sorry

[Guest guest]

Marla, it's ok-- we'll keep things going. I'm not really back, but will try to do a check in when I can. It's hit and miss for me too.

Know that we'll keep you and your's-- in our prayers. These life changing "ordeals" are always a challenge, and yes, they take us off the planet and exhaust what little energy we have--- so don't worry, and you know I'm always a phone call away. Days are sometimes hard to catch me at home-- seems like it's one medical issue a day that I'm needing to do something to take care of me. Back to one day at a time.

I too love Rosie being back, and I have no clue what is going on with Debbie-- how about letting us know if you can??? I do worry, as I know Deb is challenged with depression along with the sarc monster. Deb, you know you are in my thoughts and prayers also.

My love to all of you,

Tracie

To: NS <neurosarcoidosis >Sent: Wed, May 12, 2010 9:50:06 AMSubject: sorry

I'm sorry to everyone especially the moderators that I have not been around much, seems one thing after another happens in life, as you all know, we've made 2 trips to NE from CO in the past 3 weeks and in another week and 1/2 we will be heading to Iowa for a wedding, between trips I came down with a good case of Bronchitis, antibiotics and 3 days of IV steroids, had to do the last one on the road, now that took some talking, but I got the dose and off we went. still have the ugly cough, how does a body make so much "stuff" in the lungs, it just hangs on. As Tracie knows too well.All while my sister is fighting with the family regarding my Mother whom lives with her right now in Pensacola Fl. but wants to put her in a nursing home, of which she is not even close to needing. The family there are 7 of us, had already decided that Mom would come and live with me now, I have the room, and resources to take care

of her (for those that don't know me I'm an RN, worked up until the sarcoid became NS). As you all know the emotional feelings are just as hard on us as the physical ones. I know many of you have been through this too.I will work from the new and go backwards, so I don't repeat things. I see Tracie on again, I hope you are feeling better,youhave been in my prayers. Tracie is such a wonderful wealth of knowledge, and everything she has shared with us, I believe is in the archives, I myself find that very helpful. Thank You Tracie. Rose it's good to see you back too, missed you. Well it's May 12 in No. Colorado and we got a couple of inches of snow last night, yea! (ok not really, I am sick, sick,sick of winter, and ready for spring, even summer, so far it's just been wet and cold here, it was nice in Neb, the day of the funeralwas the perfect day, temp just right sun

shinning, the next day back home cold rain, which I hate more then snow:) Ok sorry, done ranting, how did I do Rose? I wish everyone I missed a very happy Birthday, and will try to catch up, I don't know with all that is going on with my Mom, how much I will be around, but know you are all in my prayers. and would ask that you would keep a very special niece of mine in your prayers, she was just dx with Breast Ca, has surgery on the 17th, she has 2 little ones, and keep my Mom in your prayers too. Thank you so very much. God Bless, Marla

[Guest guest]

Well, Marla, as far as rants go, this was pretty mild, but for you it was a pretty good rant! Would like to see some caps & more explanation marks, but it will come with practice.

Rant Score 7 for Content, 6 for Execution.

My heart goes out to you with the family issues. Is there a reason your sister doesn't want your mom to come live with you, like the distance or something? As always, try to prioritize & listen to your body when it says, "Enough! Gotta let go & rest!"

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.

[Guest guest]



Hey guys just to let you know that am here.. I don't do a lot of answering unless its something I know about, and about what's going on with me at the moment. I stay so exhausted these days, and of course we've had that horrible flood.. I was safe for the most part, but we're still don't have drinking water, except bottled, everything has been contaminated..all the wells, springs, etc.. oh the smell is horrid.. and we look like a war zone.. So, I try to look through and read most of the post.. We have a shelter set up, with hot meals for each meal.. I've never been through a diaster before.. so even though I'm not doing so well myself right now, I'm trying to help the best way I can...

