RE: Newbie introduction with questions

[Guest guest]

Hi ,

If someone gets worse on SCD,then it might be initial bad reactions or

clostridia.

You might also be experiencing initial bad reactions.

Have you been tested for Clostridia? You might need S Boulardii to

eradicate Clostridia.

http://www.breakingtheviciouscycle.info/knowledge_base/kb/clostridium_difficile.\

htm

http://www.breakingtheviciouscycle.info/knowledge_base/kb/clostridium_difficile_\

testing.htm

BTW,goat MILK is not SCD legal,did you mean to say goat yogurt?

It might also be due to something going wrong with the colonics. Just

speculating.

I also recommend starting out with the intro and being 100% legal. I

have found that very difficult cases get resolved if SCD Counseling is

sought.. The cost is very modest; It can be the best investment for

your health!

Mimi

> Hi everybody,

> I am new to this list. I'm a 43 year old female. I have been GF for

> about 5 years and found that I got better at first but then my

> stomach began to get worse. I stumbled across SCD about 9 months ago,

> have read the book and changed my diet dramatically. I began by

> ordering a bunch of cookbooks, buying a yogurt maker and learning

> what I COULD eat. I travel a lot and I found it difficult to go 100%

> on the SCD diet. Starches would sneak in in small amounts. I can

> never eat gluten because I get very sick from that. I don't

> purpousfully cheat - ever but it is the sneaky stuff. For example I

> use a chicken broth that is GF that I have always used and I used it

> to make soup without thinking and then read the label and realized

> that it had a small amount of cane sugar in it. I know that is lazy

> on my part but I am having to re-learn what I can and cannot eat.

>

> As the months went by I got better at adhearing completely to the

> diet but it seems that the stricter I am the more my gut hurts.

> I never started with the beginning diet but I eat foods on the legal

> list.

> I decided about 2 weeks ago to get really strict and began a series

> of colonics and watching every microcrumb that went into my mouth but

> it seems that my stomach is hurting all the time now and I am getting

> gas after eating. I just had a baked apple with honey and I have gas

> and my stomach is cramping.

> I take a probotic and my diet consists of fruits and vegetables, nuts

> and nut flours, olive oil, eggs, meat and fish. I don't seem to

> tolorate dairy. I have had some clarafied butter and goats milk

> doesn't seem to be a problem but I haven't had that for the last two

> weeks.

>

> Am I doing something wrong? Do I need to do the very beginning of the

> diet? I remember reading somebody asking Elaine if they needed to

> start at the beginning again.

> I have a very healthy appetite (always hungry) and I am not

> overweight.

> My stools this last week are very lose piles or thin.

>

> I think I am doing things right but with the contiued stomach

> problems I begin to wonder and I dont' have anybody in the area that

> I can ask. Sometimes I feel like something is wrong with me and I'm

> missing something. I don't have anybody to talk that is familiar with

> this diet and I get all of my information online and Elaine's book.

> Any advice would be appreciated because I feel so frustrated right

> now.

> Has anybody else done colonics? Have they helped? Do you get worse in

> the beginning? I did my second one and I have another one tomorrow. I

> did them about 3 years ago and it seemed to help but I was only doing

> GF at that time.

> lisa

>

>

>

[Guest guest]

Thank you for the reply.

I have never heard of Clostridia, I have done some research and I dont think I

have that but

I would have to be tested to be sure. I ordered some SCdophilu from GI Pro

Health which

says it should help with that.

No I m not drinking got milk, I did mean yogurt which I make myself and fermit

48 hours.

I would love to know about the SCD counceling. How do I find somebody? That is

what I

am looking for is help from somebody who knows. I keep guessing and getting

frustrated

because I am not gettin better.

PS Colonics are supposed to flush out the bacteria so I wonder if it is

aggrivating things

but why would it effect my stomach?

>

> If someone gets worse on SCD,then it might be initial bad reactions or

> clostridia.

> You might also be experiencing initial bad reactions.

>

> BTW,goat MILK is not SCD legal,did you mean to say goat yogurt?

