Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Please someone give me hope because the next step is iron infusions which I'm trying to avoid ================================= Sharon: I fought the infusions for over a year (why, I don't know). My levels finally got so low that they were talking transfusions. I've been going for infusions for three weeks now, twice a week and my levels are finally starting to come up. My energy level has also increased dramatically. I didn't realize how bad I was until I started to feel better. Looked in the mirror the other morning and saw color in my cheeks for the first time in over a year and my first thought was " I don't remember wearing make-up yesterday " . The plan is for me to go until my iron stores are replenished and my levels are where they should be. Will start going once a week next week and when I get to where I'm supposed to be, then I will go once a month to make sure that I never get that low again. Best thing I've done in awhile. Also, the first infusion took about an hour and a half to two hours because they wanted to make sure that I didn't have a reaction. Now I just walk in, get my injection and I'm out of there. All within 10-15 minutes. That I can do once to twice a week. Hope you're feeling better soon. Regina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 My surgeon puts everyone on Trinsicon immediately after surgery, 2 per day. It seems to keep almost everyone's iron at a normal level because it also has intrinsic factor in it, which we no longer produce and which we need to absorb the iron. I am 2 years post op and have had no problems with my iron level. There are exceptions, of course. Some people still have a problem with their iron level despite taking Trinsicon. " FarAwayDeb " lap RNY 8/2/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Deb, I'm glad you're doing great. My iron problem didn't show up until the 5th year. At my 4th year follow-up, I asked if I had " passed " and the doctor said I could still become anemic. If I had taken iron all along, who knows? in Austin RNY April 1998 Re: Anyone had luck with Trinsicon? > My surgeon puts everyone on Trinsicon immediately after surgery, 2 > per day. It seems to keep almost everyone's iron at a normal level > because it also has intrinsic factor in it, which we no longer > produce and which we need to absorb the iron. I am 2 years post op > and have had no problems with my iron level. > > There are exceptions, of course. Some people still have a problem > with their iron level despite taking Trinsicon. > > " FarAwayDeb " > lap RNY 8/2/01 > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 I believe the " big 3 " all have intrinsic factor...Trinsicon, Chromagen Forte and Niferex. Now, I'm not trying to scare you, but it seems the dive, if it is going to happen, often seems to take place between years 3 and 4. That's why it's so important for you to monitor your own labs. in NJ ************************ > My surgeon puts everyone on Trinsicon immediately after surgery, 2 > per day. It seems to keep almost everyone's iron at a normal level > because it also has intrinsic factor in it, which we no longer > produce and which we need to absorb the iron. I am 2 years post op > and have had no problems with my iron level. > > There are exceptions, of course. Some people still have a problem > with their iron level despite taking Trinsicon. > > " FarAwayDeb " > lap RNY 8/2/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Hi Sharon, I use Trinsicon and don't have an real iron issues. Only that I don't take my trinsicon like I should. Otherwise, it seems to be doing the job. Good luck, Lake in IL 342/150/152 > Hi Everyone, > > Well, here is my iron update. > > I went to see my surgeon to check on what I thought was an incisional > hernia (it is, dang it) and I told her about seeing the hemotologist > about my iron. She switched me from Fe-Tinic (generic Niferex) to > Trinsicon, saying that her patients have had good luck with the > Trinsicon. I had a hemo. appt. scheduled for this past Thursday but I > changed it to a couple weeks from now to give the new iron a bit of a > chance to work it's magic (hopefully). Has anyone out there tried > Trinsicon and had luck with it? Please someone give me hope because the > next step is iron infusions which I'm trying to avoid but at the same > time I'm getting tired of playing around with all these various forms of > iron. > > I am really thankful to all of those who have tried to help me with my > iron issue. It does help to know I'm not alone in this. It seems so > strange to me why some of us have such a problem with this and others > don't. Then there are the people who even after WLS have HIGH iron (you > know who you are!)