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Krystena; I would say that it would be wise to get the 90-day blood test to

see how he has been averaging. Technically, the American Diabetes

Association is now diagnosing diabetes at consistent values over 126

at fasting levels in the a.m. This is baffling. Endocrinologist maybe--

I am sure that Caden would be thrilled! Highest hopes to all of you,

Love, n Rojas

Blood sugar

Thanks for the advice on blood sugars.

I thought I was probably the more " experienced " one here with blood sugars

since Caden tends to be hypoglycemic and my daughter is diabetic!

I have been watching Caden's blood sugar tonight. He ate at about

......something after 9PM..maybe about 9:15 or 9:20PM..

It's now 12:20 AM and his blood sugar is just now down to 127. He was at 140

& 156 till between 9ish and 11:30...dropped to 106 @ 11:30....I picked him up

and put him to bed.. Decided to check one last time, at 12:20 just to make sure

he wasn't hypoglycemic since he was sweating So bad. I've seen him run high and

then take a sudden drop!! Well, his blood sugar is back to 127!

How could this be?

Maybe he did drop... and then had a rebound.. I'll have to check one last

time. Maybe set my alarm or something.

Concerned that this could mean the other side of his pancreas is weak.

Ambry has agreed to rerun Caden's CF genes again- Free- since we are doing the

pancreatic insufficiency DNA test.

My Ambry contact said that they have made improvements in their testing since

2002. We also sent in the baby's blood for both tests. Anyone ever done the

pancreatic insufficiency DNA test?

Any advise?

Krystena s

Caden 5.5 yrs GAII

We just recently learned that Caden has the common mutation f(G985A) for MCAD,

another Fatty Oxidation Disorder..

He's technically a heterozygote or " carrier " .. but, our geneticist at MAYO and

his collegues, thinks they've happened upon a rare instance with Caden, in that,

he is possibly a Manifesting Heterozygote! Meaning, he's having symptoms of MCAD

(an autosomal recessive disorder) with ONLY ONE mutation!

Does anyone here have only ONE CF mutation WITH symptoms?

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  • 6 years later...
Guest guest

Hey Everyone,

I am just getting past the intro diet. I am able to eat honey, a little almond

flour...lots of proteins.

I have a history of blood sugar running low. Does anyone else have this issue? I

am having a hard time keeping it stable.

Thank you

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Hi ,Yes! I am having this same issue, and I was also thinking of asking if others had this. The first time I came off intro (last week) I think I overdid it with honey. I didn't have very much, but for example I had some of the electrolyte drink, put it in the SCD cheesecake, and there was something else I made with it, can't remember now. Oh, applesauce. This time I'm going to keep it out for a while I think. Also I was okay with bananas but probably had a little too much of them. I do have a *little* diluted grape juice occasionally, and I think that is okay. Mostly I make jello w/ knox gelatin and grape juice, and I think the combo of sugar and protein makes the sugar not affect me as much. But I am having some disturbing mood swings like I used to when I ate more sugar. I haven't tried any nut flour yet. I'm still on: ground beef, broiled fish, SCD yogurt, farmers cheese, gelatin, eggs, chicken soup, pureed carrots. I think I will try introducing vegetables first this time, maybe spinach and then squash, and then move on to fruits. This time when I introduce applesauce I will make it without adding honey (I think that will taste better to me anyway), and try to keep bananas to a minimum.

misha

 

Hey Everyone,

I am just getting past the intro diet. I am able to eat honey, a little almond flour...lots of proteins.

I have a history of blood sugar running low. Does anyone else have this issue? I am having a hard time keeping it stable.

Thank you

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At 01:51 PM 6/29/2010, you wrote:

I am just getting past the intro

diet. I am able to eat honey, a little almond flour...lots of

proteins.

I have a history of blood sugar running low. Does anyone else have this

issue? I am having a hard time keeping it stable.

,

When you have a problem like this, it's helpful if you tell us what you

are eating at each meal. My mom was hypoglycemic and had a penchant

for grabbing for candy when she felt her blood sugar dropping, but

without protein to back up the carbs, she'd send her blood sugar into a

spike, and then it would plunge even lower. (It's funny -- because SHE

was the one who taught me to balance carbs and proteins....)

For instance, what vegetables do you eat at this time? If you are still

only doing SCD carrots, I would add some summer squash -- zucchini or

yellow, peeled and seeded and cooked. (I like mine steamed; some folks

prefer to roast theirs.) It's really critical to balance fats, proteins,

and carbs.

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

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Hi ,

I have had to watch my diet severely for 35 years because of low blood

sugar. I have no trouble with fruit, but I really really have to be

careful about honey. It doesn't take much to cause me trouble, and

frankly, I'd rather have my fruit.

I am just getting past the intro diet. I am able to eat honey, a

little almond flour...lots of proteins.

I have a history of blood sugar running low. Does anyone else have

this issue? I am having a hard time keeping it stable.