>

> It might also be due to something going wrong with the colonics. Just

> speculating.

> I also recommend starting out with the intro and being 100% legal. I

> have found that very difficult cases get resolved if SCD Counseling is

> sought.. The cost is very modest; It can be the best investment for

> your health!

>

>d right

> > now.

> > Has anybody else done colonics? Have they helped? Do you get worse in

> > the beginning? I did my second one and I have another one tomorrow. I

> > did them about 3 years ago and it seemed to help but I was only doing

> > GF at that time.

> > lisa

> >

> >

> >

>

[Guest guest]

,

SCD goat yogurt should be fermented for 24 hours.... and NO LONGER than 30

hours, max. After that, the probiotic content will begin to diminish

significantly.

SCD counselors are listed on the website, www.pecanbread.com , along with their

contact info.

Patti

Re: Newbie introduction with questions

No I m not drinking got milk, I did mean yogurt which I make myself and fermit

48 hours.

I would love to know about the SCD counceling. How do I find somebody?

Recent Activity

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[Guest guest]

Welcome to the group ,

<< I take a probotic >>

What is the brand of probiotic?

How much are you taking daily?

<< and my diet consists of fruits and vegetables, >>

Which fruits and veg.?

Are you peeling and cooking them?

<< nuts and nut flours, olive oil, eggs, meat and fish.>>

Which nuts and nut flours?

How are you preparing the meats?

<< I don't seem to

> tolorate dairy. >>

What dairy do you think is a problem?

<< Am I doing something wrong? Do I need to do the very beginning of

the diet? >>

You may need to restart with the intro diet or you may just need to

stick to easier to digest foods.

Sheila, SCD Feb. 2001, UC 23 yrs

mom of and

[Guest guest]

Hi Eileen, no need to apologize for the long e mail. As a mom, I know you only

want to do the best for your son.

You should not use lactose free milk.

If cows milk accidentally comes to a boil does that ruin the yogurt?

I tested the temp of the finished yogurt before taking it out of the machine and

it was between 115 and 120. Is this too hot?

around 110 is better. Some people buy a dimmer switch to lower the temp slightly

Is there a yogurt maker that is more reliable than others?

I like the yogourmet, but people use anything from heating pads to dehydrators,

ovens,- whatever keeps the temp constant and works for you.

Should he even be eating the yogurt yet?

Everyone is different. I tolerated it from the beginning.

Has anybody here tried the probiotic VSL#3?

No, it is illegal on SCD

How do you know who to believe...

I read everything- SCD was the hardest to do, but the only one that really made

sense to me.

I know others will help with these questions too. Welcome to SCD!

PJ

>

>

>

> Hi everyone. I am the mother of a soon to be 19 year old son who has UC.

> Please bear with me as I share my story.I promise that future posts will not

> be this long!

