RE: Inflammation Free Diet

October 14, 2010

I think there are a few that are, I think that is what Tracie is doing now as she ran out options for medication, and hear she is doing really well, she is taking a break right now, trying to get her life back on track, as she got really ill, I know she is doing better now.

I seem to be doing good where I'm at so afraid to change anything if you know what I mean. MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too

is just today:)

Hi All,

Is anyone else following the Inflammation Free Diet Plan? My doctor recommended to me, and I have been following it. My CRP level was 12.5 - 10 being chronic issue/problem. Since NS deals with inflammation the diet seems to be something that would be good. I have been following it for 1 month - at the same time taking the 100mg of Pred. I have actually lost weight each week (I do walk once a day for 35-45 minutes). I also have had very little issues with blood sugar rising as the doctor tole me that taking Pred. causes some people to become diabetic and the diet helps eliminate the roller coaster of rising blood sugar levels.

I also have been supplementing with the following (D3 and B6 by doctor the rest I investigated) - some of which is included in the recommendations from the book:

Fish Oil (3600 mg) - Omega 3

Cod Liver Oil 1 capsule

Evening Primrose Oil 3500 with 50 GLA (supposed to help w/nerve damage)

Acai 1000 mg (anti-inflammatory)

D3 50,000 units every other day for 20 days, then 1 time a week (I had extremely low levels)

B6 - 25 mg (I had extremely low levels)

Ginkgold Eyes with bilberry (good for brain/eye)

I checked with the pharmacist about all of the above and they were okayed to go with the steroids. I have had some headaches and found that the gingob could be due to that though.

Anyone else taking a holistic route?

KP

October 14, 2010

We did the Low Food Chemical Diet earlier this year (for my daughter's sake, who

has food allergies) - and it unexpectedly helped ME quite a lot. My overall pain

levels were a bit lower, and I had much less brain fog (not sure if that was

from sarcoid or fibromyalgia).

It's a bloody pain to be on, but now that I know I've prob got sarcoid, and

maybe those were the symptoms it alleviated in me, I might consider going back

onto it from time to time. I don't think I could do it constantly, tho.

I don't know if it's the same as a low inflammation diet - but it has no food

additives, no food colouring (not even naturally occurring ones), no

salicylates, no strong flavours (only spices allowed are salt, citric acid,

garlic and saffron), no preservatives, etc. You can read about it here if you're

interested : http://www.fedupwithfoodadditives.info/

Cheers,

> I think there are a few that are, I think that is what Tracie is doing now as

she ran out options for medication, and hear she is doing really well, she is

taking a break right now, trying to get her life back on track, as she got

really ill, I know she is doing better now.

> I seem to be doing good where I'm at so afraid to change anything if you know

what I mean.

>

> Marla

> Just one day at a time, That's all God ask of us. for there never really is a

tomorrow, as that too

> is just today:)

>

> Hi All,

>

> Is anyone else following the Inflammation Free Diet Plan? My doctor

recommended to me, and I have been following it. My CRP level was 12.5 - 10

being chronic issue/problem. Since NS deals with inflammation the diet seems to

be something that would be good. I have been following it for 1 month - at the

same time taking the 100mg of Pred. I have actually lost weight each week (I do

walk once a day for 35-45 minutes). I also have had very little issues with

blood sugar rising as the doctor tole me that taking Pred. causes some people to

become diabetic and the diet helps eliminate the roller coaster of rising blood

sugar levels.

>

> I also have been supplementing with the following (D3 and B6 by doctor the

rest I investigated) - some of which is included in the recommendations from the

book:

>

> Fish Oil (3600 mg) - Omega 3

> Cod Liver Oil 1 capsule

> Evening Primrose Oil 3500 with 50 GLA (supposed to help w/nerve damage)

> Acai 1000 mg (anti-inflammatory)

> D3 50,000 units every other day for 20 days, then 1 time a week (I had

extremely low levels)

> B6 - 25 mg (I had extremely low levels)

> Ginkgold Eyes with bilberry (good for brain/eye)

>

> I checked with the pharmacist about all of the above and they were okayed to

go with the steroids. I have had some headaches and found that the gingob could

be due to that though.

