Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 > 3 month flare? > (For some reason my subject line is not showing up, so I apologize for that.) > > OK, so I had to restart my diet due to being in the hospital just about 3 months ago. I was not prepared and ingested illegals in the hospital, but since then I've been fanatical about the diet, the only known illegals I've had are in my medications. > > I'm on Remicade ( & methotrexate), and just had my last infusion on Thursday. Usually after my infusions I a lot less symptoms of Crohn's. Well, not this time. The weekend after I had fevers and D, and now I'm still dealing with a lot of D, getting up in the middle of the night with D. > > How do I know if this is a flare from the changes in my gut due to the diet or to something else? > > Other reasons I can think that may be a possibility are- > • taking an allergy pill > • trying eggplant > • too much exercise define too much exercise. do you mean marathon levels or just daily good workouts or what > • my meds not working pretty likely. it should be working even if you have a flare. > > I guess there really isn't any way to know, is there? I'd like to think it's just the 3 month flare, which to me would signal a good sign that the diet is working. But why then isn't my body responding to my meds? Is that common with the 3 month flare? Shouldn't your meds still work with a flare? it shouldn't effect remicade. you might think about switching to LDN which works through the endorphin system. > > Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. could be. or, if you are eating a lot of carbs that would increase your bacteria levels. > > And for those of you that exercise- do you find that if you push yourself too hard that you flare? I'm struggling to find a healthy balance, and my doctor is thinking that the reason I'm not able to get myself in complete remission is because I'm pushing my body too hard with my workouts. Admittedly, I probably do push myself too hard for someone with active Crohn's. It's hard for me to know what a reasonable amount of exercise is, since before I was sick I was an athlete and marathon runner so I'm used to pushing my body to its limits. tell us what you are doing. RIght before SCD, I used to find daily hard exercise would short term make me feel better, but the next week, I'd have low energy or sometimes get secondary symptoms that made me feel ill. I don't think it ever correlated directly to a flare, in fact it provided temporary relief of IBD symptoms from the release of endorphins, although sometimes, after one particular hard workout routine, I would get intense headaches several hours afterwards. > What do you guys think is a reasonable amount of exercise? I realize this is probably different for every person. But do you think that over-exercise can contribute to my symptoms. a flare - I'm not sure. possibly. there was a harvard study this year that showed that marathon like exercise had an adverse effect on endorphins and energy - whereas more moderate exercise boosted them - can't find the link at the moment, however. > Sorry this is kind of off topic, but I don't know anyone personally with Crohn's so I don't know who else to ask. > It's not off topic. I definitely think you should consider LDN. Well, it could be the storm of the 3 month flare and the remicade also ceasing to work at the same time. It never worked on me, in any case. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Hi Mara, My workouts are definitely not marathon level. I do less than half of what I used to do when I was marathon training. Usually I workout 6 times a week. 4 of those days I lift for about 30-45 minutes and do 30-45 minutes of cardio. The other 2 days I usually just do 45 minutes of cardio. I mix up the cardio, sometimes doing high intensity intervals with kettlebells, jumprope, rowing etc. That's the only time I really feel like I'm pushing myself, but I don't do the high intensity stuff that often and for no more than 20 minutes. After that I'll do lower intensity cardio most likely on some cardio machine- stepmill, stairmaster, elliptical. I haven't attempted to run since my last major flare, because I'm afraid that aggravates things. I can't tell. To me, that doesn't seem like to much exercise, I think it's pretty reasonable. I also think that if my exercise has anything to do with it, it's a combination of exercise plus not enough rest. Like the past week on Friday I worked out in the morning and then went for an hour bike ride (not intense, just moderate) in the afternoon. I didn't sleep well that night for some reason, even though my body was really tired, and then went to the gym Saturday morning. I started to feel really run down later on Saturday, and then that night is when I started getting the fever D. So it could be too much exercise with not enough recovery. Do you think that's a reasonable amount of exercise? I think you're right, it's probably a combination of the 3 month flare and my Remicade not working. I was already experiencing that before I went into the hospital last time and they had to double my dose. I don't think it's