Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 stress absolutely affects everyone whether or not we realize it - also my hair loss has come in phases though it seems to be lasting this time- started up on T3 again and hoping that helps - i THINK the hair loss is thyroid related -has yours been tested thoroughly not just tsh??? re arthritis - my finger joints bugged me for a lil bit and also all joints for a smidge of time but doc thought Lyme - though I tested neg each time, I wasn't completely negative so ???? but I'm ok now hope this helps a bit eileen 2 1/2 scd > > > Hi everyone, I'm new to this forum. I would like to know if any (or > how many) of you finds a direct connection between stress, hairloss and > Crohn's, and strategies you've used to control both of it. > > > I lost a lot of hair since my early twenties (around the time I had my > first Crohn symptoms: arthritis); I went on phases of re-growing some, > but on my last personal autumn I lost even more and haven't recover > most of it. I am taking some B vitamin complex, and doing some > shampoo+spray treatment. > > I started with SCD in February, after getting quite worse on my > gastrointestinal symptoms (after major stress moment), which pretty much > consist of constipation/diarrhea, gas, mouth cracks, dizziness, and > constant tiredness. The prednisolone also gave me a constant reflux. I > tried to stick to the diet in the beginning, then left it, and then > returned around the end of March. > > I am also taking probiotics, flax seed oil and homeopathic medicines > under the supervision of a naturopath (since March). I have been feeling > better overall – except for the abdominal distention and smouth > cracks. I rarely get D or C. > > Also, I was wondering if/how many had strong arthritis caused by CD? I > had a really impairing case in my left knee for a long time ( 4 > orthopedic doctors told me for months they were sure it would be a > meniscus tear until the MRI came out perfect – I'm 33 y.o.), > things got ok only with a cortisone shot (for the knee) and > 5mg/prednisolone during 6 months (I'm not sure on the results of > this). > > > > Thank you for any input! All the best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 I have an annoying form of arthritis called ankylosing spondylitis and it's affecting my spine and sacro-illiac joint. It started before Cronh's (when I was 17). There are good days and bad days. I can't get rid of the NSAID (naproxen) yet although it's my biggest wish right now. Yoga, streching are helping. I'm working out a lot too, especially the elliptic which avoid shocking joints. Actually, I might try this very week-end bee venom. I have a vertebrae that is inflammated and causing a lot of pain on the muscles around it. I'll go see a bee keeper and ask to be sting there. I can tell you if it worked For the hair loss, I have a some stories too. In february 2009, before I discovered SCD, I started taking Humira, after prednisone, imuran and a lot of other shitty stuff, because my cronh's was pretty bad. Then I started loosing my hair... I panicked. I was imagining myself like a cancer patient who just had chemo and realize I was really fond of my natural venitian blond color, irreplaceable ! I stop humira cold turkey and started SCD cold turkey. This is actually the event that triggered the " I will heal with diet " attitude ! I also took biotin, Nioxin shampoo and Biosil and the hair loss slowed down and my hair density got OK, although not as dense as it was. This summer however, the hair loss started again. I'm still taking anti-inflammatory drug and I don't know if it's due to that. I don't want to stop them however because i'm leaving for a big trip and I can't take the chance to be sick or in lot of pain. I just hope the hair thinning will stop. Let's just say that I sympathize with you :S Annie > > > Hi everyone, I'm new to this forum. I would like to know if any (or > how many) of you finds a direct connection between stress, hairloss and > Crohn's, and strategies you've used to control both of it. > > > I lost a lot of hair since my early twenties (around the time I had my > first Crohn symptoms: arthritis); I went on phases of re-growing some, > but on my last personal autumn I lost even more and haven't recover > most of it. I am taking some B vitamin complex, and doing some > shampoo+spray treatment. > > I started with SCD in February, after getting quite worse on my > gastrointestinal symptoms (after major stress moment), which pretty much > consist of constipation/diarrhea, gas, mouth cracks, dizziness, and > constant tiredness. The prednisolone also gave me a constant reflux. I > tried to stick to the diet in the beginning, then left it, and then > returned around the end of March. > > I am also taking probiotics, flax seed oil and homeopathic medicines > under the supervision of a naturopath (since March). I have been feeling > better overall – except for the abdominal distention and smouth > cracks. I rarely get D or C. > > Also, I was wondering if/how many had strong arthritis caused by CD? I > had a really impairing case in my left knee for a long time ( 4 > orthopedic doctors told me for months they were sure it would be a > meniscus tear until the MRI came out perfect – I'm 33 y.o.), > things got ok only with a cortisone shot (for the knee) and > 5mg/prednisolone during 6 months (I'm not sure on the results of > this). > > > > Thank you for any input! All the best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 I don't have Crohn's but I know that about a month or so after I have a flare, I tend to lose a lot of my hair. There's a medical term for it that I can't remember but basically it's your body trying to preserve itself and so it focuses on what needs to be healed and ignores