Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Krystena; I would say that it would be wise to get the 90-day blood test to see how he has been averaging. Technically, the American Diabetes Association is now diagnosing diabetes at consistent values over 126 at fasting levels in the a.m. This is baffling. Endocrinologist maybe-- I am sure that Caden would be thrilled! Highest hopes to all of you, Love, n Rojas Blood sugar Thanks for the advice on blood sugars. I thought I was probably the more " experienced " one here with blood sugars since Caden tends to be hypoglycemic and my daughter is diabetic! I have been watching Caden's blood sugar tonight. He ate at about ......something after 9PM..maybe about 9:15 or 9:20PM.. It's now 12:20 AM and his blood sugar is just now down to 127. He was at 140 & 156 till between 9ish and 11:30...dropped to 106 @ 11:30....I picked him up and put him to bed.. Decided to check one last time, at 12:20 just to make sure he wasn't hypoglycemic since he was sweating So bad. I've seen him run high and then take a sudden drop!! Well, his blood sugar is back to 127! How could this be? Maybe he did drop... and then had a rebound.. I'll have to check one last time. Maybe set my alarm or something. Concerned that this could mean the other side of his pancreas is weak. Ambry has agreed to rerun Caden's CF genes again- Free- since we are doing the pancreatic insufficiency DNA test. My Ambry contact said that they have made improvements in their testing since 2002. We also sent in the baby's blood for both tests. Anyone ever done the pancreatic insufficiency DNA test? Any advise? Krystena s Caden 5.5 yrs GAII We just recently learned that Caden has the common mutation f(G985A) for MCAD, another Fatty Oxidation Disorder.. He's technically a heterozygote or " carrier " .. but, our geneticist at MAYO and his collegues, thinks they've happened upon a rare instance with Caden, in that, he is possibly a Manifesting Heterozygote! Meaning, he's having symptoms of MCAD (an autosomal recessive disorder) with ONLY ONE mutation! Does anyone here have only ONE CF mutation WITH symptoms? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Hey Everyone, I am just getting past the intro diet. I am able to eat honey, a little almond flour...lots of proteins. I have a history of blood sugar running low. Does anyone else have this issue? I am having a hard time keeping it stable. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Hi ,Yes! I am having this same issue, and I was also thinking of asking if others had this. The first time I came off intro (last week) I think I overdid it with honey. I didn't have very much, but for example I had some of the electrolyte drink, put it in the SCD cheesecake, and there was something else I made with it, can't remember now. Oh, applesauce. This time I'm going to keep it out for a while I think. Also I was okay with bananas but probably had a little too much of them. I do have a *little* diluted grape juice occasionally, and I think that is okay. Mostly I make jello w/ knox gelatin and grape juice, and I think the combo of sugar and protein makes the sugar not affect me as much. But I am having some disturbing mood swings like I used to when I ate more sugar. I haven't tried any nut flour yet. I'm still on: ground beef, broiled fish, SCD yogurt, farmers cheese, gelatin, eggs, chicken soup, pureed carrots. I think I will try introducing vegetables first this time, maybe spinach and then squash, and then move on to fruits. This time when I introduce applesauce I will make it without adding honey (I think that will taste better to me anyway), and try to keep bananas to a minimum. misha Hey Everyone, I am just getting past the intro diet. I am able to eat honey, a little almond flour...lots of proteins. I have a history of blood sugar running low. Does anyone else have this issue? I am having a hard time keeping it stable. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 At 01:51 PM 6/29/2010, you wrote: I am just getting past the intro diet. I am able to eat honey, a little almond flour...lots of proteins. I have a history of blood sugar running low. Does anyone else have this issue? I am having a hard time keeping it stable. , When you have a problem like this, it's helpful if you tell us what you are eating at each meal. My mom was hypoglycemic and had a penchant for grabbing for candy when she felt her blood sugar dropping, but without protein to back up the carbs, she'd send her blood sugar into a spike, and then it would plunge even lower. (It's funny -- because SHE was the one who taught me to balance carbs and proteins....) For instance, what vegetables do you eat at this time? If you are still only doing SCD carrots, I would add some summer squash -- zucchini or yellow, peeled and seeded and cooked. (I like mine steamed; some folks prefer to roast theirs.) It's really critical to balance fats, proteins, and carbs. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Hi , I have had to watch my diet severely for 35 years because of low blood sugar. I have no trouble with fruit, but I really really have to be careful about honey. It doesn't take much to cause me trouble, and frankly, I'd rather have my fruit. I am just getting past the intro diet. I am able to eat honey, a little almond flour...lots of proteins. I have a history of blood sugar running low. Does anyone else have this issue? I am having a hard time keeping it stable. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 I just wanted to add a little pearl of scientific wisdom since the SCD diet is very scientific, after all Honey has a much higher Glycemic Index than regular sugar. So if you are just starting the diet and didn't use it as a sweetener before, I can see that your body would notice the difference- perhaps causing your insulin to spike higher than usual causing these highs and lows for you? P.S. I took honey out of my applesauce and I didn't even notice- it's still delicious! -Joanna SCD 9/2009, Crohn's 1992, 30mg Prednisone > > > > I am just getting past the intro diet. I am able to eat honey, a > little almond flour...lots of proteins. > I have a history of blood sugar running low. Does anyone else have > this issue? I am having a hard time keeping it stable. > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Have always had problems with sugar , candy.. learned as a child to eat candy that had nuts in it, so wouldnt get shaky, so too much or too little would cause problems. Friend loaned me her old glucose meter and then I purchased a $10 one at drug store., was low when wake up at 2-5am (had to urinate very much)) so figured would just eat. Mix walnuts with dates or butter or try avocado. something with fat that slows it down but doesnt cause nausea. Learned when a teen that if ate a protein for breakfast would last longer. Now keeps snacks by my bed. Made a shake with a raw egg in it for 2 nights before and those times didnt wake till 4:30am. Finally went to a endoc yesterday after all these years to check on whats going on. Look at what you've eaten and other things in life that may be affecting how your bodies acting , reacting. be well Lynn D PS just spoke with a health care (chiro/qigong/reikie) person on the phone and he suggested green tea(not decaf) to stabilize blood sugar as he's help diabetics get off medicine. I may try the tea.(but eating can be more fun when stomach doesnt hurt much) is colostrun legal? it has no sugars in , so no lactose. > > > > > > I am just getting past the intro diet. I am able to eat honey, a > > little almond flour...lots of proteins. > > I have a history of blood sugar running low. Does anyone else have > > this issue? I am having a hard time keeping it stable. > > Thank you > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 I have been dealing with hypoglycemia for years, long before I started SCD. I’ve been able to stabilize my blood sugar levels wonderfully well, but it has taken some work to figure out what helps my metabolism the best. You might need to do some experimenting yourself, but I’ll let you know what works for me. The strategies I follow are discussed in books on hypoglycemia and insulin resistance (my particular problem), but I just applied SCD foods that fit into the recommendations. First, I have to eat small meals frequently. I eat something every 2 to 3 hours. I generally make a normal-sized meal but eat it in two or three parts. The frequent meals keeps my blood sugar levels from crashing, as long as I use the right combination of foods. I take food with me wherever I go, which takes some planning but isn’t difficult. I only eat one serving of fruit per day, and eat it with other food, with a good mix of carbs and fats to lessen the sugar impact. Most days I have half a serving in the morning (very diluted fruit juice) and the other half in the late afternoon (applesauce with a spoonful of peanut butter sometimes) but I do eat or drink the fruit along with one of my carb/protein meals/snacks. I didn’t touch honey for 5 years, but last year began to do OK with using a small amount of honey in my nut flour muffins. It is very diluted by the time I eat my one daily nut flour muffin. But I can’t lick the spoon or use honey straight up or I’ll be sorry [sigh]; sets my blood sugar levels soaring then crashing, all within a few minutes. I make sure I get plenty of carbs in the form of vegetables with protein and some fat with every snack/meal. My digestion can’t tolerate high-carb veggies or legumes, so I eat a lot of low and medium carb veggies. I usually have protein with every meal – fish, poultry, eggs, occasionally beef and bison. I also have to be careful with fats and fiber given my upper GI malfunctions, so you may find you need more of one thing or another than I can handle. That’s the wonderful thing about SCD foods – we can choose and prepare foods according to the various restraints imposed by our digestive and other health issues. I kept my blood glucose meter close by for the first 2 years on SCD, while I was figuring out what would work best for my metabolism. Now I rarely use it, just on occasion if I start feeling symptoms and can’t tell if it is hypoglycemia or low electrolytes (sometimes they start off the same way). And my fasting blood sugar levels have risen slightly in the past year (that’s the insulin resistance and my upper GI malfunction affecting my pancreatic duct) so my doctors have suggested I check the levels once in a while after a meal. So, it is certainly possible to stabilize your blood sugar levels on SCD. You just have to figure out which foods in which combination throughout the day help your metabolism the most. Kim M. SCD 6 years Sphincter of Oddi dysfunction 6+ years neurological & spinal deterioration 3+ years >>>>>>>>>>>>>>>>>>>>> I am just getting past the intro diet. I am able to eat honey, a little almond flour...lots of proteins. I have a history of blood sugar running low. Does anyone else have this issue? I am having a hard time keeping it stable. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Hi Everyone, I am not sure that I am replying to the group--I am trying to send a note to everyone who gave me such good advice re: my questions with blood sugar. I read each message and learned quite a bit. thank you! C.D. SCD 3 weeks 6-mp 15 mg pred 9 mg entocort Quote Link to comment Share on other sites More sharing options...
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