my daughter

[Guest guest]

In my personal opinion, I think the OCD, ADHD and the ODD are symptoms

OF the autism. Not seperate entities. risperdal does help with

aggression and fears/anxieies, so i would try that. My son has been on

it for two years now and before it he wouldn't even take a bath he was

so afraid of the tub, wouldn't go outside cause grass might touch him,

etc...now he takes and loves bathes, goes outside (but not barefoot

lol) and has less nightmares. Definitely seen a big difference. I

don't know anything about lexapro, sorry. I've done the single mom

thing with three spec needs kids, so my heart goes out to you. You are

a strong person!

Blessings and Grace,

>

> My daughter has asperger syndrome, ADHD, ODD, and OCD. When she has

> meltdowns, I'm her punching bag. I'm a single mom who is basically

the

> only one in her life. We're seeing a psychologist to help us with

her

> problem. The psychiatrist recently perscribed Lexapro and risperdal

> and I'm nervous about giving her the medicine but I know that we

have

> to do something. Can anyone give me any suggestions.

>

[Guest guest]

Dear ,

Although I would much rather rely on behaviorial or non-drug methods

of helping my son (currently diagnosed with Asperger's, ADHD, and

OCD), we have had some experience with medications. Our son started

with Risperdal, but is now taking Zoloft (another SSRI, like Lexapro

and Prozac).

My advice would be to read up on both medications and, if you decide

to try one, start only one at a time, and then at a low dose at

first. Don't start both of them together because (a) you won't be

able to tell which medication is responsible for whatever beneficial

effects or side effects you see, ( it will be difficult to get the

dosages right if you have to increase or decrease either one of them;

and © as a psychiatrist pointed out to me, if your daughter has a

bad reaction to one of the medications (rare but possible), she won't

be able to take either of the medications ever again (because they

won't know which one caused the problem).

Here's our story. Two and a half years ago our son, then 7 and

diagnosed with Asperger's, was having lots of outbursts, especially

at school, which he had to stop attending on any normal basis. When

we finally got to see a psychiatrist, she prescribed three different

psychoactive medications to be started at full dose all at once. I

was skeptical. Actually I was horrified. My husband was ready to

start the medications right away. But I insisted on reading up on the

medications first. One medication was Risperdal, the second was

Wellbutrin, and the third, Cogentin (sp?) to counteract possible side-

effects of the Risperdal. All at once!

I decided that it didn't make sense to start the medications together

for the reasons stated above. In addition, it didn't make sense to

take Cogentin -- itself a powerful medication with its own side-

effects -- for the possible extra-pyramidal side-effects of Risperdal

unless we needed it. I also decided that, if possible, we should

start any medication a low dose, so that it would be easier to

tolerate, and slowly increase the dose afterwards.

We decided to start with the Risperdal and gave our son a tiny amount,

which nevertheless had an almost immediate effect (within a few days)

and was very helpful. He took this for a year at a much lower dose

than prescribed. When we changed psychiatrists, the new psychiatrist

told me we had done the right thing not to start them all at once or

to take the Cogentin. From his point of view, you never start two

drugs at once because you'd have discontinue both forever if there was

a bad reaction.

One of the most common side-effects of Risperdal is weight gain. Our

son is thin and always in motion except when he's absorbed in reading,

but he still gained weight during that year even though on a very low

dose. We slowly phased out the Risperdal over the summer, his weight

returned to normal as he grew, and we haven't gone back to it.

This past February, the psychiatrist prescribed Zoloft for anxiety and

OCD. My husband and I both feel the Zoloft is helping. Our son seems

to be able to handle frustration better. But why Zoloft (currently a

generic version) and not Prozac or Lexapro? I don't know the

differences, except that Lexapro is said to be faster-working than the

others. I'd like to know its track record with children.

Meanwhile, I'm reading The Explosive Child by Ross Greene, and have

looked at the website with the same name (explosivechild.com). He

focuses on teaching the child the cognitive skills he or she needs to

handle frustration and problems, and on strengthening the relationship

between parent and child. This helps a lot with my son and daughter,

too.