unimportant things like hair growth. IF that's what's going on then it should grow back within a couple months. I hope that's what it is for you. Stacey > > > Hi everyone, I'm new to this forum. I would like to know if any (or > how many) of you finds a direct connection between stress, hairloss and > Crohn's, and strategies you've used to control both of it. > > > I lost a lot of hair since my early twenties (around the time I had my > first Crohn symptoms: arthritis); I went on phases of re-growing some, > but on my last personal autumn I lost even more and haven't recover > most of it. I am taking some B vitamin complex, and doing some > shampoo+spray treatment. > > I started with SCD in February, after getting quite worse on my > gastrointestinal symptoms (after major stress moment), which pretty much > consist of constipation/diarrhea, gas, mouth cracks, dizziness, and > constant tiredness. The prednisolone also gave me a constant reflux. I > tried to stick to the diet in the beginning, then left it, and then > returned around the end of March. > > I am also taking probiotics, flax seed oil and homeopathic medicines > under the supervision of a naturopath (since March). I have been feeling > better overall – except for the abdominal distention and smouth > cracks. I rarely get D or C. > > Also, I was wondering if/how many had strong arthritis caused by CD? I > had a really impairing case in my left knee for a long time ( 4 > orthopedic doctors told me for months they were sure it would be a > meniscus tear until the MRI came out perfect – I'm 33 y.o.), > things got ok only with a cortisone shot (for the knee) and > 5mg/prednisolone during 6 months (I'm not sure on the results of > this). > > > > Thank you for any input! All the best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 Hi again!Thank you all for you comments.I think my hairloss is more related to some vitamin absortion, because when I started loosing it, my nails also got brittle and weak. With hair & nails supplements I normally get slightly better.... Since gastrointestinal diseases like Crohn's are inflammation/wounds/etc., I thought it could make malabsorption....(or also as Stacey said). last December I checked the iron etc blood levels, and everything was ok (while I was loosing more hair back then).I also checked with Thyroid... you can't image how many exams I did for all the different symptoms I had before getting to the GI tract! Thyroid was just slightly abnormal (which seems it can happen while on the pill), made more exams, and doc concluded we should check it regularly, but it was still in the normal range. Will repeat this Summer (also because I had a tiny nodule).I also got checked for the ankylosing spondylitis (and lupus, and... wow so many diseases I didn't even know they existed! Like Crohn's itself), Annie that must be scared. You have my complete sympathy (well, all of you!). In case you're taking cortisone as anti-inflammatory, I think it can provoke hairloss. Hair is really an important part of being female, isn't it? And are you serious about the bee venom? I had no idea!I have re-started doing yoga very recently, only 2 months ago I felt the strength (and the end of the morning nausea) to be able to imagine myself putting my head down.... I really like it, am not sure about any anti-stress effects until now, but I regained some muscle (went very low with the arthritis), and flexibility. The classes are very soft, it's mostly adorable old ladies (one of them is 84!!!), and I really enjoy being able to take the time to not think about problems.I also stopped taking the pill recently, since I am really trying to avoid drugs; I had an HPV infection and level II abnormal cells (which went back to level I, but still had to make a small surgery), and with this GI tract stuff I thought that the pill, either for the hormonal stuff or for any other stuff, could be put aside.Boy, do I hate diseases! Hope all of you get better. Thanks again for the replies!All the best,Isabel> >> > > > Hi everyone, I'm new to this forum. I would like to know if any (or> > how many) of you finds a direct connection between stress, hairloss and> > Crohn's, and strategies you've used to control both of it.> > > > > > I lost a lot of hair since my early twenties (around the time I had my> > first Crohn symptoms: arthritis); I went on phases of re-growing some,> > but on my last personal autumn I lost even more and haven't recover> > most of it. I am taking some B vitamin complex, and doing some> > shampoo+spray treatment.> > > > I started with SCD in February, after getting quite worse on my> > gastrointestinal symptoms (after major stress moment), which pretty much> > consist of constipation/diarrhea, gas, mouth cracks, dizziness, and> > constant tiredness. The prednisolone also gave me a constant reflux. I> > tried to stick to the diet in the beginning, then left it, and then> > returned around the end of March.> > > > I am also taking probiotics, flax seed oil and homeopathic medicines> > under the supervision of a naturopath (since March). I have been feeling> > better overall – except for the abdominal distention and smouth> > cracks. I rarely get D or C.> > > > Also, I was wondering if/how many had strong arthritis caused by CD? I> > had a really impairing case in my left knee for a long time ( 4> > orthopedic doctors told me for months they were sure it would be a> > meniscus tear until the MRI came out perfect – I'm 33 y.o.),> > things got ok only with a cortisone shot (for the knee) and> > 5mg/prednisolone during 6 months (I'm not sure on the results of> > this).> > > > > > > > Thank you for any input! All the best,> >> Quote Link to comment Share on other sites More sharing options...
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