You guys are so awesome..

sorry

I'm sorry to everyone especially the moderators that I have not been around much, seems one thing after another happens in life, as you all know, we've made 2 trips to NE from CO in the past 3 weeks and in another week and 1/2 we will be heading to Iowa for a wedding, between trips I came down with a good case of Bronchitis, antibiotics and 3 days of IV steroids, had to do the last one on the road, now that took some talking, but I got the dose and off we went. still have the ugly cough, how does a body make so much "stuff" in the lungs, it just hangs on. As Tracie knows too well.All while my sister is fighting with the family regarding my Mother whom lives with her right now in Pensacola Fl. but wants to put her in a nursing home, of which she is not even close to needing. The family there are 7 of us, had already decided that Mom would come and live with me now, I have the room, and resources to take care of her (for those that don't know me I'm an RN, worked up until the sarcoid became NS). As you all know the emotional feelings are just as hard on us as the physical ones. I know many of you have been through this too.I will work from the new and go backwards, so I don't repeat things. I see Tracie on again, I hope you are feeling better,youhave been in my prayers. Tracie is such a wonderful wealth of knowledge, and everything she has shared with us, I believe is in the archives, I myself find that very helpful. Thank You Tracie. Rose it's good to see you back too, missed you. Well it's May 12 in No. Colorado and we got a couple of inches of snow last night, yea! (ok not really, I am sick, sick,sick of winter, and ready for spring, even summer, so far it's just been wet and cold here, it was nice in Neb, the day of the funeralwas the perfect day, temp just right sun shinning, the next day back home cold rain, which I hate more then snow:) Ok sorry, done ranting, how did I do Rose? I wish everyone I missed a very happy Birthday, and will try to catch up, I don't know with all that is going on with my Mom, how much I will be around, but know you are all in my prayers. and would ask that you would keep a very special niece of mine in your prayers, she was just dx with Breast Ca, has surgery on the 17th, she has 2 little ones, and keep my Mom in your prayers too. Thank you so very much. God Bless, Marla

[Guest guest]

Oh I'm sorry you got caught in that flood, I will keep you in my prayers. Marla

 



Hey guys just to let you know that am here.. I don't do a lot of answering unless its something I know about, and about what's going on with me at the moment.  I stay so exhausted these days, and of course we've had that horrible flood.. I was safe for the most part, but we're still don't have drinking water, except bottled, everything has been contaminated..all the wells, springs, etc.. oh the smell is horrid.. and we look like a war zone.. So, I try to look through and read most of the post.. We have  a shelter set up, with hot meals for each meal.. I've never been through a diaster before.. so even though I'm not doing so well myself right now, I'm trying to help the best way I can...

You guys are so awesome..  

sorry 

I'm sorry to everyone especially the moderators that I have not been around much, seems one thing after another happens in life, as you all know, we've made 2 trips to NE from CO in the past 3 weeks and in another week and 1/2 we will be heading to Iowa for a wedding, between trips I came down with a good case of Bronchitis, antibiotics and 3 days of IV steroids, had to do the last one on the road, now that took some talking, but I got the dose and off we went. still have the ugly cough, how does a body make so much " stuff " in the lungs, it just hangs on.  As Tracie knows too well.All while my sister is fighting with the family regarding my Mother whom lives with her right now in Pensacola Fl. but wants to put her in a nursing home, of which she is not even close to needing.  The family there are 7 of us, had already decided that Mom would come and live with me now, I have the room, and resources to take care of her (for those that don't know me I'm an RN, worked up until the sarcoid became NS).  As you all know the emotional feelings are just as hard on us as the physical ones.  I know many of you have been through this too.I will work from the new and go backwards, so I don't repeat things.  I see Tracie on again, I hope you are feeling better,youhave been in my prayers.  Tracie is such a wonderful wealth of knowledge, and everything she has shared with us, I believe is in the archives, I myself find that very helpful.  Thank You Tracie. Rose it's good to see you back too, missed you. Well it's May 12 in No. Colorado and we got a couple of inches of snow last night, yea!  (ok not really, I am sick, sick,sick of winter, and ready for spring, even summer, so far it's just been wet and cold here, it was nice in Neb, the day of the funeralwas the perfect day, temp just right sun shinning, the next day back home cold rain, which I hate more then snow:) Ok sorry, done ranting, how did I do Rose?   I wish everyone I missed a very happy Birthday, and will try to catch up, I don't know with all that is going on with my Mom, how much I  will be around, but know you are all in my prayers. and would ask that you would keep a very special niece of mine in your prayers, she was just dx with Breast Ca, has surgery on the 17th, she has 2 little ones, and keep my Mom in your prayers too.  Thank you so very much.  God Bless, Marla

[Guest guest]

