Re: Hardware removal and this sucks...

[Guest guest]

HI Sara,

Thanks for the support.

I had a heck of a week. Just as painful and swollen as the original

operation, which I don't think I truly deep down expected. Maybe

when I had uuper and genio I was SO psyched to do it and it was the

bend in my road to recovery that I had a differnt tolerance, maybe

it was having 3 wks off not 3 days...but this is a doozey indeed.

It's a week since I wrote last and I am still not to great. I mean

today I am down on swelling, but that may return, as mon was ok, but

tues was all poufy. I am still numb in one area, same as the last

time, and it's starting to come back for which I am thankful and

reminded of often. I get these sharp super intense stabbing

pains...thinking it's nerve regeneration, forgot about the intensity

of this too...can't smile yet either bec my screws were at teh

bridge of my nose and mid cheeks so I have 2 super sixed inscissions

from rt canine to last rt molar and samr on left, only the very

center was not cut. My stiches are dangling a lot. I go tomorrow for

a check up and see what's up.

I did go in first thing last thurs, seemed that the bleeding was

from my throat and the intibation from the tube/surgery-and the

whole in my gums going into my sinuses DID seal up (which was

urgently impt). So basically now, ONLY liquids...NO chewing until

further notice, the OS giveth and taketh away! that's ok, tricky

sometimes when you just want a snack not " real food " and have so few

choices, but I will not complain, my blender still works fine and I

am ok with that. (***DID YOU KNOW THAT YOUR JAW PUTS 650 POUNDS OF

PRESSURE PER INCH WHEN YOU CHEW?-think your tires on your car get

about 30something per tire...Holy cow!)

That's why it's now super-duper impt NOT to chew, as nothing is

holding me together but the healing that has already happened.

I do have 2 probs still though, one is INSOMNIA. I only had this

post op in aug...never before or since, until this surgery.

Wonder if it's the toxins your body releases and what not...bec I am

NOT On tylenol with codiene this time at all.

Trying to hang in there but with working f/t, my fella traveling and

being a mom to a 17yr old with out a license, I'm pooped.

But he's staying low key andhanging home withme to help as much as

possible (sweet kid that he is;)

Any suggestions? I don't drink milk, but tried reading, soft music,

and sound machines, getting up and eating, walking around, folding

laundry...should I just ask for a pill? (Always nervous that I won't

get up in time for work if I did something like that -since I am

tiny too)

Other thing is PAIN. and it's a big thing

I AM a tough-y. No question. But this is really painful. I mean I

don't have more than a few minutes now and then when I am not

consciencous of the pain and then it's intense too. Sometimes I have

to stop, and focus for a moment to clear the pain or maybe it's just

letting it pass with out letting it overcome me. I asked last week

was a 1 1/2 vicodin a lot, he said no, but now a week later, I can't

do all that working and driving and even when I am home, still and

resting, it really doesn't cut it.

that surprises me.

Anyone else go through this?

Appreciate the sharing if so.

thanks, JO

> > Hay all...

> > Thing is, out-patient yesterday to get the upper hardware out, I

> had

> > pushed one out and the pain there and honestly all in the

sinuses

> where

> > they were was not good. So had to do it and did feel and still

do

> that

> > when I am healed again, I will feel much much better. After all,

I

> had

> > felt very good before this started up. so I'm all about chin up,

> but

> > holy cow...this was a doosey.

> > I had major pain postop in recovery, more and more morphine then

> muscle

> > relaxer, then vicodin before leaving and now 750mgs don't even

kill

> the

> > pain. I am going in first thing tomorrow bec my right nostril is

> > dripping clear, light bloody drip-whenever and for however long

it

> > wants...but clear brething...then on the left, it seems I have

some

> > wicked discg=harge from my upper back sticthes in my mouth...and

> > nothing at all out of my nostril. then there's the phlem, and

it's

> very

> > bloody...often...and swollen, dear god, I think it's more now

then

> the

> > real surgery, and more than yesterday or this mjorning for that

> matter.

> >

> > I am not happy. doing all I can to not tweak, just deal with the

> > moment, and not cry, knowing that will not aid my healing at all

> and I

> > do not have plates now so healing is even that more impt to

avoid

> > repeating surgery etc.

> >

> > Work is insane, the situation is as poor as before...when I told

> them

> > of the surgery, not even what surgery I was having, I mean for

what

> and

> > on me where, the first response was...... " AGAIN?! " (yeah jerks

this

> is

> > how I like to spend my vacation days truly!) but thing I now am

> > juggling is a'special meeting " next week to better my situation

> that I

> > am trying to decide if I should push or not, I don't now

how " back

> to

> > normal I will be by then with today as a first step...not very

> aspiring

> > at all.

> > So may need to push it.

> >

> > I know Shilloh had this, said it was not too hairy, anyone else

> have a

> > story to share on this, info,exp? I am a toughy but this stinks.

> > Waa.

> > I think today is like the first days home after icu and I didn't

> expect

> > that.

> > so...trying, but today with the insomnia I have again, like the

> last

> > time doesn't help me any---odd that this happens to me, as I am

not

> on

> > T3 like last time and I never have trouble sleeping...so good

> thoughts

> > and welcome any smiles or suggtestions...etc.

> > thanks guys, JO

[Guest guest]

Jo, ask your doc if it's ok to use Benedryl with whatever else you're

taking. It could help with some of the drippies, and it makes a lot of

people pretty sleepy, too.

I'm sorry this is such a bad trip for you. It sounds worse than usual,

which always makes me worry that something is wrong.

