Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 Yes, I have that sometimes but I assumed it was more hormone related rather than food related. Interesting and it will usually pass if I wait it out. I haven't found a connection unless I've eaten too much--especially if I get away from my main scd foods--baby lima beans, carrots, chicken, 'real' food. Even with scd legal junk food, I can't seem to do much for long. Sorry, no answers, just empathy ;-). Of course, check with your doctor if it persists in case you need antibiotics or prednisone. I don't know if inflammation causes this. Debbie 41 cd I have been on this diet since January 1, 2010. Even though my bowels are better I have had several incidents now (spaced a few weeks apart), of chills and fever.....my whole body aches and it feels systemic. It lasts several days and I can't link it to food I have eaten...bc I am " religious " about the scd diet... Anyone have similar responses or advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 At 10:42 PM 6/4/2010, you wrote: I have been on this diet since January 1, 2010. Even though my bowels are better I have had several incidents now (spaced a few weeks apart), of chills and fever.....my whole body aches and it feels systemic. It lasts several days and I can't link it to food I have eaten...bc I am " religious " about the scd diet... Women often have mini-flares right around the time of the periods. You didn't sign your name, but obviously, if you are male, that won't apply! <wry grin> — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 I am a female and beyond child bearing age…sorry for not clarifying…... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 At 10:17 AM 6/5/2010, you wrote: I am a female and beyond child bearing age…sorry for not clarifying…... OK, but even though you've gone through menopause, you can still have hormonal cycles, unless you've had " parts " removed. I remember I was glad when my cycles stopped because I figured the fluctuations would stop, but they didn't, so I ended up keeping track of them, so I wouldn't drive myself bonkers wondering what I'd eaten that was causing the problem. Things really went nuts when I had the total hysterectomy, removal of ovaries and Fallopian tubes for my cancer surgery. I hadn't had any hot flashes, or anything during menopause, and suddenly, here I was.... If you are not keeping a food diary already, try starting one -- and check, when you have these flares, how much time is between each of them. If it's roughly 28 days, you may have an answer. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 hot flashes, Speaking of, besides the EPO - and btw, how much of it do you take daily - is there anythingto do for this? Are they cyclical - or do they happen all the time?Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 Are they cyclical - or do they happen all the time?My mom WISHES they were cyclical =( She hasn't slept well in ages, nothing seems to work. Let me know if anyone knows something that works for hot flashes! Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 22.5 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 At 12:54 PM 6/5/2010, you wrote: Speaking of, besides the EPO - and btw, how much of it do you take daily - is there anything to do for this? Are they cyclical - or do they happen all the time? The capsules I have are 1300 mg. Keep in mind that I'm plus-sized. Initially, I was taking 3-6 capsules four times a day, but then I discovered that the Motrin the doctor had me on for post surgical pain reduces the effectiveness of of the EPO, and vice versa. (Oh, and the lactose in the Motrin did absolutely nothing for my gut...) When I got off the Motrin, I was able to reduce the amount to 6 capsules twice a day. I was also using EPO for muscle spasm, and was again able to reduce it to what I'm currently using, which is 3 capsules twice a day. I go in cycles -- but since I no longer have the ovaries to regulate things, they can range from three weeks to six weeks. When I have a round of hot / cold flashes, I usually up it to three capsules four times a day for a week or so, then cycle back down. Bt hot / cold flashes, I mean that sometimes, I'll find myself sweating like I'd been in a sauna for an hour, and then ten minutes later, I'm freezing to death. It's an accomplishment to be cold in New Orleans in the summer. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 I kind of hate to mention it but since I started LDN, I haven't had a nightsweat, hotflash like I did before. I can't say it's totally due to ldn but I sleep well with it. I do still kind of have fever/chill type symptoms but not like before and it may be due to other reasons. Debbie 41 cd Are they cyclical - or do they happen all the time? My mom WISHES they were cyclical =( She hasn't slept well in ages, nothing seems to work. Let me know if anyone knows something that works for hot flashes! Cheers! Alyssa 16 yo UC April 2008, dx Sept 2008 SCD June 2009 (restarted)Azathioprine 75 mg 1x per day Prednisone 22.5 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 tell her she definately should read breakthrough by suzanne somers - she doesn't need to be sleepless and suffering - i read it just to prepare for the future - lol eileen > > > Are they cyclical - or do they happen all the time? > > > My mom WISHES they were cyclical =( She hasn't slept well in ages, > nothing seems to work. Let me know if anyone knows something that > works for hot flashes! > > Cheers! > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Azathioprine 75 mg 1x per day > Prednisone 22.5 mg 1x per day > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 I kind of hate to mention it but since I started LDN, I haven't had a nightsweat, hotflash like I did before. Really? Has anyone else noticed this? Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 22.5 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 tell her she definately should read breakthrough by suzanne somers - she doesn't need to be sleepless and suffering Okay, thanks Eileen! Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 22.5 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 I am sure that what I have been going through has nothing to do with hormones...I get almost epiletic chills where I can't stop shaking and then I eventually break out into a high fever....So no one has had these kind of symptoms??? > > I have been on this diet since January 1, 2010. Even though my bowels are better I have had several incidents now (spaced a few weeks apart), of chills and fever.....my whole body aches and it feels systemic. It lasts several days and I can't link it to food I have eaten...bc I am " religious " about the scd diet... > > Anyone have similar responses or advice? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 I kind of hate to mention it but since I started LDN, I haven't had a nightsweat, hotflash like I did before. I only WISH I could say this, too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Hi, I've had the same symptoms. I don't know if you mentioned what your gut issues are. I have Crohn's and one of my main symptoms are fevers. When things are really bad, I will get really intense chills where I feel like I'm freezing and my teeth chatter and then later break out into a pretty high fever. I can't say I get body aches though, but I feel horrible and fatigued. I've talked to my GI about it. He doesn't know what causes them specifically, but they are just part of the inflammatory process. From what I've noticed, I seem to get fevers for a couple reasons. One is food related. It sounds silly, but I get fevers every time I eat peanut butter. Granted, with peanut butter, I have no portion control, so maybe if I limited it to 1 tablespoon, I would be OK. Actually I hadn't had peanut butter in a couple months, and then this weekend I had some and BAM, fever which knocked me out for the whole day yesterday. Now today I'm fine. So I know for sure now that I can't tolerate peanut butter (which is so sad for me, because it is one of my favorite foods, even pre-SCD). The other thing I think that causes my fevers is too much physical stress and not enough rest. If I push myself too hard exercising and don't get enough sleep, I've seen a pattern where I feel run down, then get chills and a fever. Other than that, I get fevers and chills if I'm my Crohn's is really active, and then it doesn't really matter what I do, I get them all the time. My advice would be to track what you eat, if you aren't already, and track your activity and/or stress levels. Have you seen a correlation between your stress/rest and your fevers? If you continue tracking, you may finally see a pattern. If you do have something like Crohn's, it may just be part of the inflammatory process. I hope you figure it out and can stop them! I know how horrible fevers can make you feel. Take care, Amber > > > > I have been on this diet since January 1, 2010. Even though my bowels are better I have had several incidents now (spaced a few weeks apart), of chills and fever.....my whole body aches and it feels systemic. It lasts several days and I can't link it to food I have eaten...bc I am " religious " about the scd diet... > > > > Anyone have similar responses or advice? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Ditto to what Amber said- I have Crohn's and when I get bad flares I always spike high fevers and get chills. -Joanna SCD 9/2009, Crohn's 1992, 32.5mg Prednisone > > > > I am sure that what I have been going through has nothing to do with hormones...I get almost epiletic chills where I can't stop shaking and then I eventually break out into a high fever....So no one has had these kind of symptoms??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Ditto to what Amber said- I have Crohn's and when I get bad flares I always spike high fevers and get chills. -Joanna SCD 9/2009, Crohn's 1992, 32.5mg Prednisone > > > > I am sure that what I have been going through has nothing to do with hormones...I get almost epiletic chills where I can't stop shaking and then I eventually break out into a high fever....So no one has had these kind of symptoms??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 From what I've noticed, I seem to get fevers for a couple reasons. One is food related. It sounds silly, but I get fevers every time I eat peanut butter. Granted, with peanut butter, I have no portion control, so maybe if I limited it to 1 tablespoon, I would be OK. Actually I hadn't had peanut butter in a couple months, and then this weekend I had some and BAM, fever which knocked me out for the whole day yesterday. Now today I'm fine. So I know for sure now that I can't tolerate peanut butter (which is so sad for me, because it is one of my favorite foods, even pre-SCD). I can't help regarding the fierce chills, but remember, with a food you just can't avoid pigging out on, this can be a sign that you are sensitive/allergic to it (for now), and as you have decided, better to ditch it for awhile. In a few months, it made be perfectly OK to your system. Now, having said that, I will confess that my diet has been SO limited for almost 30 years that when I get a new food back even if it's perfectly OK with my gut, I tend to fall upon it like a starving wolf for awhile and eat way too much. After awhile, though, I guess my brain decides it isn't going away after all, and then I can be more sensible in portions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Hi , I have read that any food you feel addicted to (or pig out on!) probably means you have a sensitivity or allergy to it. I'm sure that's probably the case for me with peanut butter. This can probably tie into repeatedly eating the same thing over and over again and developing allergies to that food. I was a total peanut butter addict well before Crohn's and have eaten more than my fair share in my lifetime. I definitely need to stay away from it. Sigh...so sad since it is one of my absolute favorite foods...actually when I was first reading about SCD and all the limitations, I figured I could still follow it since I could have my peanut butter! Amber > I can't help regarding the fierce chills, but remember, with a food > you just can't avoid pigging out on, this can be a sign that you are > sensitive/allergic to it (for now), and as you have decided, better > to ditch it for awhile. In a few months, it made be perfectly OK to > your system. > > Now, having said that, I will confess that my diet has been SO > limited for almost 30 years that when I get a new food back even if > it's perfectly OK with my gut, I tend to fall upon it like a starving > wolf for awhile and eat way too much. After awhile, though, I guess > my brain decides it isn't going away after all, and then I can be > more sensible in portions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Amber, I know. It's just plain HARD when we have to give up something we really really want. It takes time. I would prefer to be able to eat peanuts, too! Hi , I have read that any food you feel addicted to (or pig out on!) probably means you have a sensitivity or allergy to it. I'm sure that's probably the case for me with peanut butter. This can probably tie into repeatedly eating the same thing over and over again and developing allergies to that food. I was a total peanut butter addict well before Crohn's and have eaten more than my fair share in my lifetime. I definitely need to stay away from it. Sigh...so sad since it is one of my absolute favorite foods...actually when I was first reading about SCD and all the limitations, I figured I could still follow it since I could have my peanut butter! Amber Quote Link to comment Share on other sites More sharing options...
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