Wow, , you're in a bad spot. Don't worry about us; I've increased my dosage of Ritalin & it's helping me have a little more energy. Plus I've done phase 1 of the South Beach diet for the past 2 weeks to break my carb craving & that's a lot better. I've only lost 5#, but I've lost 1-1/2" around the waist, so that's progress. I played Wii for about 40' today with Jon. I beat him at tennis & archery, but he creamed me at basketball & jet skis. You take care of yourself, kiddo.Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: topdat1@...Date: Wed, 12 May 2010 21:14:18 -0500Subject: Re: sorry  Hey guys just to let you know that am here.. I don't do a lot of answering unless its something I know about, and about what's going on with me at the moment. I stay so exhausted these days, and of course we've had that horrible flood.. I was safe for the most part, but we're still don't have drinking water, except bottled, everything has been contaminated..all the wells, springs, etc.. oh the smell is horrid.. and we look like a war zone.. So, I try to look through and read most of the post.. We have a shelter set up, with hot meals for each meal.. I've never been through a diaster before.. so even though I'm not doing so well myself right now, I'm trying to help the best way I can...You guys are so awesome.. sorry I'm sorry to everyone especially the moderators that I have not been around much, seems one thing after another happens in life, as you all know, we've made 2 trips to NE from CO in the past 3 weeks and in another week and 1/2 we will be heading to Iowa for a wedding, between trips I came down with a good case of Bronchitis, antibiotics and 3 days of IV steroids, had to do the last one on the road, now that took some talking, but I got the dose and off we went. still have the ugly cough, how does a body make so much "stuff" in the lungs, it just hangs on. As Tracie knows too well.All while my sister is fighting with the family regarding my Mother whom lives with her right now in Pensacola Fl. but wants to put her in a nursing home, of which she is not even close to needing. The family there are 7 of us, had already decided that Mom would come and live with me now, I have the room, and resources to take care of her (for those that don't know me I'm an RN, worked up until the sarcoid became NS). As you all know the emotional feelings are just as hard on us as the physical ones. I know many of you have been through this too.I will work from the new and go backwards, so I don't repeat things. I see Tracie on again, I hope you are feeling better,youhave been in my prayers. Tracie is such a wonderful wealth of knowledge, and everything she has shared with us, I believe is in the archives, I myself find that very helpful. Thank You Tracie. Rose it's good to see you back too, missed you. Well it's May 12 in No. Colorado and we got a couple of inches of snow last night, yea! (ok not really, I am sick, sick,sick of winter, and ready for spring, even summer, so far it's just been wet and cold here, it was nice in Neb, the day of the funeralwas the perfect day, temp just right sun shinning, the next day back home cold rain, which I hate more then snow:) Ok sorry, done ranting, how did I do Rose? I wish everyone I missed a very happy Birthday, and will try to catch up, I don't know with all that is going on with my Mom, how much I will be around, but know you are all in my prayers. and would ask that you would keep a very special niece of mine in your prayers, she was just dx with Breast Ca, has surgery on the 17th, she has 2 little ones, and keep my Mom in your prayers too. Thank you so very much. God Bless, Marla The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

[Guest guest]

,

I was afraid some of you may have been effected with all the floods-- it's so hard for me to b e able to get the concept of where all of you live... Geography has never been a strong point. Now, give me rocks-- and I do ok--LOL!

Do take care of yourself, and I hope that you can find some support to improve your energy levels. I know too well the issue of exhaustion.

I am pretty much offline these days-- but I don't want to see Rose having to do this alone, the group is too big for that now. So let me know if you need help!!!!

I will be gone this weekend-- I am going to a seminar and to see a specialist for a Whole Foods Company--- and we're going to try to get my immune system to function as it should. I have a great support team that is helping me iwth this-- so I'm not making the changes alone.

Inch by inch, said the centipede....

To: neurosarcoidosis Sent: Wed, May 12, 2010 8:24:56 PMSubject: RE: sorry

Wow, , you're in a bad spot. Don't worry about us; I've increased my dosage of Ritalin it's helping me have a little more energy. Plus I've done phase 1 of the South Beach diet for the past 2 weeks to break my carb craving that's a lot better. I've only lost 5#, but I've lost 1-1/2" around the waist, so that's progress. I played Wii for about 40' today with Jon. I beat him at tennis archery, but he creamed me at basketball jet skis. You take care of yourself, kiddo. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis@ yahoogroups. com From: topdat1 (AT) bellsouth (DOT) net Date: Wed, 12 May 2010 21:14:18 -0500 Subject: Re: sorry  Hey guys just to let you know that am here.. I don't do a lot of answering unless its something I know about, and about what's going on with me at the moment. I stay so exhausted these days, and of course we've had that horrible flood.. I was safe for the most