>

>

>

> He was diagnosed at around 5 years old and at the time his symptoms were

> just loose stools/diarrhea that was very smelly. He was put on sulfasalazine

> (sp?) which never really made any difference. We stopped that treatment and

> then I guess he went into remission for the next 8 years because he was

> fine. During his teen years the issue returned and a colonoscopy confirmed

> the original diagnosis. Asacol was prescribed and he did that for a short

> time but hated the side effects. We stopped that and started to pursue other

> alternative treatments. During his junior year of high school he was doing

> fairly well eating a lot of anything continuously but not really gaining

> weight. Then he played spring baseball and that started a slow decent for

> him. We were trying GF, had avoided corn and some other things that our

> chiropractor/nutrionist was advising but nothing was really helping. By

> September of this past school year, his senior year, he was starting to

> really struggle with being tired constantly. I took him to the medical

> doctor who tested him for mono which was confirmed. He also was anemic and

> ended up missing 7 weeks of school. Our family doctor sent us to the GI doc

> and another colonoscopy showed the UC was moderate to severe and he weighed

> in at 109 lbs. At this point I was ready to have take whatever drugs they

> could give him because he looked so bad.especially in the hospital gown

> after the procedure; he was so emaciated and boney. I was scared. So began

> the prednisone and asacol which he took for several weeks. Suddenly he was

> gaining weight and feeling robust. I think he put on close to 20 lbs over

> thanksgiving and my heart was singing. Of course, it was all false weight

> and the 30 plus lbs. he put on started to come off again after the

> prednisone. He was kept on the Asacol but the doc also put him on a high

> dose of Imuran.125 mg. Though he is not as bad as he was, these drugs still

> weren't making the difference that I was thinking they would make. At our

> last visit in early May, the GI stated that he thought Wesley was on the

> path to Remicade. Well, I had researched that already and knew that that was

> the absolutely last choose we would make. However, his plan was to try and

> bump up his Imuran one last time if the test that he ordered confirmed that

> Wesley could handle it. We left that appointment waiting to hear back the

> results of the test and also waiting for the scheduler to call for the next

> appointment in 4 weeks. We have yet to hear from them and in the meantime

> through a odd yet wonderful " coincidences " I stumbled across the scd. The

> word hope has never had so much meaning to us. We did things the wrong way

> though.in our exuberance we slowly started the diet BEFORE the book arrived

> at our door. We discovered some of our errors and corrected them and I guess

> are still correcting them as we find them. My son took himself off of his

> meds even though the book and so many sites say not to. When he read that

> his meds have illegal substances he thought it would deter the effectiveness

> of the diet. Is this correct? I must clarify here that his UC has never been

> as bad as some of the horror stories we have read about. The most he would

> have to go in a day would be 5 or 6 times and he rarely had bloody stools.

> His biggest problem is in trying to gain weight. He has been on the diet

> strictly now for about 2 weeks. We tried starting this right around

> graduation time and there were all kinds of parties and eating

> opportunities. He broke and down a couple of times but for the past two

> weeks has been very strict. About what he eats. And I feel like I am living

> in the kitchen. Thankfully, we discovered this at the end of the school

> year.I am a teacher and I don't know how I could have dealt with this change

> in cooking while working full time and trying to feed the other 5 members in

> the famil

>

>

>

> He refuses to weigh himself yet because he is afraid to see that he has

> lost more though I think he is just holding at what he has been which is

> positive in my mind. His stools are not as liquidy but still not formed and

> he is going about three times/day. There was a day or two where he went 12

> hours between going which was a significant thing but that has not occurred

> again. We are trying to figure out if there is something still amiss with

> what he is eating. So, that is our story thus far.below I have a few

> questions for anyone able to address them. Being able to talk to others

> about this is HUGE for me.I think he signed up on this as well but I don't

> know how much he takes the time to get involved.

>

>

>

> 1. I have been making yogurt and thought things were fine until this

> week and now I am wondering if this might be what is hindering him. The

> first batch I made was with regular whole milk from cows who are not fed

> hormones.not raw milk but better than grocery store milk. I think it was

> during his eathing of this batch that he had the 2 a day stool over 12

> hours. Then I made some with some Lactose free milk and I think he only had

> one of those because we questioned whether it was legit because of the lack

> of lactose.would that impact its potency? I could find nothing on internet

> to answer this for us. The third batch I made was with goat's milk and just

> today I read that when cooking it, the temp can not go above 185 degrees and

> I know for sure this did. I think I killed off the good guys when I did

> this, yes? Just last night I tested these last two yogurts for live bacteria

> by putting them in a warm environment in a clean dish covered with plastic

> wrap. I read that if in the morning the plastic is bulging then fermentation

> is happening thus live cultures. Well, no bulging plastic wrap was seen so I

> am guessing it is ineffective yogurt. Am I correct on this?

> 2. If cows milk accidentally comes to a boil does that ruin the yogurt?

> 3. I tested the temp of the finished yogurt before taking it out of the

> machine and it was between 115 and 120. Is this too hot?

> 4. Is there a yogurt maker that is more reliable than others?