Good luck!

Janet

>

> My daughter has asperger syndrome, ADHD, ODD, and OCD. When she has

> meltdowns, I'm her punching bag. I'm a single mom who is basically

the

> only one in her life. We're seeing a psychologist to help us with

her

> problem. The psychiatrist recently perscribed Lexapro and risperdal

> and I'm nervous about giving her the medicine but I know that we

have

> to do something. Can anyone give me any suggestions.

>

[Guest guest]

I agree they are all due to Autism. My daughter has improved since

starting the gfcf diet. In her case I believe that genetics set her

up to not be able to dump toxins. My husband probably has AS and I

have OCD, Bipolar 11 and many sensory issues. My daughter still has

some OCD behavior but much less and I notice it increase if she does

not get glutathione cream twice a day. Also the school forgot to give

her her afternoon enzyme twice this week and she was a mess tonight.

I plan to start chelation with her soon. The results of her hair test

were a shock. I was on the fence months ago about her behavior and

considered medication even though I am against it for myself. I can

often control my OCD but I can also lose control. I have learned

techniques and have tried to teach these to my daughter. She has

always had difficulty with change and transitions. One thing I always

say is that sometimes things are different. It may not be what one

wants or expected, but different is ok. She takes a deep breath and

then tells me when she feels better.

During school she is more behaved. But if she has a meltdown she does

not receive the attention she wants and eventually sit back down in

her chair. I am keeping her is special ed half the day to help her

learn coping skills that regular teachers think are inherent.

Just my two cents,

Jen

> >

> > My daughter has asperger syndrome, ADHD, ODD, and OCD. When she has

> > meltdowns, I'm her punching bag. I'm a single mom who is basically

> the

> > only one in her life. We're seeing a psychologist to help us with

> her

> > problem. The psychiatrist recently perscribed Lexapro and risperdal

> > and I'm nervous about giving her the medicine but I know that we

> have

> > to do something. Can anyone give me any suggestions.

> >

>

[Guest guest]

-- ( ) My daughter

My daughter has asperger syndrome, ADHD, ODD, and OCD. When she has

meltdowns, I'm her punching bag. I'm a single mom who is basically the

only one in her life. We're seeing a psychologist to help us with her

problem. The psychiatrist recently perscribed Lexapro and risperdal

and I'm nervous about giving her the medicine but I know that we have

to do something. Can anyone give me any suggestions.

[Guest guest]

Thank you for your input Jenn! It just so happens that I gave her an epsom

salt bath this morning and it seemed to help. Are you my twin look alike or

something?) Anyway, I think I figured out what was wrong. Her stomach was

really

tight so she might have had gas really bad or it could have been the enzymes

working? This morning she had a very small bowel movement and after that she

seemed to feel better. E-mail sometime when you get a chance, I am interested

to know what you have tried or done with your daughter. Do you take her to a

chiropractor? We go on a regular basis. When first started taking my daughter

and my son, it seemed to help them calm down a lot.

Ginger

[Guest guest]

O.k. o.k. We are opposites in looks, but similar in thoughts, right? I am 5 4

1/2 and have brown hair green eyes and I live in good ole' Alabama.(yes, I

was born and raised in the sticks) How old is your baby? My children are

6(12/21) and almost 4(2/24) Do you take your daughter to see a ped? I don't. I

used

too, but I was always scared she would bring up the vaccines with my son.(the

last one he received was the chicken pox, after that he hasn't and WILL NOT

receive any more) I took both of them to an urgent car the other day because of

the strep. I tried waiting it out with my daughter but she was really

laethargic and it was scaring me. Anyway, I don't want to play with strep as it

can

get dangerous. But overall, I have gotten to where I lean towards the

alternative side of things. Does the ND help you to treat your daughter's

autism? I am

kinda going it alone until we can find another doctor who does biomedical. The

reason I want to use Dr. Kane's protocol is she uses phosphatidyl

choline push and glutathione push without harming the liver and a lot of

children

have improved through her. She doesn't like the Dan! doctors at all. She

hates dmsa or whatever it is called. She believes in using the diet to help

detox

the viruses, parasites, heavy metals, etc. She focuses on fatty acid

metabolism.

