Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 When people take the time to write responses I like to give feedback. Asking the doctors 'I don't feel right, what's wrong?' didn't work right so I've seen the wisdom in the biopsy recommendations. 'What is THIS?' is simply a harder question to ignore. I set up a consultation with an oral surgeon to explore the idea of removing and examining my faulty saliva gland. No loss, it's always plugged anyway. If that shows sarc I'll probably have justification to go straight to bronchoscopy biopsy instead of another CT scan. Thanks again for giving me new direction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 Darrin, this is a journey we're all in together-- I'm so very glad that we're able to help. Sincerely, Tracie To: "neurosarcoidosis " <neurosarcoidosis >Sent: Wed, May 26, 2010 2:21:13 PMSubject: Thanks When people take the time to write responses I like to give feedback. Asking the doctors 'I don't feel right, what's wrong?' didn't work right so I've seen the wisdom in the biopsy recommendations. 'What is THIS?' is simply a harder question to ignore. I set up a consultation with an oral surgeon to explore the idea of removing and examining my faulty saliva gland. No loss, it's always plugged anyway. If that shows sarc I'll probably have justification to go straight to bronchoscopy biopsy instead of another CT scan. Thanks again for giving me new direction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 Darrin, I'm glad that your oral surgeon went right after the problem & took action. Let's hope the results, whatever they are, help you choose the next best step. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: neurosarcoidosis From: gphx@...Date: Sat, 5 Jun 2010 11:44:01 -0700Subject: Thanks I was at wits end and got some advice here and on other boards. No longer sure what to do next people told me biopsies may be the only thing left. Rather than recruit yet another 'ologist' I decided to go see an oral surgeon to find out whether he'd biopsy a salivary gland. To my surprise he agreed and insisted on biopsying more than the gland I'd noticed as problematic. They said I didn't salivate at all during the procedure and noted on extraction the upper gland was oddly 'granular'. Results are yet to come back and there's no guarantee they'll find Sjogrens or granulomas even if they are there but if they are I'll have saved myself a whole lot of money, time, and trouble. Should the result be positive I'll likely get a lot less resistance from doctors getting the lung biopsy as well. In any case I feel like things are moving again after being stuck with no idea what to do. Thanks to those whose input helped me get past that. If it's positive though I'm going to be quite irritated with the doctor who turned down my request for the gland biopsy insisting on five figures worth of CTs and PETs at my expense instead. lol Cheers, Darrin The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
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