Thank you

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I just wanted to add a little pearl of scientific wisdom since the SCD diet is

very scientific, after all :) Honey has a much higher Glycemic Index than

regular sugar. So if you are just starting the diet and didn't use it as a

sweetener before, I can see that your body would notice the difference- perhaps

causing your insulin to spike higher than usual causing these highs and lows for

you?

P.S. I took honey out of my applesauce and I didn't even notice- it's still

delicious!

-Joanna

SCD 9/2009, Crohn's 1992, 30mg Prednisone

>

>

>

> I am just getting past the intro diet. I am able to eat honey, a

> little almond flour...lots of proteins.

> I have a history of blood sugar running low. Does anyone else have

> this issue? I am having a hard time keeping it stable.

> Thank you

>

>

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Have always had problems with sugar , candy.. learned as a child to eat candy

that had nuts in it, so wouldnt get shaky, so too much or too little would cause

problems. Friend loaned me her old glucose meter and then I purchased a $10 one

at drug store., was low when wake up at 2-5am (had to urinate very much)) so

figured would just eat. Mix walnuts with dates or butter or try avocado.

something with fat that slows it down but doesnt cause nausea. Learned when a

teen that if ate a protein for breakfast would last longer. Now keeps snacks by

my bed. Made a shake with a raw egg in it for 2 nights before and those times

didnt wake till 4:30am.

Finally went to a endoc yesterday after all these years to check on whats

going on.

Look at what you've eaten and other things in life that may be affecting how

your bodies acting , reacting.

be well

Lynn D

PS just spoke with a health care (chiro/qigong/reikie) person on the phone and

he suggested green tea(not decaf) to stabilize blood sugar as he's help

diabetics get off medicine. I may try the tea.(but eating can be more fun when

stomach doesnt hurt much)

is colostrun legal? it has no sugars in , so no lactose.

> >

> >

> > I am just getting past the intro diet. I am able to eat honey, a

> > little almond flour...lots of proteins.

> > I have a history of blood sugar running low. Does anyone else have

> > this issue? I am having a hard time keeping it stable.

> > Thank you

> >

> >

>

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I

have been dealing with hypoglycemia for years, long before I started SCD.

I’ve been able to stabilize my blood sugar levels wonderfully well, but

it has taken some work to figure out what helps my metabolism the best. You

might need to do some experimenting yourself, but I’ll let you know what

works for me. The strategies I follow are discussed in books on

hypoglycemia and insulin resistance (my particular problem), but I just applied

SCD foods that fit into the recommendations.

First,

I have to eat small meals frequently. I eat something every 2 to 3 hours.

I generally make a normal-sized meal but eat it in two or three parts.

The frequent meals keeps my blood sugar levels from crashing, as long as I use

the right combination of foods. I take food with me wherever I go, which

takes some planning but isn’t difficult.

I

only eat one serving of fruit per day, and eat it with other food, with a good

mix of carbs and fats to lessen the sugar impact. Most days I have half a

serving in the morning (very diluted fruit juice) and the other half in the

late afternoon (applesauce with a spoonful of peanut butter sometimes) but I do

eat or drink the fruit along with one of my carb/protein meals/snacks. I

didn’t touch honey for 5 years, but last year began to do OK with using a

small amount of honey in my nut flour muffins. It is very diluted by the

time I eat my one daily nut flour muffin. But I can’t lick the

spoon or use honey straight up or I’ll be sorry [sigh]; sets my blood

sugar levels soaring then crashing, all within a few minutes.

I

make sure I get plenty of carbs in the form of vegetables with protein and some

fat with every snack/meal. My digestion can’t tolerate high-carb

veggies or legumes, so I eat a lot of low and medium carb veggies. I

usually have protein with every meal – fish, poultry, eggs, occasionally

beef and bison.

I

also have to be careful with fats and fiber given my upper GI malfunctions, so

you may find you need more of one thing or another than I can handle. That’s

the wonderful thing about SCD foods – we can choose and prepare foods

according to the various restraints imposed by our digestive and other health

issues.

I

kept my blood glucose meter close by for the first 2 years on SCD, while I was

figuring out what would work best for my metabolism. Now I rarely use it,

just on occasion if I start feeling symptoms and can’t tell if it is

hypoglycemia or low electrolytes (sometimes they start off the same way).

And my fasting blood sugar levels have risen slightly in the past year (that’s

the insulin resistance and my upper GI malfunction affecting my pancreatic

duct) so my doctors have suggested I check the levels once in a while after a

meal.

So,

it is certainly possible to stabilize your blood sugar levels on SCD. You

just have to figure out which foods in which combination throughout the day

help your metabolism the most.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>

I

am just getting past the intro diet. I am able to eat honey, a little almond

flour...lots of proteins.

I have a history of blood sugar running low. Does anyone else have this issue?

I am having a hard time keeping it stable.

Thank you

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Hi Everyone,

I am not sure that I am replying to the group--I am trying to send a note to

everyone who gave me such good advice re: my questions with blood sugar. I read

each message and learned quite a bit.

thank you!

C.D.

SCD 3 weeks

6-mp

15 mg pred

9 mg entocort

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