Ginger

[Guest guest]

Ginger, give her an epsom salts bath? Have you ever given them to her before? If

not, start with 1/2 cup or less even in the bathwater. It will help her feel

better. You're learning how much is enough and too much for her. I would also

keep a journal as to what you gave her, how much and when so, you can look back

and know what to do and what not to do.

Jenn L

ginger587@... wrote:

All:

My little girl had a bad night last night. She woke up about 12 soomething

crying like she was in pain. She did this on and off for maybe 2-4 hours?

Anyway, does this mean that Virastop(1 capsule) is too much and that I should

start

off with less? Also, do I need to give probiotics along with it for yeast? I

also have emergenc packets with 1000mg vitamin c, is this too much to give? How

much vitamin c? Please, I do not want to see my little girl in pain. This

makes me so angry and sad because it just goes to show what the viruses are

doing

to her, you know? What are the HN enzymes for? Are they similar to the

virastop? What about digest gold? I had given her digest gold yesterday as well.

I

guess everything was just too much. Can someone please explain what the zyme

prime is for and the pepitzde(spelling?) Please can someone recommend a good

protocol to start with? Thank you!

Ginger

[Guest guest]

Chiropractors are good. We do Craniosacral therapy with her. It moves things

along quicker by opening up those blockages than chiropractors but, they

essentially do the same thing. I am readying her for the Life Vessel. I want to

clear & drain her of the excess mucous etc. first. We are using biotherapeutic

drainage for that. They are non-toxic homeopathic remedies that support the body

to do what it wants to do- HEAL. I don't want to do any real detox with a

clogged body. She has been extremely calm since her high fever. I will send more

mail later. I have to tend to my baby girl. Please keep in touch with me. We

must be twins. What do you look like? Where do you live? I am 5'8 " with long

dirty blonde hair and live in Gloversville, NY- 30 yrs. old. Jenn L

ginger587@... wrote: Thank you for your input Jenn! It just

so happens that I gave her an epsom

salt bath this morning and it seemed to help. Are you my twin look alike or

something?) Anyway, I think I figured out what was wrong. Her stomach was

really

tight so she might have had gas really bad or it could have been the enzymes

working? This morning she had a very small bowel movement and after that she

seemed to feel better. E-mail sometime when you get a chance, I am interested

to know what you have tried or done with your daughter. Do you take her to a

chiropractor? We go on a regular basis. When first started taking my daughter

and my son, it seemed to help them calm down a lot.

Ginger

[Guest guest]

Try this addy: either jlessard1@... or help4kali@...

ginger587@... wrote: Thank you for your input Jenn! It just

so happens that I gave her an epsom

salt bath this morning and it seemed to help. Are you my twin look alike or

something?) Anyway, I think I figured out what was wrong. Her stomach was

really

tight so she might have had gas really bad or it could have been the enzymes

working? This morning she had a very small bowel movement and after that she

seemed to feel better. E-mail sometime when you get a chance, I am interested

to know what you have tried or done with your daughter. Do you take her to a

chiropractor? We go on a regular basis. When first started taking my daughter

and my son, it seemed to help them calm down a lot.

Ginger

[Guest guest]

> My little girl had a bad night last night. She woke up about 12

soomething

> crying like she was in pain. She did this on and off for maybe 2-4

hours?

> Anyway, does this mean that Virastop(1 capsule) is too much and that

I should start

> off with less? Also, do I need to give probiotics along with it for

yeast?

Two of my kids woke up crying during their anti-viral protocol, and it

meant they had yeast in their ears causing ear ache/infection. Try

giving anti-fungal. Probiotics might work, altho my kids needed

grapefruit seed extract [GSE].

>> I

> also have emergenc packets with 1000mg vitamin c, is this too much

to give? How

> much vitamin c?