part, but we're still don't have drinking water, except bottled, everything has been contaminated. .all the wells, springs, etc.. oh the smell is horrid.. and we look like a war zone.. So, I try to look through and read most of the post.. We have a shelter set up, with hot meals for each meal.. I've never been through a diaster before.. so even though I'm not doing so well myself right now, I'm trying to help the best way I can... You guys are so awesome.. sorry I'm sorry to everyone especially the moderators that I have not been around much, seems one thing after another happens in life, as you all know, we've made 2 trips to NE from CO in the past 3 weeks and in another week and 1/2 we will be heading to Iowa for a wedding, between trips I came down with a good case of Bronchitis, antibiotics and 3 days of IV steroids, had to

do the last one on the road, now that took some talking, but I got the dose and off we went. still have the ugly cough, how does a body make so much "stuff" in the lungs, it just hangs on. As Tracie knows too well. All while my sister is fighting with the family regarding my Mother whom lives with her right now in Pensacola Fl. but wants to put her in a nursing home, of which she is not even close to needing. The family there are 7 of us, had already decided that Mom would come and live with me now, I have the room, and resources to take care of her (for those that don't know me I'm an RN, worked up until the sarcoid became NS). As you all know the emotional feelings are just as hard on us as the physical ones. I know many of you have been through this too. I will work from the new and go backwards, so I don't repeat things. I see Tracie on again, I hope you are feeling better,you have been in my prayers. Tracie is such a wonderful wealth of knowledge,

and everything she has shared with us, I believe is in the archives, I myself find that very helpful. Thank You Tracie. Rose it's good to see you back too, missed you. Well it's May 12 in No. Colorado and we got a couple of inches of snow last night, yea! (ok not really, I am sick, sick,sick of winter, and ready for spring, even summer, so far it's just been wet and cold here, it was nice in Neb, the day of the funeral was the perfect day, temp just right sun shinning, the next day back home cold rain, which I hate more then snow:) Ok sorry, done ranting, how did I do Rose? I wish everyone I missed a very happy Birthday, and will try to catch up, I don't know with all that is going on with my Mom, how much I will be around, but know you are all in my prayers. and would ask that you would keep a very special niece of mine in your prayers, she was just dx with Breast Ca, has surgery on the 17th, she has 2 little ones, and keep my Mom in your prayers too.

Thank you so very much. God Bless, Marla ____________ _________ _________ _________ _________ _________ ________ The New Busy is not the old busy. Search, chat and e-mail from your inbox. http://www.windowsl ive.com/campaign /thenewbusy? ocid=PID28326: :T:WLMTAGL: ON:WL:en- US:WM_HMP: 042010_3

[Guest guest]

Inch by inch, said the centipede....

Sure it wasn't "foot by foot?" Get it? Har, har!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy.

[Guest guest]



Hey guys,

Rose is not alone......I am here, even though I cannot sit here at

the monitor all day, I am still around early in the morning and in the

late evenings......am trying to answer all I can and do the daily things

but no one seems to respond anymore, so I don't know if I am helping

anyone or not! Frustrating..........My family is in a mess right now but

I am helping all I can and God is keeping me on my feet!