....I don't get it. > > Thanks again....this is a great group. > > Sharon in Indy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 In a message dated 8/25/2003 7:16:40 PM Eastern Standard Time, YahooDave@... writes: If I had taken iron all along, who knows Isn't it bad to have to much Iron??? Fay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Yes, it can be bad to have too much iron. But that's what lab tests are for -- to keep an eye on your numbers. It's rare for them to be too high if you have malabsorption, though. I have taken Trinsicon from the beginning after WLS, and my iron numbers continue to go up, not down as so many others have experienced. Carol A ----------------------------- In a message dated 8/26/2003 2:37:45 AM Central Daylight Time, fbayuk@... writes: > In a message dated 8/25/2003 7:16:40 PM Eastern Standard Time, > YahooDave@... writes: > If I had taken iron all along, who knows > Isn't it bad to have to much Iron??? > Fay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 > Has anyone out there tried > >>Trinsicon and had luck with it? Please someone give me hope because the > >>next step is iron infusions which I'm trying to avoid but at the same > >>time I'm getting tired of playing around with all these various forms of > >>iron. > ---------------------------------- I've used Trinsicon (generic--foltrin) since right after surgery 2 yrs ago. My serum iron and ferritin lab numbers keep going up every time I have them run. No idea if it's bcuz of the foltrin or I'm just one of the lucky ones. Heck, maybe I still have a duodenum and so I can absorb everything still? Surgeon screwed up my stoma, so maybe the duodenum is too........ Carol A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Trinsicon is a brand name. There are several generic equivalents which are just as good and a lot cheaper. Ray Hooks For WLS nutrition info, visit http://www.bariatricsupplementsystem.com lilwhistler@... wrote: > Hi Everyone, > > Well, here is my iron update. > > I went to see my surgeon to check on what I thought was an incisional > hernia (it is, dang it) and I told her about seeing the hemotologist > about my iron. She switched me from Fe-Tinic (generic Niferex) to > Trinsicon, saying that her patients have had good luck with the > Trinsicon. I had a hemo. appt. scheduled for this past Thursday but I > changed it to a couple weeks from now to give the new iron a bit of a > chance to work it's magic (hopefully). Has anyone out there tried > Trinsicon and had luck with it? Please someone give me hope because the > next step is iron infusions which I'm trying to avoid but at the same > time I'm getting tired of playing around with all these various forms of > iron. > > I am really thankful to all of those who have tried to help me with my > iron issue. It does help to know I'm not alone in this. It seems so > strange to me why some of us have such a problem with this and others > don't. Then there are the people who even after WLS have HIGH iron (you > know who you are!)....I don't get it. > > Thanks again....this is a great group. > > Sharon in Indy > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 I don't believe the problem is so much the brand name of the iron anyone is using. I was using Niferex liquid. The problem is that the duodenum is bypassed and that's where iron is absorbed. I've screwed around with several over the past several months and none helped. Today, I had my first iron infusion. It lasted about six hours and I read a book and ate candy all day. Then I called my office and whispered and pretended I was still there. I feel better tonight than I have in a long time, and I know it will only get better. Get thee to a hematologist and fill the tank !!!!! in Austin RNY April 1998 Re: Anyone had luck with Trinsicon? > > lilwhistler@... wrote: > > > Hi Everyone, > > > > Well, here is my iron update. > > > > I went to see my surgeon to check on what I thought was an incisional > > hernia (it is, dang it) and I told her about seeing the hemotologist > > about my iron. She switched me from Fe-Tinic (generic Niferex) to > > Trinsicon, saying that her patients have had good luck with the > > Trinsicon. I had a hemo. appt. scheduled for this past Thursday but I > > changed it to a couple weeks from now to give the new iron a bit of a > > chance to work it's magic (hopefully). Has anyone out there tried > > Trinsicon and had luck with it? Please someone give me hope because the > > next step is iron infusions which I'm trying to avoid but at the same > > time I'm getting tired of playing around with all these various forms of > > iron. > > > > I am really thankful to all of those who have tried to help me with my > > iron issue. It does help to know I'm not alone in this. It seems so > > strange to me why some of us have such a problem with this and others > > don't. Then there are the people who even after WLS have HIGH iron (you > > know who you are!)....I don't get it. > > > > Thanks again....this is a great group. > > > > Sharon in Indy > > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.