Based on my experience with my kids, 1000mg is not nearly enough.

But, it would be good to start. Be aware tho, that vitamin C will

probably also help eliminate the virus/es, so it can also contribute

to yeast overgrowth.

>>Please, I do not want to see my little girl in pain. This

> makes me so angry and sad because it just goes to show what the

viruses are doing

> to her, you know?

Yes, viruses are nasty! It took my more than 2 years to eliminate all

of them from my kids' bodies.

>> What are the HN enzymes for? Are they similar to the

> virastop?

Peptizyde is similar to Virastop, altho in my experience, Virastop

worked better.

HNI enzymes worked very well for my kids for their food intolerances tho.

>>Can someone please explain what the zyme

> prime is for and the pepitzde(spelling?)

Peptizyde: gluten/casein/soy, helps eliminate viruses

AFP Peptizyde: same as above, for kids who don't tolerate

papain/bromelain

No-Fenol: fruits and other high phenol foods, helps with artificials

for some kids, also helps eliminate yeast by digesting the yeast cell wall

Zyme Prime: proteins, carbs, starches, fats, general digestion of

most foods [HN has papain/bromelain, SCD version with cellulose does not]

Dana

[Guest guest]

>>Do you take your daughter to see a ped? I don't. I used

> too, but I was always scared she would bring up the vaccines with my

son.(the

> last one he received was the chicken pox, after that he hasn't and

WILL NOT

> receive any more) I took both of them to an urgent car the other day

because of

> the strep. I tried waiting it out with my daughter but she was really

> laethargic and it was scaring me. Anyway, I don't want to play with

strep as it can

> get dangerous. But overall, I have gotten to where I lean towards the

> alternative side of things.

I don't take my kids to a ped either. My #4 had strep a total of four

times. The first three times I took her to the ped, he rx Zithromax,

and the strep was gone for maybe 1-2 months, then came back. During

these times, my boys were on olive leaf extract as an anti-viral. The

ped said they would get strep also, because it was highly contagious.

They never got it. So the fourth time my #4 got strep, I did not

take her to the ped, I just gave her olive leaf extract. The strep

left and has never come back.

So if your child gets strep again, and you want to avoid the ped, you

can consider this if you want. It worked great for my family.

Dana

[Guest guest]

Where I live is also " the sticks " . My girl is 6(8/21). We have no other children

right now. She is our focus. We used to have a ped. & the school still thinks we

do. I'll leave it at that. The ND hasn't started treating the chronic things

yet. We are just getting her over a nasty 6 wk. long illness which she has

worked through on her own other than the support from the homeopathics. It was

biotherapeutic drainage that we did with her for the past 2 weeks that got her

through it. The doc you seek sounds VERY knowledgeable and that's similar to

what i am doing. We do not use anything but, foods and supp's to detox with. The

damage going in can be worse coming out these ways. Amy Yasko has a more natural

prtocol also. I haven't been able to find the time lately to look into it

though. Chat again soon, Jenn L

ginger587@... wrote:

O.k. o.k. We are opposites in looks, but similar in thoughts, right? I

am 5 4

1/2 and have brown hair green eyes and I live in good ole' Alabama.(yes, I

was born and raised in the sticks) How old is your baby? My children are

6(12/21) and almost 4(2/24) Do you take your daughter to see a ped? I don't. I

used

too, but I was always scared she would bring up the vaccines with my son.(the

last one he received was the chicken pox, after that he hasn't and WILL NOT

receive any more) I took both of them to an urgent car the other day because of

the strep. I tried waiting it out with my daughter but she was really

laethargic and it was scaring me. Anyway, I don't want to play with strep as it

can

get dangerous. But overall, I have gotten to where I lean towards the

alternative side of things. Does the ND help you to treat your daughter's

autism? I am

kinda going it alone until we can find another doctor who does biomedical. The

reason I want to use Dr. Kane's protocol is she uses phosphatidyl

choline push and glutathione push without harming the liver and a lot of

children

have improved through her. She doesn't like the Dan! doctors at all. She

hates dmsa or whatever it is called. She believes in using the diet to help

detox

the viruses, parasites, heavy metals, etc. She focuses on fatty acid

metabolism.