> 5. Should he even be eating the yogurt yet? He has been very strict

> about the diet so given that his symptoms have not been as severe as others

> we have read about and that he has been so conscientious for the past two

> weeks, is that a long enough time for the kill off.is it time to add the

> good bacteria with the culture?

> 6. Has anybody here tried the probiotic VSL#3? I have so many positive

> things about it and yet it sounds like is is conflict with what Elaine G.

> says about the types of bacteria which should be used to recolonize

> 7. How do you know who to believe...I feel like I start down a path

> thinking this is the answer, only to find a different voice which also makes

> sense but conflicts with what I just read somewhere else?!

> 8. I signed up to a part of this group and am receiving the emails but

> when I tried to respond to one I was told I am not allowed to post to this

> group. What do I need to do to correct this?

>

>

>

> I am so sorry for such a long email.if anyone has actually taken the time to

> read this and could take a little more to advise I would be oh so grateful!

>

>

>

> Blessings to you all.

>

> Eileen

>

>

>

>

>

>

>

>

>

>

>

> Eileen Cawood

>

> email: parvus@...

>

[Guest guest]

welcome Eileen - from another Eileen!! lol

it is confusing, it is a lot of cooking - you're making a major life change and

the book plus this group will help you to get it all right, and you will see

great changes coming - having said that - everyone is different and change

happens slowly -there's a lot of damage to repair

as far as confusion, do not use any illegals if someone tells you to

you can ask anything here - so we'll help you keep it legal - it's a great idea

to write down BM's etc every morsel that enters his mouth even vitamins

(which at this point probably aren't being absorbed )

so just concentrate on starting totally legal

pecanbread.com stages help me - everyone moves thru the stages and foods at

different paces- but it's a nice guide -i'm stage 3 now almost 2 1/2 years on so

seriously everyone is SO different

maybe in 3-4 weeks he could start recolonizing with legal acidophilus but just

keeping it simple foods now and having the yogurt should help - the slightest

cheat will be a lot to fix so please tell him not to give in to pressure, carry

safe food if need be etc - tough I know but SO worth it, he'll heal, gain and

feel great soon!!!

Eileen

2 years 5 months scd

son 9 months scd

PS it's not coincidence - I swear it was SO weird that 2 people told me about

scd the same day or a day apart when I 1st heard - I call it Divine Intervention

for sure!!!

GOOD LUCK

> > Eileen Cawood

> >

> > email: parvus@

> >

>

[Guest guest]

There was a day or two where he went 12 hours between going which was a significant thing but that has not occurred again.That can happen in the beginning due to shift in gut ecology. But, at that point, it doesn't last. It just means that the gut is beginning to be effected and change - which is a good thing. Totally normal. I have been making yogurt and thought things were fine until this week and now I am wondering if this might be what is hindering him. The first batch I made was with regular whole milk from cows who are not fed hormones…not raw milk but better than grocery store milk. I think it was during his eathing of this batch that he had the 2 a day stool over 12 hours. Then I made some with some Lactose free milk and I think he only had one of those because we questioned whether it was legit because of the lack of lactose…would that impact its potency? I could find nothing on internet to answer this for us. The third batch I made was with goat’s milk and just today I read that when cooking it, the temp can not go above 185 degrees and I know for sure this did.185 is the cooking of the milk before you add in the starter and ferment. So you won't kill off the good guys unlessyou add them in before you should have done. This will effect the proteins - but the yogurt will actually be fine, ifmade correctly. (Add the starter once you have cooled the milk down to about 80 degrees or so.) I think I killed off the good guys when I did this, yes? Just last night I tested these last two yogurts for live bacteria by putting them in a warm environment in a clean dish covered with plastic wrap. I read that if in the morning the plastic is bulging then fermentation is happening thus live cultures. Well, no bulging plastic wrap was seen so I am guessing it is ineffective yogurt. Am I correct on this?If cows milk accidentally comes to a boil does that ruin the yogurt?Same as above. No - because you should not have added the starter at that point. I tested the temp of the finished yogurt before taking it out of the machine and it was between 115 and 120. Is this too hot?It's hot, but it is still yogurt. It's best for it to be lower. Is there a yogurt maker that is more reliable than others?Lately I use the lightbulb in the oven method. That works well. Should he even be eating the yogurt yet? He has been very strict about the diet so given that his symptoms have not been as severe as others we have read about and that he has been so conscientious for the past two weeks, is that a long enough time for the kill off…is it time to add the good bacteria with the culture?Yogurt can be introduced in small amounts immediately. Has anybody here tried the probiotic VSL#3? I have so many positive things about it and yet it sounds like is is conflict with what Elaine G. says about the types of bacteria which should be used to recolonizeIt's illegal on SCD. How do you know who to believe...I feel like I start down a path thinking this is the answer, only to find a different voice which also makes sense but conflicts with what I just read somewhere else?!Trial and error. This takes a lot of patience and work and some amount of feeling bad when you experienceresults that work for others but not for you. Go with what works. Mara

