Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 Hi all, I've just joined the group, good to find you here -I'm , 46, and I live in Australia's capital Canberra. I'm an author and graphic designer. I developed homonymous quandrantanopia (now deteriorated to hemianopia) about a month ago, and ended up with 3 weeks in hospital. After a ton of the usual scans (CT, MRI etc), the MRI with contrast revealed 'nebulous' lesions behind the optic chiasm and in the peduncle of my brain. A CT angiogram ruled out vasculitis, and my lumbar puncture was basically normal, although protein levels were a little high, ruling out MS (and the lesions aren't typical of MS anyway). My neurologist thinks that NS is the most likely Dx. I also have paresthesia in my right arm, which keeps progressing every few days. My forearm now feels quite cold as well as numb. I've been on prednisolone (60mg/day) for the past week, no improvement in m visual field loss (which is now at around 30% of my whole field, most of my left side). I'm not allowed to drive. I'm also on Neurontin (only for a few days so far, too early to tell if it's helping yet). Other symptoms I've had over the past 4-5 years : 6th nerve palsy, periodic loss of my senses of taste and smell, weird 'nerve' sensations, onycholysis, horrible itchy raised red skin rashes on my lower legs in the summer,very painful feet/heels ... it seems to be adding up to a chronic version of NS, doesn't it? I also have fibromyalgia. Feeling pretty discouraged at the lack of improvement in my vision - how long can the steroids take to effect any change (if any is possible)? Cheers, Sutherland Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.