Re: post-treatment regression

[Guest guest]

There have been a few regressions that I have heard about. I am sorry you are dealing with this. I am glad you were able to get a second band. Good luck!!!!!!

Angie

post-treatment regression

For those who have graduated from the band...has anyone seen regression following treatment? Our son graduated on 8/5/09 after 7 weeks of treatment. We were pleased with the results and opted not to do a second band. (He started at 17 mm CV asymmetry and graduated at 9mm.) Over the course of time since he graduated, I've been thinking his head looks different...not quite as good as on 8/5/09. But I decided maybe I was overanalyzing things since we didn't opt for a second band and his CV number was still quite high at the end of treatment. Anyway, after several weeks of second-guessing myself, we went back to CT to measure again and his numbers were the same (hand measurements...actually CV was measured at 10mm this day.) We decided to move ahead with a second band. When I consider where we started, his head does look great -- but I realized that if I take where we started out of the equation and look at his head now, there is still much room for improvement. This morning, I just glanced at his post-treatment pictures that I took the day he graduated and his head IS different now after 7 weeks out of the helmet. Not nearly as round in the back as it was 7 weeks ago. He still sleeps exclusively on his back (at 8 1/2 months). We've tried everything to encourage him to find another position, but he won't do it. That's about the only time he's on the back of his head, other than brief car trips in the car seat. Has anyone experienced this? I know the chance of regression is almost zero...but we seem to have defied the odds. The hand measurements don't reflect the change we've seen, which I don't fully understand. (I had my husband look at the pictures, too, just to make sure I wasn't seeing things and we both agreed it doesn't look like it did.) I almost couldn't believe how round it was 7 weeks ago, given what it looks like now. We are getting band #2 next week, so I guess I shouldn't worry about this. But I am curious if anyone else has seen this happen? And if so, how old was your child and were they a back-sleeper? Seems like most have the opposite experience and the new growth post-treatment actually continues to improve things. I'll try to post pictures shortly. JillCade's mom, 8 1/2 months (DOC Band 6/18 - 8/5/09)Texas