. I get sick of having people stare at her and explaining what its for.

My husband just doesnt worry about it and doesnt understand why I am stressing.

I hate this!!! I wish we didnt have to go through any of this. She has

adjusted fine with the helmet after the first few days. I am just surprised how

hard its been on me. I have no one to talk to which doesnt help, I feel like I

have all these feelings inside and am having to fake it on the outside. I keep

checking her head and some days I think I see it changing other days doesnt look

different. I am driving myself crazy and I dont know what to do. And now she

has gotten these sores and the helmet needs to be off so no I am stressing about

making sure her head is not touching anything cause if the last 2 weeks have

actully done something I dont want to reverse it while its off.