[Guest guest]

Mara,

Do you know anything about the live

culture test? Is that even a sound way to test for live culture?

Eileen

Eileen Cawood

email: parvus@...

From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara Schiffren

Sent: Friday, June 18, 2010 7:05

AM

To: BTVC-SCD

Subject: Re: Newbie

introduction with questions

There

was a day or two where he went 12 hours between going which was a significant

thing but that has not occurred again.

That can happen in the beginning due to shift in gut ecology. But,

at that point, it doesn't last. It just means that the gut is beginning

to be effected and change - which is a good thing. Totally normal.

I have been making yogurt and thought things

were fine until this week and now I am wondering if this might be what is

hindering him. The first batch I made was with regular whole milk from

cows who are not fed hormones…not raw milk but better than grocery store

milk. I think it was during his eathing of this batch that he had the 2 a

day stool over 12 hours. Then I made some with some Lactose free

milk and I think he only had one of those because we questioned whether it

was legit because of the lack of lactose…would that impact its potency? I

could find nothing on internet to answer this for us. The third batch I

made was with goat’s milk and just today I read that when cooking it, the

temp can not go above 185 degrees and I know for sure this did.

185 is the cooking of the milk before you add in the starter and

ferment. So you won't kill off the good guys unless

you add them in before you should have done. This will effect the

proteins - but the yogurt will actually be fine, if

made correctly. (Add the starter once you have cooled the milk

down to about 80 degrees or so.)

I

think I killed off the good guys when I did this, yes? Just last night I

tested these last two yogurts for live bacteria by putting them in a warm

environment in a clean dish covered with plastic wrap. I read that if in

the morning the plastic is bulging then fermentation is happening thus

live cultures. Well, no bulging plastic wrap was seen so I am guessing it

is ineffective yogurt. Am I correct on this?

If cows milk accidentally comes to a boil does

that ruin the yogurt?

Same as above. No - because you should not have added the starter

at that point.

I tested the temp of the finished yogurt before

taking it out of the machine and it was between 115 and 120. Is this too

hot?

It's hot, but it is still yogurt. It's best for it to be lower.

Is there a yogurt maker that is more reliable

than others?

Lately I use the lightbulb in the oven method. That works well.

Should he even be eating the yogurt yet? He has

been very strict about the diet so given that his symptoms have not been

as severe as others we have read about and that he has been so

conscientious for the past two weeks, is that a long enough time for the

kill off…is it time to add the good bacteria with the culture?

Yogurt can be introduced in small amounts immediately.

Has anybody here tried the probiotic VSL#3? I

have so many positive things about it and yet it sounds like is is

conflict with what Elaine G. says about the types of bacteria which should

be used to recolonize

It's illegal on SCD.

How do you know who to believe...I feel like I

start down a path thinking this is the answer, only to find a different

voice which also makes sense but conflicts with what I just read somewhere

else?!

Trial and error. This takes a lot of patience and work and some

amount of feeling bad when you experience

results that work for others but not for you. Go with what works.