Darlene

NS Co-Owner/Moderator

sorry I'm sorry to everyone especially the moderators that I have not been around much, seems one thing after another happens in life, as you all know, we've made 2 trips to NE from CO in the past 3 weeks and in another week and 1/2 we will be heading to Iowa for a wedding, between trips I came down with a good case of Bronchitis, antibiotics and 3 days of IV steroids, had to do the last one on the road, now that took some talking, but I got the dose and off we went. still have the ugly cough, how does a body make so much "stuff" in the lungs, it just hangs on. As Tracie knows too well. All while my sister is fighting with the family regarding my Mother whom lives with her right now in Pensacola Fl. but wants to put her in a nursing home, of which she is not even close to needing. The family there are 7 of us, had already decided that Mom would come and live with me now, I have the room, and resources to take care of her (for those that don't know me I'm an RN, worked up until the sarcoid became NS). As you all know the emotional feelings are just as hard on us as the physical ones. I know many of you have been through this too. I will work from the new and go backwards, so I don't repeat things. I see Tracie on again, I hope you are feeling better,you have been in my prayers. Tracie is such a wonderful wealth of knowledge, and everything she has shared with us, I believe is in the archives, I myself find that very helpful. Thank You Tracie. Rose it's good to see you back too, missed you. Well it's May 12 in No. Colorado and we got a couple of inches of snow last night, yea! (ok not really, I am sick, sick,sick of winter, and ready for spring, even summer, so far it's just been wet and cold here, it was nice in Neb, the day of the funeral was the perfect day, temp just right sun shinning, the next day back home cold rain, which I hate more then snow:) Ok sorry, done ranting, how did I do Rose? I wish everyone I missed a very happy Birthday, and will try to catch up, I don't know with all that is going on with my Mom, how much I will be around, but know you are all in my prayers. and would ask that you would keep a very special niece of mine in your prayers, she was just dx with Breast Ca, has surgery on the 17th, she has 2 little ones, and keep my Mom in your prayers too. Thank you so very much. God Bless, Marla ____________ _________ _________ _________ _________ _________ ________ The New Busy is not the old busy. Search, chat and e-mail from your inbox. http://www.windowsl ive.com/campaign /thenewbusy? ocid=PID28326: :T:WLMTAGL: ON:WL:en- US:WM_HMP: 042010_3

[Guest guest]

Darlene, the list seems pretty quiet right now. Don't know if folks are sick, busy with other things or what. I think a lot of us read the messages & don't always respond, but your input is valuable. (spoken by the Prodigal Sarkie, home again after a long stay in the far country!)Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: arney@...Date: Thu, 13 May 2010 05:26:29 -0400Subject: Re: sorry  Hey guys, Rose is not alone......I am here, even though I cannot sit here atthe monitor all day, I am still around early in the morning and in thelate evenings......am trying to answer all I can and do the daily thingsbut no one seems to respond anymore, so I don't know if I am helpinganyone or not! Frustrating..........My family is in a mess right now butI am helping all I can and God is keeping me on my feet! DarleneNS Co-Owner/Moderator sorry I'm sorry to everyone especially the moderators that I have not been around much, seems one thing after another happens in life, as you all know, we've made 2 trips to NE from CO in the past 3 weeks and in another week and 1/2 we will be heading to Iowa for a wedding, between trips I came down with a good case of Bronchitis, antibiotics and 3 days of IV steroids, had to do the last one on the road, now that took some talking, but I got the dose and off we went. still have the ugly cough, how does a body make so much "stuff" in the lungs, it just hangs on. As Tracie knows too well. All while my sister is fighting with the family regarding my Mother whom lives with her right now in Pensacola Fl. but wants to put her in a nursing home, of which she is not even close to needing. The family there are 7 of us, had already decided that Mom would come and live with me now, I have the room, and resources to take care of her (for those that don't know me I'm an RN, worked up until the sarcoid became NS). As you all know the emotional feelings are just as hard on us as the physical ones. I know many of you have been through this too. I will work from the new and go backwards, so I don't repeat things. I see Tracie on again, I hope you are feeling better,you have been in my prayers. Tracie is such a wonderful wealth of knowledge, and everything she has shared with us, I believe is in the archives, I myself find that very helpful. Thank You Tracie. Rose it's good to see you back too, missed you. Well it's May 12 in No. Colorado and we got a couple of inches of snow last night, yea! (ok not really, I am sick, sick,sick of winter, and ready for spring, even summer, so far it's just been wet and cold here, it was nice in Neb, the day of the funeral was the perfect day, temp just right sun shinning, the next day back home cold rain, which I hate more then snow:) Ok sorry, done ranting, how did I do Rose? I wish everyone I missed a very happy Birthday, and will try to catch up, I don't know with all that is going on with my Mom, how much I will be around, but know you are all in my prayers. and would ask that you would keep a very special niece of mine in your prayers, she was just dx with Breast Ca, has surgery on the 17th, she has 2 little ones, and keep my Mom in your prayers too. Thank you so very much. God Bless, Marla ____________ _________ _________ _________ _________ _________ ________ The New Busy is not the old busy. Search, chat and e-mail from your inbox. http://www.windowsl ive.com/campaign /thenewbusy? ocid=PID28326: :T:WLMTAGL: ON:WL:en- US:WM_HMP: 042010_3 Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.

[Guest guest]

Yeah, I knew it was on that track.... I think-- slowly, but I think... LOL!