>

> Anyone else taking a holistic route?

>

> KP

>

October 14, 2010

Hey ,

Thanks for the information. I have never heard of it before, but I definitely

will check it out.

How are the crosswords going?

KP

> >

> > Hi All,

> >

> > Is anyone else following the Inflammation Free Diet Plan? My doctor

recommended to me, and I have been following it. My CRP level was 12.5 - 10

being chronic issue/problem. Since NS deals with inflammation the diet seems to

be something that would be good. I have been following it for 1 month - at the

same time taking the 100mg of Pred. I have actually lost weight each week (I do

walk once a day for 35-45 minutes). I also have had very little issues with

blood sugar rising as the doctor tole me that taking Pred. causes some people to

become diabetic and the diet helps eliminate the roller coaster of rising blood

sugar levels.

> >

> > I also have been supplementing with the following (D3 and B6 by doctor the

rest I investigated) - some of which is included in the recommendations from the

book:

> >

> > Fish Oil (3600 mg) - Omega 3

> > Cod Liver Oil 1 capsule

> > Evening Primrose Oil 3500 with 50 GLA (supposed to help w/nerve damage)

> > Acai 1000 mg (anti-inflammatory)

> > D3 50,000 units every other day for 20 days, then 1 time a week (I had

extremely low levels)

> > B6 - 25 mg (I had extremely low levels)

> > Ginkgold Eyes with bilberry (good for brain/eye)

> >

> > I checked with the pharmacist about all of the above and they were okayed to

go with the steroids. I have had some headaches and found that the gingob could

be due to that though.

> >

> > Anyone else taking a holistic route?

> >

> > KP

> >

>

October 14, 2010

There are a number of us who are trying to integrate healthier nutrition & activity choices into our lifestyles. At the Indy Sarc retreat last weekend there were a number of brochures on CAM (Complimentary & Alternative Medicine). I think more people are wanting to be proactive, rather than just rely on a doctor to prescribe a pill, then another pill for the side effects of pill #1, and so on. Research has shown that even small amounts of exercise are beneficial. There are nursing homes with the Wii game, with games like bowling that folks can do while sitting. I definitely think that choosing foods to decrease inflammation is a wise choice. The problem for me is sorting through the explosion of information on nutrition & avoiding getting taken in by fads. If you have insurance it may pay for at least a consultation with a dietician, to ensure that you are getting adequate nutrients. Most of us eat far more protein than we need, and it's not always the healthiest protein around! So we're back to research, research, research.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > Date: Sun, 10 Oct 2010 22:01:40 +0000> Subject: Inflammation Free Diet> > Hi All,> > Is anyone else following the Inflammation Free Diet Plan? My doctor recommended to me, and I have been following it. My CRP level was 12.5 - 10 being chronic issue/problem. Since NS deals with inflammation the diet seems to be something that would be good. I have been following it for 1 month - at the same time taking the 100mg of Pred. I have actually lost weight each week (I do walk once a day for 35-45 minutes). I also have had very little issues with blood sugar rising as the doctor tole me that taking Pred. causes some people to become diabetic and the diet helps eliminate the roller coaster of rising blood sugar levels. > > I also have been supplementing with the following (D3 and B6 by doctor the rest I investigated) - some of which is included in the recommendations from the book:> > Fish Oil (3600 mg) - Omega 3> Cod Liver Oil 1 capsule> Evening Primrose Oil 3500 with 50 GLA (supposed to help w/nerve damage)> Acai 1000 mg (anti-inflammatory)> D3 50,000 units every other day for 20 days, then 1 time a week (I had extremely low levels)> B6 - 25 mg (I had extremely low levels)> Ginkgold Eyes with bilberry (good for brain/eye)> > I checked with the pharmacist about all of the above and they were okayed to go with the steroids. I have had some headaches and found that the gingob could be due to that though. > > Anyone else taking a holistic route?> > KP> > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >

October 14, 2010

Slowly ... I can still write and read my work, but it's slow going, I have to

double check everything to make sure I haven't made any stupid mistakes.