Mara

[Guest guest]

Mara,Do you know anything about the live culture test? Is that even a sound way to test for live cultures?Sorry, I don't. Do you have a link?Mara

[Guest guest]

Eileen

You’ve

asked a lot of questions, some of which could use lengthy answers, but I’ll

just do it briefly for now. Just ask your questions again when you’re

ready for the longer answers!

MEDICATIONS

Many

of us do need to stay on prescription meds. in the beginning of SCD, when we

are still symptomatic. It is OK to use the prescription meds. even if

they contain illegal ingredients, since the benefits are important.

Eventually as the body heals you can taper off the meds. Some of us also

ask our doctors if we can try other alternative medications that might not have

as many illegals. But many times you need to take the medication that is

best for your condition and medical history. Your son might only need to

stay on the meds. for a few months, or perhaps a year. The meds. in combination

with eating SCD foods will help jumpstart healing.

YOGURT

Yogurt

is a tricky one. Some of us don’t tolerate yogurt when we’re

symptomatic, which means many of us wait to introduce yogurt until our 4th

or 6th month on SCD. Some of us find they can handle a legal

Acidophilus supplement before the yogurt. Some of us find that goat’s

milk is better tolerated, others have a casein sensitivity so have to find

other options. I suggest holding off on the yogurt for a few months and

just focus on food choices. The beneficial bacteria are important, but

sometimes our digestions are too fragile to tolerate dairy in the first months

or years. Try the yogurt again in another two months and see how your son

handles it.

I

won’t go into making yogurt here, we can discuss it again, though. The

kind of milk is important, as is using the correct yogurt starter, as is

keeping the temperatures right.

VSL#3

This

isn’t a legal probiotic as it contains bifidus bacterial strains, among

other illegal ingredients. Elaine felt that bifidus bacteria were

potentially too damaging to people with compromised digestive systems.

Her website discusses it further: http://www.breakingtheviciouscycle.info/knowledge_base/kb/bifidus.htm

The permitted bacterial strains in a supplement are: L. Acidophilus, S.

Boulardii. The permitted bacterial strains in yogurt starter are:

S. Thermophilus, L. Bulgaricus, L. Casei or L. Acidophilus.

There

are always contradictory statements to be found from the experts, clinical research

comes up with different results. Remember that there is a lot of

individual variation, so one thing doesn’t work the same way for

everyone. We have to find our own path to healing, depending on how our

bodies react to things, what health issues we’re dealing with and so on. It

is confusing, when you discover so many contradictions. Unfortunately there

is no single path, no single “fact”, just lots of “shades of

gray” decisions. I do a lot of research along with paying

close attention to my body’s reactions to things, and found what works

for me, which doesn’t necessarily work for anyone else.

As

to replying to emails; make sure you are clicking on the Reply to Group link

that should be at the bottom of the email. I get the digest form of

emails, not the individual, but each email in my digest has a line of links at

the bottom that say: Reply to sender, Reply to group. Clicking on

the Reply button of your email program may not work.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

[Guest guest]

>

>

>

> Hi everyone. I am the mother of a soon to be 19 year old son who has UC.

> Please bear with me as I share my story.I promise that future posts will not

> be this long!

>

Eileen,

I just wanted to add some words of encouragement and advice because I can really

relate to your son in the sense that I developed a severe case of UC last year.

I also didn't have any success with the medications that the GI prescribed and

in fact tried all the same ones you mentioned in your post. I started SCD in

desperation after some severe symptoms that would not go away. I can tell you

that I've been following SCD for a little over 6 months and I have experienced

an amazing turnaround and significant healing. It does work but healing takes

time and occurs gradually over a period of months. I would also advise to avoid

the nut flours and nut butters at first until your son's symptoms stabilize and

start to heal, they can be irritating to some people (like me). My meals mostly

consist of a grilled meat (chicken,beef,pork,fish, etc) and a side of soft

boiled veggies and for dessert I usually have homemade applesauce or fruit.

Also keep a food log, so if he has a reaction to something, you can trace it

back to a food and avoid it for a while. Everyone is different and you need to

'fine-tune' the diet to fit your son.

Good luck,

UC 1 year

SCD 6 months

No meds