To: neurosarcoidosis Sent: Wed, May 12, 2010 9:45:16 PMSubject: RE: sorry

Inch by inch, said the centipede... . Sure it wasn't "foot by foot?" Get it? Har, har! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 ____________ _________ _________ _________ _________ _________ ________ The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. http://www.windowsl ive.com/campaign /thenewbusy? tile=multiaccoun t & ocid=PID28326::T: WLMTAGL:ON: WL:en-US: WM_HMP:042010_ 4

[Guest guest]

Hey everyone sorry I got carried away in my last rant, with using words I should not use. I am just so frustrated with life right now, my husband having to leave where he worked and start his own firm, now fighting with the greedy men he left behind, he is such a good man

and does everything by the book, and for God, it's been such a tough week for him as well.  I just hope he doesn't have another heart attack,and I don't have a major melt down, which it seems some days I might, already had a mini one, or so my husband said, and

he just didn't want to deal with that, with all he has going on. Where is the balance?? Thank you all for your warm thoughts and prayers it means a lot to me.  Love ya all, Marla

[Guest guest]

Matt, I'm glad is better today, you are such a saint, I know you don't think so, I know youdo it out of love.I was talking to some nurses last night, ( I started a Bible Study with some nurses I use to work with, such a blessing) anyway, we were talking about eating healthier, and what bad foods can do to your body, one nurse said she's going organic.  Do you do any special diet, or does anyone follow any special diet that they find helpful.  I know I've heard that gluten free diet helps decrease inflammation, I was reading up on it over the weekend, it's hard to give up the good stuff when you feel bad, but if that good stuff is making you feel worse, maybe it'd be better???? 

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

Don't be sorry.  I was hoping for some added decent information. I am forever trying to find out all I can to help & anyone else who suffers with this maddening disease. 

is doing better today.    ThanksMatt

Subject: SorryTo: " NS " <neurosarcoidosis >

Date: Monday, February 7, 2011, 2:02 PM

 

I " m sorry I'm the one that let that Sarkie book through, it sounded good, but I did not check out the link first and I should have, I'm sorry all the confusion this caused, I thought it sounded good,

but I like you after I let it through found it difficult to navigate, and should have posted that, but

I didn't .  Again I'm sorry, I knew Rose was tired, and so thought I get some done, so she wouldn't have to, I will be more careful from now on.   I'm sorry to hear about , I hope she having a better day now.

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

[Guest guest]

Marla, I know what you mean. The kids bought all this candy & cookies for my

birthday & I'm gobbling it up! When Theresa went to the store, she asked me what

I wanted for my birthday & I said chocolate & Cheetos! So she brought home a

giant Hershey bar & (thankfully) a small bag of Cheetos. I'm pretty sure I'd

feel better if I improved my diet, but it seems I'm just not ready yet.

Re: Sorry

Matt,

I'm glad is better today, you are such a saint, I know you don't think

so, I know you

do it out of love.

I was talking to some nurses last night, ( I started a Bible Study with some

nurses I use to work with, such a blessing) anyway, we were talking about

eating healthier, and what bad foods can do to your body, one nurse said

she's going organic. Do you do any special diet, or does anyone follow any

special diet that they find helpful. I know I've heard that gluten free

diet helps decrease inflammation, I was reading up on it over the weekend,

it's hard to give up the good stuff when you feel bad, but if that good

stuff is making you feel worse, maybe it'd be better????

*Marla

Just one day at a time, That's all God ask of us. for there never really is

a tomorrow, as that too

is just today:) *

>

>

> Don't be sorry. I was hoping for some added decent information. I am

> forever trying to find out all I can to help Jenn

[Guest guest]

Thanks,I do not do a special diet for as she was always a picky eater and now that she deals with the illness her eating habits are at times even worse. So I try to make her things that she will eat & that are often easy for her to pick up as she struggles with the shakiness in her hands ( very similar) to Parkinson's.Matt

Subject: SorryTo: "NS" <neurosarcoidosis >

Date: Monday, February 7, 2011, 2:02 PM

I"m sorry I'm the one that let that Sarkie book through, it sounded good, but I did not check out the link first and I should have, I'm sorry all the confusion this caused, I thought it sounded good,

but I like you after I let it through found it difficult to navigate, and should have posted that, but

I didn't . Again I'm sorry, I knew Rose was tired, and so thought I get some done, so she wouldn't have to, I will be more careful from now on. I'm sorry to hear about , I hope she having a better day now.

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

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