Ginger

[Guest guest]

>

> All:

>

> My little girl had a bad night last night. She woke up about 12

soomething

> crying like she was in pain. She did this on and off for maybe 2-4

hours?

This is the exact same reaction that I get from my little gal from the

anti-virals. It's worse if I try to go too fast. We ended up

starting over with just sprinkles and it worked much better that way.

You can still work the dose up, but you may have to go a little

slower. I would also be sure to get something started for the yeast

as mentioned in my earlier post.

Sheresa

[Guest guest]

Hi Dawn,

So sorry to hear about your daughter. Since she is going to a

university hospital in the very near future, I would help her be as

comfortable as you can until you figure out what is going on for her -

and you, too. As a caring mother, I'm sure you may feel powerless at

the moment. (At least that is what I sensed in your post.) Look for

things that you can enjoy together... board games, reading out loud to

her, herbal tea - simple pleasures.

After you get a diagnosis, then you will be able to move forward with

treatments. Look for the doctors at the hospital to help you find what

is best for her, that is what they do for a living and most want to do

it well. Best wishes to you and your daughter, ...Brent

[Guest guest]

Welcome to the group, not sure anyone can do anything till you see a doctor,

they will give you what meds and all there is to go with... But some might have

some little things you can do until you get there... Heating pads always help...

Love and Peace Always,

Shaun and Barb...

[Guest guest]

Hello Dawn,

My 14 yr old daughter was diagnosed on Nov. 15 with Psoriatic Arthritis. On

October 27 she woke up with her right knee hurting her slightly. By 11:00 am

the school was calling me and telling me to come get her because her knew was

very badly swollen. My husband took her to the hospital. They said she had a

sprain and to apply hot and cold compresses over the next few days. Two days

later (Sunday) we were sitting in our family watching TV when she suddenly

starting screaming that she had terrible pain in her hip and back. I

immediately thought that she might have a kidney stone and back to the hospital

we went. But to a different hospital, one that has a great reputation with

kids. She was admitted and stayed in the hospital for 4 days. No diagnosis was

made, however, she had a ton of tests and many, many drs. examined her. I took

her home and for the next 2 months I took her to specialists.

The Rhuemy told us immediately that it was PA. I doubted him because my brother

has it and his symptoms are very different than na's (that's her name). I

had a long telephone conference with the rhuemy two days after he diagnosed her.

I was familiar with Enbrel and both my brother and mom have been on it. My mom

is now taking Remicade. I agreed to put na on Enbrel for 3 months. It

took 1 month to kick in. She is only now within the last week having periods of

" almost no pain " .

She is now on Home Instruction from high school. She was walking with crutches

up until 2 wks ago. The rheumy wanted her out of school so that her hip could

calm down. It's been a week and there is a huge improvement. She will remain

out of school for at least 6 weeks.

These are the meds she is on:

Enbrel - 50 mg - 1 x week

Celebrex - 2 x day

Neurontin - 2 x day

Percocet - 2 x day or more is needed. She needs this to sleep and get out of

bed in the morning.

Zantac - 2 x day for stomach upset from the other meds.

Floricet (Spelling?) - as needed for migraines.

na has had problems with the right side of her body for years. No dr.

could ever figure it out. After reading posts here and e-mailing a few other

" moms " , I realized it was the PA working it's way on. She does have psoriasis

in her head.

Does your daughter have psoriasis anywhere on her body? Only asking because a

lot of Rheumy's say it's RA because PA is not so familiar.

Enbrel is used by PA and RA patients. My brother calls it a miracle drug. My

mom did also, but it stopped working on her after she had a very bad flare up

when my dad passed away. My mom has RA. She is now on Remicade. She feels that

the Enbrel worked faster and longer for her and she is so upset that she can no

longer take it.

