Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 I had my doctor's appt - both eye and neur. The eye has greatly improved. I still don't have center vision yet and can't see color with the eye. The doctor said that the color on my optic nerve has changed a bit - hopefully not for the worse. Neur. we are 2 more weeks on the 100 mg pred. Then will start to ween 0ff or lower at least. No other meds. He said the tingling/numbness in hands and feet are side affects - not nerve damage. Also, said that nerve 7 is now involved along with 2 and 3 (have slight palsy on one side that really is not detectable). I see him again in 2 weeks. > > > > > > No scarey stuff, but Vitamin D and Sarc don't get along.� Alot of us have > > > trouble with sun exposure because of this.� There are many options other than > > > prednisone when you get more stable.� My neuro also recommended Lipoic Acid to > > > help with the neuro-nerve damage Sarc does.� There are others in this group who > > > have specifically had issues with their eyes, and they can give a great deal of > > > useful info.� I'm so sorry you have needed to come to our group, but > > > Welcome...you are among friends. > > > > > > > > > > > > > > > ________________________________ > > > From: k.przy <k.przy@> > > > To: Neurosarcoidosis > > > Sent: Sun, October 3, 2010 7:53:08 PM > > > Subject: New to all of this. > > > > > > � > > > Hi, > > > > > > I am new to all of this....I just finished my master's degree in teaching in > > > May. In July I got laid off from my teaching job (I worked with sexual offenders > > > ages 10 - 20). I began to work on my resume to look for work when I woke up with > > > almost no sight in my left eye. This was really bad since my other eye (right > > > eye) has bad astigmatism and I am almost blind in that eye. I was on IV steroids > > > for 3 days and vision in left eye got better...but a week later (off steroids)my > > > eye started to hurt and then my eye lid started to droop. Went back to eye > > > doctor who said my vision was worse than when I started. He got me in with a > > > neur. who gave me an MRI and CT. He and the radiologist disagreed with my MRI, > > > doctor says I have NS. My B and D vitamins he says are low and my CRP is 12.5 I > > > am on 100 mg of Pred. (steroids) a day now for the last month. My eye droop is > > > almost gone, my vision is coming back...I have recently had tingling in my hands > > > and feet on and off during the day. I am not really sure I have NS...I don't > > > want to have it that is for sure. I am a bit nervous...reading everything seems > > > to be overwhelming and I want to know if I am doing all that I need to do. I am > > > taking B6 and D3 - on the Inflammation Free diet and supplementing also with > > > Fish oil, and Acai. The steroids hardly bother me as I get up early to take it > > > and have been exercising everyday = along with eating right. If you respond > > > please don't scare me with worse case scenarios - I live in Wisconsin and am > > > seeing an eye doctor and an neurologist. Is there anything I need to be doing > > > right away or anything I need to know. This all started on Aug. 24th > > > > > > > > > > > > > ------------------------------------ > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > The Neurosarcoidosis Community > > > > > > > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > Members Database:- > > Listings of locations, phone numbers, and instant messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > Quote Link to comment Share on other sites More sharing options...
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