really that effective anymore. I'm interested in LDN, but my GI hadn't heard of it for Crohn's. I'm not sure if he'll be for or against it. I'm thinking I most likely have a yeast problem due to my high carb levels pre Crohn's and SCD, and I heard it doesn't work when you have yeast. I wonder how long it takes to get rid of yeast. Do I have to eat low carb for a long time with no fruit? Thanks! Amber > > > 3 month flare? > > (For some reason my subject line is not showing up, so I apologize for that.) > > > > OK, so I had to restart my diet due to being in the hospital just about 3 months ago. I was not prepared and ingested illegals in the hospital, but since then I've been fanatical about the diet, the only known illegals I've had are in my medications. > > > > I'm on Remicade ( & methotrexate), and just had my last infusion on Thursday. Usually after my infusions I a lot less symptoms of Crohn's. Well, not this time. The weekend after I had fevers and D, and now I'm still dealing with a lot of D, getting up in the middle of the night with D. > > > > How do I know if this is a flare from the changes in my gut due to the diet or to something else? > > > > Other reasons I can think that may be a possibility are- > > • taking an allergy pill > > • trying eggplant > > • too much exercise > > > define too much exercise. do you mean marathon levels or just daily > good workouts or what > > > • my meds not working > > pretty likely. it should be working even if you have a flare. > > > > > > I guess there really isn't any way to know, is there? I'd like to think it's just the 3 month flare, which to me would signal a good sign that the diet is working. But why then isn't my body responding to my meds? Is that common with the 3 month flare? Shouldn't your meds still work with a flare? > > it shouldn't effect remicade. > > you might think about switching to LDN which works through the > endorphin system. > > > > > Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. > > could be. or, if you are eating a lot of carbs that would increase your > bacteria levels. > > > > > > And for those of you that exercise- do you find that if you push yourself too hard that you flare? I'm struggling to find a healthy balance, and my doctor is thinking that the reason I'm not able to get myself in complete remission is because I'm pushing my body too hard with my workouts. Admittedly, I probably do push myself too hard for someone with active Crohn's. It's hard for me to know what a reasonable amount of exercise is, since before I was sick I was an athlete and marathon runner so I'm used to pushing my body to its limits. > > tell us what you are doing. > > RIght before SCD, I used to find daily hard exercise would short term make me feel better, > but the next week, I'd have low energy or sometimes get secondary symptoms > that made me feel ill. I don't think it ever correlated directly to a flare, in fact it > provided temporary relief of IBD symptoms from the release of endorphins, although > sometimes, after one particular hard workout routine, I would get intense headaches > several hours afterwards. > > > What do you guys think is a reasonable amount of exercise? I realize this is probably different for every person. But do you think that over-exercise can contribute to my symptoms. > > a flare - I'm not sure. possibly. there was a harvard study this year > that showed that marathon like exercise had an adverse effect on > endorphins and energy - whereas more moderate exercise > boosted them - can't find the link at the moment, however. > > > > Sorry this is kind of off topic, but I don't know anyone personally with Crohn's so I don't know who else to ask. > > > > It's not off topic. I definitely think you should consider LDN. > > Well, it could be the storm of the 3 month flare and the remicade also ceasing to work > at the same time. It never worked on me, in any case. > > Mara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 So it could be too much exercise with not enough recovery. Do you think that's a reasonable amount of exercise?You must be in amazing shape!! I admire you for keeping with that, even with the diet and Crohns and such. I kept trying to get into a workout routine, but every time I got sick I would stop and it would take me forever to get back into things. I'm hoping this summer will be a new start (again) for me! I'm actually still a little afraid to do too much cardio, though, because I can't gain weight as it is!!You say you can't tell if you're getting too much exercise, but it seems like you do have a pretty good sense of what your body's telling you. It sounds like your assumption of too much exercise and not enough recovery is pretty accurate, judging by your symptoms. I would just keep with your routine if it makes you feel good, but if you don't get enough sleep or are under a lot of stress, just take it a little easier for a couple days, like maybe just take a walk. Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 22.5 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 At 09:41 AM 6/2/2010, you wrote: Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. Not nightshades specifically, but I did have an issue with eggplant in the first couple of years. WRT tomatoes, I found that cherry tomatoes were a problem, but larger tomatoes, like Roma or Creole or beefsteak, were not -- my assumption is that there was too great a ratio of skin to fruit in the cherry tomatoes. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Hi Alyssa, You're sweet. I really don't feel in shape anymore, at least compared to when I was a swimmer or running. But I guess I'll take what I can get. I would probably be embarrassed by how slow I would be if I tried to run right now. I felt like I had such a good running base before I got sick and then I just lost it all. But, that's OK. At least I can still exercise. I don't blame you for backing off when you got sick. I definitely have points where I can't exercise, like when I'm getting continuous fevers and am down and out. I very slowly got back into it after my initial diagnosis and being so sick. I think it's actually smart that you back off as I tend to be a little too over the top. Good luck this summer and just ease into it. I hope it goes well for you!! You're probably right. I think I probably do know what is the right amount, I just need to really listen to my body. Such a wise one you are, especially at your age- hopefully you don't find that offensive, but at 16 I don't think I would have had the discipline and dedication to follow SCD. Amber > > > So it could be too much exercise with not enough recovery. Do you > > think that's a reasonable amount of exercise? > > > You must be in amazing shape!! I admire you for keeping with that, > even with the diet and Crohns and such. I kept trying to get into a > workout routine, but every time I got sick I would stop and it would > take me forever to get back into things. I'm hoping this summer will > be a new start (again) for me! I'm actually still a little afraid to > do too much cardio, though, because I can't gain weight as it is!! > > You say you can't tell if you're getting too much exercise, but it > seems like you do have a pretty good sense of what your body's telling > you. It sounds like your assumption of too much exercise and not > enough recovery is pretty accurate, judging by your symptoms. I would > just keep with your routine if it makes you feel good, but if you > don't get enough sleep or are under a lot of stress, just take it a > little easier for a couple days, like maybe just take a walk. > > Cheers! > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Azathioprine 75 mg 1x per day > Prednisone 22.5 mg 1x per day > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Such a wise one you are, especially at your age- hopefully you don't find that offensive, but at 16 I don't think I would have had the discipline and dedication to follow SCD. Lol no, I'm definitely not offended =) And if you ever feel bad about how slow you run or how 'out of shape' you are, just come work out with me! <g> You'll feel much better! Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 22.5 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Amber, I never really had problems with nightshades other than occasionally noticing my lips would tingle a little when I ate eggplant. Then I had a massive flare (not food related) and suddenly each time I tried eating eggplant after that I would have a massive flare. I don't know if it's because I wasn't healed enough or what because all the other nightshades are fine. It's just eggplant that I worry might have caused some (major) problems (and I haven't been brave enough to try it again yet). Stacey > Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Amber, Don't be afraid to run! If you're able to do everything else you've described from your workouts, there is no reason not to reclaim running if you miss it and want it back. I've been a runner for 8 years now and was diagnosed with UC in Feb 2008. It's presented challenges, but I refuse to give up running! Right now I'm on walking only because I'm 7 months pregnant and it just got too hard to keep going, but I will be back at it in the fall with plans for a half in early May. I've yet to tackle the marathon, but I've done tons of 5K's, 10K's, and one 1/2 mary since diagnosis. When my mileage goes up, I need more sleep and more food than I did before I was sick, but it can still be done. If you miss it and you feel up to it, don't let the disease take it away from you! Dawn > > > > > Hi Mara, > > My workouts are definitely not marathon level. I do less than half of what I used to do when I was marathon training. Usually I workout 6 times a week. 4 of those days I lift for about 30-45 minutes and do 30-45 minutes of cardio. The other 2 days I usually just do 45 minutes of cardio. I mix up the cardio, sometimes doing high intensity intervals with kettlebells, jumprope, rowing etc. That's the only time I really feel like I'm pushing myself, but I don't do the high intensity stuff that often and for no more than 20 minutes. After that I'll do lower intensity cardio most likely on some cardio machine- stepmill, stairmaster, elliptical. I haven't attempted to run since my last major flare, because I'm afraid that aggravates things. I can't tell. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Hey Amber, I used to be a triathlete in undergrad, and I have to say that my exercise routine has definitely changed. Not necessarily *because* of the colitis, but it definitely had an impact. I used to work out (swim, bike, and run) 9 times a week, about 15 hours, and now I can't walk up a flight of stairs without feeling the burn! LOL So I just try to take it easy on myself, walk to school 2 miles uphill both ways (seriously! I'm in grad school, 26 y/o), and do things I consider " fun " when I have the energy (swim, salsa dance, play tennis). My philosophy on exercise has changed quite a bit, to a more " everything in moderation " approach. I'm actually just discovering the ideas of the " Paleo Blueprint " (the diet is similar to SCD, and the stuff on exercise is very interesting) -- www.marksdailyapple.com if you're interested. Just another perspective! ) W. Lymphocytic (not Ulcerative) colitis 2.5 years Gluten and cow's milk intolerant (Enterolab) SCD 1 month Entocort 6mg/day 1/2 Imodium/day > > 3 month flare? > (For some reason my subject line is not showing up, so I apologize for that.) > > OK, so I had to restart my diet due to being in the hospital just about 3 months ago. I was not prepared and ingested illegals in the hospital, but since then I've been fanatical about the diet, the only known illegals I've had are in my medications. > > I'm on Remicade ( & methotrexate), and just had my last infusion on Thursday. Usually after my infusions I a lot less symptoms of Crohn's. Well, not this time. The weekend after I had fevers and D, and now I'm still dealing with a lot of D, getting up in the middle of the night with D. > > How do I know if this is a flare from the changes in my gut due to the diet or to something else? > > Other reasons I can think that may be a possibility are- > • taking an allergy pill > • trying eggplant > • too much exercise > • my meds not working > > I guess there really isn't any way to know, is there? I'd like to think it's just the 3 month flare, which to me would signal a good sign that the diet is working. But why then isn't my body responding to my meds? Is that common with the 3 month flare? Shouldn't your meds still work with a flare? > > Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. > > And for those of you that exercise- do you find that if you push yourself too hard that you flare? I'm struggling to find a healthy balance, and my doctor is thinking that the reason I'm not able to get myself in complete remission is because I'm pushing my body too hard with my workouts. Admittedly, I probably do push myself too hard for someone with active Crohn's. It's hard for me to know what a reasonable amount of exercise is, since before I was sick I was an athlete and marathon runner so I'm used to pushing my body to its limits. > > What do you guys think is a reasonable amount of exercise? I realize this is probably different for every person. But do you think that over-exercise can contribute to my symptoms. Sorry this is kind of off topic, but I don't know anyone personally with Crohn's so I don't know who else to ask. > > Sorry this post is all over the board. I'm lost as to what to do. I really don't want to end up in the hospital again. Do I need to get a second opinion from another doctor, or do I just wait this flare out since it may be the 3 month flare? How long do I wait? How long did your 3 month flare last for those of you that had it? > > Thanks for listening, > > Amber > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Thanks so much for letting us know, just know they are in our prayers. How is Sharon. Ruth Re: 3 Amber,Don't be afraid to run! If you're able to do everything else you've described from your workouts, there is no reason not to reclaim running if you miss it and want it back. I've been a runner for 8 years now and was diagnosed with UC in Feb 2008. It's presented challenges, but I refuse to give up running! Right now I'm on walking only because I'm 7 months pregnant and it just got too hard to keep going, but I will be back at it in the fall with plans for a half in early May. I've yet to tackle the marathon, but I've done tons of 5K's, 10K's, and one 1/2 mary since diagnosis. When my mileage goes up, I need more sleep and more food than I did before I was sick, but it can still be done. If you miss it and you feel up to it, don't let the disease take it away from you! Dawn >> > > > Hi Mara,> > My workouts are definitely not marathon level. I do less than half of what I used to do when I was marathon training. Usually I workout 6 times a week. 4 of those days I lift for about 30-45 minutes and do 30-45 minutes of cardio. The other 2 days I usually just do 45 minutes of cardio. I mix up the cardio, sometimes doing high intensity intervals with kettlebells, jumprope, rowing etc. That's the only time I really feel like I'm pushing myself, but I don't do the high intensity stuff that often and for no more than 20 minutes. After that I'll do lower intensity cardio most likely on some cardio machine- stepmill, stairmaster, elliptical. I haven't attempted to run since my last major flare, because I'm afraid that aggravates things. I can't tell.