I don't know if this post helped you at all, but if you have any questions,

please let me know.

na would like to e-mail teens with similar conditions. If your daughter

would like to e-mail her, please let me know. There is another mom in the group

who has a son with PA. She is really nice and gave me a ton of info. I am

waiting for her to e-mail me back. Perhaps she will see your post and write to

you also.

Take care,

Louise

[ ] my daughter

hello my name is Dawn and the Drs think my 13 year old daughter has JRA.

we go to UW children's hosptial on the 9th to see a DR. she has had so

much pain with her knees for 2 years she cant do PE at school, take

long walks with us. not sure what all there is for us to do. if any

one can help i would love to hear what you have to say..

thanks,

DAWN

________________________________________________________________________

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[Guest guest]

In a message dated 22/01/2007 13:11:21 GMT Standard Time, ddbear30@...

writes:

hello my name is Dawn and the Drs think my 13 year old daughter has JRA.

we go to UW children's hosptial on the 9th to see a DR. she has had so

much pain with her knees for 2 years she cant do PE at school, take

long walks with us. not sure what all there is for us to do. if any

one can help i would love to hear what you have to say..

Hi Dawn,

Welcome to the group. I hope by now you have been in touch with others on the

site who have children with either RA or PA. They are very similar in the way

they present themselves and the treatment for them.

Good luck,

[Guest guest]

sorry meant MDS  ---------- Forwarded message ----------From: Stacie Akridge <stacie.akridge@...>

Date: Wed, Sep 23, 2009 at 5:21 PMSubject: my daughters my 2 year old daughter with DS was recently diagnosed with MSD.  Only 10% blast cells were showing up in her bone marrow aspiration at this time.  She was ill with an infection at the time.  We are seeking a 2nd opinion due to the fact that chemo is scheduled to begin within the next two weeks.  Has anyone out there either experienced this senerio or know of someone else who has?  Also, what recommendations do you have for a 2nd opinion?

Thanks for any information you can help with at this time.  Stacie

[Guest guest]

Dear Stacie,So sorry to hear that you are going through this. Our son Zachary had MDS before developing AML right after his first birthday. Your oncologist and/or pediatrician should be able to help you find someone in your area that you can talk to for a second opinion. We live in the Bay Area and Zach had been monitored for leukemia since birth at Oakland Children's. When he developed MDS, we got a second opinion from Stanford, which was helpful as the doctor there told us about a new study for children with DS and AML. We ended up deciding to do the study instead of the current protocol, especially as it involved a smaller dosage of drugs administered directly into the spinal fluid (thus lowering the risk of additional delays). But Zach still had to go through what ended up being 6 months of intensive chemotherapy and there's no way around it: it was terribly hard and often scary. If you want to read about our experience, you can do so on Zach's Caring Bridge site. (If you go to the "journal" section there is option, I think, where you can easily convert the posts to read it in chronological order.) https://www.caringbridge.org/visit/zacharyleonwallace/Please feel free to email me if you have additional questions. Best wishes, sonAssociate Professor of English and Graduate Literature CoordinatorSan Francisco State University, Humanities 5371600 Holloway AvenueSan Francisco, CA 94132(415) 338-3107 On Sep 23, 2009, at 2:30 PM, Stacie Akridge wrote: sorry meant MDS ---------- Forwarded message ----------From: Stacie Akridge <stacie.akridgegmail> Date: Wed, Sep 23, 2009 at 5:21 PMSubject: my daughters my 2 year old daughter with DS was recently diagnosed with MSD. Only 10% blast cells were showing up in her bone marrow aspiration at this time. She was ill with an infection at the time. We are seeking a 2nd opinion due to the fact that chemo is scheduled to begin within the next two weeks. Has anyone out there either experienced this senerio or know of someone else who has? Also, what recommendations do you have for a 2nd opinion? Thanks for any information you can help with at this time. Stacie

[Guest guest]

Hi Stacie,

My daughter was diagnoses with MDS when she was about a few months before her 2nd birthday. Her MDS turned into AML and had to go through 6 months of chemo. I can't remember how high her blasts got before they decided to do chemo.