Best,

Cammie

[Guest guest]

Hay Cammie, Holy cow, I sooo hope not.

I go tonight for a follow up and am I worried?

Not really, I am seriously concerned that this is so Intense and

living life while dealing is overwhelming (esp today, we're waiting

for a storm and my sinuses have always been sensitive, so add fire to

fury).

I truly think, if I had to self diagnose, it is the idea of nerve

regeneration...

Yesterday the left apple of my cheek up to the eye socket down to the

nostril and to my lip was numb still and I would get sharp shotting

pains that would pass but super itchy-like I am going nuts-o

itchy...thinking back I did get some of this week 2 last time...and

today I feel much more there, I mean superisingly more! So great

really that it's coming back, but HOLY OUCH BATMAN, I feel every ioda

of pain even more now (downside)!

So maybe it makes sense and maybe with my imsomnia, lack of rest and

so on (fiance is traveling and I am solo-mom until late tonight like I

mentioned) -maybe this is just the healing process?.

My plates were really up there, I mean almost as high as my eyes and

my sinuses were a mess first time he went in there so this is not by

far my happy pefect body zone to begin with...

Awe Cam, I am just babbling now. Thing is I shouldn't be so weak I

feel. I am tough, can get through just about anything and this too-esp

if I got through August! come on now!...but damn, I don't recall

vicodin NOT working in Aug ever, esp not after 1 1/2-2---don't think I

even took more than 1 at at time in Aug AND not finding any moments of

peace of salvation in a day-when my body can just be-my mind shushed

for the pain and just heal...maybe I need a diff type for now. I know

I can't take Bened. bec I have asthma, but will see if he can

perscribe something to knock me out for sleep time this weekend and

allow my body some quiet, healing, nothing else interrupting time.

(god I can't wait to sleep..is it saturday yet?!)

And thanks, I know I can go on, and again, I don't even tell anyone

really, unless they ask about this, bec I feel like a complainer and I

hate that...so this is truly a blessing to have as an outlet.

Thanks, jo

> Jo, ask your doc if it's ok to use Benedryl with whatever else

you're

> taking. It could help with some of the drippies, and it makes a lot

of

> people pretty sleepy, too.

>

> I'm sorry this is such a bad trip for you. It sounds worse than

usual,

> which always makes me worry that something is wrong.

>

> Best,

>

> Cammie

[Guest guest]

Jo,

Just to interject really quickly ...

I'm a single Mom, full-time, to a 13 year old boy. Sometimes he's a

huge help and sometimes I'd like to send him to the Moon!

I wanted simply to share my understanding of Motherhood and how is

certainly an added factor to this type of surgical procedure. What's

a Mom to do when she can't holler at her kid?!

Anyway, I'm sorry things are a bit rough for you right now. I can

sympathize with that, as well. Hang in there. It will get better.

With all the positive energy flowing from this support group - it

just will!

All the best,

Carol

> > Jo, ask your doc if it's ok to use Benedryl with whatever else

> you're

> > taking. It could help with some of the drippies, and it makes a

lot

> of

> > people pretty sleepy, too.

> >

> > I'm sorry this is such a bad trip for you. It sounds worse than

> usual,

> > which always makes me worry that something is wrong.

> >

> > Best,

> >

> > Cammie

[Guest guest]

Thanks Carol,

I appreciate your view bec, he's a great kid, hasn't asked me to

drive him to hang out with friends OR his girlfriend all week nor to

have them over and I almost (ALMOST) feel guilty about it. After all

it's spring and he had some medical issues this past yr which had

him miss a lot of school and well long short, he is off to college

in the fall but the only way to do that was to drop and go for his

GED or repeat Sr year Next yr...so he works all day, everyday and

I'm sure is missing his freinds. But he's caring and considerate and

for that, I am SUPER thankful.

But you're right too about not being able to holler-get up for your

shower or we'll be late! we've taken to a water pistol if my

original nudging doesn't work-HIS idea!

Thanks for understanding about the Mom thing...heck if you're

in " charge " or responsible for anyone special, even a dog that you

have to call inside, it makes things all the more challenging. But

if you have support, here and at home, well things are just totally

different.

I WILL hang in there, it's what I do...but thank you. Nice to know

I'm not alone and you guys understand what it's like when you just

want to crawl into a corner and be left alone with your pain.

GOOD THOUGHTS!

JO

> > > Jo, ask your doc if it's ok to use Benedryl with whatever else

> > you're

> > > taking. It could help with some of the drippies, and it makes

a

> lot

> > of

> > > people pretty sleepy, too.

> > >

> > > I'm sorry this is such a bad trip for you. It sounds worse

than

> > usual,

> > > which always makes me worry that something is wrong.

> > >

> > > Best,

> > >

> > > Cammie

[Guest guest]

Jo,

Hiya! A water gun, eh? I may just have to try that! My Mom is

bringing me over a bell tomorrow to use when I need to get someone's

attention. It will probably be more silly than anything - but it's

the thought that counts.

Sending those good thoughts back atcha!

Carol

> > > > Jo, ask your doc if it's ok to use Benedryl with whatever

else

> > > you're

> > > > taking. It could help with some of the drippies, and it makes

> a

> > lot

> > > of

> > > > people pretty sleepy, too.

> > > >

> > > > I'm sorry this is such a bad trip for you. It sounds worse

> than

> > > usual,

> > > > which always makes me worry that something is wrong.

> > > >

> > > > Best,

> > > >

> > > > Cammie