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Or come take a look at my out of shape body! Amber, just reading your workout routine exhausted me ;-). Holly Crohn's SCD 12/01/08 > > > Such a wise one you are, especially at your age- hopefully you don't > > find that offensive, but at 16 I don't think I would have had the > > discipline and dedication to follow SCD. > > > Lol no, I'm definitely not offended =) And if you ever feel bad about > how slow you run or how 'out of shape' you are, just come work out > with me! <g> You'll feel much better! > > Cheers! > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Azathioprine 75 mg 1x per day > Prednisone 22.5 mg 1x per day > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Does anyone do the wii for aerobics or walking? I got one my birthday but they bought the wrong thing--still need a balance board. Just wondered if anyone has tried using it. I finally have cellulite to worry about again <g>. Debbie 41 cd Or come take a look at my out of shape body! Amber, just reading your workout routine exhausted me ;-).HollyCrohn'sSCD 12/01/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Thanks, Marilyn. I seem to be OK with tomatoes, but I think I'm going to stay away from eggplant for a while. Amber > >Also, have you guys noticed a problem with > >nightshades? I had been eating a lot of > >tomatoes, then I tried the eggplant. I don't > >know how to tell if that's what caused it though. > > Not nightshades specifically, but I did have an > issue with eggplant in the first couple of years. > > WRT tomatoes, I found that cherry tomatoes were a > problem, but larger tomatoes, like Roma or Creole > or beefsteak, were not -- my assumption is that > there was too great a ratio of skin to fruit in the cherry tomatoes. > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Babette the Foundling Beagle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Stacey, Wow, I hear you on the staying away from eggplant! I'm scared to try it again too. I don't even know if that's what has caused my problems, but now I have a negative association with it. Guess we'll both be eggplant free for a while! Amber > > Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Hi Dawn, First of all, congrats on your pregnancy! Anyways, thanks for the inspiration! I'm glad to hear you can run successfully! Earlier on this board, there was discussion of running making you flare. I got a bit worried about it affecting me. After my initial diagnosis I got better enough and started running again. But then I would have my symptoms act up, so I would back off. It got to the point where I hated to have to start over each time with running, since it's one of those things you really have to build on slowly. I'm really bad about pushing myself too hard with running, because I check my pace too much. I'd probably be OK if I just ran comfortably...maybe. But realistically I don't think I'll ever be able to do another marathon without suffering serious consequences. And I definitely don't think I could put in as much training as I would need to be even close to the times I was at before. I don't know, never say never, I guess, but I'm trying to be realistic. Did you find your UC affected how much you could train as compared to before you got sick? When you upped your mileage, did you notice any increase in your UC symptoms? Good for you for not letting the disease take it away from you! I'm just trying to find what works for me. Realistically I could probably run for fun, but I don't ever expect myself to be able to run the pace I did before I got sick. Amber > > > > > > > > > > Hi Mara, > > > > My workouts are definitely not marathon level. I do less than half of what I used to do when I was marathon training. Usually I workout 6 times a week. 4 of those days I lift for about 30-45 minutes and do 30-45 minutes of cardio. The other 2 days I usually just do 45 minutes of cardio. I mix up the cardio, sometimes doing high intensity intervals with kettlebells, jumprope, rowing etc. That's the only time I really feel like I'm pushing myself, but I don't do the high intensity stuff that often and for no more than 20 minutes. After that I'll do lower intensity cardio most likely on some cardio machine- stepmill, stairmaster, elliptical. I haven't attempted to run since my last major flare, because I'm afraid that aggravates things. I can't tell. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Hey , I can completely relate. I was admittedly and over-exerciser before my Crohn's diagnosis. I got caught up in the more the better, and especially with endurance events, I think it makes it hard to remember what is reasonable. But I hear you about climbing stairs! It's funny, I discovered Marks Daily apple right before I got sick. I enjoyed running, but at that point I felt very overtrained and was wondering if I could find more balance, I just didn't have the guts to give up training so much until I was forced to when I got sick. I visit that site occasionally and like what he posts. Do you have Mark's book? I've been thinking about getting it. I do like his perspective, and it does seem a lot more balanced. Thanks for sharing! Amber > > > > 3 month flare? > > (For some reason my subject line is not showing up, so I apologize for that.) > > > > OK, so I had to restart my diet due to being in the hospital just about 3 months ago. I was not prepared and ingested illegals in the hospital, but since then I've been fanatical about the diet, the only known illegals I've had are in my medications. > > > > I'm on Remicade ( & methotrexate), and just had my last infusion on Thursday. Usually after my infusions I a lot less symptoms of Crohn's. Well, not this time. The weekend after I had fevers and D, and now I'm still dealing with a lot of D, getting up in the middle of the night with D. > > > > How do I know if this is a flare from the changes in my gut due to the diet or to something else? > > > > Other reasons I can think that may be a possibility are- > > • taking an allergy pill > > • trying eggplant > > • too much exercise > > • my meds not working > > > > I guess there really isn't any way to know, is there? I'd like to think it's just the 3 month flare, which to me would signal a good sign that the diet is working. But why then isn't my body responding to my meds? Is that common with the 3 month flare? Shouldn't your meds still work with a flare? > > > > Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. > > > > And for those of you that exercise- do you find that if you push yourself too hard that you flare? I'm struggling to find a healthy balance, and my doctor is thinking that the reason I'm not able to get myself in complete remission is because I'm pushing my body too hard with my workouts. Admittedly, I probably do push myself too hard for someone with active Crohn's. It's hard for me to know what a reasonable amount of exercise is, since before I was sick I was an athlete and marathon runner so I'm used to pushing my body to its limits. > > > > What do you guys think is a reasonable amount of exercise? I realize this is probably different for every person. But do you think that over-exercise can contribute to my symptoms. Sorry this is kind of off topic, but I don't know anyone personally with Crohn's so I don't know who else to ask. > > > > Sorry this post is all over the board. I'm lost as to what to do. I really don't want to end up in the hospital again. Do I need to get a second opinion from another doctor, or do I just wait this flare out since it may be the 3 month flare? How long do I wait? How long did your 3 month flare last for those of you that had it? > > > > Thanks for listening, > > > > Amber > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 LOL, you're funny! Amber > > > Such a wise one you are, especially at your age- hopefully you don't > > find that offensive, but at 16 I don't think I would have had the > > discipline and dedication to follow SCD. > > > Lol no, I'm definitely not offended =) And if you ever feel bad about > how slow you run or how 'out of shape' you are, just come work out > with me! <g> You'll feel much better! > > Cheers! > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Azathioprine 75 mg 1x per day > Prednisone 22.5 mg 1x per day > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Aw, well you've been dealing with Crohn's a lot longer than I have and I know you mentioned you have a lot of fatigue issues, so don't be so hard on yourself! I just do it, because I've had it in my routine for so long that it's a part of my life, plus it *usually* makes me feel good. That I don't have kids yet, so I actually have time! Amber > > > > > Such a wise one you are, especially at your age- hopefully you don't > > > find that offensive, but at 16 I don't think I would have had the > > > discipline and dedication to follow SCD. > > > > > > Lol no, I'm definitely not offended =) And if you ever feel bad about > > how slow you run or how 'out of shape' you are, just come work out > > with me! <g> You'll feel much better! > > > > Cheers! > > Alyssa 16 yo > > UC April 2008, dx Sept 2008 > > SCD June 2009 (restarted) > > Azathioprine 75 mg 1x per day > > Prednisone 22.5 mg 1x per day > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Amber, Thanks! I think everyone is different, but running actually seems to help me. As I increase mileage I definitely have to watch my sleep and nutrition because I can get wiped out more easily than before UC. I think it's just the extra energy going into the disease that my body wasn't using before if that makes sense. I just listen to how I feel and do what I can. I've never been a fast runner, so that's not really a concern for me. I know what you mean about having to constantly start over and rebuild that base though, it can be really frustrating. I think I've had to get into a new place mentally of just being grateful when I can do it and letting the other " runner issues " go. I'm never going to have the mileage and speeds my running friends have, but I'm out there when a lot of people who have UC/CD aren't well enough to