Happy to say that is cancer free now for 8 years.

From: Stacie Akridge <stacie.akridge@...>Subject: [ ] Fwd: my daughter Date: Wednesday, September 23, 2009, 5:30 PM

sorry meant MDS

---------- Forwarded message ----------From: Stacie Akridge <stacie.akridge@ gmail.com>Date: Wed, Sep 23, 2009 at 5:21 PMSubject: my daughters my 2 year old daughter with DS was recently diagnosed with MSD. Only 10% blast cells were showing up in her bone marrow aspiration at this time. She was ill with an infection at the time. We are seeking a 2nd opinion due to the fact that chemo is scheduled to begin within the next two weeks. Has anyone out there either experienced this senerio or

know of someone else who has? Also, what recommendations do you have for a 2nd opinion?Thanks for any information you can help with at this time. Stacie

[Guest guest]

Can plagio and tort be corrected early with physical therapy alone?

[Guest guest]

My daughter also has plagiocephaly and tort. We started physical therapy at 9

weeks old and after 4 weekly sessions we were able to stop p.t. The key to

torticollis is the work you do with your daughter at home. Exercise her every

diaper change, every time you change her clothes and find ways to make it fun

and not exercise. My daughter needed to turn to the left so I would have her

turn left and kiss her check to hold that position. Remember even if seems like

she is getting better do not stop the exercises. I hope this helps.Good luck it

will be OK.

Mom of a beautiful banded girl

>

> My daughter Layla has recently been diagnosed with mild plagiocephaly and

tort. She was born 8 weeks premature and is now 4 months old. We have already

seen a neurosurgeon regarding her condition and he has recomended her to undergo

extensive physical therapy for treatment. So far he seems to think it will

correct itself by the next time we see him. I hope that is the case but as a

first time mom i don't know what to think?

>

> concerned parent

>

[Guest guest]

Tort can be corrected with p.t. alone. Plagio can with repositioning and p.t.

sometimes. My daughters tort is no longer noticeable but her plagio got worse

even with p.t. and repositioning because hers was caused in utero.

Mom of beautiful banded girl

>

> Can plagio and tort be corrected early with physical therapy alone?

>

[Guest guest]

Most tort is resolved with PT alone.  Very few cases need more.  Plagio can be resolved through repositioning but once they start moving much on their own, this is pretty difficult.  Depending on the severity banding will be recommended.  With banding generally the sooner you start the better the results.  Our story isn't typical as my daughter was an extreme case, but we did PT three times a week for months and you could see improvement from week to week pretty clearly.  She started PT at two weeks old, and was in her first helmet by 4 1/2 months old.

Elaine (twin A) graduated from 2nd helmet June '09On Thu, Oct 1, 2009 at 10:51 AM, j_jackson_72206 <j_jackson_72206@...> wrote:

 

My daughter Layla has recently been diagnosed with mild plagiocephaly and tort. She was born 8 weeks premature and is now 4 months old. We have already seen a neurosurgeon regarding her condition and he has recomended her to undergo extensive physical therapy for treatment. So far he seems to think it will correct itself by the next time we see him. I hope that is the case but as a first time mom i don't know what to think?

concerned parent

[Guest guest]

My daughter was 8 weeks early as well. We see a cranial surgeon who also prescribed PT 3x per week. We did this and also saw some improvement. However he did recommend the helmet after 3 months. This way we no we will see results instead of hoping. My daughter refused to sleep on her left side. Now she will sleep left, but if her brain grows over the nights or days when she is turned right we will have lost our window. The PT is good, do it, then see how it progresses. If she was 8wks early adjust her age. I was advised to do the helmet between 6-8 months. Which mean 8-10 if you age correct her! She will be 9months next week and we are getting the helmet on Monday!

From: j_jackson_72206 <j_jackson_72206@...>Subject: my daughterPlagiocephaly Date: Thursday, October 1, 2009, 11:18 AM

Can plagio and tort be corrected early with physical therapy alone?