Prednisolone is screwing with my mental abilities, so I'm having trouble

focusing on work. I've done a complete spring cleaning of the house, though, in

the past 2 weeks! Although I'm not sleeping well, and have fibromyalgia /

fatigue problems, I still seem to have a lot more energy, so have been whizzing

about clearing out closets, de-cluttering, and all sorts of things! Almost like

'nesting instinct' - I'm taking advantage of it while it lasts! My daughter

moved out of home last weekend (she's 19), and that has precipitated a lot of

clearing out and rearrangement of rooms etc too.

Cheers,

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> Hey ,

>

> Thanks for the information. I have never heard of it before, but I definitely

will check it out.

>

> How are the crosswords going?

>

> KP

>

> > >

> > > Hi All,

> > >

> > > Is anyone else following the Inflammation Free Diet Plan? My doctor

recommended to me, and I have been following it. My CRP level was 12.5 - 10

being chronic issue/problem. Since NS deals with inflammation the diet seems to

be something that would be good. I have been following it for 1 month - at the

same time taking the 100mg of Pred. I have actually lost weight each week (I do

walk once a day for 35-45 minutes). I also have had very little issues with

blood sugar rising as the doctor tole me that taking Pred. causes some people to

become diabetic and the diet helps eliminate the roller coaster of rising blood

sugar levels.

> > >

> > > I also have been supplementing with the following (D3 and B6 by doctor the

rest I investigated) - some of which is included in the recommendations from the

book:

> > >

> > > Fish Oil (3600 mg) - Omega 3

> > > Cod Liver Oil 1 capsule

> > > Evening Primrose Oil 3500 with 50 GLA (supposed to help w/nerve damage)

> > > Acai 1000 mg (anti-inflammatory)

> > > D3 50,000 units every other day for 20 days, then 1 time a week (I had

extremely low levels)

> > > B6 - 25 mg (I had extremely low levels)

> > > Ginkgold Eyes with bilberry (good for brain/eye)

> > >

> > > I checked with the pharmacist about all of the above and they were okayed

to go with the steroids. I have had some headaches and found that the gingob

could be due to that though.

> > >

> > > Anyone else taking a holistic route?

> > >

> > > KP

> > >

> >

>

October 15, 2010

Don't forget that CAM that's been proven to work is called " medicine " ... don't

discount the standard meds too quickly, they are proven rigorously to be

effective, after all

Definitely agree about the exercise, it has wide ranging benefits for mental

health, long-term mental acuity, emotional benefits, as well as physical stuff!

I've got an exercise bike which is handy for days when I don't feel up to a

walk. I also have congenital hip dysplasia, and had a total hip replacement last

November, so have been in lots of rehab / physio for the past year. Sarcoid is

just the icing on the cake for me :/

Cheers,

------------------------------------------------------------

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------------------------------------------------------

> There are a number of us who are trying to integrate healthier nutrition &

activity choices into our lifestyles. At the Indy Sarc retreat last weekend

there were a number of brochures on CAM (Complimentary & Alternative Medicine).

I think more people are wanting to be proactive, rather than just rely on a

doctor to prescribe a pill, then another pill for the side effects of pill #1,

and so on. Research has shown that even small amounts of exercise are

beneficial. There are nursing homes with the Wii game, with games like bowling

that folks can do while sitting. I definitely think that choosing foods to

decrease inflammation is a wise choice. The problem for me is sorting through

the explosion of information on nutrition & avoiding getting taken in by fads.

If you have insurance it may pay for at least a consultation with a dietician,

to ensure that you are getting adequate nutrients. Most of us eat far more

protein than we need, and it's not always the healthiest protein around! So

we're back to research, research, research.

>

> Ramblin' Rose

> Moderator

>

> A merry heart is good medicine. Proverbs 17:22

>

> > To: Neurosarcoidosis

> > From: k.przy@...

> > Date: Sun, 10 Oct 2010 22:01:40 +0000

> > Subject: Inflammation Free Diet