do it. That keeps me going. If you haven't tried it before, check out trail running! In May of last year I did my first trail half marathon and it was the most challenging but awesome thing I've ever done. It's different from the road because it's not about the pace, it's more about endurance and being in the game mentally to overcome the terrain and finish. Plus, the runners are super nice and everyone has had to poo in the woods at some point during a trail run so if you've gotta go, you've gotta go and it's not a big deal. :-) There is also just something mentally healing about being out there in the woods. I love it! I have to admit to being a little scared of distance events with SCD. I have yet to figure out how I'll fuel myself for long runs and the half on race day. I'm picturing a fuel belt full of OJ/water mix, honey packets, and somehow carrying dried fruit or a banana or something. I don't know, I'll have to figure it out but there is plenty of time. Oh, and as far as pushing yourself and checking pace too much....leave your watch at home and no Garmin. Problem solved. :-) Dawn > > Hi Dawn, > > First of all, congrats on your pregnancy! > > Anyways, thanks for the inspiration! I'm glad to hear you can run successfully! Earlier on this board, there was discussion of running making you flare. I got a bit worried about it affecting me. > > After my initial diagnosis I got better enough and started running again. But then I would have my symptoms act up, so I would back off. It got to the point where I hated to have to start over each time with running, since it's one of those things you really have to build on slowly. I'm really bad about pushing myself too hard with running, because I check my pace too much. I'd probably be OK if I just ran comfortably...maybe. But realistically I don't think I'll ever be able to do another marathon without suffering serious consequences. And I definitely don't think I could put in as much training as I would need to be even close to the times I was at before. I don't know, never say never, I guess, but I'm trying to be realistic. > > Did you find your UC affected how much you could train as compared to before you got sick? When you upped your mileage, did you notice any increase in your UC symptoms? > > Good for you for not letting the disease take it away from you! I'm just trying to find what works for me. Realistically I could probably run for fun, but I don't ever expect myself to be able to run the pace I did before I got sick. > > Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Hi Amber, I actually ordered Mark's book through Amazon a couple days ago and should get it on Saturday! I'll have to let you know what I think. ) W. Lymphocytic (not Ulcerative) colitis 2.5 years Gluten and cow's milk intolerant (Enterolab) SCD 1 month Entocort 6mg/day 1/2 Imodium/day > > Hey , > > I can completely relate. I was admittedly and over-exerciser before my Crohn's diagnosis. I got caught up in the more the better, and especially with endurance events, I think it makes it hard to remember what is reasonable. But I hear you about climbing stairs! > > It's funny, I discovered Marks Daily apple right before I got sick. I enjoyed running, but at that point I felt very overtrained and was wondering if I could find more balance, I just didn't have the guts to give up training so much until I was forced to when I got sick. I visit that site occasionally and like what he posts. Do you have Mark's book? I've been thinking about getting it. I do like his perspective, and it does seem a lot more balanced. > > Thanks for sharing! > > Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 I have a Wii, and a Wii Fit. Do I use them? Sadly, no. I'm an Xboxer who just sits on her duff, wiggling her thumbs. If I ever get some energy back, I'll definitely give it a go though. That is if I can wrestle my Wii away from my dad (why does that sound so dirty?). He plays that thing for hours and hours every day, and on a single crappy game at that! I think I know where I got my OCD. Holly Crohn's SCD 12/01/08 > > Does anyone do the wii for aerobics or walking? I got one my birthday but > they bought the wrong thing--still need a balance board. Just wondered if > anyone has tried using it. > > I finally have cellulite to worry about again <g>. > > Debbie 41 cd > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 Amber, It's such a shame too because I have a few eggplant recipes that I really adore! I'll try it again eventually. The negative association I have with it isn't as bad as the one I had with another SCD recipe. With that one I just happened to get sick (in my stomach, not a flare) after eating it. I'm pretty sure that the food wasn't the culprit but the association was so strong in my mind that I couldn't bring myself to eat it anymore! Stacey > > > Also, have you guys noticed a problem with nightshades? I had been eating a lot of tomatoes, then I tried the eggplant. I don't know how to tell if that's what caused it though. > > > > > > Quote Link to comment Share on other sites More sharing options...
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